Living with epilepsy is a different experience for each individual, but there are common experiences we share. It helps to remember that there are millions of people around the world who are also living with epilepsy. These personal epilepsy stories may help if you are feeling isolated or alone.
Epilepsy Patient Advocacy and the RISE Clinical Trial
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Anne Neumann, RN, BSN, Rare Disease Marketing, Patient Advocacy and Engagement Lead at Biohaven, about her role and about RISE: A... Read More
Interview with Biohaven Medical Director on RISE A Clinical Trial For Epilepsy
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Jason Lerner, MD, Medical Director Research and Development at Biohaven, a board-certified pediatric neurologist and epileptologist about his role and about... Read More
How Many People are Living with Epilepsy Worldwide?
Epilepsy Worldwide Since I’ve been living with epilepsy for 40 years, and I’ve worked in health advocacy for more than 25, I can confidently say it’s time for the epilepsy community to get it together... Read More
Do Adults Need Seizure Action Plans Too?
Whether you have been living with epilepsy for years or are newly diagnosed, you may think seizure action plans (SAPs) are just for kids and are not for adults.… Read More