Epilepsy stories from around the world.
JD submitted this story of how juvenile onset myoclonic epilepsy has nearly killed him several times over. JD’s Story When I was 14 (1985) I began having bizarre, frightening experiences. In the mornings, while in the bathroom, I would suddenly find myself falling to the ground without any memory of how I … Read More
Michael Z.’s story may sound familiar to many of you. I know it did to me. He has experienced many of the same things I have, from being diagnosed in his late teens, to “busting himself up” during a seizure, to having trouble with side effects. Read his story and think of … Read More
Several of you have submitted stories your personal experience with epilepsy stigma. Thank you to those of you who have submitted your stories so far. Keep them coming! Campaign Update Just a quick update on our goal of $500. To date we have raised $11. I know we can do better and … Read More
A talented young artist by the name of Ashley Shaffer created “Hope” the beautiful artwork you see here. Ashley has shared her art as part of our Epilepsy Stigma Awareness Month. Creating Hope Ashley was inspired to create this beautiful multi-media piece titled, “Hope” (2013) and has dedicated the piece to inspire … Read More
We have been talking about words on Facebook this week. More specifically, what is that one word that you would use to describe how having epilepsy makes you feel. I was feeling a few words this week and none of them were of the positive variety. Mainly because I found out another … Read More
Emily has shared her epilepsy story before. She previously told us about her absence seizures but she recently began to have tonic clonic seizures as well. She wanted to share her experiences with you. If you need to catch up on Emily’s story, visit the first post at at: https://livingwellwithepilepsy.com/2013/03/emilys-story-absence-seizures-part-1.html Emily’s Update: … Read More
On Facebook, we’ve been talking about stigma from epilepsy. It is great to see how willing everyone is to talk about their experiences. I just wanted to take a minute to add a special post here so no one missed out on the conversation. Check out the questions I’ve posed several questions. … Read More
A while back I heard from my friend Mandy, you may know her as EpilepsyBlogger. I was sad and frightened to learn that her seizure activity had dramatically increased. See, for as long as I’ve known this amazing young woman, she has proven herself to be a strong and smart advocate for … Read More