Epilepsy Stigma: Why Leila is tackling this obstacle in her own way
Epilepsy stigma is a societal problem. Addressing people one-by-one is helpful, and I hope they teach others what they have just learned.… Read More
Meet Shelby: Connecting on loss from epilepsy
Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story.… Read More
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind. … Read More
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.… Read More
An interview with CURE Grantee, Dr. Hiroki Taniguchi
Dr. Hiroki Taniguchi, CURE grantee and a research group leader with the Max Planck Florida Institute for Neuroscience (MFPI), was recently awarded $100,000 by Citizens United for Research in Epilepsy (CURE) for his efforts to study cellular structures seeking to identify pathways for treatments or cures for epilepsy. Dr. Taniguchi has generously … Read More
Epilepsy 101
When people don’t have the basic facts that’s when myths tend to fill in the blanks. So here is epilepsy in a nutshell: What is Epilepsy?Epilepsy is a chronic neurologic disorder with many possible causes. Anything that disturbs the normal pattern of neuron activity – from illness to brain damage to abnormal … Read More
Every two minutes: A new case of epilepsy is diagnosed
The Epilepsy Foundation shows on their site that there are 200,000 cases of epilepsy diagnosed each year (it appears they are referring to the US only). To put this number into perspective, it occured to me that this really amounts to a new case diagnosed every two minutes. Other Two Minute FactsEvery two … Read More
Sudden unexplained deaths in epilepsy or SUDEP
This article was originally published in 2010. As of December 2013 estimates of SUDEP, are closer to a range of 5.5% – 18%. What is SUDEP? According to the Danny Did Foundation, Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where … Read More