Living Well With Epilepsy’s, Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. The theme is: “EPILEPSY AWARENESS: Stronger Together”
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Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don’t miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with kids.
Mary Kate shares her personal experience with XCOPRI®: “I experienced fewer seizures. I went from having multiple seizures a day to having only a handful in a three-month period.”
Jennifer shares that sometimes being a helicopter parent is just being a good parent.
Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how I have dealt with these side effects, and my solutions may not work for you. Also, some … Read More
Maureen shares practical tips on how to take back your independence when you don’t have a license.
Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey.
Jordan is 16 years old and a junior in high school and she’s had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy.
