Living with epilepsy is a different experience for each individual, but there are common experiences we share. It helps to remember that there are millions of people around the world who are also living with epilepsy. These personal epilepsy stories may help if you are feeling isolated or alone.
On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family's experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE). Read More
Tips on how to track seizures
Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey. Read More
Three opportunities for researchers interested in developing neurotherapeutics
For the researcher interested in developing Neurotherapeutics who is looking for ways to network with experts in academia, industry, advocacy, and government here are three great opportunities. Read More
The journey to practicing gratitude during difficult times
Recently Colleen was sick and hadn't eaten in days. Jenny shares her experience with practicing gratitude during this difficult time. Read More
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails. Read More
Meet the boy behind the ketogenic diet charity, Matthew’s Friends
Emma first found out about the Ketogenic Diet when Matthew was about 2 years old. But it wasn't until he was 7 that he entered the Ketogenic Diet Clinical trial at Great Ormond Street Hospital. Read More