What Join the Epilepsy Foundation NJ as they raise awareness and dollars to provide education, recreation, and support to individuals living with epilepsy in New Jersey. Where/When 5K & Family Fun Walk Sunday, October 25, 2015 Liberty State Park Jersey City, NJ Family Fun Walk The 2nd Annual Glow Walk will be … Read More
This was a busy week for Living Well With Epilepsy. I was invited to speak at the BIO International Convention, which is hosted by the Biotechnology Industry Organization (BIO). We’ve been preparing for our May #LivingWellChat on May 11. And, I was invited to judge the eHealthcare Leadership Awards again. These are all great opportunities to increase epilepsy awareness.… Read More
What is #livingwellchat? #LivingWellChat is a conversation that takes place quarterly on Monday evenings starting at 8pm ET, on Twitter. Each chat covers a topic relevant to those of us living with epilepsy. What will this next chat be about? We will be chatting with the team from Self Care Catalysts who … Read More
Throughout November, Epilepsy Awareness Month, we’ll be asking for your feedback on epilepsy awareness programs. We are looking for you to tell us which programs will have the greatest impact. You decide which programs are most important to you. You Decide It’s a simple idea. Just start by answering the poll below. … Read More
Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project.… Read More
Jon Scheinman and his family are more loving and more energetic than any family I’ve met in a long time. They have kicked off a national effort called “Lemonade for Livy,” to raise funds which will go to the Epilepsy Foundation to support epilepsy research. How it all started Lemonade for Livy … Read More
Duncan Edwards, Director of Equip-able, Ltd, his wife Clare, have a child with Dravet’s Syndrome. When their son was young, they worried he would injure himself in his stroller on the heavy plastic tray. So Clare, in looking for a functional lap tray that would also stay put on her wheelchair, ended up creating the first Trabasack on her sewing machine. … Read More
Pictures speak louder than words Epilepsy is often an invisible condition. However, the methods used to treat epilepsy are not. I recently heard about a site which showcases photos of the prayer spaces used by Muslim women. This gave me an idea. A gallery of treatment I’d like to create a gallery … Read More