Anonymous Story: It’s the not knowing that scares me
One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened???… Read More
Interview with founders of new seizure monitor
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More
Kathleen’s Story: Pregnancy and Epilepsy
Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More
Nominate Epilepsy Site for a Shorty Award
If you are on Twitter, don’t miss this opportunity to vote for Living Well With Epilepsy in the Shorty Awards. Voting opened on January 7 and runs until February 10. This is the 5th Annual Shorty Awards and it is time for Epilepsy to get a seat at the table. I have … Read More
New Website Survey: Your feedback matters
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Gabriela’s Story: epilepsy deconstructed
Bobbie Shufani has created an intensely personal and beautifully written blog titled, “Gabriela”. It is the true story of her daughter’s struggle with epilepsy. Bobbie created the site to publish a serialized story about dealing with her daughter’s epilepsy and medical treatment (or lack thereof). I encourage you to take a moment … Read More
An Epilepsy Story: Living with uncontrolled epilepsy
Dan, a reader and a man living with uncontrolled epilepsy, has generously shared his story with us. Below you will find an excerpt: “For the first ten years I was relatively healthy. But the year I turned ten, I contracted viral meningitis. A few months later I was sledding in the park … Read More
Welcome to the new site!
Creating the LivingWellWithEpilepsy blog has been a wonderful adventure. Your comments and emails have shown me that it is time to upgrade to a platform that can handle all the exciting new ideas you have helped to develop. Thank You Many of you have been readers since the beginning, and I cannot … Read More