Living Well With Epilepsy has launched a new mobile and web app just in time for Purple Day. The app, called Epilepsy Storylines, is designed to help people living with epilepsy as they manage their daily routines and communicate with their caregivers. This app is possible thanks to a partnership with Self Care Catalysts.Register on the Web Download the Mobile App
What is Epilepsy Storylines?
Epilepsy Storylines, provides people with epilepsy and their loved ones the tools they need to use the power of their own story to personalize care, create a support network, and influence the way medicine cares for people with the same condition in the future.
Our early pilot of the solution gave those living with epilepsy an opportunity to provide feedback and make suggestions for improvements. This process and the app itself elicited tremendous feedback and a great deal of enthusiasm for the technology.
Whitney of Changing Focus: Epilepsy Edition is an epilepsy advocate, speaker and blogger. She has had epilepsy for 29 years and was an early adopter of the application. She notes how the app is easy to use and tracks several different types of information relevant to someone living with epilepsy or a caregiver to someone with epilepsy. “I love that the app is so user friendly. It gives me one central place where I can keep track of my medications, my doctor appointments and it even lets me stamp how I’m feeling that day. It will give those living with epilepsy and caregivers a place to go to build their own circle of support to share their personal journey of everyday life. It’s all very similar but very different,” says Whitney.
Track Seizures – Record frequency and gain insights
Learn about Seizure First-Aid – Learn about the 4Rs of seizure response
Record Appointments – Note down all appointments to stay organized
Track medication – Add multiple medications and set reminders
Track Daily Mood – Track your own emotional health
Create your circle of support – Share your story with your loved ones
Epilepsy Storylines was created with guidance from people living with epilepsy to support those living with epilepsy and their caregivers to make the best possible daily health decisions based on the self-discovery that the app can enable. This early feedback was critical to ensuring an app that could meet the needs of the epilepsy community.
The Circle of Support allows users to invite who they want, when they want, to include in their circle of support. This can include family, peers and others affected by epilepsy. They can message or share their health data with whomever they choose.
The analytics dashboard can even be shared with their health care provider to enable more informed and focused discussions with a view of real world behaviors over time.
Where in the world is it available?
Currently the app is available in the US and in Canada. We plan to roll it out to additional countries soon!
How to download and create an account:
You can create your account by signing up at epilepsy.healthstorylines.com or by downloading the mobile app on Google Play™ by searching for epilepsy storylines. You can access your account anytime via web and mobile on your computer, tablet and phone.
Support and Feedback
If I need technical help or have feedback who can I contact?