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Survey says: Thumbs up on new epilepsy site

Earlier this month I asked for feedback on the new site. I’ve heard from a number of you and I wanted to share the preliminary results.

Two Thumbs Up
I had hoped you would like the new site, so I was pleased to find such high percentages in the “Strongly Agree” category when asked about the site design. See what I mean:

1. Do you feel the new logo more accurately represents Living Well With Epilepsy’s mission?
60% Strongly Agree

2. Do you feel the appearance of the new site is more appealing to you as a reader?
73.3% Strongly Agree

3. Do you feel the information on the new website is more easily accessible?
73.3% Strongly Agree

A few surprises
I was surprised by some answers in the demographics section. You may be too:

4. Do you have epilepsy?
71.4%  said NO

5. How old are you?
46.7% 18-24 years old
33.3% 35-42 years old

6. Are you male or female?
46.7% Male
53.3% Female
(this makes me happy since the previous design seemed to draw a predominantly female audience, which is fine, but guys get epilepsy too!)

7. How did you first learn about Living Well With Epilepsy?
38.5% Facebook
23.1% Search Engine
15.4% Twitter

The Epilepsies
Take a look at how varied the types of seizures some of these respondents experience.

8. What types of seizures do you experience?

  • Temporal Lobe Epilepsy
  • Complex Petite Mal
  • Compex Partial
  • Myoclonic Absence Epilepsy
  • Grand Mal Complex Partial
  • Idiopathic (no known cause)

Great Ideas
You also submitted some great ideas to be covered throughout the coming year. I look forward to digging in on these topics.

9. What topics would you like to see covered in the coming year?

  • How best to cope with bad times.
  • Explain fully neurosurgery along with success and failure rates.
  • AED’s success and failure rates.
  • How epilepsy affects ones memory.
  • Install Helplines 24/7
  • fundraisers
  • meds
  • new procedures
  • Teaching Awareness of epilepsy
  • Personal stories
  • diet specific posts
  • more personal posts by Jessica
  • new studies
  • more about current events in the epilepsy awareness campaign
  • Anything informing
  • Drug/medication reviews

If you have not completed the survey, there is still time.
CLICK HERE TO COMPLETE THE SURVEY

Are surprised by any of the results? Leave a comment below.

author avatar
Jessica K. Smith Founder and CEO; Executive Director
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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