Epilepsy stories from around the world.
I’m seventeen, living in Geneva, Switzerland, and this is my experience. I was diagnosed with epilepsy in sixth grade after having a grand mal seizure in class. That was a pretty scary time for everyone, especially my family. We had no way of predicting that I would have epilepsy. We had no … Read More
Charles’ Story: 50 years of living with complex partial and simple partial seizures At the age of 50 years old, I currently live with complex partial and simple partial seizures. My family relocated from Florida to Ohio when I was 3 years old. That same year, I had an appendectomy whereby medical … Read More
The following epilepsy story was sent in anonymously. This person, after 48 years of living with epilepsy, has found a way to see a glimmer of hope. Check out this story. Hi, all! I am a lifelong epileptic, having been diagnosed as a child at the age of 7. I did not … Read More
Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More
JD submitted this story of how juvenile onset myoclonic epilepsy has nearly killed him several times over. JD’s Story When I was 14 (1985) I began having bizarre, frightening experiences. In the mornings, while in the bathroom, I would suddenly find myself falling to the ground without any memory of how I … Read More
Michael Z.’s story may sound familiar to many of you. I know it did to me. He has experienced many of the same things I have, from being diagnosed in his late teens, to “busting himself up” during a seizure, to having trouble with side effects. Read his story and think of … Read More
Several of you have submitted stories your personal experience with epilepsy stigma. Thank you to those of you who have submitted your stories so far. Keep them coming! Campaign Update Just a quick update on our goal of $500. To date we have raised $11. I know we can do better and … Read More
Emily has shared her epilepsy story before. She previously told us about her absence seizures but she recently began to have tonic clonic seizures as well. She wanted to share her experiences with you. If you need to catch up on Emily’s story, visit the first post at at: https://livingwellwithepilepsy.com/2013/03/emilys-story-absence-seizures-part-1.html Emily’s Update: … Read More