I suffered a series of tonic clonic seizures on the day my daughter graduated from college, which also happened to be my birthday.
Recently, someone asked me to talk to a small group. I wanted to choose a story that is inspiring, something that would relate to these young adults, and something that would stick with them as they started a new journey. I couldn’t help but wonder: is epilepsy my only story? Is this how people identify me…as the girl with epilepsy who ended up doing well in life, despite doctors telling me I may not?
On the 31st of May 2015 I received a book written by Dr. Lance Fogan. He had been in touch with me the week before and told me he wanted to send a free, signed copy for me to read. He was inspired to do so after he read about me. I … Read More
I’m going to be 21 in a few months and generally, Epilepsy aside, I am in a pretty healthy condition. Just recently I was given the all clear for working with Epilepsy. That means I am fit to work even though I still having a seizure every now and then. But that’s … Read More
This week the neurology community gathered in Washington, D.C. at the American Academy of Neurology Annual Meeting. I attended the meeting in my role as Director of Education and Membership for the American Neurological Association (my day job). While I was there, I had several opportunities to discuss the state of epilepsy … Read More
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More
Ask an Epileptic: “It’s time for me to change medications to reduce the side effects. Have any advice?” DEAR EPILEPTIC: I have a question regarding the transition to a new medication. I have been taking Lamictal for over 10 years and I’m tired of the side effects. Memory loss, inability to focus … Read More