Beyond medication: A tiny device making a big difference
A tiny device called AspireSR offers a little hope to Rachael, diagnosed with the rare Aicardi Syndrome, and her parents.… Read More
Living Well With Epilepsy Founder chats LIVE with the Healtheo360 team
I was recently invited to be the guest host on h360 LIVE, which is Healtheo360’s live talk show. The show was fun and I thought you might want to take a look. … Read More
Emily’s Perspective: Thoughts on the show “Epilepsy & Me”
Living with Epilepsy It’s scary, living in fear, living the unknown, not knowing when your next seizure will strike, if it’ll strike again at all. That’s what it’s like, living with an invisible disability. It’s hidden and sometimes, without warning, it can strike. I’ve lived the last 11 years of my life … Read More
Emily and Project #EpiBear – Making a change for the better
I am pleased to introduce you to Emily. She approached Living Well With Epilepsy and asked if we would do a post on Project EpiBear. I encourage you to take a moment to learn more about this young woman who is taking on epilepsy one bear at a time. – Jessica Keenan … Read More
My Vacation: Pushing the limits of my epilepsy on a wonderful get-away
This summer my family took a vacation at Hunter Mountain thanks to the generosity of some very good friends. It was our first vacation in a few years. The trip was not only relaxing, but it gave me the chance to try pushing the limits of my epilepsy in ways that surprised … Read More
Emily’s Perspective: A review of “Dings,” by Dr. Lance Fogan
On the 31st of May 2015 I received a book written by Dr. Lance Fogan. He had been in touch with me the week before and told me he wanted to send a free, signed copy for me to read. He was inspired to do so after he read about me. I … Read More
Live on WHYY: Jessica Keenan Smith talks about epilepsy
If you missed the broadcast, check out the recording of Jessica Keenan Smith, founder of Living Well With Epilepsy, as she talks about epilepsy on WHYY.… Read More
Debbie’s Story: Noel and the Angel Wings Foundation
This personal story was contributed by Debbie Fincher, mom to Noel and Board Chair and Founder of the Angel Wings Foundation, an organization which is creating a new housing model for people living with epilepsy in need of long term support. … Read More