Living with epilepsy is a different experience for each individual, but there are common experiences we share. It helps to remember that there are millions of people around the world who are also living with epilepsy. These personal epilepsy stories may help if you are feeling isolated or alone.
Henry’s Fight with Dravet Syndrome
This family discovered after additional seizures and a genetic report that their son, Henry, has Dravet Syndrome. That's when the entire family's life changed.… Read More
Shining a spotlight on Dravet Syndrome
In honor of Dravet Syndrome Awareness Month its a great time to highlight this rare epilepsy syndrome that is difficult to diagnose and currently has no cure.… Read More
How 3 seizure triggers can guide your New Year’s Resolutions
As we head into the new year I wanted to share some tips on how your seizure triggers can help guide your New Year's Resolutions.… Read More
Shannon’s Story: Building a Strong Support System While Living With Epilepsy
Living with epilepsy is a journey full of unknowns. For Shannon, a father from Louisiana, those unknowns brought fear, loss of independence, and emotional challenges. But through resilience, advocacy, and support, he’s found hope and... Read More
Finding Strength on the “Road to Reduction”
Living with an epilepsy diagnosis means facing a road to reduction of seizures that’s rarely straight or smooth.… Read More
Strength and Resilience: Kailey and Alan’s Journey with Epilepsy
Kailey and her father Alan's journey with epilepsy has been one of perseverance and hope, marked by years of searching for the right treatment.… Read More