Bryan Farley a photographer with epilepsy, who is also a dear friend, attended the National Walk for Epilepsy in DC. He writes a column for the Epilepsy Foundation’s blog which he has titled 2012 National Walk and Social Media. You can check out the gallery of 200 photos here:http://epilepsyfoundation.ning.com/profiles/blogs/2012-national-walk-for-epilepsy-and-social-media Bryan also asks … Read More
On March 31, an estimated 5,000 people affected by epilepsy came together on the National Mall in Washington, DC, to participate in the Epilepsy Foundation’s Sixth National Walk for Epilepsy. At the walk, UCB, debuted the “My Four Words” project, challenging attendees to express their personal journey with epilepsy in just four … Read More
If you’ve read Epilepsy by the Numbers, you know that epilepsy is our nation’s most common neurological disorders, yet the public’s understanding of the disorder is limited. In many cases (70%) there is no known cause for a patient’s epilepsy. Many people aren’t even sure what they should do if they see … Read More
You may have noticed the purple ribbons now gracing the background on Living Well With Epilepsy. The ribbons went up just in time for Purple Day which, judging by the buzz across social media outlets, was a great success. The ribbons will stay up all week through Saturday, March 31 when families … Read More
The Journal of American Medical Association (JAMA) recently published a study on the viability of early surgical therapy for drug-resistant temporal lobe epilepsy. Why surgery? Jerome Engel, Jr., MD, PhD, along with 13 other leaders in the field of Neurology have taken on the issue of why, despite reported success, surgery for … Read More
Purple Day in Kenya Have anything purple in your closet? No? Then you may want to start to think creatively because Purple Day is just around the corner. Purple Day, March 26, 2012, is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. History of Purple DayOn March 26th each … Read More
Eric Miller’s wife, Carolina, was 25 years old when she passed away in August 2011 as a result of SUDEP. Since her passing last summer, Eric has been working on The Candlelight Concert for Epilepsy, which will honor those that have been lost to SUDEP and those that continue the daily struggle … Read More
This week Living Well With Epilepsy hosted a Google+ Hangout with some amazing people. The video chat gave me the chance to talk face-to-face with other folks actively involved in getting the word out about epilepsy. From across the countryThe group consisted of bloggers, artists, people with epilepsy, parents, writers, videographers, and … Read More