Anonymous Story: It’s the not knowing that scares me
One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened???… Read More
Anonymous Story: Seizureless in Seattle
Seizures have been a part of my life for 15 of my 34 years. Initially medication was able to control them. However at the age of 31 things changed. I had to give up driving & my teaching career. Thanks to brain surgery I have been seizure-free for a year.… Read More
Tips on how to apply for Social Security Disability Benefits
Social Security Disability Benefits and Epilepsy Guest post by Molly Clark Some people who have epilepsy experience severely debilitating forms of the condition. If epilepsy prevents you from keeping a job or earning a living, you may qualify for Social Security Disability (SSD) benefits. Disability benefits can be used to offset lost … Read More
Interview with founders of new seizure monitor
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More
2013 Reader Survey: Tell us what you think
It’s time for the annual Living Well With Epilepsy reader survey. We did this last year and found it very helpful. This survey is a great way for us to make sure we are on track with what you want from the site. Please take a minute to answer this brief 10 … Read More
Sophie’s Story: A teen experience with seizures
I’m seventeen, living in Geneva, Switzerland, and this is my experience. I was diagnosed with epilepsy in sixth grade after having a grand mal seizure in class. That was a pretty scary time for everyone, especially my family. We had no way of predicting that I would have epilepsy. We had no … Read More
Irish and Lucky: an anonymous epilepsy story of hope
The following epilepsy story was sent in anonymously. This person, after 48 years of living with epilepsy, has found a way to see a glimmer of hope. Check out this story. Hi, all! I am a lifelong epileptic, having been diagnosed as a child at the age of 7. I did not … Read More
Kathleen’s Story: Pregnancy and Epilepsy
Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More