This personal story submitted by Rich who has lived with psychomotor seizures for 60 years. I hope you enjoy getting to know Rich’s story and benefit from his experience as much as I have.
I have now had psychomotor seizures (along with a few grand mal) for 60 years. They started when I was in the 3rd grade. When I was two years old I fell from a second story window onto the concrete sidewalk below. I could have very easily died then. Instead I have lived to the age of 69 with the problem of epilepsy.
Life so far
Since then I’ve graduated from high school, college and graduate school. I’ve been married for 40+ yrs., and I was a university librarian for 30 years before I retired.
I had a pretty normal childhood. Fishing, camping, basketball, Boy Scouts – normal kinds of stuff. I even traveled through Europe by myself. After college I traveled through Europe on my own. At age 16, however, I was not allowed to get a driver’s license. Bummer of bummers! I have never driven, and that continues to be a big irritation and inconvenience. My wife, Betty, will take me anywhere I need to go. We generally have a pretty full life.
More than 50 years of seizures
I now have about 5 seizures per month. I remember that when I was a child, doctors and my parents kept telling me that I’d “grow out of them”, but that never happened. I’ve taken countless thousands of pills, still the seizures persist. My VNS has been the biggest deterrent to the seizures, although they persist. I’ve never found anyone else who has had seizures for 50 years or more. I’d like to know if there is somebody besides myself out there who has.