Last year I ran a story titled, the squeaky wheel gets the research dollars. I was trying to determine where all that research money goes when it doesn’t go toward epilepsy. After reviewing last year’s data it became clear that research money allocation doesn’t have much to do with the prevalence of … Read More
In 2008 Cassidy Megan, a little girl with epilepsy, came up with a colorful idea to raise epilepsy awareness. Her goal was, and still is, to get people talking about epilepsy in hopes that this would dispel myths and inform those with seizures that they are not alone. This little girl’s idea has become a global phenomenon … Read More
Ever considered participating in a study to benefit research on epilepsy? If you are a woman with epilepsy between the ages of 24 and 44 then Amanda Dennis, a researcher at Ibis Reproductive Health, wants to talk to you. Amanda and the folks at Ibis are looking for women to take part … Read More
A recent look at Living Well’s google analytics showed that https://www.livingwellwithepilepsy.com/, an epilepsy blog, has welcomed over 3000 unique visitors! We have an average of 25 people swing by each day. That’s a dramatic improvement from this time last year when we had an average of 2 people visiting the site each day. And at least one of those … Read More
You gave feedback … and Living Well listened. The “new” header that went away I recently uploaded a new header, logo and color scheme for the Living Well site. You as readers spoke up and said “NO”. So we are back to the old look (at least for a while). Until we … Read More
There have been a few exciting new developments at Living Well With Epilepsy that we wanted to share with you. Recently we were nominated for a shorty award, welcomed our 3000th visitor and got a new look. Shorty UpdateWhen voting closed for the Shorty Awards, epilepsy held a respectable 5th place out … Read More
According to the Epilepsy Foundation, 12 percent or more than 350,000 of the over 3 million Americans with epilepsy are African-American. African-Americans are also more likely to be diagnosed with epilepsy than Caucasians; they more often experience status epilepticus; and they are at an increased risk for Sudden Unexpected Death from Epilepsy … Read More
The Epilepsy Foundation shows on their site that there are 200,000 cases of epilepsy diagnosed each year (it appears they are referring to the US only). To put this number into perspective, it occured to me that this really amounts to a new case diagnosed every two minutes. Other Two Minute FactsEvery two … Read More