Living with epilepsy is a different experience for each individual, but there are common experiences we share. It helps to remember that there are millions of people around the world who are also living with epilepsy. These personal epilepsy stories may help if you are feeling isolated or alone.
Betty Gail’s Story My journey with epilepsy began at the very young age of 6 months old. I contracted meningitis, and needed brain surgery to remove fluid that had built up on my brain. Then... Read More
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare... Read More
Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don't miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with... Read More
Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how... Read More
Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey. Read More