Emily has shared her epilepsy story before. She previously told us about her absence seizures but she recently began to have tonic clonic seizures as well. She wanted to share her experiences with you. If you need to catch up on Emily’s story, visit the first post at at: http://
My life changed on 9th April 2013. I had had a lovely day, I went for a walk in the morning with my friend, then in the evening my sister came to visit. All day I had been saying i was feeling odd, I didn’t feel myself, but I was okay other than that. It was an indescribable feeling though.
It was 10pm when I said to Mum, “I’m not feeling right, I am going to go upstairs.” “Okay,” she said. I wandered upstairs, and into my room. I can’t explain the way I was feeling at that point, but things around me seemed to stop moving and I felt out of place. The next thing I knew, I came round lying on the floor, having no clue where I was, who I was and who my family were.
“What’s your name?” they asked. “Where do you live?” they asked again. I lay there, my head pounding from hitting the floor. I couldn’t move, I was cold, I felt sick and so confused. Mum called 111 and they sent for an ambulance with it being my first Tonic Clonic seizure.
My family said they heard a huge bang on the floor, followed by lots of banging on my floor that is above the living room. They left it a few seconds before realising it didn’t sound normal. They found me there, shaking on the ground.
I got admitted to a&e (accidents and emergency, or Emergency Room) where they monitored my increasing heart rate and blood sugars. This was when I was diagnosed with Tonic Clonic seizures. I have now been put on Keppra as well as being on Lamictal.
Things have been rough, and these seizures are very different to my previous ones. But they are less frequent now which is great news.