Life with epilepsy in high school
Jordan is 16 years old and a junior in high school and she’s had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy.
Epilepsy Blog Relay: Avery’s Fight With Nonketotic Hyperglycinemia (NKH)
Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia).
Epilepsy Blog Relay: Pregnancy, epilepsy and finding gratitude
Stephanie shares her experience with epilepsy, pregnancy and finding gratitude through it all.
Epilepsy Blog Relay: I’m tired of fighting within the epilepsy community
Frankly I’m tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work.
Epilepsy Blog Relay: Taking on Imposter Syndrome and Epilepsy
Currently, Jamie is feeling a sense of imposter syndrome when it comes to her epilepsy. She’s come up with a few ways to tackle it.
Epilepsy Blog Relay: Epilepsy and planning a family
Alison and husband Preston have talked about planning a family but they knew her epilepsy would mean taking some extra steps. Here she shares their journey.
Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.
Epilepsy Blog Relay: New epilepsy diagnosis after seven years
After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She’s now a year seizure free!