Tell the world: #IAMSUDEPAWARE

Tell the world about SUDEP

Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23.

In fact, each year an estimated 1 in 1000 people with epilepsy die from SUDEP. That’s approximately 65,000 people around the world who will die each year as a result of SUDEP.

You can make a difference

The #IAMSUDEPAWARE social media campaign, will kick off September 23 and will run through October 23. This is your opportunity to tell the world “#IAMSUDEPAWARE”. Every time the hashtag is Tweeted or Retweeted, Lundbeck will donate $1 to SUDEP Aware — up to $5,000! Donations will be made to SUDEP Aware, a Canadian charity founded in 2008, dedicated to raising SUDEP Awareness.

How to participate

There are several ways you can participate.

1| Participate in the #IAMSUDEPAWARE Thunderclap

Sign up for the IAMSUDEPAWARE Thunderclap. This platform will, on October 23, simultaneously blast one message on the Twitter, Facebook or Tumblr accounts of all those who participate. You can learn more about what a Thunderclap is and how to participate here.

2| Send your own tweet using the #IAMSUDEPAWARE hashtag

If you prefer to send your own tweet between September 23 and October 23 just remember to include the hashtag, #IAMSUDEPAWARE.

Here are a few suggestions:

> #IAMSUDEPAWARE are you? Did you know SUDEP stands for Sudden Unexpected Death in Epilepsy? Don’t miss SUDEP Awareness Day on October 23.

> #IAMSUDEPAWARE Don’t miss SUDEP Awareness Day on October 23.

> It’s never been easier to support SUDEP Awareness. Tweet #IAMSUDEPAWARE thru 10/23 and @LundbeckUS will donate $1 to @SUDEPAware

> #IAMSUDEPAWARE are you? Send out a caring thought to those who have lost their loved ones on  SUDEP Awareness Day on October 23.

> Did you know SUDEP stands for Sudden Unexpected Death in Epilepsy?  Don’t miss SUDEP Awareness Day on October 23. #IAMSUDEPAWARE

> Show the world #IAMSUDEPAWARE when you sign up for this Thunderclap campaign. Help spread #sudepawareness  @jessicaksmith @LundbeckUS @SUDEPAware

3| Donate directly to SUDEP Aware

Participants can also contribute directly to the SUDEPAware.

Watch here for more updates!

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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Epilepsy