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Epilepsy Storylines app is here

android mockLiving Well With Epilepsy has launched a new mobile and web app just in time for Purple Day. The app, called Epilepsy Storylines, is designed to help people living with epilepsy as they manage their daily routines and communicate with their caregivers. This app is possible thanks to a partnership with Self Care Catalysts.

Epilepsy Storylines is free for all users. It is available on the Web and on Google Play™. Epilepsy Storylines will also be available from the App Store℠ for phone and tablet in the coming weeks.

Register on the Web Download the Mobile App

What is Epilepsy Storylines?

Epilepsy Storylines, provides people with epilepsy and their loved ones the tools they need to use the power of their own story to personalize care, create a support network, and influence the way medicine cares for people with the same condition in the future.

Our early pilot of the solution gave those living with epilepsy an opportunity to provide feedback and make suggestions for improvements. This process and the app itself elicited tremendous feedback and a great deal of enthusiasm for the technology.

Whitney of Changing Focus: Epilepsy Edition is an epilepsy advocate, speaker and blogger. She has had epilepsy for 29 years and was an early adopter of the application. She notes how the app is easy to use and tracks several different types of information relevant to someone living with epilepsy or a caregiver to someone with epilepsy. “I love that the app is so user friendly. It gives me one central place where I can keep track of my medications, my doctor appointments and it even lets me stamp how I’m feeling that day. It will give those living with epilepsy and caregivers a place to go to build their own circle of support to share their personal journey of everyday life. It’s all very similar but very different,” says Whitney.

epilepsystorylinesWhat can the app do?

Track Seizures – Record frequency and gain insights

Learn about Seizure First-Aid – Learn about the 4Rs of seizure response

Record Appointments – Note down all appointments to stay organized

Track medication – Add multiple medications and set reminders

Track Daily Mood – Track your own emotional health

Create your circle of support – Share your story with your loved ones

Benefits

Epilepsy Storylines was created with guidance from people living with epilepsy to support those living with epilepsy and their caregivers to make the best possible daily health decisions based on the self-discovery that the app can enable. This early feedback was critical to ensuring an app that could meet the needs of the epilepsy community.

The Circle of Support allows users to invite who they want, when they want, to include in their circle of support. This can include family, peers and others affected by epilepsy. They can message or share their health data with whomever they choose.

The analytics dashboard can even be shared with their health care provider to enable more informed and focused discussions with a view of real world behaviors over time.

Where in the world is it available?

Currently the app is available in the US and in Canada. We plan to roll it out to additional countries soon!

Your account

How to download and create an account:
You can create your account by signing up at epilepsy.healthstorylines.com or by downloading the mobile app on Google Play™ by searching for epilepsy storylines. You can access your account anytime via web and mobile on your computer, tablet and phone.

Register on the Web Download the Mobile App

Support and Feedback 

If I need technical help or have feedback who can I contact?

Need some help navigating through the app or would like to learn some tips and tricks? Join a live webinar by filling out this form or send your questions to support@selfcarecatalysts.com.

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Google Play is a trademark of Google Inc. 
Apple, the Apple logo, iPhone, and iPod touch are trademarks of Apple Inc., registered in the U.S. and other countries. App Store is a service mark of Apple Inc.

Follow Jessica K. Smith:

Founder

Founder and CEO Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.

5 Responses

  1. Leila
    |

    I can’t wait to test this out!

  2. Cheryl Lally
    |

    Hi – What is Purple Day and when is it?

    Thank you!

  3. Ryland Charronsmith
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    My app freezes on my iPhone from time to time. I’ve kept it up to date, and my iPhone pretty clear of clutter but still run into this issue from time to time. Usually if I just close the app and reopen it resolves, sometimes after a few try’s. Then there are days where I can’t get in at all. Have you heard similar issues, even with updates kept current? Is there a way I could access my account online to mark off meds and track the rest of the features your great app has to offer? Thank you for having this out there, it has been a big help to me. If you want to leave your reply here that’s fine, but if I could inconvenience you to send me an email I would really appreciate it. Thank you again all!

    • Jessica Keenan Smith
      |

      I have copied your comment and will send it along to the developer. I will cc you on the email so they can respond to you directly.

      Best,
      Jessica