This post is part of the Epilepsy Blog Relay™. Follow along all month!
Dave is the father of an energetic, baseball(and hockey)-loving son who has refractory epilepsy. On Dave’s blog, Epilepsy Dad, he shares his experiences as Dad to a child with epilepsy in hopes that his words help other people who are on a similar journey. By sharing his story, Dave hopes to reach out to special needs families to let them know that they are not alone. Below is an excerpt from one of his latest posts:
Being a father is the most amazing experience of my life. It’s also the hardest, most fun, most frustrating, most rewarding, and scariest experiences of my life. I feel the pressure to give my son a very different childhood than I had and, most days, I feel ill-equipped to do so, but I am trying.
Adding to the challenge of just being a good father is being the father to a child with special needs. Even if there were a manual called How To Be a Good Dad, it’s the equivalent to trying to read that book in the dark. Every intention, every plan, every expectation went out the window and I had to start again looking through a very different lens.Read the full story