Throughout November, Epilepsy Awareness Month, we’ll be asking for your feedback on epilepsy awareness programs. We are looking for you to tell us which programs will have the greatest impact. You decide which programs are most important to you. You Decide It’s a simple idea. Just start by answering the poll below. … Read More
Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project.… Read More
Jon Scheinman and his family are more loving and more energetic than any family I’ve met in a long time. They have kicked off a national effort called “Lemonade for Livy,” to raise funds which will go to the Epilepsy Foundation to support epilepsy research. How it all started Lemonade for Livy … Read More
Duncan Edwards, Director of Equip-able, Ltd, his wife Clare, have a child with Dravet’s Syndrome. When their son was young, they worried he would injure himself in his stroller on the heavy plastic tray. So Clare, in looking for a functional lap tray that would also stay put on her wheelchair, ended up creating the first Trabasack on her sewing machine. … Read More
Pictures speak louder than words Epilepsy is often an invisible condition. However, the methods used to treat epilepsy are not. I recently heard about a site which showcases photos of the prayer spaces used by Muslim women. This gave me an idea. A gallery of treatment I’d like to create a gallery … Read More
Each year November is recognized as National Epilepsy Awareness Month. This is an opportunity for each of us to take a moment to spread the word about the millions of people living and dying as a result of this complex group of disorders. Here are a few opportunities to get involved: Purple … Read More
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More
On March 24, be sure to swing by the legendary Stone Pony located in Asbury Park, NJ. You won’t want to miss the Second Annual Paint the Pony Purple concert to benefit epilepsy awareness. Event Updates The team at the Epilepsy Foundation of New Jersey just let me know that a few … Read More