Epilepsy Blog Relay: Henry’s Fight with Dravet Syndrome
Henry at about 1 year old, started having seizures again but this time there was no fever. Our lives just changed forever. … Read More
Epilepsy Blog Relay: A way through a diagnosis of epilepsy
My first grand-mal seizure landed me in the hospital and really opened my eyes. When I received a diagnosis of epilepsy, I was just 23.… Read More
Epilepsy Blog Relay: Disability in the workplace
Rachel helps us understand the Americans with Disabilities Act and how it can help you advocate for yourself in the workplace.… Read More
Epilepsy Blog Relay: Raising a child with multiple chronic conditions
Rachel’s son Andrew has multiple chronic conditions including Cerebral Palsy, Lennox Gastaut Syndrome and Cortical Visual Impairment. She shares a sneak peek into raising a child with special needs.… Read More
Epilepsy Blog Relay: Ways to help with medication costs
This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along! Alison’s Story Since my diagnosis with epilepsy in 2006, I feel like I’ve tried every medication possible to try and stop my seizures. My neurologist added Fycompa in 2016, I’m still not seizure free, but … Read More
Epilepsy Blog Relay: Creative ways to raise epilepsy awareness
Most people are not aware of an illness until it touches them personally. So, Shonet started thinking about creative ways to raise epilepsy awareness. … Read More
The Americans with Disabilities Act and Epilepsy
Learn more about how the Americans with Disabilities or ADA, helped remove barriers for people with disabilities, and for people with epilepsy in particular.… Read More
After the loss: SUDEP from a family perspective
After the loss: Tonya always thought, because she was older and had more seizures, SUDEP would steal her away first. Instead, the family lost Jesy to SUDEP in 2012.… Read More