
Have you ever felt like your doctor or health care team doesn’t have the whole picture of how your epilepsy affects you on a day-to-day basis? Now
Epilepsy Health Storylines has a new feature just for
Android users that will get you a little closer to that complete picture when you are speaking with your doctor, loved one or caregiver.
New feature
This feature is a simple daily reminder for which allows you to easily enter important information about your health (such as mood, symptoms and medications) into the app. By regularly tracking this information you to have details on your health to share with your doctor, loved one (or just yourself!) on your
Storylines.
Little reminders
In talking to users, we’ve heard that many of you recognize the importance of tracking and monitoring their health, but need a reminder to do so. I know that is certainly true in my case. Below you will see two whiteboards currently in use in my kitchen. The first is to keep track of where everyone is throughout the week and the other is just a mind dump. In other words, don’t forget move the laundry from the washer to the dryer. It is kind of weird I know but it is necessary. So, this new feature of the app will encourage (remind) you to build your health story daily.
Super simple
This feature will triggers a reminder at
9 PM daily asking you if you would like to fill out some information about your day. Just like the whiteboard (because I hate to do laundry) there is also the option to dismiss it. But the best thing about it is that it allows you to enter information without opening
the app, so it is super quick and easy to use.
Feedback
We have only rolled this out on
Android for now, and have plans to do the same for iOS in the future. If you are an android user, give it a try and let us know what you think.
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
Leave a Reply