Epilepsy and Pregnancy – what to expect
Abby gets honest about her own epilepsy and pregnancy. She wants women to know what to expect when they head into pregnancy with epilepsy.… Read More
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Special Needs Parenting: When it’s okay to be a helicopter parent
Jennifer shares that sometimes being a helicopter parent is just being a good parent.… Read More
4 Common Epilepsy Side Effects and Tips on How to Deal with Them
Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how I have dealt with these side effects, and my solutions may not work for you. Also, some … Read More
5 Tips for Starting a New Job with Epilepsy
A while back I started a new job as therapist. Having completed graduate school, I was so happy to be working in my field. Despite my excitement, my new job brought challenges. One of those challenges included management of my seizures. I developed new triggers and had to rework my daily routine … Read More
Epilepsy Blog Relay: Living with Tuberous Sclerosis
Rachel’s story My name is Rachel Skaug, formerly Rachel Kaalberg, and I had epileptic seizures as a child. My seizures started at four months old, which was in 1988, and lasted until I was 10 years old. I am from Madison, Wisconsin. Much of my testing happened at Mayo Clinic in Rochester, … Read More
Reimagining The Third Door Following an Epilepsy Diagnosis
Landis shares how her epilepsy diagnosis caused her to reimagine Alex Banayan’s concept of The Third Door.… Read More
5 tips for dealing with an epilepsy diagnosis
Many of us will face a devastating diagnosis and some will even face life with a chronic illness, like Epilepsy. Here are a few tips to help.… Read More