Hello from Our Epilepsy Founder
Welcome to our first edition of The Epilepsy Minute, filled with some real talk from people living with epilepsy (like me and others around the world), what’s the latest at LWWE, and some epilepsy info you should know.
Epilepsy Walks and Epilepsy Awareness Month will be here before we know it. Of course this time of year looks different for everyone. For some it’s an opportunity to become a loud and proud advocate, and for others it is a bittersweet reminder of loved ones, or experiences lost. Either way, we’re thinking of you!
Some of you may know I took a little break from social media and newsletters in recent months. My ovarian cancer journey, the state of the US, and the importance of our epilepsy coaching has taken priority. Now I’m back, and with lots to talk about.
Included in this edition you will learn about:
- rescue meds at school
- protections afforded by the IDEA act
- summer travel tips
- how to take advantage of free epilepsy coaching
I can’t wait to share these regular updates with you and connect you with the amazing resources in the epilepsy community.
Best, Jessica
Epilepsy Rescue Meds at School
This time of year kids and adults with epilepsy are heading back to elementary and high school, college and grad school. In preparation, we have put together an article on 5 things to remember about administering rescue medications.
IDEAs for Back to School with Epilepsy
To parents of children with epilepsy, heading back to school can feel like heading into a hurricane. But it can help to know there are resources available to you and your family. Included are websites on how to talk to school about epilepsy and information on the Individuals with Disabilities Education Act (IDEA).
It is important for all parents of children with epilepsy to know that IDEA exists for your protection. I’ve shared some resources available at understood.org.
Summer Travel and Epilepsy
Ever wondered if there is a link between air travel and increased seizure activity? Yeah, we have too. And while this article won’t definitively answer your question it will let you know you are certainly not alone in raising that question.
Epilepsy Coaching is FREE
Have you ever left your neurologist appt with more questions than answers? Or were you left half-way between appointments with a really frustrating issue. And to make matters worse that issue seems to have nothing to do with your meds or your seizures but is definitely caused by your epilepsy! Yup been there.
That’s why we started offering epilepsy coaching. You know just like they offer for Diabetes, Cancer, Heart Disease and other chronic illnesses. And what’s even better is it’s free!
Learn More to take advantage of this free service.
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