Epilepsy in the Philippines

Living Well recently had visitors from the Philippines. As a way to welcome these folks, we’d like to take a minute to shine a spotlight on the Philippine League Against Epilepsy (PLAE). PLAE is recognized as the Philippines national chapter of the International League Against Epilepsy, with regional representation throughout the country. The … Read More

Best of 2010

This has been a big year for Living Well With Epilepsy. We’ve had more than 3,000 visits from people all over the world, including locations as far reaching as Indonesia, New Zealand, Chile, and Tunisia. Your continued support and your feedback (both in the comments section and via email) have helped to … Read More

$20,000 wish comes true for teen with epilepsy

Recently in West Nyack, NY a wish came true for Matthew Von Dollen. This 18 year old, who has epilepsy, was given the gift of independence. Because his seizures are resistant to treatment, Matthew’s family is afraid to leave him alone. Now thanks to Canine Assistants, he will be able to enjoy … Read More

Epilepsy gifts that make an impact

Epilepsy Gift Guide During this season of holiday parties and gift giving, I thought it would be fun to see what’s available in epilepsy gifts. I was surprised to find that there are many options for contributing to the cause and increasing awareness by way of a holiday gift. Since everyone loves … Read More

Meet Kyle and Rose: The KARE Foundation

The Kyle and Rose Epilepsy Foundation (KARE) was formed in 2010, and is committed to raising awareness, support and a finding a cure. In a letter to her son, Rose writes: “It is my hope and desire that what I build today will be the foundation of your future.  I want to … Read More

Is your school Thinking About Epilepsy?

The Epilepsy Foundation of New Jersey (EFNJ) has been tackling the topic of epilepsy in schools all over the New Jersey. In fact, since 2007 the organization, in conjunction with the Anita Kaufmann Foundation, has educated over 20,000 fifth grade students on the topic of epilepsy using a program called Thinking About … Read More

An inside look at Steve Wynn and Joey’s Song

 Steve Wynn  In March of 2010, Michael Gomoll lost his son suddenly to Dravet’s Syndrome, a rare form of epilepsy. Gomoll then established The Joseph Gomoll Foundation to honor his son, and began preparing for the release of the Joey’s Song project. One of the leading supporters in the Joey’s Song … Read More

1 104 105 106 107 108 109 110 112