An inside look at Steve Wynn and Joey’s Song

 Steve Wynn  In March of 2010, Michael Gomoll lost his son suddenly to Dravet’s Syndrome, a rare form of epilepsy. Gomoll then established The Joseph Gomoll Foundation to honor his son, and began preparing for the release of the Joey’s Song project. One of the leading supporters in the Joey’s Song … Read More

Chandra Hoffman features Living Well With Epilepsy on her blog

Chandra Hoffman, author of Chosen, is featuring a piece of mine and Living Well with Epilepsy on the new Wednesday Writers section of her blog. Since graduating from Cornell University, Chandra has been an orphanage relief worker in Romania, a horse trainer in the Caribbean, a short order cook in a third world hospital, the director of a … Read More

Puppies that are making a difference

As part of their Epilepsy Awareness Month activities, the folks at UCB presented Canine Assistants with much needed supplies collected through a company wide donation drive. The supplies were presented to Canine Assistants at their graduation in support of their seizure response dogs. Canine Assistants is a non-profit organization that helps people … Read More

Are you seizure smart?

During National Epilepsy Awareness Month, the Epilepsy Foundation is asking everyone to Get Seizure Smart. It’s time to make sure we know all we can about seizure first aid, recognition of seizures and the different types of seizures. Epilepsy affects people of all ages and races, and represents one percent of the … Read More

Shining a spotlight on Dravet’s Syndrome

  Our last post provided you with information on a project called Joey’s Song. The project was created after Joey Gomoll succumbed to Dravet (pronounced Dra-vay) syndrome. This rare form of epilepsy robbed Joey of most of the ability to speak, but it didn’t stop him from communicating with everyone he met … Read More

Joey’s Song: Musicians in support of epilepsy awareness

When Michael Gomoll lost his son Joseph Martin Gomoll suddenly in March of 2010 to Dravet’s Syndrome, a rare form of epilepsy, he decided to take action. Gomoll turned his pain into an opportunity for those living with epilepsy. He established The Joseph Gomoll Foundation to honor his son and since it’s inception, the … Read More

Heading to college? Would a scholarship help?

It’s the time of year for college visits, SATs, GMATs, GREs, and all the other dreadful standarized testing. Oh and don’t forget those lengthy applications, interviews, and the rest of the nightmare that comes along with selecting the college or university of your dreams.  Meanwhile, the cost of a college education can … Read More

Yowza, now that’s epilepsy awareness!

On October 2, we thanked the 1000 of you who visited Living Well With Epilepsy over the past year. Since then (a month ago!!) I have had an additional 1000 visits to this site! This is especially important since November is Epilepsy Awareness Month. As I mentioned before, my goal was always to help fill … Read More

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