This personal story was submitted by Rachel who is living with epilepsy and now feels she is not alone thanks in part to your stories. I hope you enjoy getting to know Rachel’s story and benefit from her experience as much as I have.
I started having several grand mal seizures daily when I was 9 years old, after a suspected fluoride poisoning at the dentist office. I have had seizures ever since.
According to the World Health Organization, “Acute high-level exposure to fluoride causes immediate effects of abdominal pain, excessive saliva, nausea and vomiting. Seizures and muscle spasms may also occur. Acute high-level exposure to fluoride is rare and usually due to accidental contamination.”
Depending on the effectiveness of my current medication I will have anywhere from 1 seizure a year to as often as 3 seizures a month. I have battled with the side effects that the anti-convulsant medications have caused me over the years. I have tried 5 types of medicine so far and my doctor is discussing adding another one to my daily routine. He also wants me to look into getting the brain implant to control my neuron impulses.
Not alone anymore
I am 24 years old now and I am getting married next June. Epilepsy has been very hard for me because for some reason, I always thought of myself as broken, or weird, even alone. Then I learned that 1 in 26 people statistically will develop epilepsy in their life times.
I no longer feel alone. I feel as though what I struggle with is… in a way…. normal. My brain doesn’t always function correctly and it causes seizures, but I am not alone, and I am not helpless. I feel empowered and I hope that anyone else that has epilepsy feels that way too. We are not alone.