We’ve gathered personal stories from people around the world who are also living with epilepsy so we can gain strength from each other’s experience.
Life with epilepsy in high school
Jordan is 16 years old and a junior in high school and she's had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy. Read More
Epilepsy Blog Relay: Avery’s Fight With Nonketotic Hyperglycinemia (NKH)
Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia). Read More
Epilepsy Blog Relay: Pregnancy, epilepsy and finding gratitude
Stephanie shares her experience with epilepsy, pregnancy and finding gratitude through it all. Read More
Epilepsy Blog Relay: I’m tired of fighting within the epilepsy community
Frankly I'm tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work. Read More
Epilepsy Blog Relay: Taking on Imposter Syndrome and Epilepsy
Currently, Jamie is feeling a sense of imposter syndrome when it comes to her epilepsy. She's come up with a few ways to tackle it. Read More
Epilepsy Blog Relay: Epilepsy and planning a family
Alison and husband Preston have talked about planning a family but they knew her epilepsy would mean taking some extra steps. Here she shares their journey. Read More
Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my "5-yr survival rate" was 39%. Yet it's taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP. Read More
Epilepsy Blog Relay: New epilepsy diagnosis after seven years
After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She's now a year seizure free! Read More
Epilepsy Blog Relay: Developing a creative life while managing epilepsy
Caroline has found that managing her epilepsy has allowed her to be true to herself and focus on the creative work she is passionate about. Read More
Epilepsy Blog Relay: A soon to be graduate searches for hope
Amanda's passion has always been to be a writer, and more specifically a journalist. She shares her adventures and stressors when dealing with her epilepsy as this soon to be graduate searches for hope. Read More
Epilepsy Blog Relay: Coach gets honest about her epilepsy diagnosis
Despite fear and shame from stigma, this metabolic coach is ready to go public about her epilepsy diagnosis. Read how she found the strength to share her story. Read More
Epilepsy Blog Relay: A seizure while driving made her hopeful
If Epilepsy has taught me anything, it’s that changing my goals is not failing. I had an absence seizure while driving on the freeway. I am more hopeful because my best friend Emily loves me... Read More