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International Epilepsy Day 2019

In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world.

Emily challenges the status quo of her mood

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A lot of things are hard when you’re in a bad mood. Even getting up in the morning and finding the energy to do everyday tasks can be hard.

International Epilepsy Day 2019

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In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world.    

Epilepsy Blog Relay: Emily on Smart Monitoring her epilepsy and seizure alert systems

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This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More

Epilepsy Blog Relay: Emily on finding comfort when seizures return

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This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Hi Living Well family, I feel like it’s been a while. I’m OK though. A couple of weeks ago, I sadly ended up in hospital after suffering a seizure that involved … Read More

Bhutan Epilepsy Project: Interview with researcher Erica McKenzie

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I recently had the opportunity to interview Erica McKenzie, a Bhutan Epilepsy Project researcher, who works with Farrah Mateen MD, PhD.

The Guinea Epilepsy Project conducts 300 patient visits free of charge

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I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project.

Epilepsy Blog Relay: The story of the Mahenge Epilepsy Clinic

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This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Mahenge Epilepsy Clinic It started in the late 1950’s when Dr. Louise Jilek-Aall discovered an unusually high number of outcasts from the Wapogoro tribe in the Mahenge Mountains, Tanzania. These outcasts … Read More

Epilepsy Blog Relay: Living Well With Epilepsy is nominated for a Her Abilities Award

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Jessica Keenan Smith, founder of Living Well With Epilepsy, has been nominated for a Her Abilities Award, a global award honoring women with disabilities.

Epilepsy Blog Relay™: Dr. Mateen Takes Mobile Technology Global for Epilepsy

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Dr. Mateen’s Story: If you are interested in innovation in Global Health, you may need to hear about the Bhutan Epilepsy Project.

The Bhutan Epilepsy Project

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Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project.

He said: Emily and Dan on dating and epilepsy

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I remember when Emily and I were first dating. My friends would ask me, “Aren’t you worried about what would happen if she has a seizure? Can you deal with that?” I would always find that such a strange question. I wanted to be with Emily for who she was as a person.

She said: Emily and Dan on dating and epilepsy

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I met Daniel properly in 2014. He had read a lot of my blogs before we even started talking, so he knew all about my condition. So I never had to break it to him that I live with this unpredictable condition of Epilepsy. Sometimes that can be one of the hardest parts in the beginning of a new relationship.

 

 

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Founder and CEO Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.

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