This Month in Review: One tweet can change the world

Would you believe that one tweet can change the world? I’ve recently discovered the Shorty Awards on twitter. With your help, I could win a Shorty in #health. I hope to use it as a vehicle to raise even more awareness for epilepsy awareness.

All you need you do is to tweet the following:

“I nominate @jessicaksmith for a Shorty Award in #health because of the impact she has had on epilepsy awareness through Twitter.”

All tweets will be recognized and reciprocated!

Stuart Ross McCallum shares his story in Beyond My Control

I recently reached out to Stuart Ross McCallum, author of Beyond My Control, the poignant story of the author’s life with epilepsy and his fight to create a normal life for himself and his family. Read on for a sneak peek at this moving story. More

Ideas for a movie: Submit to the Neuro Film Festival

Each year the American Academy of Neurology hosts the Neuro Film Festival as a way to shine a spotlight on the fact that one in six Americans are affected by a brain disorder such as epilepsy, Alzheimer’s disease, migraine, autism, MS, Parkinson’s disease, ALS, stroke, and more. More

The inside scoop on the Joey’s Song release party

After a months of hard work, the Joey’s Song album is ready, and will be released later this month. Kevin Baird and Michael Gomoll of the Joseph Gomoll Foundation would like to express their thanks to all those who helped the Foundation reach their Kickstarter goal. You helped them raise $7,620 for Joey’s Song. That money will help cover the manufacturing costs which means, every single cent raised selling the Joey’s Song albums can go directly to the Epilepsy Foundation. More

Epilepsy Resolution or Revolution

Rather than a generic list of resolutions, I’d like to begin 2011 featuring your epilepsy New Year’s Resolutions. I sent a request out via twitter to send me resolutions.

Mike in Mississauga, Ontario, Canada said:

“My main resolution is to raise more awareness. Subsequently I plan to hold a 10k plus fundraiser for Epilepsy Halton Peel and research.” More

What did you think of these stories? Let us know by leaving a comment below.

Next up: In honor of African American History Month throughout February, many of our stories shine a spotlight on this community. For more information right now visit: Epilepsy and the African American community.

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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