Knee tendinitis, ankles that sprain easily … most marathon runners are nagged by a particular body part that is prone to injury. My nag is my head. I have epilepsy that, for whatever reason, tends to be provoked by running. I’ll be in the middle of a run, cruising along, feeling great, and – bam! – suddenly have a seizure. Bummer when you’re trying to set a personal record.… Read More
As a child, my seizures were a very pleasant experience, but for the longest time my parents thought I was just daydreaming. I went undiagnosed until I was 8. I was having over 100 petit mal seizures a day, and my grades were so poor that I was put into English as a Second Language (ESL) courses because my teachers didn’t think I knew English.… Read More
One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened???… Read More
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More
Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More
If you are on Twitter, don’t miss this opportunity to vote for Living Well With Epilepsy in the Shorty Awards. Voting opened on January 7 and runs until February 10. This is the 5th Annual Shorty Awards and it is time for Epilepsy to get a seat at the table. I have … Read More
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Bobbie Shufani has created an intensely personal and beautifully written blog titled, “Gabriela”. It is the true story of her daughter’s struggle with epilepsy. Bobbie created the site to publish a serialized story about dealing with her daughter’s epilepsy and medical treatment (or lack thereof). I encourage you to take a moment … Read More