2012 has been a very exciting year in epilepsy awareness. Below are the posts that made it to this year’s Top Stories list.
Wharton partners with Living Well With Epilepsy
Team(dot)com, students from the Wharton School at the University of Pennsylvania, made it possible for Living Well With Epilepsy to transition from blog to comprehensive website.
Purple Pumpkin Project
The project was started by Ron LaMontagne to raise Epilepsy Awareness in honor of his 7 year old son. He simply asked people to paint a Halloween pumpkin purple and be ready to answer a few questions.
After losing his beautiful wife, Carolina, to SUDEP in August 2011, Eric Miller organized the first Candlelight Concert to raise awareness of epilepsy and SUDEP. This was the start of an amazing house concert series.
Personal Epilepsy Stories
You have submitted heartfelt and touching stories that continue to make a difference to others living with epilepsy all over the world. Read the stories for yourself, and you will find the writers have opened their hearts to us.
Epilepsy in social media
2012 was the second time Living Well With Epilepsy was nominated for a shorty award. It was also the year that the site made it to the top 5 nominees! Nominations for the next Shorty Awards will open soon so watch for more info.
Epilepsy Most talked about in Echoing Green Challenge
It was exciting to be the only epilepsy related project in the Echoing Green Good Maker Challenge. Our ranking was fantastic but the best part was that Living Well With Epilepsy was the most talked about project in the contest.
Coach Kill is living with epilepsy
When the Minnesota Gophers coach had a seizure on the field we took a moment to think about seizure first aid.
Living Well With Epilepsy wins Web Health Award
Living Well With Epilepsy was the only web related resource to win a Web Health Award in the 2012 Winter/Spring cycle. Other recent winners include: AARP, CDC, CVS/Caremark, Digitas Health, Everyday Health, Mayo Clinic, NIH, Penn Medicine, WebMD and more.
The most important development this year may have been the release of the Institute of Medicine Report on Epilepsy titled, “Epilepsy Across the Spectrum.”
Coming up: Watch here to see what’s on deck for 2013.
And, don’t forget to let us know how you plan to speak out next year. You can comment below so everyone join in the conversation.
Founder and CEO
Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.
Hello, Thank You for sharing this list with us. Hopefully a lot more progress will be made in epilepsy awareness in 2013!
Social Security Disability Help
I was diagnosed with epilepsy when I was two years old and I’m 51 now.
I was always refractory and there were never medications that controlled me completely.
I went through elementary school and high school having seizures.When I was young busted my chin open three times and my head open more times than I’ve been alive.
My medicine erased my memory in school when I was on Dilantin and I was on that for 36 years.It gave me a terrible memory.
I never blamed my epilepsy for the bad grades I got in school which started in 7th grade.I finished High school but only after having a lot of seizures in school.
I was a very determined person who’s seizures just got worse as I got older.
In 1982 I had brain surgery in Montreal,Canada and had surgery on my right temporal lobe but my seizures ended up coming from both sides.
I never drove a car because my seizures were never controlled.
I did get out on my own for the first time in my 20’s had move back home because of my seizures, and few years later moved out again with my sister living with me and my seizures had increased again.
My sister left saying I had someone moving in which I didn’t. I was having a lot of seizures at the time to.
By 2000 I got my 1st VNS it lasted it cut down on my seizures. I was still going down and hurting myself and busting my head open.
I’ve had 3 VNS and I’ve taken 22 different AEDs. The one thing that finally started to control my seizures but not completely was my heart pacemaker I got in 2010.