We’ve gathered personal stories from people around the world who are also living with epilepsy so we can gain strength from each other’s experience.
Sheri’s Story: Learning to Live All Over with Refractory Epilepsy
Sheri was diagnosed with refractory epilepsy in her late 20's. She keeps a positive attitude, but transportation can be difficult. Read More
Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy. Read More
Epilepsy Stigma: Afraid to tell others about epilepsy
Stigma is still an issue for those living with epilepsy. So, it's understandable why we are afraid to tell others about our condition. Let's talk about epilepsy stigma. Read More
Is it a seizure or a dream?
You know that dream where you realize you are naked or nearly naked in a public place... the one where you are barefoot walking down a long hallway in a large hotel with no idea... Read More
Life after an epilepsy diagnosis: Rafaela reminds us, we can be happy
Rafaela has shared her story to show that is possible to have an amazing life after an epilepsy diagnosis. Read More
A Lifetime with epilepsy and a little help from VNS Therapy
Betty Gail’s Story My journey with epilepsy began at the very young age of 6 months old. I contracted meningitis, and needed brain surgery to remove fluid that had built up on my brain. Then... Read More
Epilepsy and Pregnancy – what to expect
Abby gets honest about her own epilepsy and pregnancy. She wants women to know what to expect when they head into pregnancy with epilepsy. Read More
My Continued Journey Toward Seizure Freedom
Mary Kate shares her personal experience with XCOPRI®: "I experienced fewer seizures. I went from having multiple seizures a day to having only a handful in a three-month period." Read More
Special Needs Parenting: When it’s okay to be a helicopter parent
Jennifer shares that sometimes being a helicopter parent is just being a good parent. Read More
4 Common Epilepsy Side Effects and Tips on How to Deal with Them
Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how... Read More
Life with epilepsy in high school
Jordan is 16 years old and a junior in high school and she's had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy. Read More
Epilepsy Blog Relay: Living with Tuberous Sclerosis
Rachel’s story My name is Rachel Skaug, formerly Rachel Kaalberg, and I had epileptic seizures as a child. My seizures started at four months old, which was in 1988, and lasted until I was 10... Read More