Epilepsy Blog Relay: How is epilepsy diagnosed?
The process of getting an epilepsy diagnosis can be slow. So dealing with this process requires patience, but here are a few things to expect.… Read More
Epilepsy Blog Relay: Does having one seizure mean you have epilepsy?
Does having a seizure have to mean you have epilepsy? Learn more about how the ILAE and doctors define epilepsy.… Read More
Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.… Read More
5 tips for dealing with an epilepsy diagnosis
Many of us will face a devastating diagnosis and some will even face life with a chronic illness, like Epilepsy. Here are a few tips to help.… Read More
On explaining epilepsy to peers
Being an individual living with epilepsy, the one question I get a lot is, “What is epilepsy?” The scientific definition is a chronic neurologic disorder with many possible causes including illness, brain damage, or abnormal brain development.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Dose mapping and Breakthrough Seizures, What is The Link?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.… Read More