Talking about stigma on facebook

On Facebook, we’ve been talking about stigma from epilepsy. It is great to see how willing everyone is to talk about their experiences.

I just wanted to take a minute to add a special post here so no one missed out on the conversation.

Check out the questions

I’ve posed several questions. The they are:

What is the biggest problem you face (or your child faces) as a person with epilepsy? (besides having seizures!)

What does “stigma from epilepsy” mean to you?

How has stigma from epilepsy impacted you or your child personally? (it’s important for us all to see that we share common experiences!)

All you have to do is ask

I was pleasantly surprised to find out how many people were willing to talk about stigma from epilepsy when they were asked. Sometimes its just a matter of not being afraid to talk about the elephant in the room.

Common experience draws us together

I encourage you to take a look at the responses. You may be surprised at how familiar the answers are. The common themes are: isolation, inability to do the things you love to do, fear and anxiety.

Check it out at Facebook.com/livingwellwithepilepsy. Add to the conversation. Lend your voice.