Spread the word about SUDEP
Today, approximately 65 Million people around the world are living with epilepsy and each year, an estimated 1 in 1000 people with epilepsy die from Sudden Unexpected Death in Epilepsy (SUDEP). That’s approximately 65,000 people around the world who will die each year as a result of SUDEP.
Many people are unaware they are at risk of SUDEP. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23.
Below you will find resources to learn about Sudden Unexpected Death in Epilepsy or SUDEP
Download brochures on SUDEP in English Spanish and French from SUDEP Aware.
To learn more about SUDEP visit http://www.sudepaware.org/about_sudep.html.
The #IAMSUDEPAWARE social media campaign, will kick off September 23 and will run through October 23. This is your opportunity to tell the world “#IAMSUDEPAWARE”. Every time the hashtag is Tweeted or Retweeted, Lundbeck will donate $1 to SUDEP Aware — up to $5,000! Donations will be made to SUDEP Aware, a Canadian charity, founded in 2008.
SUDEP Awareness Day
SUDEP Awareness Day is celebrated each year on October 23. This awareness event launched in October 2014 and has been supported by over 130 epilepsy organizations from around the globe. It was originally established by SUDEP Action, a charity based in the UK that is dedicated to raising awareness of SUDEP around the world.
You can make a difference
There are several ways you can participate.
1| Participate in the #IAMSUDEPAWARE Thunderclap
Sign up for the IAMSUDEPAWARE Thunderclap, a platform that will, on October 23, simultaneously blast one message on the Twitter, Facebook or Tumblr accounts of all those who sign up for it.
What is Thunderclap?
Thunderclap is a new online crowdsourcing tool that has been used by The White House, Charity:Water, and the BBC among other leading brands and organizations. You can think of this tool as an “online flash mob.”
When you join the IAMSUDEPAWARE Thunderclap using Twitter, Facebook and Tumblr, you and others will share the same message at the same time.
What’s the goal?
We have set a goal of 100 supporters (that is social supporters, NOT $$ supporters). This includes epilepsy advocates, epilepsy caregivers and friends or family of those living with epilepsy.
How long does it take to sign up?
It only takes a few seconds.
What exactly am I agreeing to when I authorize my Facebook or Twitter account through Thunderclap?
You’re allowing Thunderclap to share a SINGLE message on your behalf. You do this by clicking on the button on the campaign page to support the Thunderclap with Twitter, Facebook, or Tumblr.
What is the message that will be sent out through Thunderclap?
Below you will find the message that will be broadcast on the Twitter, Facebook, and Tumblr platforms:
Together we can tell the world, #IAMSUDEPAWARE. SUDEP=Sudden Unexpected Death in #Epilepsy SUDEP Awareness Day: 10/23.
Will you join the Thunderclap?
Visit the #IAMSUDEPAWARE Thunderclap and show your support thru your FB or Twitter account (not dollars just social).
2| Send your own tweet using the #IAMSUDEPAWARE hashtag
Use the hashtag, #IAMSUDEPAWARE, in your own tweet.
Here are a few suggestions:
> #IAMSUDEPAWARE are you? Did you know SUDEP stands for Sudden Unexpected Death in Epilepsy? Don’t miss SUDEP Awareness Day on October 23.
> #IAMSUDEPAWARE Don’t miss SUDEP Awareness Day on October 23.
> #IAMSUDEPAWARE are you? Send out a caring thought to those who have lost their loved ones on SUDEP Awareness Day on October 23.
> Did you know SUDEP stands for Sudden Unexpected Death in Epilepsy? Don’t miss SUDEP Awareness Day on October 23. #IAMSUDEPAWARE
3| Donate directly to SUDEP Aware
Participants can also contribute directly to the SUDEP Aware.
Watch here for more updates!