This personal story was submitted by Stephen. He is living with epilepsy and was inspired to submit his story because of a recent personal story. I hope you enjoy learning about Stephen’s experience.
I have read more and more recently about Epileptic symptoms which have been misdiagnosed, in certain cases actually being psychosomatic. However, my EEG was apparently conclusive, and according to the specialist I have Epilepsy. I wish it was not the case, but I appear to be stuck with it. I know that everyone’s Epilepsy is very personal and often it is very difficult to compare so I am asking how do any of us go about understanding the nature of what is afflicting us?
Stephanie’s inspiring story
Stephanie’s story was inspirational as it did offer a glimpse into something that challenged what seems impossible. I am on one medication and as far as I can see it has made no difference. My Epilepsy started four years ago and although my seizures are very intermittent they usually hospitalize me and despite the anticonvulsant medication dose I take (they keep on increasing it), the seizures are just as they ever were; for this reason I may as well not be taking it.
I am of course aware of the dangers of stopping your medication but I hoped that there maybe some insight out there on how to gradually reduce my dose safely. I think stress was what originally brought my seizures on, something which I know I have now for the most part conquered. It is my belief however, that it is my occasional lapse in taking medication that is now causing the seizures.
This I feel is ironic and is very much the cure being worse than the illness. I understand that there are a lot of very good doctors out there but it is the everyday people who suffer with this awful illness that are best placed to comment as we are the ones who are effected on a daily basis. I want fight this thing on my own terms. Where do I start?
Let Stephen know he is not alone with a comment below or by submitting your own personal story.