Sudden Unexplained Death in Epilepsy (SUDEP), refers to the unexpected death of an otherwise healthy person with epilepsy, where no cause of death can been found.
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More
This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I … Read More
Having both epilepsy and cerebral palsy, Colleen’s life began with so much uncertainty. As she’s gotten older, tech has played a key role in our life.… Read More
Tell the world about SUDEP Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23. In fact, each year an estimated 1 in … Read More
I am a firm believer in signs, not the type that are physically positioned throughout our daily lives, but those that are spiritually given to us when we need them most.… Read More
Our world revolved around seizures; therefore, many of our family “traditions” were altered. Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives. This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized. As time progressed, though, we learned … Read More
Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story.… Read More
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind. … Read More