Jason’s Story: Turning Empathy Into Action While Living With Epilepsy
For Jason Raether, his epilepsy diagnosis only deepened his empathy and strengthened his commitment to educating those around him.… Read More
Epilepsy Patient Advocacy and the RISE Clinical Trial
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Anne Neumann, RN, BSN, Rare Disease Marketing, Patient Advocacy and Engagement Lead at Biohaven, about her role and about RISE: A Clinical Trial For Epilepsy. Background on Ms. Neumann Anne brings over 25 years’ experience in healthcare, from … Read More
CURE Epilepsy Hosts Event to Kick Off Epilepsy Awareness Month
The CURE Epilepsy team has invited me to share info on a fundraising event they are hosting in NYC in honor of Epilepsy Awareness Month. This unique event will feature famous soprano Renée Fleming in conversation with a neurologist, a music therapist, and our immediate past board chair Kelly Cervantes about the … Read More
Interview with Biohaven Medical Director on RISE A Clinical Trial For Epilepsy
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Jason Lerner, MD, Medical Director Research and Development at Biohaven, a board-certified pediatric neurologist and epileptologist about his role and about RISE: A Clinical Trial For Epilepsy. Background on Dr. Lerner Before joining Biohaven in the spring of … Read More
Epilepsy Blog Relay: The Tuholskys manage epilepsy together as a family
Meet the Tuholsky family and learn about their journey with their son Kyle’s epilepsy. They are remaining positive and advocating for better seizure control.… Read More
Pro Golfer Kenzie O’Connell On Taking Control of Her Epilepsy and Fighting for Zero Seizures
STEPS Toward Zero champion, Kenzie O’Connell, and epilepsy advocate, Landis Wiedner, share about their experiences living with and managing epilepsy… Read More
Meet Natalie: STEPS Toward Zero Champion
STEPS Toward Zero is a movement developed by SK life science, featuring epilepsy advocate Natalie Beavers founder of Angels of Epilepsy.… Read More
Make the most of your next doctor’s visit with the STEPS discussion tool
You can now use the “Seize the Truth About Epilepsy Perceptions” (STEP) Survey” Discussion Tool, developed by SK Life Science, Inc., to prepare for your next doctor’s appointment.… Read More