On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).
On being resilient when it all seems to be too much
Amanda encourages readers to remember we are resilient, as we manage the pandemic, seasonal changes and a chronic condition.
On showing up for yourself despite your diagnosis
Lauren shares her experinence of “showing up for yourself” after her diagnosis of epilepsy.
The journey to practicing gratitude during difficult times
Recently Colleen was sick and hadn’t eaten in days. Jenny shares her experience with practicing gratitude during this difficult time.
Epilepsy in Kenyan Villages and why community matters
Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month.
Alison shares her experience with a 16 day stereo-EEG stay
Alison shares her journey from to neurocognitive testing to her stay in an Epilepsy Monitoring Unit (EMU) for a 16-Day stereo-EEG(sEEG).
One woman’s journey with epilepsy in Zimbabwe
Lisa, who has grown up in Zimbabwe and Kenya, shares how living with epilepsy has had both a physical and psychological effect on her.
Raising epilepsy awareness in Uganda
This year has been so difficult for everyone, but for people living with Epilepsy in Uganda the situation has become unimaginable. Gideon Ronie is doing something about it to support what he refers to as the Epilepsy Awareness Uganda family.