Living with Epilepsy It’s scary, living in fear, living the unknown, not knowing when your next seizure will strike, if it’ll strike again at all. That’s what it’s like, living with an invisible disability. It’s hidden and sometimes, without warning, it can strike. I’ve lived the last 11 years of my life … Read More
I am pleased to introduce you to Emily. She approached Living Well With Epilepsy and asked if we would do a post on Project EpiBear. I encourage you to take a moment to learn more about this young woman who is taking on epilepsy one bear at a time. – Jessica Keenan … Read More
This summer my family took a vacation at Hunter Mountain thanks to the generosity of some very good friends. It was our first vacation in a few years. The trip was not only relaxing, but it gave me the chance to try pushing the limits of my epilepsy in ways that surprised … Read More
On the 31st of May 2015 I received a book written by Dr. Lance Fogan. He had been in touch with me the week before and told me he wanted to send a free, signed copy for me to read. He was inspired to do so after he read about me. I … Read More
If you missed the broadcast, check out the recording of Jessica Keenan Smith, founder of Living Well With Epilepsy, as she talks about epilepsy on WHYY.… Read More
This personal story was contributed by Debbie Fincher, mom to Noel and Board Chair and Founder of the Angel Wings Foundation, an organization which is creating a new housing model for people living with epilepsy in need of long term support. … Read More
We are now looking for someone to cover the Epilepsy Mommy column. You could be a mom living with epilepsy or a mom to a child with epilepsy. … Read More
The International Bureau of Epilepsy (IBE) and the International League Against Epilepsy (ILAE) have joined forces to establish the first International Epilepsy Day. Monday February 9th The first International Epilepsy Day will take place on Monday, 9th February 2015. Following on from this, the official day will be the second Monday of February … Read More