Generated by All in One SEO Pro v4.9.7.2, this is an llms.txt file, used by LLMs to index the site. # #post_seo_titlefirst published onLiving Well With Epilepsy ## Sitemaps - [XML Sitemap](https://livingwellwithepilepsy.com/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [Epilepsy Blog](https://livingwellwithepilepsy.com/epilepsy-blog) - Latest epilepsy posts from Living Well With Epilepsy - [The Epilepsy Minute: August Edition](https://livingwellwithepilepsy.com/epilepsy-news-and-research/newsletter/the-epilepsy-minute-august-edition.html) - Welcome to The Epilepsy Minute, filled with real tips from people living with epilepsy, the latest at LWWE, and important epilepsy updates. - [Epilepsy Blog Relay™: Coping with the holidays](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/coping-with-the-holidays.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30, 2016. Follow along! Emily's Perspective It's the most wonderful time of the year!!! Christmas and wintertime are my favourite time of year, and for so many others too, but this festive season can be a difficult time - [Epilepsy Blog Relay: Self-care is more important than ever](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/self-care-more-is-more-important-than-ever.html) - Living with epilepsy, I’m finding self-care to be more important than ever - [4 ways to manage exhaustion](https://livingwellwithepilepsy.com/aboutepilepsy/sleep/4-ways-to-manage-exhaustion.html) - Shonet shares examples of epilepsy and fatigue in her own life and a few tips to actively avoid getting to the point of total exhaustion. - [7 Epilepsy Self-Care Tips to Try in 2025](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/self-care-tips-to-try.html) - Self-care for 2025: Dealing with change is hard, no matter how long you've had epilepsy. Here are some self-care tips to help keep you going through the year. - [Rachel tackles the mental health issue](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/rachel-tackles-the-mental-health-issue.html) - I’ve decided to do a two part series on Epilepsy and Mental Health. This month will touch on statistics and show you are not alone. Next up: support systems - [4 tips to help bust a bad mood](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/tips-to-help-bust-a-bad-mood.html) - Try these tips to bust a bad mood - [Patience and Epilepsy: A great ally when it comes to managing stress](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/patience-and-epilepsy-a-great-ally-when-it-comes-to-managing-stress.html) - Patience has been Justin's best ally when it comes to epilepsy. By recognizing side effects and memory loss can help helps to reduce stress. - [Epilepsy Blog Relay: A soon to be graduate searches for hope](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/epilepsy-blog-relay-a-soon-to-be-graduate-searches-for-hope.html) - Amanda's passion has always been to be a writer. She shares her adventures when dealing with her epilepsy as this soon to be graduate searches for hope. - [Interview with founders of new seizure monitor](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-monitor-beta.html) - I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard about Living Well - [Epilepsy Blog Relay: Emily on using the Embrace2 to track her Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/embrace2.html) - I was reluctant to purchase the Embrace2 at first, but I've found this watch has allowed me to feel like I have my independence. - [Epilepsy Blog Relay: Improving Adherence Requires a Team Approach](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/improving-adherence-requires-a-team-approach.html) - Medication "adherence is a crucial part of the journey toward seizure freedom, but for many people with epilepsy, taking their medications on schedule can be very difficult,” said Lucretia Long, APRN-CNP, Ohio State University Wexner Medical Center - [Dr Ingo Helbig on Epilepsy, Genes, and Dravet Syndrome](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/dravet-syndrome/dr-ingo-helbig-on-epilepsy-genes-and-dravet-syndrome.html) - In honor of Dravet Syndrome Awareness Month we wanted to highlight the important advances being made in testing genes in the area of epilepsy. - [Meet the boy behind the ketogenic diet charity, Matthew's Friends](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet/meet-the-boy-behind-the-ketogenic-diet-charity-matthews-friends.html) - Matthew's mother first learned about the Ketogenic Diet when he was about 2 years old, but doctors hesitated to start him on it until he was 7. - [A Father's Day Note to the Best Dad Ever](https://livingwellwithepilepsy.com/life-with-epilepsy/family/fathers-day-note-to-the-best-dad-ever.html) - Happy Father’s Day to you Dave, and also to all the great dads like you who put their child with special needs first. You are all great dads. - [Traveling with Epilepsy: Does air travel impact seizures?](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/traveling-epilepsy-air-travel-altitude-lower-seizure-threshold.html) - Recently, this author met others living with epilepsy who said air travel had caused an increase in seizures. Doctors said it was most likely stress related. - [Henry’s Fight with Dravet Syndrome](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/dravet-syndrome/henrys-fight-with-dravet-syndrome.html) - This family discovered after additional seizures and a genetic report that their son, Henry, has Dravet Syndrome. That's when the entire family's life changed. - [Father's Day: It's time to say thanks](https://livingwellwithepilepsy.com/life-with-epilepsy/family/fathers-day-its-time-to-say-thanks.html) - On this Father's Day I would like to take a minute to publicly say thank you for all my dad has done for me. - [Bryan on Being a Father and Living Well With Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/bryan-on-living-well-with-epilepsy.html) - Bryan had his first seizure at 16. He didn't expect to “live well with epilepsy,” in fact, he hoped to live well in denial. He sure didn't expect to be a dad. - [On Being a Dad to a Child with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/dad-to-child-with-epilepsy.html) - On Dave's blog, Epilepsy Dad, he shares his experiences as Dad to a child with epilepsy. Check out what he learned this Fathers Day. - [5 tips for dealing with an epilepsy diagnosis](https://livingwellwithepilepsy.com/epilepsy-stories/5-tips-for-dealing-with-an-epilepsy-diagnosis.html) - Many of us will face a devastating diagnosis and some will even face life with a chronic illness, like Epilepsy. Here are a few tips to help. - [Shining a spotlight on Dravet Syndrome](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/dravet-syndrome/shining-spotlight-on-dravet-syndrome.html) - In honor of Dravet Syndrome Awareness Month its a great time to highlight this rare epilepsy syndrome that is difficult to diagnose and currently has no cure. - [Epilepsy Blog Relay™: Nicholas the Brave](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/rare-epilepsy/epilepsy-blog-relay-nicholas-the-brave.html) - Nicholas was diagnosed with infantile spasms at 6 months of age. Doctors were able to control his seizures but recently they have started back up. - [Do Pesticides Have an Impact on Epilepsy?](https://livingwellwithepilepsy.com/life-with-epilepsy/food/do-pesticides-have-an-impact-on-epilepsy.html) - Sure, nutrition is on my mind, but honestly what do pesticides have to do with epilepsy? Research shows there may be a link between pesticides and epilepsy. - [Epilepsy Blog Relay: Meet Torie Robinson of Epilepsy Sparks](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-research/torie-robinson-of-epilepsy-sparks.html) - Torie Robinson is a charismatic and engaging podcast host on her show, Epilepsy Sparks. Check out one of her recent episodes on "Sex and Epilepsy. - [SUDEP risk factors and my wakeup call](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/latest-update-sudep.html) - According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide. - [Running stinks but so does SUDEP](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/running-stinks.html) - I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind. - [Epilepsy Blog Relay: Leila on PAME and SUDEP](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/leila-on-pame-and-sudep.html) - Leila attended her first PAME conference and found it was a meaningful way to connect with others in the epilepsy community to discuss SUDEP. - [After the loss: SUDEP from a family perspective](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/after-the-loss-sudep-from-a-family-perspective.html) - After the loss: Tonya always thought, because she was older and had more seizures, SUDEP would steal her away first. Instead, the family lost Jesy to SUDEP in 2012. - [On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/sudep-and-norse.html) - Comedian and actor, Bob Dibuono, shares his family's experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE). - [Epilepsy Blog Relay: My beef with SUDEP Research](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/my-beef-with-sudep-research.html) - Before I started treatment for Cancer, I knew my "5-yr survival rate" was 39%. Yet it's taken ~40 years for SUDEP research to give me a rough sense of my risk. - [Epilepsy Blog Relay: Danny Did Foundation on SUDEP](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/danny-did-foundation-and-sudep.html) - The Danny Did Foundation (DDF) has worked tirelessly since 2010 toward its mission to increase awareness of Sudden Unexpected Death in Epilepsy (SUDEP). - [The breakdown on SUDEP with Dr. Kim Pargeon](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/the-breakdown-on-sudep-with-dr-kim-pargeon.html) - In this episode, What the EF podcast tackles an audience-requested topic: SUDEP. There are so many questions, and Dr. Kim Pargeon guides through all of them. Available on your favorite streaming service! YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible Stay in touch with What the EF by following us on Insta @whattheefpodcast; subscribing - [International Epilepsy Day: One woman's journey with epilepsy in Zimbabwe](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/one-womans-journey-with-epilepsy-in-zimbabwe.html) - Lisa, who has grown up in Zimbabwe and Kenya, shares how living with epilepsy has had both a physical and psychological effect on her. - [DBT: One Piece of the Epilepsy Healthcare Puzzle](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/dbt-one-piece-of-the-epilepsy-healthcare-puzzle.html) - DBT can be an essential part of your epilepsy healthcare puzzle, helping you achieve better health through emotional and mental well-being. - [National Epilepsy Awareness Month: Why Advocacy Matters](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/national-epilepsy-awareness-month-why-advocacy-matters.html) - November is National Epilepsy Awareness Month—a time to amplify the voices of the 3.4 million Americans living with epilepsy. - [Strength and Resilience: Kailey and Alan’s Journey with Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/strength-and-resilience-kailey-and-alans-journey-with-epilepsy.html) - Kailey and her father Alan's journey with epilepsy has been one of perseverance and hope, marked by years of searching for the right treatment. - [Finding Strength on the “Road to Reduction”](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/finding-strength-on-the-road-to-reduction.html) - Living with an epilepsy diagnosis means facing a road to reduction of seizures that’s rarely straight or smooth. - [Shannon’s Story: Building a Strong Support System While Living With Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/shannons-story-building-a-strong-support-system-while-living-with-epilepsy.html) - Living with epilepsy is a journey full of unknowns. For Shannon, a father from Louisiana, those unknowns brought fear, loss of independence, and emotional challenges. But through resilience, advocacy, and support, he’s found hope and a new path forward. - [The guy behind the American Disability Act with Tony Coelho](https://livingwellwithepilepsy.com/epilepsy-stories/the-guy-behind-the-american-disability-act-with-tony-coelho.html) - Here’s something to tell your boss--the primary sponsor of the American Disability Act also has epilepsy! What the EF podcast chats with Tony about his vigorous fight to get the ADA passed and his mind-blowing journey with seizures. Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible Stay connected to What the EF! - [My Continued Journey Toward Seizure Freedom](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/my-continued-journey-toward-seizure-freedom.html) - Mary Kate shares her personal experience with XCOPRI®: "I experienced fewer seizures. I went from having multiple seizures a day to having only a handful in a three-month period." - [Fighting for the Possibility of Zero Seizures](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/fighting-for-the-possibility-of-zero-seizures.html) - XCOPRI® patient Koral knows the challenges of living with epilepsy and the significance of potentially living with zero seizures. - [Epilepsy Blog Relay: Racing Toward Seizure Freedom](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/epilepsy-blog-relay-racing-toward-seizure-freedom.html) - Former TV news anchor and marathon runner Sarah Carlson shares about her journey with epilepsy as she races toward seizure freedom. - [4 Tips to help you track seizures](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-triggers/keep-track-of-your-seizures.html) - Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey. - [Epilepsy Blog Relay: Learn How to Make Yours Seizure Safe Schools](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-action-plans/seizure-safe-schools.html) - Colleen and Paul, a teen newly diagnosed with epilepsy, are on a mission to make seizure safe schools a requirement nationwide. - [Tune into Your Body: Mindfulness for Detecting Early Seizure Signs](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/tune-into-your-body-mindfulness-for-detecting-early-seizure-signs.html) - Mindfulness is a powerful skill in DBT that can significantly enhance your ability to manage epilepsy by detecting early seizure signs. - [How 3 seizure triggers can guide your New Year's Resolutions](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-triggers/seizure-triggers-guide-resolutions.html) - As we head into the new year, I wanted to share some tips on how your seizure triggers can help guide your New Year's Resolutions. - [It's Seizure Action Plan Awareness Week](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-action-plans/mark-your-calendar-for-seizure-action-plan-awareness-week.html) - Seizure Action Plan Awareness Week is February 13 to 20, 2023. This awareness campaign was developed and is managed by the Seizure Action Plan Coalition. - [Do Adults Need Seizure Action Plans Too?](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-action-plans/do-adults-need-seizure-action-plans-too.html) - Whether you have been living with epilepsy for years or are newly diagnosed, you may think seizure action plans (SAPs) are just for kids and are not for adults. - [What is a seizure action plan?](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-action-plans/what-is-a-seizure-action-plan.html) - A Seizure Action Plan is a personalized plan for people living with epilepsy. It tells others how to respond on your behalf during a seizure. - [Leila's Ideas: Volunteer Match](https://livingwellwithepilepsy.com/advocacy-awareness/leilas-ideas-volunteer-match.html) - There are so many people who have helped me in my epilepsy journey. Whether they’re friends, family, or organizations, I am beyond thankful for those who have spent time with me on this crazy ride. I want to volunteer with others just like I was helped, but there are so many ways to do so! - [Lemonade for Livy: Crowdsourced FUN-draising](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/lemonade-for-livy-2.html) - Jon Scheinman and his family are more loving and more energetic than any family I've met in a long time. They have kicked off a national effort called "Lemonade for Livy," to raise funds which will go to the Epilepsy Foundation to support epilepsy research. How it all started Lemonade for Livy started several years - [My Epilepsy Doesn't Just Affect Me](https://livingwellwithepilepsy.com/aboutus-lwwe/epilepsy-doesnt-just-affect-me.html) - Jessica's Story: I didn't really start Living Well With Epilepsy to tell my own story. But fair is fair, I suppose it is time to share my story. - [Announcing Our Epilepsy Blog Relay Lead Bloggers](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/nov15-announcing-our-lead-bloggers.html) - The next Epilepsy Blog Relay™ will kick off on November 1 and run through November 30 in recognition of Epilepsy Awareness Month. Each week will have a special focus and I am pleased to announce the lead bloggers for the November 2015 Epilepsy Blog Relay™: Week 1: Epilepsy in Everyday Life Lead Blogger: Maureen Knorr, - [Epilepsy Blog Relay™: Connect on the March LivingWellChat](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/connect-on-the-march-livingwellchat.html) - Join us for a fun LIVE event as a way to celebrate the end of another great Epilepsy Blog Relay. Connect with your favorite epilepsy bloggers on tonight’s #LivingWellChat on Thursday, March 31 at 7PM ET on Twitter. - [Epilepsy Blog Relay™: It's time for LivingWellChat](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/june-2016-livingwellchat.html) - Connect with your favorite Epilepsy Blog Relay™ bloggers during tonight’s LIVE #LivingWellChat on Thursday, June 30 at 7PM ET on Twitter. - [An Update on Epilepsy Awareness Initiatives](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/nov16epilepsyawareness.html) - These days the Living Well With Epilepsy team is busy working on new epilepsy awareness initiatives. - [Emily on Living with Absence Seizures](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/absence-seizures/emily-living-with-absence-seizures.html) - Emily has a positive outlook regarding epilepsy and despite living with absence seizures she has become an outspoken advocate sharing hope with others. - [Epilepsy Blog Relay: Participate in Twitter Chat on Healthcare and Epilepsy](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/twitter-chat-on-healthcare-and-epilepsy.html) - We close every Epilepsy Blog Relay™, with a live twitter chat. Today we share instructions, & questions to guide our discussion on healthcare and epilepsy. - [Epilepsy Blog Relay: It's Time for #LivingWellChat](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/epilepsy-blog-relay-its-time-for-livingwellchat.html) - This month I hope you will join us on tonight, June 30 at 7pm ET as we discuss healthcare with some of our fantastic bloggers. - [Epilepsy Awareness Day at Disneyland](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/2019epilepsy-awareness-day-at-disneyland.html) - The Living Well With Epilepsy team is excited to announce that our founder and several of our writers will be attending the 7th Annual Epilepsy Awareness Day at Disneyland (EADDL). - [On Speaking Out Via Graphics for Epilepsy Awareness](https://livingwellwithepilepsy.com/advocacy-awareness/speaking-out-for-epilepsy-awareness.html) - It's inspiring to see people within the epilepsy community speaking out whether via graphics or sharing their stories. - [Virtual Epilepsy Education Conference to Celebrate Purple Day](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/virtual-epilepsy-education-conference-to-celebrate-purple-day.html) - The virtual epilepsy education conference to celebrate Purple Day will take place March 24-26. The free conference will include educational and advocacy sessions as well as a virtual expo. - [Why was the June Epilepsy Blog Relay Delayed Until July?](https://livingwellwithepilepsy.com/advocacy-awareness/why-was-the-june-epilepsy-blog-relay-delayed-until-july.html) - I am planning to run the Epilepsy Blog Relay this July to fulfill the promise I made to you and to myself. I hope you will follow along. - [Educate one girl and you can change a whole community](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/educate-one-girl.html) - As my regular readers know, I have traveled to Tanzania over the past few years. On one of these trips in 2015, I met a lovely young lady named Eppy. Since we met, my family has sponsored her last two years of education. - [The Sacred Disease: Desperation drives a young doctor to open up about her epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/the-sacred-disease.html) - In "The Sacred Disease: My Life with Epilepsy", Kristin Seaborg, MD shares her personal epilepsy story. She was diagnosed with temporal lobe epilepsy at age 18. Though her seizures were managed fairly well during college, the grueling hours of residency training, caused Dr. Seaborg's seizures to slip out of control. - [Epilepsy Blog Relay™: Staying strong no matter what](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/staying-strong-no-matter-what.html) - As a baseball player having so many seizures (over 40-50) and being put on all sorts of medication impacts performance. So staying strong mentally and physically is really important to me. - [Epilepsy Blog Relay™: The Embrace Watch Story](https://livingwellwithepilepsy.com/life-with-epilepsy/rosalind-picard-on-the-embrace-watch.html) - Rosalind W. Picard, Sc.D. recalls, "I’ll never forget the first time I saw the [Embrace Watch] data." While I set out to build a wristband to measure stress in daily life, I realized that we’d built a wristband that could detect generalized tonic-clonic seizures. - [Epilepsy Blog Relay™: A new frame of reference](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-a-new-frame-of-reference.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you! Eric's Story At 42, I had my life completely together, working in technology, making a good deal of money, 1 kid in college, another about to go - [Rosario's Story: Learning from pain](https://livingwellwithepilepsy.com/epilepsy-stories/rosarios-story-learning-pain.html) - I've learned to breathe through the pain but, I can’t lie. Every time I see something that reminds me the worst days of my life, fear seizes me. - [Epilepsy Blog Relay™: Jenny LaBaw on Epilepsy and Fitness](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/epilepsy-blog-relay-jenny-labaw-on-epilepsy-and-fitness.html) - As a fitness professional, I encourage other people living with epilepsy (and their families) to focus on their health. This means sleeping well, keeping stress low, eating healthy and keeping active. - [Words resonate: College roommate reconnects over epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/words-resonate-college-roomate-reconnects-epilepsy.html) - I heard from my college roommate the other day with a story of witnessing a woman having a seizure in New York City and what the experience was like. - [Introducing our newest writer on epilepsy and fitness](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/abby-writes-on-epilepsy-fitness.html) - I have a passion for fitness. I love being active. It’s fun for me, and about once a year, I start getting an itch to do a half marathon. - [An interview with Greg Grunberg and Phil Gattone](https://livingwellwithepilepsy.com/advocacy-awareness/interview-with-greg-grunberg.html) - An interview with Greg Grunberg, Heroes Reborn and Star Wars: The Force Awakens actor, and Phil Gattone, President and CEO of the Epilepsy Foundation about the revitalization of the TalkAboutIt.org site. - [Jenny's Story: I'm not afraid anymore](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/im-not-afraid-anymore.html) - I've had epilepsy since I was 14 (now 31) and about 6 years ago I began to suffer from post-ictal psychosis. - [Epilepsy Blog Relay™: Maureen finds peace despite her fears](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/maureen-finds-peace-despite-her-fears.html) - The top of the waterfall in Iceland was just as beautiful and tranquil as described, perfectly reflecting this newfound sense of peace I had found. - [Emily's Perspective: Coping Styles](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/emilys-perspective-coping-styles.html) - Living with epilepsy can come with all types of difficulties. Learn about the different coping styles and how to stay healthy with Emily's advice. - [Tell the world: #IAMSUDEPAWARE](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/tell-the-world-iamsudepaware.html) - Tell the world about SUDEP Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23. In fact, each year an estimated 1 in 1000 people with - [Epilepsy Blog Relay: One woman has four tonic clonic seizures on her daughters graduation day](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/grand-mal-tonic-clonic/tonic-clonic-seizures-on-graduation-day.html) - I suffered a series of tonic clonic seizures on the day my daughter graduated from college, which also happened to be my birthday. - [Epilepsy Blog Relay: A way through a diagnosis of epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/grand-mal-tonic-clonic/a-way-through-the-diagnosis.html) - My first grand-mal seizure landed me in the hospital and really opened my eyes. When I received a diagnosis of epilepsy, I was just 23. - [Tamu's Journey with Myoclonic and Tonic Clonic Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/grand-mal-tonic-clonic/myoclonic-and-tonic-clonic-epilepsy.html) - Tamu was diagnosed with epilepsy at 14. She experienced myoclonic seizures for a several years prior to this diagnosis, and had her first tonic clonic seizure in the summer of 2014 - [Epilepsy Blog Relay: Disability in the workplace](https://livingwellwithepilepsy.com/life-with-epilepsy/work/disability-in-the-workplace.html) - The topic of disclosure in interviews and disability in the workplace has come up quite a few times in my group of epilepsy friends. - [Facebook Says Epilepsy May Offend Users](https://livingwellwithepilepsy.com/life-with-epilepsy/facebook-says-epilepsy-may-offend-users.html) - According to Facebook's advertising policies, Epilepsy is now potentially offensive to the Facebook community. - [Epilepsy Blog Relay: How stigma from epilepsy can lead to feelings of suicide](https://livingwellwithepilepsy.com/aboutepilepsy/stigma/suicide-and-the-stigma-of-epilepsy.html) - Elaine shares her own feelings of despair and suicide from the religious stigma that sees epilepsy as caused by sin. Take a moment to read her story - [Epilepsy Blog Relay: On Epilepsy and Religion](https://livingwellwithepilepsy.com/aboutepilepsy/stigma/epilepsy-and-religion.html) - Here we take a look at two different perspectives on the question of epilepsy and religion. On one side faith provided strength while on the other side faith meant losing a community of loved ones. - [Living Well Outside: 4 great reasons to exercise and tips on how to get it done](https://livingwellwithepilepsy.com/life-with-epilepsy/4-reasons-to-exercise-when-you-have-a-chronic-illness.html) - Emily shares 4 reasons to exercise even when you are living with a chronic illness. She also gives us a few ideas of how to exercise safely! - [20+ things we love to make evey day cozy in 2019](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/20-things-we-love-to-make-evey-day-cozy-in-2019.html) - Check out our writer's list of the 20+ must haves for Living Well With Epilepsy in 2019. The team shared their favorite things to stay cozy in 2019 including everything from white boards for memory, to food services for when you can't get to the store, or a cozy blanket for when you just want to hide! - [Epilepsy Blog Relay: Caregiver Fatigue](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/caregiver-fatigue.html) - Sometimes it's hard to practice self-care of yourself if you're busy as caregiver. Leila shares with us why it's important to avoid caregiver fatigue. - [Managing stress with yoga during the pandemic can help with seizure control](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/yoga-and-seizure-control.html) - Kenny was surprised to find that yoga helps him manage stress and keeps him active. He also finds yoga helps him to be productive and provides restful sleep. - [Running2Live: It's really stinking cold](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/running2live-toocold.html) - Okay, I have to be honest, I haven't been running these past few weeks. But I have to say it has been really stinkin' cold. So I thought I would share I few pics I've taken lately. I've made a few snow angels. I've taken Puppy for a few long walks. I've taken a - [Dan's Story: Running with seizures and not even know it](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/running-with-seizures.html) - Knee tendinitis, ankles that sprain easily ... most marathon runners are nagged by a particular body part that is prone to injury. My nag is my head. I have epilepsy that, for whatever reason, tends to be provoked by running. I’ll be in the middle of a run, cruising along, feeling great, and – bam! – suddenly have a seizure. Bummer when you’re trying to set a personal record. - [Epilepsy Blog Relay: 5 Things You Need to Know About Running With Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/running-with-epilepsy.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! Jewel's Story Jewel is a Brooklynite who is married to her college sweetheart. She is the mother of two handsome boys who keep her very busy. Jewel is always moving but she is content knowing that she's striving for balance and not perfection. She has - [Epilepsy Blog Relay: David on IEPs, 504 plans and the need for epilepsy awareness in education](https://livingwellwithepilepsy.com/life-with-epilepsy/school/ieps-504-plans-and-the-need-for-epilepsy-awareness-in-education.html) - When reviewing David's son's IEP, and earlier 504 plans the need for epilepsy awareness in education became painfully clear to this family. - [Kids with epilepsy at higher risk during flu season](https://livingwellwithepilepsy.com/advocacy-awareness/epilepsyandflu2012.html) - 3D image of Influenza VirusThe CDC is currently featuring information on how children with neurologic disorders are at higher risk of death from flu. A study on the topic was recently published in Pediatrics, “Neurologic Disorders among Pediatric Deaths Associated with the 2009 Pandemic Influenza, 2012.” The BuzzCBS, the AP, U.S. News and World Report, - [Leila's Ideas: New Jumo Health Book Release](https://livingwellwithepilepsy.com/advocacy-awareness/new-medikidz-book-release.html) - "Medikidz Explain Playing Sports with Epilepsy," the newest comic book from Eisai, was released on April 16 at the 2016 National Walk for Epilepsy. - [Lisa's Story: Pediatric Epilepsy, It's a Process](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/rare-epilepsy/lisas-story-pediatric-epilepsy-its-a-process.html) - Lisa's story is a look into what it took to diagnose her daughter's pediatric epilepsy. She reminds us, "Take a deep breath, and trust your gut". - [Purple Pumpkin Project: Did you paint yours?](https://livingwellwithepilepsy.com/life-with-epilepsy/family/purple-pumpkin-project-did-you-paint-29.html) - This year “The Purple Pumpkin Project” was started by Ron LaMontagne and to raise Epilepsy Awareness in honor of his 7 year old son. Check out the pictures The goal of the project was to get people talking about how purple is the color for epilepsy. You will find some great photos of purple pumpkins - [Purple Pumpkin Time: Use our Snapguide to help](https://livingwellwithepilepsy.com/life-with-epilepsy/family/purple-pumpkin-time-use-snapguide-help.html) - Halloween is almost here and it's time to paint your pumpkins purple. The Purple Pumpkin Project was started in 2012 by Ron LaMontagne in honor of his 7 year old son. The intention of the project was to get people talking about how purple is the color for epilepsy. This is an easy way to - [Gear up for Epilepsy Awareness Month](https://livingwellwithepilepsy.com/advocacy-awareness/epilepsy-awareness-month-2013.html) - Each year November is recognized as National Epilepsy Awareness Month. This is an opportunity for each of us to take a moment to spread the word about the millions of people living and dying as a result of this complex group of disorders. Here are a few opportunities to get involved: Purple Pumpkin Project If - [Introducing our newest writer: Rachel Ehrhardt on testing in epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/testing-in-epilepsy.html) - Our Newest Writer I am pleased to introduce you to Living Well With Epilepsy’s newest contributing writer, Rachel Ehrhardt. Rachel is a woman living with epilepsy in Texas. She comes from of an immediate family of four, where three of her family members suffer from a form of Epilepsy. Rachel has become a more frequent - [The Trabasack: Making life with epilepsy easier](https://livingwellwithepilepsy.com/advocacy-awareness/trabasack.html) - Duncan Edwards, Director of Equip-able, Ltd, his wife Clare, have a child with Dravet's Syndrome. When their son was young, they worried he would injure himself in his stroller on the heavy plastic tray. So Clare, in looking for a functional lap tray that would also stay put on her wheelchair, ended up creating the first Trabasack on her sewing machine. - [Tri Harder: Michael Poole, triathlete living with epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/michael-poole-triathlete.html) - If you haven't heard of him already, Michael Poole is a 23 year old triathlete living with epilepsy who can claim 6 podium finishes and 2 wins during the 2014 season. - [Interview with Coach Jerry Kill](https://livingwellwithepilepsy.com/advocacy-awareness/interview-with-coach-kill.html) - You may have heard of Coach Jerry Kill from his days as Head Coach of the Minnesota Gophers. Of course you may know him from when he was awarded Big Ten Coach of the Year in 2014, or from when he was named to the Kansas Sports Hall of Fame. You may also know him - [Epilepsy Blog Relay: Meet Janna Moore of Epilepsy Support Network of Orange County](https://livingwellwithepilepsy.com/advocacy-awareness/meet-janna-moore-of-epilepsy-support-network-of-orange-county.html) - Meet Janna Moore the Executive Director of Epilepsy Support Network of Orange County. She brings passion and dedication to the role! - [Epilepsy experience creates a whole new family of supporters](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/experience-with-epilepsy-creates-a-whole-new-family-of-supporters.html) - After Stephanie (known as Alyrical) was diagnosed with epilepsy the dynamic between her friends and family and loved ones changed. The road to being diagnosed with epilepsy was a difficult one that lead to major changes in her life affecting not only her health. - [Epilepsy Blog Relay: Dave shares his story as a father of a child with a disability](https://livingwellwithepilepsy.com/life-with-epilepsy/family/father-of-a-child-with-a-disability.html) - Dave shares his story as the father of a child with a disability in hopes that his words help other people who are on a similar journey. - [Epilepsy Blog Relay: My Kindergarten Epilepsy Advocate](https://livingwellwithepilepsy.com/advocacy-awareness/epilepsy-blog-relay-my-kindergarten-epilepsy-advocate.html) - Leah shares how 3-year-old big sister adjusted to her brother’s special needs almost immediately and waited on everyone else to catch up. - [Epilepsy Blog Relay: One epilepsy mom reminds us to let our kids play](https://livingwellwithepilepsy.com/life-with-epilepsy/family/epilepsy-mom-reminds-us-to-let-our-kids-play.html) - There are a lot of epilepsy moms and dads out on the sidelines worrying. One epilepsy mom encourages us to take a deep breath and let our kids play. - [Epilepsy Blog Relay: A New Mom with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/new-mom-with-epilepsy.html) - Abby's experience was probably similar to a lot of new moms. But, when you have epilepsy that pure exhaustion and extra stress can be a little dangerous. - [Epilepsy Blog Relay: My sister Ellyn and her epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/my-sister-ellyn-and-her-epilepsy.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! Laura's Story Growing Up with My Sister, Ellyn…and Her Epilepsy My older sister Ellyn has epilepsy as a result of tuberous sclerosis complex (TSC). She was diagnosed at about three-months-old, so living with epilepsy was my normal. And by “living with epilepsy”, I mean watching - [Epilepsy Blog Relay: A letter to young Natalie](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-a-letter-to-young-natalie.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! This blog post was submitted by Sunovion Pharmaceuticals Inc., the Founding Sponsor of the November 2019 Epilepsy Blog Relay. Natalie B.'s Story Sunovion is proud to feature #MyEpilepsyHero Natalie Beavers, author of this post, who offers a window into the ups and downs she experienced - [Transition of Care: Transitioning Adolescent Epilepsy Patients](https://livingwellwithepilepsy.com/life-with-epilepsy/family/transitioning-adolescent-epilepsy-into-adult.html) - This blog post was submitted by Sunovion Pharmaceuticals Inc. Dr. Nassim Zecavati is a paid consultant of Sunovion Pharmaceuticals Inc. Certain organizations are mentioned in this post; this does not constitute an endorsement by Sunovion of these organizations. Meet Nassim Zecavati, MD, MPH Transition of care is a stressful time, but it doesn’t have to - [Emotions and Epilepsy: The Medical Team, Support Groups, and Caregivers](https://livingwellwithepilepsy.com/life-with-epilepsy/caregiving/emotions-and-epilepsy-the-medical-team-support-groups-and-caregivers.html) - Whether you are struggling with uncontrolled seizures or your seizures are fully controlled, you likely are dealing with complex emotions. - [When a Husband Becomes Epilepsy Caregiver](https://livingwellwithepilepsy.com/life-with-epilepsy/caregiving/epilepsy-blog-relay-when-husband-becomes-caregiver.html) - My husband, Pete, and I met before my diagnosis. But, when I was diagnosed with Intractable Seizures, Pete became my life-line. - [When hope returns to a life with epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/when-hope-returns-to-a-life-with-epilepsy.html) - A little bit of hope has returned and grows every week, every month, like a light at the end of a long, dark tunnel as I continue parenting with epilepsy. - [On CDKL5: A story of a hard to recognize illness in kids](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/rare-epilepsy/one-story-of-a-hard-to-recognize-illness-in-kids.html) - According to Randi, "When our daughter first had a seizure it was subtle, quick, and questionable." Today, she shares a story of hard to recognize seizures. - [Clair and daughter Riley give tips on epilepsy first aid](https://livingwellwithepilepsy.com/aboutepilepsy/epilepsy-first-aid/tips-on-epilepsy-first-aid.html) - Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don't miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with kids. - [Kathryn's Story: Motherhood and Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/kathryns-story-motherhood-and-epilepsy.html) - Kathryn shares her experience with motherhood and epilepsy. She teaches her first child seizure first aid and her second how to cope with his own epilepsy. - [Life with epilepsy in high school](https://livingwellwithepilepsy.com/life-with-epilepsy/school/epilepsy-in-high-school.html) - Jordan is 16 years old and a junior in high school and she's had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy. - [Epilepsy Blog Relay: Knowledge is power when it comes to complex epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/cerebral-palsy-and-epilepsy/knowledge-is-power-when-it-comes-to-complex-epilepsy.html) - Jenny, Collen's mom, reminds us that knowledge is power when it comes to complex epilepsy and cerebral palsy. - [Guide to the Fourth Trimester when Mom has Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/fourthtrimesterwithepilepsy.html) - As someone who has survived the fourth trimester, postpartum depression, and pre-eclampsia, I'm happy to share tips that will help during this stressful time. - [Holiday recipes for ketogenic kids](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet/holiday-recipes-for-ketogenic-kids.html) - The holidays can be a tough time to watch what you eat. Being faced with candies and cookies at every turn can make sticking to a diet hard enough, but having to follow a plan as rigorous as the Ketogenic Diet can be practically impossible this time of year. Since there will be parties at home, work and - [Epilepsy Blog Relay™: An Everyday Challenge](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet/living-with-epilepsy-is-an-everyday-challenge.html) - Emerging from the tunnel, I heard my mom’s voice say, “Jade, it’s okay now”. Living with Epilepsy is an everyday challenge. - [Following a Ketogenic Diet Through the Holidays](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet/ketogenic-diet.html) - Guest Post By Robyn Blackford, RD, LDN, the ketogenic dietitian at Ann & Robert H. Lurie Children's Hospital of Chicago, IL While some parents allow their children the freedom to gorge on holiday meals and treats, some do not have that luxury. Children following the Ketogenic Diet (KD) for the treatment of epilepsy must only - [A Mother's Day Story: On Being a Mom with Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/mothers-day/its-a-fact-im-a-mom.html) - My life is the same as any other Mom. I wake up in the morning to my kids in my bed snuggled in next to me. I wouldn't have it any other way. The difference in my case, however, is that heavy stress and lack of sleep are seizure triggers for me. - [Epilepsy Blog Relay: How running and a keto lifestyle keeps seizures at bay](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet/epilepsy-blog-relay-how-running-and-a-keto-lifestyle-keeps-seizures-at-bay.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Brodi's Story Epilepsy should be a four-letter word, or so I thought. I have lived with epilepsy since I was three years old, and while my episodes have certainly frustrated and scared me, they - [Epilepsy Blog Relay: Sharon on the ketogenic diet and CBD oil](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet/sharon-on-the-ketogenic-diet-and-cbd-oil.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Sharon's Story Sharon Ross has a rare type of epilepsy. Though she has experienced seizures, the main impact the condition has on her life is her cognition. According to Sharon, her memory and processing - [Healthy Aging: Nutrition and Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/food/nutrition-and-epilepsy.html) - When it comes to nutrition and epilepsy, well, my comfort food is pizza. So I thought I might look into eating better when it came to healthy aging. ugh aging. - [Epilepsy Blog Relay: 5 Tips to Keep Constipation Away](https://livingwellwithepilepsy.com/life-with-epilepsy/food/5-tips-to-keep-constipation-away.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Getting real about constipation I've been on medication to manage my epilepsy for more than 30 years. On Living Well With Epilepsy we have talked about some of the side effects of epilepsy medications, - [Epilepsy Blog Relay™: My brand new adventure](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/brand-new-adventure.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30, 2016. Follow along! Maureen's Story In July, I went through the most fulfilling and rewarding experience of my life. All mothers out there know the experience. My beautiful daughter, Samantha, was born on July 16th, 10:50am, happy and - [Living Well Outside: July will be all about getting outside](https://livingwellwithepilepsy.com/life-with-epilepsy/living-well-outside.html) - Throughout the month of July, we'll be making time to get outside. All month we will be celebrating the ways you are #livingwelloutside. - [Living Well Outside: Four reasons to take a tech free vacation](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/tech-free-unplugged-vacation-idea.html) - Through fly fishing I have discovered 4 great reasons to take a tech free vacation. Here are a few benefits from going tech free every now and then when you are living with epilepsy. - [3 tips for taking back your independence without a drivers license](https://livingwellwithepilepsy.com/life-with-epilepsy/taking-back-your-independence-without-a-drivers-license.html) - Maureen shares practical tips on how to take back your independence when you don't have a license. - [8 most valuable (and brutal) life lessons everyone should learn](https://livingwellwithepilepsy.com/life-with-epilepsy/life-lessons-everyone-should-learn.html) - Sometimes the most valuable life lessons can be the most brutal to learn. Emily reminds us why these lessons are worth it in the end. - [Epilepsy Blog Relay: Change of Scenery Can Make a World of Difference](https://livingwellwithepilepsy.com/epilepsy-stories/change-of-scenery-makes-world-of-difference.html) - Lauren shares how a change of scenery made a world of difference as she adjusted to her new diagnosis of epilepsy. - [Epilepsy Blog Relay: On life changing decisions and brain surgery](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/epilepsy-blog-relay-life-changing-decisions.html) - Karen on brain surgery for epilepsy: My life was going well, epilepsy didn’t stop me doing anything and I thought why take the chance? - [Epilepsy Blog Relay: Choosing hope despite brain tumor related epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/brain-tumor-and-epilepsy/brain-tumor-related-epilepsy.html) - Amber shares her story of brain surgery and brain tumor related epilepsy. She shares her struggle to find hope and create a life despite her challenges. - [Epilepsy Blog Relay: Fran encourages others to seize adventure](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/fran-encourages-others-to-seize-adventure.html) - Fran Turauskis, founder and editor of Seize Your Adventure, has taken a moment out of her busy schedule to share her own epilepsy story. - [What the EF podcast with Jeff Parent](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast/what-the-ef-podcast-with-jeff-parent.html) - We kick off Seizen 2 with professional powerhouse Jeff Parent, who’s a president of Toyota AND the Epilepsy Foundation of America Board. (no biggie.) - [International Epilepsy Day: from Ireland to Australia with refractory epilepsy](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/from-ireland-to-australia-with-refractory-epilepsy.html) - Maria Elizabeth invites us along on her twenty-one year journey with refractory epilepsy as she travels the world and completes her doctorate. - [5 reasons to have a Seizure Action Plan](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-action-plans/5-reasons-to-have-a-seizure-action-plan.html) - Here are 5 reasons you might want to have a seizure action plan as an adult. - [Traveling with Epilepsy: Takeoff!](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/traveling-with-epilepsy-takeoff.html) - Meet Maureen Knorr, Living Well With Epilepsy's newest writer. She's traveling with epilepsy around the world - pills and all. I hope you enjoy her lighthearted approach to what can be some pretty complicated situations. - [Traveling with Epilepsy: A Pharmacy in Croatia](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/traveling-with-epilepsy-a-pharmacy-in-croatia.html) - My husband and I decided to do a weekend getaway to Zadar, Croatia. Part of going on vacation with epilepsy is doing the pill count thing. - [Traveling with Epilepsy: A seizure in Buenos Aires](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/a-seizure-in-buenos-aires.html) - After college I moved to Buenos Aires, Argentina to teach English. The thought of being tethered to my neurologist and pharmacy drove me insane! Being told that I couldn’t travel alone simply inspired me to do so! The fact is, having epilepsy means you have a higher risk of early death, which for me translates to “experience what life has to offer, right now!” - [Traveling with Epilepsy: A Sleepover](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/traveling-with-epilepsy-a-sleepover.html) - Whether it's hiking in Spain or a sleepover at a friend's house, having Epilepsy presents challenges to overcome. - [Epilepsy Blog Relay: Traveling as an Autistic with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/epilepsy-blog-relay-traveling-as-an-autistic-with-epilepsy.html) - Have you ever wondered what it’s like to travel as an autistic with epilepsy? Here are a few tips on how to manage the independence needed to travel. - [Traveling with Epilepsy: Finding Adventure in Slovenia](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/adventure-in-slovenia.html) - Sometimes, finding adventure means ignoring fears and jumping in with both feet. Going canyoning in Slovenia required just that! - [Traveling with epilepsy: from hiding epilepsy to advocate](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/traveling-with-epilepsy.html) - You may know Laura as Traveling with Epilepsy from Instagram. Here she shares her epilepsy story from newly diagnosed to epilepsy advocate. - [Epilepsy Blog Relay™: Dave on being an Epilepsy Dad](https://livingwellwithepilepsy.com/life-with-epilepsy/fathers-day/dave-on-being-an-epilepsy-dad.html) - From Dave: My son wakes up every day and takes a handful of pills. He may have already had a few seizures and he has to will himself to get ready for school. - [Sproutflix](https://livingwellwithepilepsy.com/life-with-epilepsy/sproutflix-2.html) - Sproutflix has released more short films, adding to their Sproutflix catalogue, the largest and most diverse assortment of films featuring people with I/DD on the marketplace. Brooklyn Love Tales 12 min. / documentary / USA A personal look into the lives of three couples with intellectual and developmental disabilities. This is the latest film - [Epilepsy Blog Relay: Andrea prepares for a tour with her band Motion Device](https://livingwellwithepilepsy.com/epilepsy-stories/andrea-prepares-for-a-tour-with-her-band-motion-device.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Andrea's story When people see Andrea Menoudakis, whether it’s in a Youtube video or on stage with her rock band Motion Device, for the most part they will see one thing - a musician. - [Epilepsy Blog Relay: Epilepsy helps Shonet reconnect with her creative side](https://livingwellwithepilepsy.com/life-with-epilepsy/creative-side.html) - Maternity leave found Shonet longing to go back to work. But a baby and a relapse in seizures made her rediscover her creative side to keep her mind active. - [Epilepsy Blog Relay™: Leila's Epilepsy Resolution Update](https://livingwellwithepilepsy.com/life-with-epilepsy/new-years-resolutions/leilas-ideas-epilepsy-resolution-update.html) - In January, I made a few Epilepsy Resolutions. I wanted to re-energize myself and do a better job at managing my epilepsy. I promised to keep you updated on how I’m doing...it’s not pretty, but here’s my first self-evaluation. - [Epilepsy Blog Relay™: Beth's story shows love always has the last word](https://livingwellwithepilepsy.com/life-with-epilepsy/relationships/epilepsy-blog-relay-beths-story-shows-love-always-has-the-last-word.html) - When my seizures returned after 10 years, I realized who I wanted to be by my side as my partner for the rest of my life. My epilepsy had put that into stark relief. My seizures helped me realize just how important it is to have people who love and support you when dealing with a condition like epilepsy. - [Special thank you for Mother's Day](https://livingwellwithepilepsy.com/women-epilepsy/mothers-day/special-thanks-for-mothers-day.html) - Reflecting on my life with epilepsy, I remember the medications and how they made me feel, the hospital stays, and the many, many doctor appointments. This Mother's Day, it's time for a special thanks to my mom who was there through it all. Looking back on the early days When I look back at - [Epilepsy Blog Relay: Dad's turn for thanks on Father's Day](https://livingwellwithepilepsy.com/life-with-epilepsy/fathers-day/thanks-on-fathers-day.html) - For Father's Day, this bride sends her Dad a note of thanks. - [Sickness and Health: This couple's vows were tested just a month after the wedding](https://livingwellwithepilepsy.com/life-with-epilepsy/relationships/in-sickness-and-in-health.html) - Our wedding was perfect, we said the vows, danced to some favorite songs, and enjoyed our ranch dressing fountain. Just a month later, I had a tonic clonic seizure. It was the first one in over a decade, and the first one my husband has had to witness. - [Epilepsy Blog Relay: Coach gets honest about her epilepsy diagnosis](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/grand-mal-tonic-clonic/metabolic-therapist-goes-public-about-an-epilepsy-diagnosis.html) - Despite fear and shame from stigma, this metabolic coach is ready to go public about her epilepsy diagnosis. Read how she found the strength to share her story. - [What the EF Podcast featuring Dr. Alexa King](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/what-the-ef-podcast-featuring-dr-alexa-king.html) - So...can I have kids? Dr. King educates us on that burning question that many of us female epileptics have...can I have kids, and if so, what is that going to look like for me? - [Epilepsy Blog Relay: Women with Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/women-with-epilepsy.html) - Women with epilepsy have found that ourseizures are directly impacted by everything from hormones during puberty to pre-eclampsia during pregnancy. - [Emily's Perspective: A review of "Dings," by Dr. Lance Fogan](https://livingwellwithepilepsy.com/epilepsy-news-and-research/emilys-perspective-review-dings-dr-lance-fogan.html) - On the 31st of May 2015 I received a book written by Dr. Lance Fogan. He had been in touch with me the week before and told me he wanted to send a free, signed copy for me to read. He was inspired to do so after he read about me. I was delighted. As - [Emily's Perspective: Thoughts on the show "Epilepsy & Me"](https://livingwellwithepilepsy.com/epilepsy-news-and-research/thoughts-on-epilepsy-me.html) - Living with Epilepsy It’s scary, living in fear, living the unknown, not knowing when your next seizure will strike, if it’ll strike again at all. That’s what it’s like, living with an invisible disability. It’s hidden and sometimes, without warning, it can strike. I’ve lived the last 11 years of my life with Epilepsy, walking - [Emily's Perspective: Parenting with Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/parenting-with-epilepsy.html) - Many people living with Epilepsy are also parents. In this article, I offer suggestions for parenting while managing Epilepsy. - [Emily Donoghue shortlisted for Young Epilepsy Award](https://livingwellwithepilepsy.com/epilepsy-news-and-research/emily-donoghue-shortlisted-young-epilepsy-award.html) - The team at Living Well With Epilepsy is thrilled to announce that Emily Donoghue, who writes Emily's Perspective, has been shortlisted for a Young Epilepsy Inspirational Shining Star Award. - [Emily's Perspective: On Auras](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/auras/emilys-perspective-auras.html) - Aura is the term used to describe symptoms that may occur before a seizure. There are several different types and some of them might surprise you. - [Epilepsy Blog Relay: Lily on living with Temporal Lobe Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/temporal-lobe-epilepsy/lily-on-living-with-temporal-lobe-epilepsy.html) - Lily was diagnosed with Temporal Lobe Epilepsy in her 40s. She shares her journey from diagnosis to a treatment that works for her. - [Emily's Story: Absence Seizures - Part 1](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/absence-seizures/emilys-story-absence-seizures-part-1.html) - I sat in class, as my friends and I chatted about how we would love to be police officers. A police officer stood at the front of the room chatting about not talking to strangers. “Do you know why you shouldn't talk to strangers?” the officer asked. My hand shot up, I knew the answer. - [Chlo's Story: Newly diagnosed with absence seizures](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed/chlos-story-newly-diagnosed-absence-seizures.html) - The Beginning I was in the car with my mum driving to school like I usually do. I felt fine and I didn't know anything would happen. In school, I had Science after break. I went into class and I remember feeling dizzy and weird; then I can't remember anything else. All of a sudden, - [Absence Seizures Won't Keep Andrea from Becoming a Full-Time Musician](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/absence-seizures/absence-seizures-wont-keep-andrea-from-becoming-a-full-time-musician.html) - Andrea has learned to cope with epilepsy and not let it get in the way of her aspirations to be a full-time musician. In fact, the group has recently released a beautiful piano cover of Boston’s "More Than A Feeling." - [Emily's Perspective: Newly diagnosed with epilepsy or epileptic seizures?](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed/new-to-epileptic-seizures.html) - Are you new to Epilepsy? Have you had a recent diagnosis of epileptic seizures in your family? Maybe I can help ease the anxiety with this column. - [Jessica Smith, Founder of Living Well With Epilepsy, shares her epilepsy journey](https://livingwellwithepilepsy.com/aboutus-lwwe/jessica-smith-shares-her-epilepsy-journey.html) - Jessica Keenan Smith, Founder of Living Well With Epilepsy shares her epilepsy journey with fellow epilepsy advocate Derra Howard, Founder of Saving Grace Epilepsy Foundation. - [What the EF: New Epilepsy Podcast](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast/what-the-ef-new-epilepsy-podcast.html) - What the EF is a podcast to share, laugh, and cry at all our epilepsy WTF moments. Laughter has made epilepsy survivable for me. My co-host, Lexi, agrees. - [Epilepsy Blog Relay: Is there more than one type of seizure?](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/is-there-more-than-one-type-of-seizure.html) - People will often ask if there is more than one type of seizure. The answer is yes, and each one is unique (you know, like snowflakes...) which is annoying because it makes them that much more difficult to treat. - [Sunovion's Aptiom® gets FDA Approval as Monotherapy for Partial-Onset Seizures](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/sunovions-aptiom-gets-fda-approval-as-monotherapy-for-partial-onset-seizures.html) - Sunovion Pharmaceuticals Inc. (Sunovion) announced on August 28, 2015 that the U.S. Food and Drug Administration (FDA) approved the supplemental New Drug Application (sNDA) for Aptiom® (eslicarbazepine acetate) as monotherapy for the treatment of partial-onset seizures. - [Charles' Story: Complex Partial and Simple Partial Seizures](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/focal-seizures/complex-partial-and-simple-partial-story.html) - Charles' Story: 50 years of living with complex partial and simple partial seizures At the age of 50 years old, I currently live with complex partial and simple partial seizures. My family relocated from Florida to Ohio when I was 3 years old. That same year, I had an appendectomy whereby medical personnel left gauze - [Interview with Biohaven Medical Director on RISE A Clinical Trial For Epilepsy](https://livingwellwithepilepsy.com/partner/interview-with-biohaven-medical-director-on-rise-a-clinical-trial-for-epilepsy.html) - Interview with Jason Lerner, MD, Medical Director Research and Development at Biohaven, about his role and about RISE: A Clinical Trial For Epilepsy. - [Epilepsy Patient Advocacy and the RISE Clinical Trial](https://livingwellwithepilepsy.com/partner/epilepsy-patient-advocacy-and-the-rise-clinical-trial.html) - Anne Neumann, RN, BSN, Rare Disease Marketing, Patient Advocacy and Engagement Lead at Biohaven, on her role and RISE: A Clinical Trial For Epilepsy. - [Epilepsy Blog Relay: Focal Seizures with Todd’s Paralysis](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/focal-seizures/focal-seizures-with-todds-paralysis.html) - This post is part of the Epilepsy Blog Relay™. Stephanie's Story I was first diagnosed with epilepsy almost one year ago at age 49. I quite literally thought I was having a stroke so I went to the Emergency Room. After the ER visit I was referred to a neurologist for follow up. In the meantime, I researched - [SUDEP Awareness and Medication Adherence – Is There a Connection?](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/sudep-awareness-and-medication-adherence.html) - DYK? SUDEP is the most common disease-related cause of death in people with epilepsy. By having early conversations and educating patients and families on #SUDEP, we can work with them on the modifiable risk factors (AEDs adherence and adverse events). Read more on the connection between patient education and seizure freedom. - [The Bhutan Epilepsy Project](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/bhutan-epilepsy-project.html) - Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project. - [Epilepsy Blog Relay™: Epilepsy advancements in developing countries](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/epilepsy-blog-relay-epilepsy-advancements-in-developing-countries.html) - Maureen's Story: I wanted to highlight a few epilepsy advancements I witnessed on my travels in Mahenge, Tanzania. - [Epilepsy Blog Relay™: Dr. Mateen Takes Mobile Technology Global for Epilepsy](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/epilepsy-blog-relay-global-health-goes-mobile-thanks-to-new-research.html) - Dr. Mateen's Story: If you are interested in innovation in Global Health, you may need to hear about the Bhutan Epilepsy Project. - [Bhutan Epilepsy Project: Interview with researcher Erica McKenzie](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/bhutan-epilepsy-project-interview-with-researcher-erica-mckenzie.html) - I recently had the opportunity to interview Erica McKenzie, a Bhutan Epilepsy Project researcher, who works with Farrah Mateen MD, PhD. - [Emily's Perspective: Emily's First Time Abroad](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/emilys-perspective-emily-traveled-abroad.html) - I recently traveled abroad with my sister. I was so excited, but as the day got closer, I became worried about all the ‘What ifs’. - [Emily challenges the status quo of her mood](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/emily-challenges-the-status-quo-of-her-mood.html) - A lot of things are hard when you’re in a bad mood. Even getting up in the morning and finding the energy to do everyday tasks can be hard. - [She said: Emily and Dan on dating and epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/relationships/she-said-emily-and-dan-on-dating.html) - I met Daniel properly in 2014. He had read a lot of my blogs before we even started talking, so he knew all about my condition. So I never had to break it to him that I live with this unpredictable condition of Epilepsy. Sometimes that can be one of the hardest parts in the beginning of a new relationship. - [He said: Emily and Dan on dating and epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/relationships/he-said-emily-and-dan-on-dating-and-epilepsy.html) - I remember when Emily and I were first dating. My friends would ask me, “Aren’t you worried about what would happen if she has a seizure? Can you deal with that?” I would always find that such a strange question. I wanted to be with Emily for who she was as a person. - [Epilepsy Blog Relay: Emily on finding comfort when seizures return](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/emily-on-finding-comfort-when-seizures-return.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Hi Living Well family, I feel like it’s been a while. I’m OK though. A couple of weeks ago, I sadly ended up in hospital after suffering a seizure that involved a nasty fall - [The Guinea Epilepsy Project conducts 300 patient visits free of charge](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/the-guinea-epilepsy-project.html) - I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project. - [Epilepsy Blog Relay: Life with Epilepsy in Kenya](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/epilepsy-blog-relay-life-with-epilepsy-in-kenya.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Rich's Story Symptoms of having Epilepsy were evident but not confirmed by a medical practitioner since 2002. Due to lack of epilepsy information I lived with it until the episodes exceeded. I was given - [Epilepsy Blog Relay: Emily on Smart Monitoring her epilepsy and seizure alert systems](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/smart-monitoring-epilepsy-and-seizure-alert-systems.html) - This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let's get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots of Epilepsy medications, - [Epilepsy Blog Relay: The story of the Mahenge Epilepsy Clinic](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/the-story-of-the-mahenge-epilepsy-clinic.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Mahenge Epilepsy Clinic It started in the late 1950’s when Dr. Louise Jilek-Aall discovered an unusually high number of outcasts from the Wapogoro tribe in the Mahenge Mountains, Tanzania. These outcasts suffered from Kifafa, - [IG Live with Jamie Wissinger](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/ig-live-with-jamie-wissinger.html) - Join my chat with Jamie Wissinger, blogger, podcaster and epilepsy advocate, on 3/30 on Instagram Live at 12pm PT/ 3pm ET / 7pm GMT. - [IG Live with Fran Turauskis of SeizeYourAdventure](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/ig-live-with-fran-turauskis-of-seizeyouradventure.html) - Fran Turauskis of SeizeYourAdventure.com has come up with a great way to bring the outdoors inside during the Coronavirus crisis. Join us on Instagram Live today (3/31) on @livingwellwithepilepsy at 12pm PT/3pm ET/7pm GMT. - [Live with Torie Robinson](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/live-with-torie-robinson.html) - Meet Torie Robinson, she is the founder of Epilepsy Sparks an organization based in the UK and an international speaker on the topic of epilepsy. - [Live with Craig Chambliss discussing the importance of rescue medications](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/live-with-craig-chambliss-discussing-the-importance-of-rescue-medications.html) - Craig Chambliss Meet Craig Chambliss, CEO and Co-Founder of Neurelis, Inc. It has been a big year in rescue medications thanks to decades of work by Chambliss and his team. In January 2020 Neurelis learned their product, VALTOCO, a diazepam nasal spray, was approved by the FDA, and in March of 2020 they announced it - [Epilepsy Blog Relay: Living Well With Epilepsy is nominated for a Her Abilities Award](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/nominated-for-a-her-abilities-award.html) - Jessica Keenan Smith, founder of Living Well With Epilepsy, has been nominated for a Her Abilities Award, a global award honoring women with disabilities. - [International Epilepsy Day 2019](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/international-epilepsy-day-2019.html) - In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world. - [Global Epilepsy: Helping Those with Living with Epilepsy in Uganda](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/global-epilepsy-helping-those-with-living-with-epilepsy-in-uganda.html) - Gideon Ronie shares an update on his work helping people living with epilepsy in Uganda. He gives insight into how the pandemic has affected the community. - [Epilepsy Blog Relay: Global Epilepsy Training](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy/global-epilepsy-training.html) - I recently presented as part of the virtual global epilepsy training, EAMC, which supports doctors and nurses in Low to Middle Income Countries. - [Epilepsy Blog Relay: Jewel takes on the realities of living with epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed/jewel-takes-on-the-realities-of-living-with-epilepsy.html) - Like many people diagnosed later in life, Jewel had little knowledge of what Epilepsy was, and what life would be like living with it. - [Epilepsy Awareness Month 2018: What you need to know](https://livingwellwithepilepsy.com/advocacy-awareness/epilepsy-awareness-month-2018-what-you-need-to-know.html) - November is Epilepsy Awareness Month and it's a great opportunity to get people talking about a disease that affects between 1-3% of the world's population. - [Epilepsy Blog Relay: My Grandmother and PCDH19 Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/rare-epilepsy/pcdh19-epilepsy.html) - Francesca's Story: I have a type of epilepsy that was inherited from my mother's mother. My grandmother was born with PCDH19 epilepsy. - [Epilepsy Blog Relay: Five tips for adjusting to a medication change](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/adjusting-to-a-medication-change.html) - Five helpful tips for adjusting to a medication change. I spoke with my doctor and we both decided that it was time to increase one of my medicines. - [How Many People are Living with Epilepsy Worldwide?](https://livingwellwithepilepsy.com/aboutepilepsy/how-many-people-are-living-with-epilepsy-worldwide.html) - It's time for the epilepsy community to reflect current numbers when reporting how many people are living and dying as a result of epilepsy worldwide. - [How to Find a Neurologist for Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed/finding-a-great-neurologist-for-epilepsy.html) - When faced with the problem of how to find a neurologist for epilepsy, the challenge can feel daunting. So, I thought I'd share my process. - [Dravet Syndrome Foundation Spain announces call for Innovative Research Projects in Advanced Therapies](https://livingwellwithepilepsy.com/epilepsy-news-and-research/call-for-innovative-research-projects-in-dravet.html) - Thank you to our media partner Dravet Syndrome Foundation Spain. They have shared their call for research projects in both english and spanish. - [Story behind the HOPE heart](https://livingwellwithepilepsy.com/epilepsy-stories/story-behind-the-hope-heart.html) - A talented young artist by the name of Ashley Shaffer created "Hope" the beautiful artwork you see here. Ashley has shared her art as part of our Epilepsy Stigma Awareness Month. Creating Hope Ashley was inspired to create this beautiful multi-media piece titled, “Hope” (2013) and has dedicated the piece to inspire people with epilepsy. - [Epilepsy Blog Relay: Epilepsy art reveals hidden truths](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-art-reveals-hidden-truths.html) - After one week of extremely intense seizure activity, Angie looked back at her epilepsy and her art. It seemed her brain unconsciously knew a seizure was coming and her artwork showed it. - [Epilepsy Blog Relay: 5 Ways to Incorporate Creativity Into Your Healing](https://livingwellwithepilepsy.com/epilepsy-stories/5-ways-to-incorporate-creativity-into-your-healing.html) - Christalle reminds us that art and creativity have been proven to be beneficial for healing. Read her 5 tips to integrate creativity into your healing. - [On being resilient when it all seems to be too much](https://livingwellwithepilepsy.com/epilepsy-stories/on-being-resilient-when-it-all-seems-to-be-too-much.html) - Amanda encourages readers to remember we are resilient, as we manage the pandemic, seasonal changes and a chronic condition. - [Managing Epilepsy When You're in the Middle Place](https://livingwellwithepilepsy.com/epilepsy-stories/managing-epilepsy-when-youre-in-the-middle-place.html) - I wanted to take a moment to get a little real about what life is like for me trying to manage epilepsy while also being in The Middle Place. - [Epilepsy Blog Relay: 5 things Cancer taught me about Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-5-things-cancer-taught-me-about-epilepsy.html) - In honor of National Cancer Survivor Day, here are 5 things my cancer diagnosis taught me about how to live better with epilepsy. - [Researcher Shares Her Own Patient's Perspective](https://livingwellwithepilepsy.com/epilepsy-stories/researcher-shares-her-own-patients-perspective.html) - Mia L. van der Kop shares a patient's perspective in an article published in the highly regarded scientific journal, Epilepsia. Read an excerpt here. - [Epilepsy Blog Relay™: Interview with researcher Sarah Collard](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/epilepsy-blog-relay-interview-with-researcher-sarah-collard.html) - I recently had the opportunity to interview Sarah Collard, a Fellow at Bournemouth University following the release of her article on Epilepsy & Exercise. - [Philly Area Epilepsy Advocates: Don't Miss Mardi Gras](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/mardigras2013.html) - Each year the Epilepsy Foundation of Eastern Pennsylvania puts on a fantastic Gala with a Mardi Gras theme. This year the event will be held on Friday, February 8, 2013 at the Crystal Tea Room in Philadelphia. The festivities, will begin with a cocktail reception at 7 pm, followed by a 3-course creole style dinner - [Rock out to raise epilepsy awareness March 22-24](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/rock-out-to-raise-epilepsy-awareness-march-22-24.html) - On March 24, 2013, in honor of Purple Day, the Epilepsy Foundation of New Jersey (EFNJ) will host the 2nd Annual Paint the Pony Purple benefit concert at The Stone Pony. The concert lineup includes world renowned rock guitarist, Gary Hoey; NJ’s beloved cover band, Almost Easy; and last year’s crowd favorite, The RockNRoll Chorus - [Win your own Les Paul Guitar on March 24](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/win-your-own-les-paul-guitar-on-march-24.html) - On March 24, be sure to swing by the legendary Stone Pony located in Asbury Park, NJ. You won't want to miss the Second Annual Paint the Pony Purple concert to benefit epilepsy awareness. Event Updates The team at the Epilepsy Foundation of New Jersey just let me know that a few amazing items have - [Local Events: Glow Walk Run for Epilepsy Foundation NJ](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/local-events-glow-walk-run-for-epilepsy-foundation-nj.html) - What Join the Epilepsy Foundation NJ as they raise awareness and dollars to provide education, recreation, and support to individuals living with epilepsy in New Jersey. Where/When 5K & Family Fun Walk Sunday, October 25, 2015 Liberty State Park Jersey City, NJ Family Fun Walk The 2nd Annual Glow Walk will be held in the - [Local Events: Art Therapy, a Half-Marathon, and Sharons Ride all for EFMNY](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/local-events-art-therapy-a-half-marathon-and-sharons-ride-all-for-efmny.html) - The Epilepsy Foundation of Metropolitan New York has been at the heart of the NYC epilepsy community for almost fifty years, and is New York City’s only specialized organization combining epilepsy education, awareness, and advocacy with individualized services such as counseling and vocational supports. Living Well With Epilepsy is grateful to the Epilepsy Foundation of - [Local Events: Sprout Film Festival](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/local-events-sprout-film-festival.html) - The dates for the 14th Annual Sprout Film Festival are set. The event will once again return to SVA Theatre in New York City. The event will run from Saturday, May 21 through Sunday, May 22, 2016. The Sprout Film Festival was founded in 2003 and is programmed and supported by Sprout, a New York City - [Local Events: Paint the Pony Purple in 2016](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/paint-the-pony-purple-in-2016.html) - The Epilepsy Foundation of New Jersey wants you to join them at the Stone Pony for the 5th Annual Paint the Pony Purple event for epilepsy awareness on Sunday, March 13, 2016. - [FDA gathers Patient Perspectives on August 1](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/fda-workshop-patient-perspectives.html) - On August 1, the FDA is hosting a workshop to gather feedback on patient perspectives, needs and experience with medical devices in Silver Spring, MD. - [Healthy Aging: Epilepsy and Brain Training](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness/epilepsy-and-brain-training.html) - I'm getting better at the whole healthy aging and adulting thing for sure, but it's taken me longer than I'd like to admit to test out brain training. - [Epilepsy Blog Relay: 5 Steps to Create Your Own Epilepsy Zine](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/create-your-own-epilepsy-zine.html) - Christalle shows how creating an epilepsy zine is an easy and affordable way to get creative and spread epilepsy awareness. - [Epilepsy Blog Relay: Leila on Navigating Health Insurance](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare/leilas-ideas-navigating-medial-insurance.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you! Health Insurance and Epilepsy Shopping for insurance can be overwhelming. There are so many things to think about: drug formularies, whether a plan covers your doctors, co-payments, - [Healthcare Debate: Abby's Take on Living with a Preexisting Condition](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare/healthcare-debate-abbys-take-on-living-with-a-preexisting-condition.html) - Those working on the new healthcare bill that doesn't cover preexisting conditions must NOT have any loved ones who are affected by one. - [Healthcare Debate: Rachel's Take on Living Without Healthcare Insurance](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare/healthcare-debate-rachels-story.html) - The future of healthcare in the United States has become frightening and scary for our family since three of my four family members have epilepsy. - [Healthcare Debate: Leila's Take on Managing the Cost of a Preexisting Condition](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare/healthcare-debate-leilas-story.html) - When I calculate the cost of each medication I take, I could be paying over $1000 per month to manage my epilepsy if I did not have insurance to help. - [Epilepsy Blog Relay: Michael takes a positive approach to an epilepsy diagnosis](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed/a-positive-approach-to-an-epilepsy-diagnosis.html) - After years of mental and physical trauma from seizures, Michael discovered what he wanted to acomplish as a person, and as someone diagnosed with epilepsy. - [Epilepsy Blog Relay: Service Animals for Epilepsy and Autism](https://livingwellwithepilepsy.com/life-with-epilepsy/service-dogs/service-animals-for-epilepsy-and-autism.html) - Audra will take a deeper look into the world of service animal training. She also includes an interview with Christa Holmans, aka Neurodivergent Rebel. - [Epilepsy Blog Relay: Living With A Spouse Who Has Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/epilepsy-blog-relay-living-with-a-spouse-who-has-epilepsy.html) - Mike admits, "when your spouse has epilepsy you will find it's easy to help them. It may take a little extra work, but it's worth it because you love them." - [Epilepsy Blog Relay: Tips for Your Next Epilepsy Monitoring Unit (EMU) Stay](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed/tips-for-an-epilepsy-monitoring-unit-emu-stay.html) - Alison recently spent 8 days in the University of Virginia’s epilepsy monitoring unit (EMU) in hopes of capturing a few seizures on a video EEG. She brought back a few tips on how to keep your sanity during your next EMU stay. - [Epilepsy Blog Relay: Epilepsy and planning a family](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/epilepsy-and-planning-a-family.html) - Alison and husband Preston have talked about planning a family but they knew her epilepsy would mean taking some extra steps. Here she shares their journey. - [Meet Joel and "Flame" the Medikidz wonder dog](https://livingwellwithepilepsy.com/life-with-epilepsy/service-dogs/meet-joel-flame-medikidz-wonder-dog.html) - Meet Joel Wilcox and his 5 lb papillon seizure assistance dog, Flame, the stars of a new comic book, Medikidz Explain Seizure Assistance Dogs. - [Epilepsy Blog Relay™: Audra talks about therapy dogs](https://livingwellwithepilepsy.com/life-with-epilepsy/service-dogs/epilepsy-blog-relay-audra-talks-about-therapy-dogs.html) - Audra's Story: Therapy dogs are more than just pets. They help with everyday tasks and help with an emotional factor in autism and epilepsy. - [Epilepsy Blog Relay: Will Drum for a Service Dog](https://livingwellwithepilepsy.com/life-with-epilepsy/service-dogs/will-drum-for-a-service-dog.html) - Brett decided that he needed a service dog. So Brett decided to take matters into his own hands (literally) and raise money with a drum performance online. - [Edward shares his experience with epilepsy and assistance dogs](https://livingwellwithepilepsy.com/life-with-epilepsy/service-dogs/edward-shares-his-experience-with-epilepsy-and-assistance-dogs.html) - Edward has been fighting a battle with epilepsy for over thirty years. But life changed for the better thanks to his assistance dog "Zern", a Labrador Retriever. - [Sudden unexplained deaths in epilepsy or SUDEP](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/45000-sudden-unexplained-deaths-in.html) - Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where no cause of death can been found. - [Meet Shelby: Connecting on loss from epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/meet-shelby-connecting-loss-epilepsy.html) - Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story. - [Loss from Epilepsy: Traditions can be altered](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/loss-from-epilepsy-traditions-can-be-altered.html) - Our world revolved around seizures; therefore, many of our family “traditions” were altered. Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives. This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized. As time progressed, though, we learned the magnitude of - [Loss from Epilepsy: Shelby finds signs of Clay everywhere](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/shelby-finds-signs-of-clay-everywhere.html) - I am a firm believer in signs, not the type that are physically positioned throughout our daily lives, but those that are spiritually given to us when we need them most. - [Epilepsy Blog Relay: The constant fear of SUDEP](https://livingwellwithepilepsy.com/aboutepilepsy/sudep/the-constant-fear-of-sudep.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today's post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I doubt there is - [Epilepsy Blog Relay: The Pharmacist Mom on her most precious patient](https://livingwellwithepilepsy.com/epilepsy-stories/the-pharmacist-mom.html) - As a mom to a child with epilepsy, I want to hold him in my arms and make it all go away. This is when my pharmacist hat comes off. - [Epilepsy 101](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-101-2.html) - When people don't have the basic facts that's when myths tend to fill in the blanks. So here is epilepsy in a nutshell:What is Epilepsy?Epilepsy is a chronic neurologic disorder with many possible causes. Anything that disturbs the normal pattern of neuron activity - from illness to brain damage to abnormal brain development - that - [Epilepsy Stigma: Why Leila is tackling this obstacle in her own way](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/epilepsy-stigma-why-leila-is-tackling-this-obstacle-in-her-own-way.html) - Epilepsy stigma is a societal problem. Addressing people one-by-one is helpful, and I hope they teach others what they have just learned. - [Epilepsy Blog Relay: 5 Tips for Finding Hope with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/5-tips-for-finding-hope-with-epilepsy.html) - Soo has lived with epilepsy her whole life and shares 5 tips for finding hope when living with epilepsy. - [Jason’s Story: Turning Empathy Into Action While Living With Epilepsy](https://livingwellwithepilepsy.com/partner/sklifescience/jasons-story-turning-empathy-into-action-while-living-with-epilepsy.html) - For Jason Raether, his epilepsy diagnosis only deepened his empathy and strengthened his commitment to educating those around him. - [New Epilepsy Scholarship Program](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness/new-epilepsy-scholarship-program.html) - Epilepsy scholarship program for those attending university or college or working toward a trade or certification program. See if you are eligible. - [Lainie's story: A journey of mindful acceptance with epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness/lainies-story-a-journey-of-mindful-acceptance-with-epilepsy.html) - Lainie shares her journey of mindful acceptance with epilepsy. She exposes her inner struggle and recognizes the importance of self-love. - [Mindfulness meets epilepsy management](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness/mindfulness-meets-epilepsy-management.html) - For individuals with epilepsy, mindfulness can be particularly beneficial in managing our seizure threshold. - [My perspective on gratitude](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness/perspective-on-gratitude.html) - It's not always easy, this life and feeling grateful, especially when epilepsy is in the mix. So, I wanted to share a little about my perspective on gratitude. - [Managing Stress with Epilepsy by Integrating Gratitude](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness/integrate-dbt-into-daily-life-morning-mindfulness-to-evening-reflection.html) - We know that epilepsy shapes daily routines, emotional resilience, and one tool that can help with managing stress is a gratitude practice. - [Kids with epilepsy head back to school](https://livingwellwithepilepsy.com/life-with-epilepsy/school/backtoschoolwithepilepsy2012.html) - To parents of children with epilepsy, heading back to school can be overwhelming. It can help to know there are resources available to your family. - [Tips on creating 504 and IEP plans for your child with epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/epilepsy-blog-relay-tips-on-creating-504-and-iep-plans-to-safeguard-your-child-with-epilepsy.html) - Audra offers some tips on creating a 504 and an IEP plan to safeguard your child with epilepsy at school. - [Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/finding-a-new-doctor-while-living-with-epilepsy.html) - It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy. - [Every two minutes: A new case of epilepsy is diagnosed](https://livingwellwithepilepsy.com/epilepsy-news-and-research/every-two-minutes-new-case-of-epilepsy.html) - The Epilepsy Foundation shows on their site that there are 200,000 cases of epilepsy diagnosed each year (it appears they are referring to the US only). To put this number into perspective, it occured to me that this really amounts to a new case diagnosed every two minutes. Other Two Minute FactsEvery two minutes ...a woman - [Medical marijuana and other epilepsy news](https://livingwellwithepilepsy.com/epilepsy-stories/medical-marijuana-and-other-epilepsy-news.html) - Once a month, I plan to bring to light an incredible news story and how it relates to all of us affected by epilepsy. For starters, just last week in Texas, an organization had its very first harvest of medical marijuana. - [Epilepsy Blog Relay: Dana is loving life as an epilepsy mom](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-dana-is-loving-life-as-an-epilepsy-mom.html) - I never expected to be on this journey as an Epilepsy Mom but here I am. - [5 Tips to Live Well with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/5-tips-to-live-well-with-epilepsy.html) - Epilepsy is a fact of life and it's our challenge to live with it as best we can. I want to share 5 tips that help me live well with epilepsy. - [Epilepsy Blog Relay: Would you date someone with epilepsy?](https://livingwellwithepilepsy.com/epilepsy-stories/would-you-date-someone-with-epilepsy.html) - Personally I'm grateful on so many levels that I'm not dating anymore. If I had to start again it would be bad. Mainly because I'm super awkward. - [Epilepsy Coaching is Now Available for Free](https://livingwellwithepilepsy.com/epilepsy-coach/epilepsy-coaching-is-now-available-for-free.html) - Living Well With Epilepsy can now provide FREE Epilepsy Coaching sessions to 120 people in 2025. There is still time to register. - [Recharge Your Batteries: Make Time for Joy](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/recharge-your-batteries-make-time-for-joy.html) - Dialectical Behavior Therapy (DBT) reminds us to recharge our emotional batteries and make time for joy. - [CURE Epilepsy Hosts Event to Kick Off Epilepsy Awareness Month](https://livingwellwithepilepsy.com/partner/cure-epilepsy-hosts-event-to-kick-off-epilepsy-awareness-month.html) - The CURE Epilepsy team has invited me to share info on a fundraising event they are hosting in NYC in honor of Epilepsy Awareness Month. - [Morgans Epilepsy Story: Living with Temporal Lobe Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/an-epilepsy-story-living-with-tle.html) - Morgan shares her epilepsy story about living with Temporal lobe epilepsy. Morgan's epilepsy story was first published on the site in 2012. - [Epilepsy Blog Relay™: Melanie Griffith on living with epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/melanie-griffith-living-with-epilepsy.html) - I am not going to lie. I was absolutely shocked when my Twitter feed blew that Actress Melanie Griffith had revealed she too was battling epilepsy. - [Epilepsy Blog Relay™: Gemma on life with epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/gemma-on-life-with-epilepsy.html) - Today’s post comes from Gemma Jordan, who writes about her life with epilepsy on her blog, fab-younique.com. - [Epilepsy Blog Relay™: Hadley Jo and Ariel](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-hadley-jo-ariel.html) - This post is part of the Epilepsy Blog Relay™, which will run from Nov. 1 to Nov. 30, 2017. Follow along! Hadley Jo's Story Hadley Jo (4) was diagnosed at age 2 with cryptogenic localization related epilepsy. According to the journal, Epilepsy & Behavior, up to one-third of children with epilepsy are diagnosed with cryptogenic localization-related epilepsy - [Epilepsy Blog Relay™: Lainie on epilepsy and embarrasment](https://livingwellwithepilepsy.com/epilepsy-blog-relay/lainie-on-epilepsy-and-embarrasment.html) - Embarrassment and isolation are things we get used to feeling when we are dealing day to day with the realities of living with a sparky brain. - [Seizures, pregnancy and epilepsy in real life](https://livingwellwithepilepsy.com/epilepsy-stories/seizures-pregnancy-and-epilepsy-in-real-life.html) - Jamie shares a story about her experience with seizures, pregnancy and epilepsy. - [Epilepsy and Pregnancy - what to expect](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-pregnancy-what-to-expect.html) - Abby gets honest about her own epilepsy and pregnancy. She wants women to know what to expect when they head into pregnancy with epilepsy. - [Women and Epilepsy: Brandy Parker inspires moms with epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/brandy-parker-inspires-moms-with-epilepsy.html) - Women and Epilepsy: In honor of Mother's Day, I spoke to Brandy Parker a delightful mom with epilepsy, and the Executive Directorof My Epilepsy Story. - [Women and Epilepsy: Pregnancy and the Ketogenic Diet](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/pregnancy-and-the-ketogenic-diet.html) - Women and Epilepsy: Becky shares her experience with epilepsy, pregnancy and the ketogenic diet. - [Postpartum Care and Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/postpartumcare-and-epilepsy.html) - Maureen knew that pregnancy was going to be difficult. But postpartum care was where she lacked support from medical professionals as a woman with epilepsy. - [Women and Epilepsy: Pregnancy, epilepsy and finding gratitude](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy/pregnancy-and-epilepsy-finding-gratitude.html) - Women and Epilepsy: Stephanie shares her experience with pregnancy and epilepsy andfinding gratitude through it all. - [What the EF Podcast featuring DJ HAPA](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast/epilepsy-is-a-superpower-with-dj-hapa.html) - What the EF podcast released its first episode today! Wanna stay motivated to keep those New Year’s resolutions? Take a listen to this heart-to-heart with DJ HAPA. - [What the EF Podcast featuring Sarah Carlson](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast/lights-camera-seizure-with-sarah-carlson.html) - What the EF Podcast: Episode 2. Sarah Carlson has a unique experience of how her epilepsy diagnosis came to light…literally. A former news anchor, Sarah had a seizure while on air, which ended up costing her job. - [What the EF Podcast featuring Kenzie O'Connell](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast/what-the-ef-podcast-featuring-kenzie-oconnell.html) - Struggling to find a neurologist? You’re not alone. Kenzie O’Connell tells us about trying to find a doc that was the best fit for her and the stressors - [What the EF Podcast featuring Mary Laura Philpott](https://livingwellwithepilepsy.com/epilepsy-stories/what-the-ef-podcast-featuring-mary-laura-philpott.html) - Bestselling author Mary Laura Philpott walks us through the moment that her and her family’s life was changed forever: her teenage son’s first seizure. - [What the EF Podcast featuring Dr. Brad Ingram](https://livingwellwithepilepsy.com/epilepsy-stories/what-the-ef-podcast-featuring-dr-brad-ingram.html) - Dudes and dating Perfect Valentine’s Day episode! As a pediatric epileptologist living with epilepsy, Dr. Ingram has a unique perspective—and one that doesn’t get a lot of attention - [What the EF podcast with Madeleine Khamnei](https://livingwellwithepilepsy.com/epilepsy-stories/what-the-ef-podcast-with-madeleine-khamnei.html) - We unpack it all with Madeleine Khamnei—the struggles of college, jobs, and dating. Epilepsy stopped her dreams in their tracks, and she got back up - [What the EF Podcast with Natalie Beavers](https://livingwellwithepilepsy.com/epilepsy-stories/what-the-ef-natalie-beavers.html) - Diagnosed at age 5, Natalie Beavers addresses the giant learning curve that ensued for her and her family. She shares how self-advocacy ultimately led to creating a safe - [What the EF Podcast with Eli Corbett](https://livingwellwithepilepsy.com/epilepsy-stories/what-the-ef-podcast-with-eli-corbett.html) - Diagnosed with epilepsy as a teen, Eli did what many of us have done: hid it from everyone and pretended it’s not there. Years later as a practicing attorney... - [What the EF podcast with Lisa Lindahl](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast/what-the-ef-podcast-with-lisa-lindahl.html) - Lisa Lindahl is the inventor of the sports bra. ‘Nuff said. Lisa’s mom said that epilepsy meant she had zero expectations of Lisa accomplishing anything. - [How to have a career and manage epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/how-to-have-a-career-and-manage-epilepsy.html) - What the EF podcast kicks off Seizen 3 with Jennifer Reyes on her strategies for the awkward convos at work about seizures or needing accommodations (which are legally required but hard to ask for). Grab a pen because you’ll want to write these tips down! Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & - [Support groups could be the new dating app](https://livingwellwithepilepsy.com/epilepsy-stories/support-groups-could-be-the-new-dating-app.html) - This episode of What the EF podcast has the world’s best meet-cute and what dating with empathy looks like. Calling in from Scotland, Abby and Colin Bodie share their love story and how it feels being with someone who truly gets it. Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible Stay connected - [Still surfing: water safety and epilepsy with Jared Muscat](https://livingwellwithepilepsy.com/epilepsy-stories/still-surfing-water-safety-and-epilepsy-with-jared-muscat.html) - In this episode, What the EF podcast talks to Jared Muscat about why he wouldn’t let epilepsy stop him from doing his favorite thing: surfing. Water safety is tricky when it comes to seizures, and Jared shares how to stay safe without giving up your passion—no matter what it is. What the EF is available - [How does marriage work with epilepsy? with Tiffany Kairos](https://livingwellwithepilepsy.com/epilepsy-stories/how-does-marriage-work-with-epilepsy-with-tiffany-kairos.html) - In this episode, What the EF podcast chats with the queen of epilepsy advocacy, Tiffany Kairos, and ask the questions that can’t be answered in a doc’s office. Like…what does a marriage look like when epilepsy enters after the wedding day? Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible Connect with What - [What is Dialectical Behavioral Therapy or DBT ?](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/what-is-dbt.html) - Dialectical Behavior Therapy (DBT) offers powerful tools for managing life with epilepsy. Learn more about the four key DBT skills and how they can help. - [DBT: Quality of Life When Living with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/quality-of-life-when-living-with-epilepsy.html) - Having a good quality of life when living with epilepsy can be difficult considering the constant challenge of seizures and their impact on day to day life. - [Discover How These DBT Skills Can Improve Life with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/discover-how-these-dbt-skills-improve-life-with-epilepsy.html) - DBT skills can significantly improve quality of life by managing both the physical and emotional aspects of epilepsy. - [Calm Your Nervous System with the 4-7-8 Breathing Technique](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth/calm-your-nervous-system-with-the-4-7-8-breathing-technique.html) - The 4-7-8 breathing technique is a simple yet effective DBT tool to calm your nervous system, especially useful for epilepsy management. - [Alison's Story: When a Seizure Happens at Work](https://livingwellwithepilepsy.com/epilepsy-stories/when-a-seizure-happens-at-work.html) - It was a usual Tuesday at work filled with meetings and upcoming projects. Alison lost time in the afternoon and as she pieced together what happened, she realized it was a seizure. - [Epilepsy Blog Relay: Kat takes on temporal lobe epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/kat-takes-on-temporal-lobe-epilepsy.html) - Kat takes on living with temporal lobe epilepsy from a personal perspective - [Epilepsy Blog Relay: What's the deal with alcohol and epilepsy?](https://livingwellwithepilepsy.com/epilepsy-stories/whats-the-deal-with-alcohol-and-epilepsy.html) - A common question adults with epilepsy ask is, "Can you drink alcohol when you have epilepsy?" So here's some info on epilepsy and alcohol. - [Epilepsy Blog Relay: Allison is shedding light on epilepsy one aura at a time](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-blog-relay-allison-is-shedding-light-on-epilepsy-one-aura-at-a-time.html) - Allison is shedding light on epilepsy one aura at a time. - [Epilepsy Blog Relay: The Complicated Goal of Seizure Freedom](https://livingwellwithepilepsy.com/life-with-epilepsy/seizure-freedom.html) - After years of seizure freedom, my epilepsy reared its ugly head again with cluster seizures. As a result, my neurologist prescribed medication again. - [Epilepsy Blog Relay: My coworkers and my epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/my-coworkers-and-my-epilepsy.html) - Leila's Story: I have epilepsy and I need to figure out how I want to deal with it in the workplace with my coworkers. - [Epilepsy Blog Relay: Uncovering Widespread Work-Related Issues Associated With Epilepsy For Patients And Caregivers](https://livingwellwithepilepsy.com/life-with-epilepsy/work-related-issues-associated-with-epilepsy.html) - A new, national survey of adult epilepsy patients, caregivers and healthcare professionals (HCPs) revealed a wide range of challenges in the management of epilepsy, which affects more than three million adults in the United States.1 SK Life Science, Inc. engaged Kantar Health to develop the Seize the Truth about Epilepsy Perceptions (STEP) Survey, with a - [5 Tips for Starting a New Job with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/tips-for-starting-a-new-job-with-epilepsy.html) - A while back I started a new job as therapist. Having completed graduate school, I was so happy to be working in my field. Despite my excitement, my new job brought challenges. One of those challenges included management of my seizures. I developed new triggers and had to rework my daily routine to make sure - [Top 5 New Year's Resolutions](https://livingwellwithepilepsy.com/life-with-epilepsy/new-years-resolutions/top-5-resolutions.html) - There are your standard New Year's Resolutions and then there are some that have a big impact on life with epilepsy. Check these out for ideas in your own life! - [Epilepsy Blog Relay: Epilepsy support through positive relationships](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-support-through-positive-relationships.html) - Abby shares about the importance of seeking out positive relationships in establishing a strong epilepsy support system. - [Epilepsy and Vitamins: I could use your help](https://livingwellwithepilepsy.com/life-with-epilepsy/food/epilepsy-vitamins-use-help.html) - For a while now my doctors have wanted me to take vitamins. I know I should but I just can't bring myself to follow doctors orders. - [Epilepsy Blog Relay™: Whitney changes her relationship to food](https://livingwellwithepilepsy.com/epilepsy-blog-relay/whitney-on-food-and-epilepsy.html) - I started reading about diets and chronic illnesses but was skeptical of it all. I decided to change my relationship with food to better control my seizures. - [Epilepsy Blog Relay: Jade's keto journey](https://livingwellwithepilepsy.com/epilepsy-stories/jades-keto-journey.html) - Jade shares how she took something that was crushing her spirit (epilepsy), and turned it into what drives her. She shares her own Keto Journey with us. - [Rachel's Story: The fight for her dreams while facing epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/rachels-story-the-fight-for-her-dreams-while-facing-epilepsy.html) - Despite facing over 20 seizures a day, Rachel shares her story of her journey to have the life she dreamed as a personal trainer. - [Epilepsy Blog Relay™: Mindful empowerment and epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/mindful-empowerment-and-epilepsy.html) - Lainie on being mindful of her own inner struggle: "I wanted so badly to cure myself of Epilepsy that I never accepted that I even had seizures." - [Epilepsy Blog Relay™: Balancing Fitness Goals with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/finding-balance-fitness-goals-epilepsy.html) - I love it when people say, just find the right balance. It sounds so simple. But, is it really? - [Epilepsy and Fitness: Choosing a Charity and Giving Back](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness/epilepsy-and-fitness-giving-back.html) - When you can give back to the community while doing something you love, everybody wins. Abby shares her example of giving back with Girls on the Run. - [Epilepsy Blog Relay™: Creative Solutions to Seizure Triggers](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-creative-solutions-to-seizure-triggers.html) - Many people have asked me what my seizure triggers are. So, I thought I would tell you both my triggers and what tools I use to combat them. - [Epilepsy Blog Relay: When Giving Up Is Not An Option](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-alyssas-story-shadow-light.html) - When I was diagnosed with Epilepsy at the age of six, my life transformed into a monsoon. I started having trouble socially, academically, and physically. It seemed as if my world was in a downward spiral until I was introduced to softball. That is where I learned that giving up was never an option. - [Karl's Story: The Gift of Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/the-gift-of-epilepsy.html) - In 1997, I would not have said Epilepsy was a gift. However, back then I was a 21 year old soldier on a peacekeeping mission in Bosnia. - [Epilepsy Blog Relay: Why it's Important to Exercise When Living With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/why-its-important-to-exercise-when-living-with-epilepsy.html) - People fear that exercising will cause seizures in those who have epilepsy. In fact, regular exercise will keep you fit and improve your overall health. - [Epilepsy Blog Relay: Epilepsy Medications and Fitness](https://livingwellwithepilepsy.com/epilepsy-stories/medications-and-fitness.html) - Vinay learned the hard way to ask about how his epilepsy medications could impact or be affected by his intense fitness schedule. - [Epilepsy Blog Relay: 5 Tips for Fitness with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/abbysaferfitness.html) - Abby shares 5 tips to help you thoughtfully choose a safe fitness program or physical activity when you are living with epilepsy. - [Epilepsy Blog Relay™: Maureen on exploring Hawaii with epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/maureen-on-exploring-hawaii-with-epilepsy.html) - Exploring Hawaii, and the Kaumana Caves, reminded me how many new experiences can seem overwhelming yet are worth it in the end. - [Epilepsy Blog Relay™: Using Tech to Improve life with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-using-tech-improve-life-epilepsy.html) - Having both epilepsy and cerebral palsy, Colleen’s life began with so much uncertainty. As she’s gotten older, tech has played a key role in our life. - [Clair's Story: Adjusting to life with seizures and to living seizure-free](https://livingwellwithepilepsy.com/epilepsy-stories/clairs-story-adjusting-to-becoming-seizure-free.html) - Clair shares her story of becoming an adult with seizures and the adjustments she made to living seizure-free as well as perspectives she gained along the way. - [What is a rescue medication for epilepsy?](https://livingwellwithepilepsy.com/aboutepilepsy/rescue-medication/what-is-a-rescue-medication.html) - You may have heard the term "Rescue Medication", when talking about Asthma, COPD, Heart Disease or Allergies. But what is a rescue medication for epilepsy? - [The Shop: Fan Fave Epilepsy Era and Seizure Free Era shirts](https://livingwellwithepilepsy.com/shop/fan-fave-epilepsy-era-and-seizure-free-era-shirts.html) - Check out these fan fave epilepsy era shirts from the LWWE Shop. - [4 Warning signs you may have burnout](https://livingwellwithepilepsy.com/epilepsy-stories/4-signs-of-burnout.html) - Amanda has been living with epilepsy, since she was born. But when she was hit with burnout because of school and work, she didn't even have a name for it. - [Memory and Epilepsy: Through the haze of epilepsy medication](https://livingwellwithepilepsy.com/epilepsy-stories/memory-and-epilepsy-through-the-haze-of-epilepsy-medication.html) - Every morning, I gulp a pill that transforms my past into historical fiction. The medication which manages my epilepsy, also devours my memory. - [Seizure First Aid: What would you do?](https://livingwellwithepilepsy.com/aboutepilepsy/epilepsy-first-aid/seizure-first-aid-what-would-you-do.html) - As I walked through the turnstile my curiosity got the better of me. I turned around to find there was a woman on the floor in need of seizure first aid. - [10 Tips to Find a Great Neurologist](https://livingwellwithepilepsy.com/aboutepilepsy/how-to-find-a-great-neurologist.html) - The health system is hard enough to navigate. Worrying about how to find a great neurologist when you aren't even sure if you need one can be pretty daunting. - [Living Well With Epilepsy Goes on a Podcast Tour](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-with-epilepsy-goes-on-a-podcast-tour.html) - Living Well With Epilepsy recently hit the road on a podcast tour with some amazing creative women. Check out the results! - [International Epilepsy Day: Discovering the impact of sharing one's story](https://livingwellwithepilepsy.com/epilepsy-stories/social-connections-and-epilepsy.html) - By sharing my story I discovered the social connections within the epilepsy community. Speaking about how I overcame the fear of uncertainty of having seizure was a different kind of exposure for me. - [From Pinktober to Purple in November for Epilepsy Awareness Month](https://livingwellwithepilepsy.com/aboutepilepsy/pinktober-to-purple-in-november.html) - As an epilepsy advocate and a cancer survivor, Pinktober brings feelings of gratitude and frustration with Epilepsy Awareness month around the corner. - [Register today to attend Epilepsy Awareness Day at Disneyland](https://livingwellwithepilepsy.com/advocacy-awareness/register-today-to-attend-epilepsy-awareness-day-at-disneyland.html) - This Epilepsy Awareness event in CA features two days of Epilepsy Education and a free Epilepsy Expo followed by an Epilepsy Awareness Day at Disneyland. - [Back to School: 5 things to know about administering rescue medication](https://livingwellwithepilepsy.com/aboutepilepsy/rescue-medication/5-things-to-know-about-administering-rescue-medications.html) - People with epilepsy are heading back to high school, college and grad school. So here are 5 things to remember about administering rescue medications. - [RITUAL: My Favorite Vitamins](https://livingwellwithepilepsy.com/epilepsy-blog-relay/ritual-collab-for-march-2023-epilepsy-blog-relay.html) - This March Epilepsy Blog Relay we've partnered with Ritual. I've been using their multivitamin for about a year and I'm really happy with it. - [Back to School: Free Webinars for School Nurses](https://livingwellwithepilepsy.com/life-with-epilepsy/school/back-to-school-free-webinars-for-school-nurses.html) - School nurses can now access this free webinar that shares info on how to help students with epilepsy manage episodes of frequent seizures at school. - [5 Reasons to work with an epilepsy health coach](https://livingwellwithepilepsy.com/epilepsy-coach/5-reasons-to-work-with-an-epilepsy-health-coach.html) - Enlisting an epilepsy health coach can make increasing your sense of control and decreasing your sense of isolation a heck of a lot easier! - [Epilepsy Blog Relay: Pregnancy planning and Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-pregnancy-planning-and-epilepsy.html) - Erica shares the story of her pregnancy planning journey, while also managing epilepsy. - [Epilepsy Blog Relay: Soo on considering CBD for epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/considering-cbd-for-epilepsy.html) - You could say I have evolved in my beliefs about alternative medicine and epilepsy. Where I was previously skeptical of medical marijuana (CBD), I am now open to the idea. - [Epilepsy Blog Relay: Practicing gratitude during difficult times](https://livingwellwithepilepsy.com/epilepsy-stories/practicing-gratitude.html) - Jenny takes a moment to practice gratitude despite her daughter's illness during a particularly difficult time. - [Epilepsy Blog Relay: The Tuholskys manage epilepsy together as a family](https://livingwellwithepilepsy.com/epilepsy-stories/tuholskys-manage-epilepsy-together-as-a-family.html) - Meet the Tuholsky family and learn about their journey with their son Kyle’s epilepsy. They are remaining positive and advocating for better seizure control. - [Epilepsy Blog Relay: Ready to hit the stage with her epilepsy story](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-ready-to-hit-the-stage-with-her-epilepsy-story.html) - Lainie has taken going public with her epilepsy to the next level. She's written a book, taken to the stage and is launching a podcast! Check her out. - [Epilepsy Blog Relay: Brain Surgery for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/brain-surgery-for-epilepsy.html) - Nancy Jane and her husband have shared the story of preparing for his brain surgery for epilepsy. They are ready for a better option. - [Epilepsy Blog Relay: Epilepsy as a Result of Cortical Dysplasia](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-epilepsy-as-a-result-of-cortical-dysplasia.html) - Roman was diagnosed with epilepsy as a result of cortical dysplasia at the age of 3.5 months old. Learn more about cortical dysplasia here. - [Epilepsy Blog Relay: Meet Epileptic Movie Producer Carolyn Parker Boyd](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epileptic-movie-producer.html) - Meet Carolyn Parker Boyd: She's an epileptic movie producer and she has a new project titled, "Where's Gramps?" - [Epilepsy Blog Relay: One week as an epilepsy camp counselor changed my life](https://livingwellwithepilepsy.com/epilepsy-blog-relay/one-week-as-an-epilepsy-camp-counselor-changed-my-life.html) - I took a week off of my job as a behavior analyst, to volunteer an epilepsy camp counselor at Camp Coelho . It changed my life. - [Epilepsy Blog Relay: November is Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-awareness-month-2.html) - November is Epilepsy Awareness Month and we are starting off with a bang. We hope to see you at our booth at Epilepsy Awareness Day at Disneyland. - [Emily's Perspective: A New School Year with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/school/a-new-school-year-with-epilepsy.html) - When a child with Epilepsy begins school, he or she may face many obstacles. In this article, I suggest some tips to help kids find success. - [Could epilepsy medications be next to be denied?](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare/could-epilepsy-medications-be-next-to-be-denied.html) - Neurologists express concern that people with epilepsy may find it difficult to access epilepsy medications in a post-Roe world. - [Epilepsy Blog Relay: Avery's Fight With Nonketotic Hyperglycinemia (NKH)](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-averys-fight-with-nonketotic-hyperglycinemia-nkh.html) - Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia). - [Pro Golfer Kenzie O’Connell On Taking Control of Her Epilepsy and Fighting for Zero Seizures](https://livingwellwithepilepsy.com/epilepsy-blog-relay/pro-golfer-kenzie-oconnell-on-taking-control-of-her-epilepsy-and-fighting-for-zero-seizures.html) - STEPS Toward Zero champion, Kenzie O’Connell, and epilepsy advocate, Landis Wiedner, share about their experiences living with and managing epilepsy - [Epilepsy Blog Relay: I'm tired of fighting within the epilepsy community](https://livingwellwithepilepsy.com/epilepsy-stories/tired-of-fighting-within-the-epilepsy-community.html) - Frankly I'm tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work. - [Epilepsy Blog Relay: Epilepsy Stigma in Teens and Adults](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-stigma-in-teens-and-adults.html) - We've taken a close look at epilepsy stigma and wanted to share the similarities and differences in how teens and adults respond to epilepsy stigma in real life - [Epilepsy Blog Relay: Taking on Imposter Syndrome and Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/taking-on-imposter-syndrome-and-epilepsy.html) - Currently, Jamie is feeling a sense of imposter syndrome when it comes to her epilepsy. She's come up with a few ways to tackle it. - [Epilepsy Blog Relay: Jamie on living with epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-18-ebr-posts/jamie-on-living-with-epilepsy.html) - I have had Epilepsy my entire life and have been fortunate enough to be seizure free for almost 5 years. - [Epilepsy Blog Relay: New epilepsy diagnosis after seven years](https://livingwellwithepilepsy.com/epilepsy-stories/new-epilepsy-diagnosis-after-seven-years.html) - After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She's now a year seizure free! - [Epilepsy Blog Relay: Developing a creative life while managing epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/developing-a-creative-life-while-managing-epilepsy.html) - Caroline has found that managing her epilepsy has allowed her to be true to herself and focus on the creative work she is passionate about. - [Epilepsy Blog Relay: Help from an epilepsy support group](https://livingwellwithepilepsy.com/epilepsy-stories/how-an-epilepsy-support-group-can-help.html) - Early on, Soo's family would not use the word epilepsy in their home. Now, she is an advocate and makes the most of her local epilepsy support group. - [Epilepsy Blog Relay: A seizure while driving made her hopeful](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-a-seizure-while-driving-made-her-hopeful.html) - I had an absence seizure while driving on the freeway. I am more hopeful because my best friend Emily loves me despite the accident. - [FDA offers new hope for families facing rare disease](https://livingwellwithepilepsy.com/epilepsy-news-and-research/fda-offers-new-hope-for-families-facing-rare-disease.html) - FDA offers renewed hope for families facing rare disease with the launch of the Accelerating Rare disease Cures (ARC) Program - [Epilepsy Blog Relay: Chantal writes a letter to epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/chantal.html) - Chantal has been battling epilepsy for 19 years with the help of VNS. She shares a recent letter to her epilepsy. - [Epilepsy Blog Relay: Shedding light on my epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/shedding-light-epilepsy.html) - After 38 years of secrecy, Alison is now shedding light on epilepsy by sharing information and being open about her condition. - [Epilepsy Blog Relay: On Accepting Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-on-accepting-epilepsy.html) - Accepting epilepsy as a part of my everyday life only happened when I felt the slightest bit of control and ownership over this new obstacle. - [Epilepsy Blog Relay: Does hot weather affect epilepsy?](https://livingwellwithepilepsy.com/epilepsy-stories/does-hot-weather-affect-epilepsy.html) - When warmer weather rolls around I begin to wonder does hot weather affect epilepsy? Well, turns out I wasn't the only one wondering. - [Epilepsy Blog Relay: How the First Lady can influence disease stigma](https://livingwellwithepilepsy.com/epilepsy-blog-relay/first-lady-can-influence-disease-stigma.html) - As I began digging deeper into the history of disease stigma, I learned more about how the first lady has impacted stigma in a variety of disease states. - [Epilepsy Blog Relay: On Rescue Medications for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-on-rescue-medications-for-epilepsy.html) - Rescue medications for seizures and epilepsy have been on my mind a bit recently. Mainly because there's been life changes that put me at risk for seizures. - [Epilepsy Blog Relay: On Epilepsy and Stigma](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-stigma.html) - Okay so I’ll be honest the topic of epilepsy and stigma is a bit of a bugaboo of mine. But I promise to spare you the soapbox today and make it interactive. - [Epilepsy Blog Relay: On the importance of questioning side effects](https://livingwellwithepilepsy.com/epilepsy-blog-relay/questioning-side-effects.html) - I now know I need to question all the potential side effects a medication causes, even the rare ones. - [Epilepsy Blog Relay: How is epilepsy diagnosed?](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-how-is-epilepsy-diagnosed.html) - The process of getting an epilepsy diagnosis can be slow. So dealing with this process requires patience, but here are a few things to expect. - [Epilepsy Blog Relay: Does having one seizure mean you have epilepsy?](https://livingwellwithepilepsy.com/epilepsy-blog-relay/does-seizure-mean-epilepsy.html) - Does having a seizure have to mean you have epilepsy? Learn more about how the ILAE and doctors define epilepsy. - [Epilepsy Blog Relay: Pushing the limits of my epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/pushing-the-limits-of-epilepsy.html) - A few years ago, my family took a vacation that was not only relaxing, but gave me the chance to push the limits of my epilepsy in ways that surprised me. - [Epilepsy Blog Relay: Ken’s Epilepsy Journey](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-kens-epilepsy-journey.html) - With a traumatic childhood and multiple disabilities, Ken still fights for a better life and to help those around him. - [Epilepsy Blog Relay: Discovering My Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-discovering-my-epilepsy.html) - Discovering Epilepsy: Things are definitely still bumpy and new to me, but I have found that the more educated I get and the more I explore the epilepsy community the better and more stable I feel. - [Epilepsy Blog Relay: Handwritten note launches one family into the world of special needs](https://livingwellwithepilepsy.com/epilepsy-stories/handwritten-note-launches-family-into-the-world-of-special-needs.html) - In searching through my son's medical files I found a handwritten note written years ago. The note included tips for finding services our special needs son. - [Epilepsy Blog Relay: Kindness shines through when you feel alone](https://livingwellwithepilepsy.com/epilepsy-stories/kindness-shines-through-when-you-feel-alone.html) - Even when epilepsy (or something else life throws at you) makes you feel alone, it can help to remember we are among people who love and care for us! - [Study Shows Childhood-Onset Epilepsy Accelerates Brain Aging](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-research/study-shows-childhood-onset-epilepsy-accelerates-brain-aging.html) - According to a study presented at the 2021 American Epilepsy Society Annual Meeting, childhood-onset epilepsy accelerates brain aging by about 10 years. - [Prescription Assistance Programs can help with deductibles](https://livingwellwithepilepsy.com/epilepsy-blog-relay/prescription-assistance-programs-can-help-with-deductibles.html) - Here's some info on prescription assistance programs that can help with epilepsy medications. Now maybe those damn deductibles won't hurt so much! - [Emily's Perspective on Living Well With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective-on-living-well-with-epilepsy.html) - Living well with epilepsy is about raising awareness and meeting other amazing people with epilepsy and living their life as best as they can. - [Gina's Story: Navigating Temporal Lobe Epilepsy (TLE) from childhood to adulthood](https://livingwellwithepilepsy.com/epilepsy-stories/temporal-lobe-epilepsy-from-childhood-to-adulthood.html) - Gina was born with temporal lobe epilepsy (TLE). As a child, the doctors tried everything, but her seizures got worse. Now as an adult she's thriving! - [Danielle on living with epilepsy and cerebral palsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-and-cerebral-palsy.html) - I'm Danielle and I wanted to share a little about my experience living with epilepsy and cerebral palsy as well as some info on epilepsy and CP. - [Meet Natalie: STEPS Toward Zero Champion](https://livingwellwithepilepsy.com/partner/sklifescience/steps-toward-zero-natalie.html) - STEPS Toward Zero is a movement developed by SK life science, featuring epilepsy advocate Natalie Beavers founder of Angels of Epilepsy. - [Delta Variant: It's time to stock up on a few more face masks](https://livingwellwithepilepsy.com/shop/face-mask-guide.html) - With the Delta variant and the rise in COVID-19 cases, is anyone else feeling like it's time to add a new set of face masks to the wardrobe? - [Sheri's Story: Learning to Live All Over with Refractory Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/sheris-story-learning-live.html) - Sheri was diagnosed with refractory epilepsy in her late 20's. She keeps a positive attitude, but transportation can be difficult. - [Epilepsy Stigma: Afraid to tell others about epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/afraid-to-tell-others-about-epilepsy.html) - Stigma is still an issue for those living with epilepsy. So, it's understandable why we are afraid to tell others about our condition. Let's talk about epilepsy stigma. - [Life after an epilepsy diagnosis: Rafaela reminds us, we can be happy](https://livingwellwithepilepsy.com/epilepsy-stories/life-after-epilepsy-diagnosis.html) - Rafaela has shared her story to show that is possible to have an amazing life after an epilepsy diagnosis. - [Is it a seizure or a dream?](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-is-it-a-seizure-or-a-dream.html) - You know that dream where you realize you are naked or nearly naked in a public place... the one where you are barefoot walking down a long hallway in a large hotel with no idea why you are there? Here's the thing, it happened to me and it was a seizure. - [A Lifetime with epilepsy and a little help from VNS Therapy](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-a-lifetime-with-epilepsy-and-a-little-help-from-vns.html) - Betty Gail's Story My journey with epilepsy began at the very young age of 6 months old. I contracted meningitis, and needed brain surgery to remove fluid that had built up on my brain. Then at about the age of nine, the seizures started. My doctors always assumed that they came from the meningitis I - [Naomi shares Ethan's story of ARX, a rare genetic disorder](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/rare-epilepsy/naomi-shares-ethans-story-of-arx-a-rare-genetic-disorder.html) - Naomi’s Story Naomi’s blog, Ethan's Stars, shares stories from their family and from Ethan's life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, "Every year Ethan continues to learn so much, - [Special Needs Parenting: When it's okay to be a helicopter parent](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-that-one-time-where-its-okay-to-be-a-helicopter-parent.html) - Jennifer shares that sometimes being a helicopter parent is just being a good parent. - [4 Common Epilepsy Side Effects and Tips on How to Deal with Them](https://livingwellwithepilepsy.com/epilepsy-stories/living-with-side-effects.html) - Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how I have dealt with these side effects, and my solutions may not work for you. Also, some never experience side - [Epilepsy Blog Relay: Living with Tuberous Sclerosis](https://livingwellwithepilepsy.com/epilepsy-stories/living-with-tuberous-sclerosis.html) - Rachel's story My name is Rachel Skaug, formerly Rachel Kaalberg, and I had epileptic seizures as a child. My seizures started at four months old, which was in 1988, and lasted until I was 10 years old. I am from Madison, Wisconsin. Much of my testing happened at Mayo Clinic in Rochester, Minnesota. I had - [Reimagining The Third Door Following an Epilepsy Diagnosis](https://livingwellwithepilepsy.com/epilepsy-stories/reimagining-the-third-door-following-an-epilepsy-diagnosis.html) - Landis shares how her epilepsy diagnosis caused her to reimagine Alex Banayan's concept of The Third Door. - [Adjusting to an Epilepsy Diagnosis](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-21-ebr-posts/adjusting-to-epilepsy-diagnosis.html) - Kristine shares her experience with adjusting to an Epilepsy Diagnosis. She describes her fears, denial and experience of feeling isolated. - [Shareable Quotes from Epilepsy Blog Relay Stories](https://livingwellwithepilepsy.com/epilepsy-stories/shareable-quotes.html) - Here are a few great quotes from this month's Epilepsy Blog Relay stories. Feel free to share these on social media. Each image links through to the full story. - [Epilepsy - My Invisible Disability](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-my-invisible-disability.html) - Edward shares, "For the past thirty-three years, I have been living with epilepsy, an invisible disability." - [Emily's Perspective: Help your child through an EEG](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-help-child-eeg.html) - Recently I have had a lot of questions on my Facebook page about how parents can help their young children with epilepsy and how to keep them calm during an EEG. Parents are often unfamiliar with the test and don’t know how to plan or prepare their child. What is an EEG? An EEG detects - [Epilepsy Blog Relay: Former Christian Fundamentalist on Epilepsy and the Bible](https://livingwellwithepilepsy.com/epilepsy-stories/former-christian-fundamentalist-on-epilepsy-and-the-bible.html) - Elaine, a former Christian Fundamentalist, looks at epilepsy and the bible. She reminds us that throughout history epilepsy has been viewed by Western religious institutions as caused by demon possession. - [My Journey with Epilepsy as a Young Adult: Keep Pushing and Stay Strong!](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-as-a-young-adult-keep-pushing-and-be-strong.html) - Brooke share her experience living with epilepsy as a young adult: I love to run, read, write, explore, take pictures and try new things. - [The good bad and ugly of epilepsy online support communities](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-online-support-communities.html) - Hayley shares her experience with epilepsy online support communities for those newly diagnosed, or just new to online support. - [On explaining epilepsy to peers](https://livingwellwithepilepsy.com/epilepsy-stories/on-explaining-epilepsy-to-peers.html) - Being an individual living with epilepsy, the one question I get a lot is, “What is epilepsy?” The scientific definition is a chronic neurologic disorder with many possible causes including illness, brain damage, or abnormal brain development. - [When embracing cowardice shows bravery](https://livingwellwithepilepsy.com/epilepsy-stories/when-embracing-cowardice-shows-bravery.html) - Just because I appear brave doesn't mean that I'm not hiding a coward inside that I'm now prepared to admit and take responsibility for - [Epilepsy Blog Relay™: Connecting with others](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts/epilepsy-blog-relay-connecting-others.html) - I used to have a block against connecting with people that had Epilepsy. These days I'm more accepting of my Epilepsy and I've found people who understand. - [COVID and our Epilepsy Superheroes](https://livingwellwithepilepsy.com/epilepsy-stories/covid-and-our-epilepsy-superheroes.html) - As our world has dealt with the reality of being confined to home due to COVID - many of us felt the pressure in unique ways. But perhaps those of us with epilepsy also found some freedom. - [Epilepsy gifts that make an impact](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-gifts-that-make-an-impact.html) - Epilepsy Gift Guide During this season of holiday parties and gift giving, I thought it would be fun to see what's available in epilepsy gifts. I was surprised to find that there are many options for contributing to the cause and increasing awareness by way of a holiday gift. Since everyone loves to open a - [Epilepsy Blog Relay: Story of a mother and son with epilepsy and autism spectrum](https://livingwellwithepilepsy.com/epilepsy-stories/mother-and-son-with-epilepsy-and-autism-spectrum.html) - Audra, who writes Our Life With Autism, shares the life and adventures of mother and son with epilepsy and autism spectrum. - [Important Topics to Discuss at Your Next Medical Appointment](https://livingwellwithepilepsy.com/epilepsy-blog-relay/important-topics-to-discuss-at-your-next-medical-appointment.html) - Have you ever left your doctor’s appointment and realized that you forgot to ask some important questions? For people living with epilepsy, speaking up is key to creating a true partnership with your neurologist or epileptologist to help achieve your personal and health goals. However, many people still struggle to have real, open conversations about their seizures. The Seize the Truth About Epilepsy Perceptions (STEP) Survey* revealed just how often disconnects can occur between doctors, caregivers and people with epilepsy – and why this needs to change. - [5 Ways Epilepsy is Life-Changing plus 5 Tips to Make it Easier](https://livingwellwithepilepsy.com/epilepsy-stories/5-ways-epilepsy-is-life-changing-plus-5-tips-to-make-it-easier.html) - Avi shares 5 tips to make living with epilepsy easier from her own personal experience. - [Living an Active Life with VNS](https://livingwellwithepilepsy.com/epilepsy-stories/living-an-active-life-with-vns.html) - John has been living with epilepsy for the past 12 years. He's had to give up triathlons. But he's looking for advice on living with VNS and doing endurance sports. - [Finding Empowerment in the Daily Life with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/daily-life-with-epilepsy.html) - Amanda shares a sneak peek into her daily life with epilepsy and how managing her epilepsy has made her more in touch with her needs. - [8 ways to support families affected by severe epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/8-ways-to-support-families-affected-by-severe-epilepsy.html) - Mary Anne shares 8 tips for supporting families caring for a child affected by severe epilepsy. She gives a little insight into her own experience. - [Getting Excited About Epilepsy Research](https://livingwellwithepilepsy.com/epilepsy-stories/getting-excited-about-epilepsy-research.html) - Torie Robinson shares how an interest in epilepsy research is the motivation behind her site Epilepsy Sparks. - [Employment, Epilepsy and Equality: To tell or not to tell?](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-equality-tell-or-not-to-tell.html) - When it comes to epilepsy, equality, education and employment, it is my firm belief that we are all allowed to dream regardless of abilities or disabilities. - [Epilepsy and Pregnancy: Celebrating Significant New Evidence in 2020](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-pregnancy-celebrating-significant-new-evidence-in-2020.html) - Learn more about epilepsy and pregnacy as well as the latest research on the topic. - [Real Talk on Epilepsy: A Love Letter from My Brain](https://livingwellwithepilepsy.com/epilepsy-stories/real-talk-on-epilepsy-a-love-letter-from-my-brain.html) - Alisa Jones shares a little real talk in a humorous note from her brain on living and coping with epilepsy. - [Living With Lennox-Gastaut Syndrome (LGS): Appreciating Every Moment Together](https://livingwellwithepilepsy.com/epilepsy-stories/lgs-and-appreciating-every-moment.html) - Rachel shares the story of her family's efforts to find quality time despite challenges of LGS Epilepsy. - [COVID-19 Vaccine and Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/covid-19-vaccine-and-epilepsy.html) - Living Well With Epilepsy readers are concerned about the COVID-19 vaccine and epilepsy so we've put together answers to some FAQs. - [Make the most of your next doctor's visit with the STEPS discussion tool](https://livingwellwithepilepsy.com/partner/sklifescience/make-the-most-of-doctors-visit-with-steps-discussion-tool.html) - You can now use the "Seize the Truth About Epilepsy Perceptions" (STEP) Survey" Discussion Tool, developed by SK Life Science, Inc., to prepare for your next doctor's appointment. - [Epilepsy Blog Relay: Patient-Provider Disconnects In Epilepsy: National Survey Evaluates Perceptions](https://livingwellwithepilepsy.com/aboutepilepsy/patient-provider-disconnect-in-epilepsy-national-survey-evaluates-perceptions.html) - The “Seize the Truth About Epilepsy Perceptions” (STEP) Survey was conducted online on behalf of SK Life Science, Inc. The results revealed important disconnects that exist between patients, caregivers and healthcare providers (HCPs). - [World Health Assembly calls for global action plan on epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/global-action-plan-on-epilepsy.html) - At #WHA73, Member States endorsed a resolution calling for global action plan on epilepsy and other neurological disorders. Learn more. - [Three opportunities for researchers interested in developing neurotherapeutics](https://livingwellwithepilepsy.com/epilepsy-blog-relay/three-opportunities-for-researchers-interested-in-developing-neurotherapeutics.html) - For the researcher interested in developing Neurotherapeutics who is looking for ways to network with experts in academia, industry, advocacy, and government here are three great opportunities. - [Epilepsy in Kenyan Villages and why community matters](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-in-kenyan-villages-and-why-community-matters.html) - Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month. - [Four sleep strategies that work](https://livingwellwithepilepsy.com/epilepsy-blog-relay/four-sleep-strategies.html) - It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails. - [Alison shares her experience with a 16 day stereo-EEG stay](https://livingwellwithepilepsy.com/epilepsy-stories/alison-shares-her-experience-with-a-16-day-stereo-eeg-stay.html) - Alison shares her journey from to neurocognitive testing to her stay in an Epilepsy Monitoring Unit (EMU) for a 16-Day stereo-EEG(sEEG). - [Raising epilepsy awareness in Uganda](https://livingwellwithepilepsy.com/epilepsy-stories/raising-epilepsy-awareness-in-uganda.html) - This year has been so difficult for everyone, but for people living with Epilepsy in Uganda the situation has become unimaginable. Gideon Ronie is doing something about it to support what he refers to as the Epilepsy Awareness Uganda family. - [Amanda poses a philosophical question about quality of life and epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-quality-of-life.html) - Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be. - [My Journey with RNS Surgery: Hope for Seizure Freedom](https://livingwellwithepilepsy.com/epilepsy-stories/my-journey-with-rns-surgery.html) - Living with epilepsy is a challenge and finding the right treatment can be difficult. Soo shares her experience of trying medication, VNS, and RNS to treat her epilepsy. - [Finding real support in the online epilepsy community](https://livingwellwithepilepsy.com/epilepsy-blog-relay/finding-real-support-in-the-online-epilepsy-community.html) - Hayley has shared her experience with online epilepsy support communities to help those who are newly diagnosed with epilepsy. - [Living with Hypothalamic Hamartoma Syndrome](https://livingwellwithepilepsy.com/epilepsy-blog-relay/living-with-hypothalamic-hamartoma-syndrome.html) - It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus. - [Sleep and Epilepsy: Listening to your body clock will help your seizures](https://livingwellwithepilepsy.com/epilepsy-stories/sleep-and-epilepsy.html) - Dr. Sameh Morkous explains how improving sleep can help with seizure control and in turn controlling seizures will likewise improve sleep. - [Does healthy lifestyle and wellness have an impact on epilepsy?](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-wellness.html) - Vinay shared that his epilepsy diagnosis was driving him into depression. But when his lifestyle and wellness improved thanks to indoor cycling and endurance sports he found it improved his body and mind. - [Much needed rest for epilepsy caregivers](https://livingwellwithepilepsy.com/epilepsy-stories/rest-for-caregivers.html) - Rachel, a caregiver to 4 children including one son living with Lennox Gastaut Syndrome (LGS), got a much needed break through A Mother's Rest. - [My COVID-19 Victory Garden has become my best stress relief](https://livingwellwithepilepsy.com/epilepsy-stories/victory-garden-stress-relief.html) - Some of you may be aware that I've become a little obsessed with gardening this year. So I figured since I just had my birthday I should celebrate by writing about whatever I want... Okay well, maybe at 48 I should get over myself. But I do want to share a little about my garden - [Epilepsy Heroes: Cole and Katie](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-heroes.html) - This blog post was submitted by Sunovion Pharmaceuticals Inc. #MyEpilepsyHero is proud to feature Cole and Katie, two amazing kids who started their own initiatives to help fellow kids with epilepsy. This #MyEpilepsyHero post is published with the permission of Cole and Katie. Cole: During a prolonged stay at a children’s hospital for his epilepsy, - [Participate in the November 2020 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/epilepsy-blog-relay/join-nov-2020-epilepsy-blog-relay.html) - Living Well With Epilepsy is gearing up for our next Epilepsy Blog Relay™ which will run throughout November 2020. HOW IT WORKS There are a few ways to participate:1) BLOGGER: If you have your own blog - Participate as a blogger by posting the full story on your site and on Living Well With Epilepsy. - [Epilepsy Blog Relay: A Pituitary tumor and seizures leads to a life in search of answers](https://livingwellwithepilepsy.com/aboutepilepsy/pituitary-tumor-and-seizures-leads-to-a-life-in-search-of-answers.html) - The doctor asked if I knew I had a pretty good size tumor or Adenoma, on my Pituitary Gland after I woke from seizures that progressed into a diabetic coma. - [Epilepsy Blog Relay: Epilepsy Awareness Day at Disney Land](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-awareness-day-at-disneyland.html) - Learn more about Epilepsy Awareness Day at Disneyland, an outstanding event that is the one stop shop for all things Epilepsy! - [Epilepsy Blog Relay™: Do you KNOW Epilepsy? Say NO to stigma](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts/say-no-to-stigma.html) - Stigma can make you feel ashamed, embarrassed and it can make you lose your confidence. Try to remember that you are not your condition. - [Epilepsy Blog Relay: A system of support](https://livingwellwithepilepsy.com/epilepsy-stories/system-of-support.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along! Soo Ihm has lived with epilepsy since childhood. Now in southern California, she writes the blog Soo’s Epilepsy Corner and is an advocate for epilepsy awareness. She enjoys playing the piano, going to art museums, and learning foreign - [Join us on Instagram Live](https://livingwellwithepilepsy.com/epilepsy-stories/join-us-on-instagram-live.html) - Now that everyone is hunkered down at home we're trying out connecting via Instagram Live. (You are at home, right? If not please go home.) When? Every weekday at 12pm PT / 3pm ET / 8pm GMT you will find our founder, Jessica Smith on Instagram @livingwellwithepilepsy. Who? We've pulled together a pretty great lineup - [Meet our next IG Live guest: Monica Weldon](https://livingwellwithepilepsy.com/epilepsy-stories/meet-our-next-ig-live-guest-monica-weldon.html) - I am so happy Monica Weldon, CEO and Founder of Bridge the Gap: Syngap Education and Research Foundation, has time in her busy schedule to chat with the Living Well With Epilepsy community! If you have not met Monica she is fantastic. This woman is a force to be reckoned with--she is a mom of - [Balancing uncontrolled epilepsy and exercise](https://livingwellwithepilepsy.com/epilepsy-stories/balancing-uncontrolled-epilepsy-and-exercise.html) - I have uncontrolled epilepsy and a trigger for me is intense exercise. This has caused frustration, especially now that I am a mom, but I never let it stop me from exercising. - [Dreaming big in difficult times](https://livingwellwithepilepsy.com/epilepsy-stories/dreaming-big-in-difficult-times.html) - The topic for this blog was hopes and dreams for the next decade, which is a really scary prospect when you have a medical condition which isn’t stable. This is particularly relevant in this age of Coronavirus and the increasing number of cases of COVID-19. - [Telemedicine visits with your doctor during a pandemic](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare/telemedicine-in-a-pandemic.html) - A global pandemic has forced hospitals to send providers and patients home for quarantines. Will telemedicine be a solution to help care for the chronically ill? - [Epilepsy Blog Relay: Time for a little compassion in epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/compassion-in-epilepsy.html) - This post is part of the Epilepsy Blog Relay™. Kenny's Story One thing that you should never say to someone with epilepsy is, “You'll be okay, I’m sure!” Only recently, has this been getting on my nerves. I have to go in to get another EEG. I have aged out of pediatrics and they want to do a - [Hot Neurobiology Topics in Epilepsy: Climate Change and My Epilepsy? ](https://livingwellwithepilepsy.com/epilepsy-news-and-research/neurobiology/climate-change-and-my-epilepsy.html) - This post is part of the Epilepsy Blog Relay™. Hot Neurobiology Topics in Epilepsy Kathryn A. Davis, MD, MSTR, Assistant Professor of Neurology at the University of Pennsylvania and member of the ILAE NBC recently had the opportunity to connect with Sanjay Sisodiya, MRCP, PhD, on the topic of climate change and the impact it is having on - [Epilepsy Blog Relay: Living with VNS and RNS](https://livingwellwithepilepsy.com/epilepsy-stories/living-with-vns-and-rns.html) - This post is part of the Epilepsy Blog Relay™. Lauren's story I’m 36 now and had my first seizure when I was 23 in my sleep. Why? Who knows. There's still no clear answer about anything. VNS and RNS I have the VNS and the RNS and the seizures still overpower both of these gadgets. I am learning - [FDA approves Epidiolex, first medication derived from marijuana](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/fda-approves-epidiolex-first-medication-derived-from-marijuana.html) - FDA has approved Epidiolex for the treatment of seizures associated with two rare and severe forms of epilepsy, Lennox-Gastaut syndrome and Dravet Syndrome. - [Hot Neurobiology Topics in Epilepsy: What you should know about caffeine and epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/neurobiology/caffeine-and-epilepsy.html) - New Feature on Living Well With Epilepsy Living Well With Epilepsy has partnered with the International League Against Epilepsy (ILAE) to bring you a series on Hot Neurobiology Topics in Epilepsy. This initiative is led by the ILAE Neurobiology Commission (NBC), which is chaired by Aristea Galanopoulou, MD, PhD (USA). Dr. Galanopoulou, Professor of Neurology - [Epilepsy Blog Relay: Katy's experience with Myoclonic Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/experience-with-myoclonic-epilepsy.html) - I was diagnosed with epilepsy in 2013, at the age of 24. I have juvenile myoclonic epilepsy and experience tonic clonic seizures. - [Dose mapping and Breakthrough Seizures, What is The Link?](https://livingwellwithepilepsy.com/aboutepilepsy/breakthrough-seizures.html) - Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures. - [Epilepsy Blog Relay: A Mother’s Perspective on Her Evolving Role as Caregiver](https://livingwellwithepilepsy.com/epilepsy-stories/a-mothers-perspective-on-her-evolving-role-as-caregiver.html) - As a parent of two young adults with epilepsy, Carole understands the challenges that come with being a caregiver for teens with epilepsy. - [Epilepsy Blog Relay: Reasons for Working with Your Epilepsy Specialist](https://livingwellwithepilepsy.com/epilepsy-stories/reasons-for-working-with-your-epilepsy-specialist.html) - Regardless of who you’re working with to manage your epilepsy, open and honest communication with your healthcare team is a priority. - [Epilepsy Blog Relay: Leonieke lives with a thick fog until she gets VNS in Belgium](https://livingwellwithepilepsy.com/epilepsy-stories/vns-in-belgium.html) - This post is part of the Epilepsy Blog Relay™. Leonieke's Story When I was 9 my dream of joining the navy was crushed. I was told that I’d probably never be able to drive. I was also told if I wanted to have kids I’d need to consult my neuro at least 1 year before. I was not - [Epilepsy Blog Relay: Hayley shares how epilepsy has affected her family](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-hayley-shares-how-epilepsy-has-affected-her-family.html) - According to Hayley, it hurts to acknowledge that having uncontrolled epilepsy has had an impact on her family. Yet she has shared ways epilepsy has had a positive impact on her “team”. - [Epilepsy Blog Relay: The reality of seizure rescue medications for adults](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-the-reality-of-seizure-rescue-medications-for-adults.html) - Alice's seizures often occur in clusters. She's struggled to find information on other adult's experiences with rescue medications. So she has shared her own experience here. - [Epilepsy Blog Relay: A letter to young Whit](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-a-letter-to-young-whit.html) - Sunovion is proud to share the story of #MyEpilepsyHero Whitney Petit, who offers a window into the ups and downs she experienced while growing up with epilepsy. - [Epilepsy Blog Relay: When does faith healing become medical neglect?](https://livingwellwithepilepsy.com/epilepsy-stories/when-does-faith-healing-become-medical-neglect.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! Elaine on Faith Healing Faith healing and demon possession are not medical terms but they are used to describe religious belief systems that give the believers in the system a sense of security when they experience uncertainty about a family member who has epilepsy. Sometimes - [Epilepsy Blog Relay: Elaine uses poetry to cope with adversity and a life with TLE](https://livingwellwithepilepsy.com/epilepsy-stories/guest-posts/poetry-to-cope-with-adversity-and-a-life-with-tle.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Elaine’s Story I was diagnosed with epilepsy at age four. At that time, early 1960s, one of the few medications available for epilepsy was phenobarbital. Concerned about negative side effects for a growing four - [Epilepsy Blog Relay: Strategies for Improving Treatment Adherence in Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/strategies-for-improving-treatment-adherence-in-epilepsy.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! For people with epilepsy, uncontrolled seizures (seizures that continue even while you’re on medication)1 can be a source of constant anxiety – wondering when and where one may happen. Busy schedules, side effects and rigid medication schedules can make keeping seizures under control extremely - [Epilepsy Blog Relay: Weight Loss Surgery for the Epileptic](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/autism-and-epilepsy/weight-loss-surgery-for-the-epileptic.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! Audra's Story Have you ever wondered what it’s like to live as an autistic adult with epilepsy? Having a child who is autistic with epilepsy is a challenge as well! I am Autistic Audra! I am 38 years old with a son who is also - [Epilepsy Blog Relay: Epilepsy and Hyperawareness in Northern California](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-epilepsy-and-hyperawareness-in-northern-california.html) - This sensory shift to hyperawareness and attendant cause-and-effect inventory is a familiar yet unwelcome situation for many living with epilepsy, no matter how far out we are from our initial diagnosis or how well-controlled our seizures. - [Epilepsy Blog Relay: 6 Tips for Combating Stress While Living With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/6-tips-for-combating-stress-while-living-with-epilepsy.html) - This post is part of the Epilepsy Blog Relay™. Follow along all month! Stress is a normal part of life for everyone. But, a stressful situation can turn life upside down for a person with epilepsy. There are a few tips for combating stress while living with epilepsy. These tips can help you manage stressful situations in your - [Epilepsy Blog Relay: Rachel’s EMU visit is the antidote to the social media highlight reel](https://livingwellwithepilepsy.com/epilepsy-stories/rachels-emu-is-the-antidote-to-the-social-media-highlight-reel.html) - We live in a society where we only see our friends and families positive highlight reel on social media. But Rachel found her visit to the EMU was the antidote. - [Epilepsy Blog Relay: Life with Cerebral Palsy and Epilepsy Gets Real](https://livingwellwithepilepsy.com/epilepsy-stories/life-with-cerebral-palsy-and-epilepsy.html) - Having a child with cerebral palsy and epilepsy has been a 'learn-as-I-go' experience, and I’ve really had to decide what is most important. To me, that is sticking to Colleen’s schedule, no matter what. - [Epilepsy Blog Relay: Andy takes charge of his epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/andy-takes-charge-of-his-epilepsy.html) - Andy is doing what he can every day to take charge his epilepsy. - [LIVINGWELLCHAT on CBD, Medical Marijuana and Epilepsy: June 30 at 7pm ET](https://livingwellwithepilepsy.com/epilepsy-news-and-research/june18livingwellchat.html) - On 6/30 at 7pm ET, we will host our next #LIVINGWELLCHAT. We will hear from the community on what the new marijuana-based epilepsy drug could mean for families affected by LGS and Dravet Syndrome. - [Brain Tumor and Epilepsy: Life after surgery on a benign brain tumor](https://livingwellwithepilepsy.com/epilepsy-stories/brain-tumor-and-epilepsy-life-after-surgery.html) - Lisa's Story It was December 2007 and I had been suffering with awful, constant headaches for the past 2 years and had been going back and forth to the doctors who unfortunately just gave me migraine tablets. I thought maybe I needed an eye test so as a last hope I booked in at the - [Epilepsy Blog Relay: Diagnosed with epilepsy as an adult](https://livingwellwithepilepsy.com/epilepsy-stories/diagnosed-with-epilepsy-as-an-adult.html) - Emily shares some insight to living with Epilepsy as an adult including how to handle work, transportation, stigma and anxiety. - [Epilepsy Blog Relay™: Whitney shares her journey with TLE](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-2.html) - From Whitney: It’s time I share my story, my journey with TLE, and join the fight to raise awareness. I want to help others who are too afraid to speak up. - [Epilepsy Blog Relay: Alison is shedding a little light on epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/alison-is-shedding-a-little-light-on-epilepsy.html) - Here’s to the caregivers for people with epilepsy! Here’s to those who live with us, take us to the hospital, and love us any which way they can. And here’s to that selfless love. It gets us through all that life has thrown at us. - [Epilepsy Blog Relay: Creating Your Personal Mantra](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-creating-your-personal-mantra.html) - Have you ever used a mantra to help you through a tough time in your life? Christalle shares ideas of how to create your personal mantra. - [Epilepsy Blog Relay: When taking it slow helps seizure control](https://livingwellwithepilepsy.com/epilepsy-stories/when-taking-it-slow-helps-seizure-control.html) - Hayley shares her experience of when taking it slow helps seizure control. Though this approach requires a lot of patience it seems to help her. - [Epilepsy Blog Relay: To my caregiver, in sickness and in health](https://livingwellwithepilepsy.com/epilepsy-stories/to-my-caregiver-in-sickness-and-in-health.html) - Ten years ago, my husband and I vowed to care for each other in sickness and in health. Little did we know, we would have to live out those words. - [Epilepsy Blog Relay: Epilepsy in the Outback](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-epilepsy-in-the-outback.html) - Billee grew up in a small mining town in the Western Australia Pilbara, The Outback. She was diagnosed with epilepsy at the age of four. - [Epilepsy Blog Relay: The impact of an epilepsy diagnosis](https://livingwellwithepilepsy.com/epilepsy-stories/stigma-and-an-epilepsy-diagnosis.html) - Maxine shares how she was placed in Kingseat Hospital and told she was mad due to her epilepsy diagnosis. - [Epilepsy Blog Relay: A reminder that we need to stay strong](https://livingwellwithepilepsy.com/epilepsy-stories/we-need-to-stay-strong.html) - After 40 years of living with epilepsy Peter reminds us that we need to stay strong and not be afraid to tell others about our disease. - [Epilepsy Blog Relay: Don't let fear stop you from sharing your epilepsy story.](https://livingwellwithepilepsy.com/epilepsy-stories/when-fear-keeps-you-from-sharing-your-epilepsy-story.html) - Heidi reminds us that sharing an epilepsy story with others no matter how afraid you are will help fight against the stigma. - [Epilepsy Blog Relay: Diagnosed with Epilepsy as an Adult](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-as-an-adult.html) - She thought epilepsy was something that manifested itself early in life. However, at 56 Julian found herself diagnosed with epilepsy as an adult. - [Epilepsy Blog Relay: Maintaining Work Life Balance with a Chronic Illness](https://livingwellwithepilepsy.com/epilepsy-stories/maintaining-work-life-balance-with-a-chronic-illness.html) - In Jewel's article on maintaining work life balance with a chronic illness she writes, "Whoever said work life balance existed lied!" - [Epilepsy Blog Relay: Vitamins and epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/vitamins-and-epilepsy.html) - Vitamins are important for people with epilepsy to maintain calcium absorption and strong bone growth, manage drowsiness, and keep a healthy immune system. - [Epilepsy Blog Relay™: Alison is shedding light on stigma](https://livingwellwithepilepsy.com/epilepsy-blog-relay/alison-is-shedding-light-on-stigma.html) - It's up to us, through open discussions and teaching others, to change the perceptions about epilepsy, do away with the stigma. - [Epilepsy Blog Relay: Alison on building your family when you have epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/guest-posts/alison-on-building-your-family-when-you-have-epilepsy.html) - Blogger, Alison Zetterquist, hid her epilepsy for almost 35 years because of her own embarrassment. Now she shares tips on building a family of supporters. - [Epilepsy Blog Relay: What does it mean to be seizure-free](https://livingwellwithepilepsy.com/epilepsy-stories/what-does-it-mean-to-be-seizure-free.html) - Alison takes on the topic what it means to be seizure-free for years and how to deal with epilepsy-related stigma. - [Epilepsy Blog Relay: Advocating for a non-verbal child](https://livingwellwithepilepsy.com/epilepsy-stories/advocating-for-a-non-verbal-child.html) - Jen knew something had changed drastically with Colleen's health, but she had no answers. Jen shares tips for advocating for a non-verbal child. - [Epilepsy Blog Relay: My Journey to Seizure Control](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-journey-to-seizure-control.html) - Whitney share info on her journey to thriving in everyday life while managing epilepsy, self-care and behind the scenes of my advocacy work. - [Epilepsy Blog Relay: Colleen takes on cerebral palsy and epilepsy with a smile](https://livingwellwithepilepsy.com/epilepsy-stories/colleen-on-cerebral-palsy-and-epilepsy.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! The beginning After Colleen’s birth and being transferred to a nearby hospital’s NICU, we got the phone call that she had had two very big seizures and would need a blood transfusion. Colleen spent - [Epilepsy Blog Relay: Whitney asks the hard questions about epilepsy clinical trials](https://livingwellwithepilepsy.com/epilepsy-stories/whitney-asks-the-hard-questions-about-epilepsy-clinical-trials.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Whitney's Story My blog, Changing Focus: Epilepsy, is all about taking control of your life with epilepsy. I openly share my personal struggles and triumphs while providing tools to help you become your own - [Epilepsy Blog Relay™: Abby and That Terrible Reminder](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-abby-and-that-terrible-reminder.html) - Abby's Story: I was doing great. I hadn’t had a seizure in almost two years. But recently, I’ve changed my medicine. - [Epilepsy Blog Relay™: Miguel Cervantes of Hamilton Chicago tells his family's epilepsy story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-miguel-cervantes-of-hamilton-chicago-tells-his-familys-epilepsy-story.html) - Miguel Cervantes, who plays A.Ham in Hamilton Chicago, shares his family's experience with Infantile Spasms and his hopes for his daughter. - [Leila's Ideas: Having a Pity Party](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-pity-party.html) - Epilepsy, and life in general, presents all sorts of hurdles; I like to overcome them with perseverance and joy. But lately, I don’t feel like overcoming them...and when I do, it’s not with joy. I feel like having my very own pity party. - [Epilepsy Blog Relay™: A Mom's Perspective](https://livingwellwithepilepsy.com/epilepsy-blog-relay/a-moms-perspective.html) - This post is part of the Epilepsy Blog Relay™ which will run from June 1 to June 30, 2017. Follow along! For the blog relay this month, I wanted to provide another perspective. By now, you know mine. Epilepsy sucks. It’s a challenge… all. the. time. But, I always try to remember how hard it - [Epilepsy Blog Relay™: Talking about epilepsy changed my life](https://livingwellwithepilepsy.com/epilepsy-blog-relay/talking-about-epilepsy-has-changed-my-life.html) - I turned to writing and learned to speak openly about epilepsy. Now, I have become someone who is much more confident. - [Top 10 Epilepsy Stories in 2017](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/top-10-epilepsy-stories-in-2017.html) - As 2017 comes to a close, I thought I might take a minute to share Living Well With Epilepsy's top 10 epilepsy stories this year. - [Epilepsy Blog Relay: Tips to feel less isolated and alone after an epilepsy diagnosis](https://livingwellwithepilepsy.com/epilepsy-stories/tips-to-feel-less-isolated-and-alone-after-an-epilepsy-diagnosis.html) - Michael shares how he feels isolated and alone since his diagnosis of epilepsy. He doesn't know anyone else living with epilepsy. - [Emily's Perspective: The effects of epilepsy on the whole body](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/effects-of-epilepsy.html) - A diagnosis of epilepsy means that you have recurring seizures. It is important to remember that the effects of epilepsy can be felt throughout the body. - [Epilepsy Blog Relay™: Leila's Ideas on Creatively Living Well](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/creatively-living-well.html) - Side effects from seizures and medication sometimes leave me feeling lost. I must get creative to be successful in my everyday life. - [Ever had to change medications to reduce side effects?](https://livingwellwithepilepsy.com/life-with-epilepsy/ask-an-epileptic-change-medications.html) - Ask an Epileptic: "It's time for me to change medications to reduce the side effects. Have any advice?" DEAR EPILEPTIC: I have a question regarding the transition to a new medication. I have been taking Lamictal for over 10 years and I'm tired of the side effects. Memory loss, inability to focus clearly, etc. I - [Epilepsy Blog Relay: Coping with depression, could it be a side effect?](https://livingwellwithepilepsy.com/epilepsy-stories/coping-with-depression.html) - I hadn’t had a seizure in months so I should’ve been happy. But, I was miserable. I didn't realize my depression was a side-effect of my medication. - [Time to go camping](https://livingwellwithepilepsy.com/epilepsy-news-and-research/time-to-go-camping.html) - Ah, the warm summer breeze. The smell of cut grass and bug spray. It's that time of year again when kids from all over will head to camp. But what about the kids that have seizures every day? These kids can't go to camp, right? Or can they? Well, it turns out they can. The - [An inside look at Steve Wynn and Joey's Song](https://livingwellwithepilepsy.com/epilepsy-news-and-research/an-inside-look-at-steve-wynn-and-joeys.html) -  Steve Wynn In March of 2010, Michael Gomoll lost his son suddenly to Dravet's Syndrome, a rare form of epilepsy. Gomoll then established The Joseph Gomoll Foundation to honor his son, and began preparing for the release of the Joey's Song project. One of the leading supporters in the Joey's Song project has been Steve - [Maria's Story: My Son Mark and His New Diagnosis of Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/my-son-mark-and-his-new-diagnosis-of-epilepsy.html) - This personal epilepsy story was submitted by Maria. She's hoping for encouragement as her son and his new diagnosis of epilepsy. Comment to show support. - [Epilepsy Blog Relay™: Caring for a sick spouse](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-caring-for-a-sick-spouse.html) - We have all felt it, that tiredness and loneliness that comes from taking care of a sick spouse. But when you have a spouse with epilepsy, life takes on a whole new meaning. - [Epilepsy Blog Relay™: A lifetime of epilepsy challenges](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-epilepsy-challenges.html) - Gail's Story: I've had epilepsy for over 45 years. I have grand mals and petit mals. I asked if seizures change over your lifetime and my doctor said "Yes!" - [Sarah's Story: Grand Mal Seizures](https://livingwellwithepilepsy.com/epilepsy-stories/sarahs-story-grand-mal-seizures.html) - I was diagnosed with epilepsy at the age of 8 and have coped with it ever since. Initially, my epilepsy was a burden, however I am in the process of accepting what I have. I am also trying to help others do the same. At present, I take a drug called Keppra. The drug is - [Epilepsy Blog Relay: Tiffany on Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/tiffany-on-epilepsy.html) - My epilepsy may not consume my life, yet it keeps my adventurous and daring soul from running free. - [Epilepsy Blog Relay: Brain Tumor Survivor writes her first book](https://livingwellwithepilepsy.com/epilepsy-stories/brain-tumor-survivor-writes-her-first-book.html) - Sierra is 23 years old and is a brain tumor survivor. She was born with a Hypothalamic Hamartoma and had daily, gelastic laughing seizures. - [Epilepsy Blog Relay: A chef shares his experience with epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/a-chef-shares-his-experience-with-epilepsy.html) - Stephen's job requires him to stand for more than 8 hours on his feet. This can be difficult since he is a chef with epilepsy. - [Epilepsy Blog Relay: Kat's take on medical marijuana and epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/kats-take-on-medical-marijuana-and-epilepsy.html) - Kathryn shares personal anecdotes about her seizures and memory loss. It includes a candid discussion about medical marijuana as a treatment for epilepsy. - [Epilepsy Blog Relay: Brain surgery reminds Teo of the importance of adaptability](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-brain-surgery-reminds-teo-of-the-importance-of-adaptability.html) - Teo shares his story of brain surgery. He shares the importance of flexibility and the ability to adapt to every situation. - [Epilepsy Blog Relay: Raising a child with multiple chronic conditions](https://livingwellwithepilepsy.com/epilepsy-stories/child-with-multiple-chronic-conditions.html) - Rachel's son Andrew has multiple chronic conditions including Cerebral Palsy, Lennox Gastaut Syndrome and Cortical Visual Impairment. She shares a sneak peek into raising a child with special needs. - [Epilepsy Blog Relay: Ways to help with medication costs](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-ways-to-help-with-medication-costs.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along! Alison's Story Since my diagnosis with epilepsy in 2006, I feel like I’ve tried every medication possible to try and stop my seizures. My neurologist added Fycompa in 2016, I’m still not seizure free, but it’s helped decrease - [Epilepsy Blog Relay: Epilepsy and Fear](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-epilepsy-and-fear.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along! Beth's Story Beth tries to post regularly about a number of issues, ranging from her interests in business anthropology, talent management, career advice and her own journey with epilepsy. What is true, regardless of her post, is that - [Epilepsy Blog Relay: Searching for my passion - my quarter life crisis](https://livingwellwithepilepsy.com/epilepsy-stories/searching-for-my-passion-my-quarter-life-crisis.html) - You know how it is sometimes, you wake up feeling like your life is on repeat. Emily talks about finding your passion during a quarter-life-crisis. - [Epilepsy Blog Relay: Creative ways to raise epilepsy awareness](https://livingwellwithepilepsy.com/epilepsy-stories/shonet-increases-epilepsy-awareness-in-new-ways.html) - Most people are not aware of an illness until it touches them personally. So, Shonet started thinking about creative ways to raise epilepsy awareness. - [Epilepsy Blog Relay™: Seeing Seizures from a New Perspective](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/epilepsy-blog-relay-seeing-seizures-from-a-new-perspective.html) - Though I've lived with Epilepsy for most of my life, watching a family member experience seizures for the first time was harder than I ever imagined. - [The Americans with Disabilities Act and Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/americans-with-disabilities-act-epilepsy.html) - Learn more about how the Americans with Disabilities or ADA, helped remove barriers for people with disabilities, and for people with epilepsy in particular. - [Epilepsy Blog Relay: The temporal lobe epilepsy (TLE) experience](https://livingwellwithepilepsy.com/epilepsy-stories/temporal-lobe-epilepsy-or-tle-experience.html) - Nancy remembers how her temporal lobe epilepsy (TLE) seizures always began with a feeling of deja vu and a sensation of falling. - [Epilepsy Blog Relay: A screenwriter shares her experience with epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/screenwriter-shares-her-experience-with-epilepsy.html) - Alisa Kennedy Jones, a screenwriter and author of GOTHAM GIRL INTERRUPTED found herself diagnosed with epilepsy at the age of forty. - [Epilepsy Blog Relay: Déjà Vu and temporal lobe epilepsy in real life](https://livingwellwithepilepsy.com/epilepsy-stories/deja-vu-and-temporal-lobe-epilepsy.html) - At 29, I began to experience mysterious episodes of dé­jà vu followed by nausea and exhaustion. It took doctors 5 yrs and a tonic clonic seizure to diagnose these episodes as epilepsy. - [Epilepsy Blog Relay: Alison's post on stigma](https://livingwellwithepilepsy.com/epilepsy-stories/alisons-post-on-stigma.html) - Alison writes about stigma and epilepsy on her blog Shed Light on Epilepsy. In her recent post she encourages us to think about our epilepsy in a new way. - [Epilepsy Blog Relay: Building supportive relationships within the special needs community](https://livingwellwithepilepsy.com/epilepsy-stories/building-supportive-relationships-within-the-special-needs-community.html) - Jes now writes Wishes for Mercy to inspire families battling epilepsy and to build supportive relationships within the special needs community. - [Epilepsy Blog Relay: One family pushing the boundaries of Lennox-Gastaut Syndrome](https://livingwellwithepilepsy.com/aboutepilepsy/family-pushing-boundaries-of-lgs.html) - Lili was diagnosed with Lennox-Gastaut syndrome (LGS), a rare and severe form of epilepsy, but therapeutic horseback riding was an activity she could enjoy. - [Seizure jokes aren't funny](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/seizure-jokes-arent-funny.html) - I just watched Beyoncé strut her stuff during the SuperBowl Halftime Show. The show was full of so many strobes that the Twitterverse was a-buzz with snarky comments about seizures. I now have a headache after watching the show. But I have to say the headache is more from the comments on Twitter than from the - [Epilepsy Blog Relay: Soo looks at how epilepsy treatment has changed over time](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-soo-looks-at-how-epilepsy-treatment-has-changed-over-time.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Soo's Story I live in Southern California and have had seizures all my life. I write Soo's Epilepsy Corner to educate and tell my personal story. Excerpt from Soo's blog We have come a - [Epilepsy Blog Relay: Jewel prefers to Live Out Loud](https://livingwellwithepilepsy.com/epilepsy-stories/jewel-live-out-loud.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Jewel’s Story Jewel writes the blog, Live out Loud. It is a lifestyle resource for the modern woman and mom. A space committed to building a community which inspires individuals to live healthier lives and conquer - [Epilepsy Blog Relay: Kat and living with seizures](https://livingwellwithepilepsy.com/epilepsy-stories/living-with-seizures.html) - This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Kat's Story Kathryn writes the blog, Kat’s Temporal Lobe Diaries. Kat writes, “Unfortunately I have seizures. It’s simply a part of my life, as much as every other thing." She goes on to write, - [Epilepsy Blog Relay: Seizure Detection and Prediction](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-seizure-detection-and-prediction.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! David’s Story David’s blog, Epilepsy Dad, shares the family’s journey with epilepsy which started in 2014. We were visiting Philadelphia ahead of a move to the city when their son had his first focal - [Epilepsy Blog Relay™: From a Grieving Parent on Graduation Day](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts/grieving-parent-on-graduation-day.html) - For a grieving parent who has lost a child, the thoughts of an upcoming graduation day (and the day itself) – there are no words to express the pain. - [Paula's Story: Sage advice from a mom with epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/family/paulas-story-mom-with-epilepsy.html) - I was born in 1952, and back then, it was still illegal for a woman with epilepsy to get married. When I was young, all I could think about was getting married and becoming a mother. - [Epilepsy and Transportation: How an electric bike saved the day for one mom in Portland](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-and-transportation-how-an-electric-bike-saved-the-day-for-one-mom-in-portland.html) - Sara's Story: Getting around without a car (with kids!) If someone had told me a year ago that in 12 months we would be doing most of our daily traveling by electric bike, I would have laughed. I live in Portland, and have a 3-year-old and a 5-year-old. It rains here for about 5 months out of the year. But, it happened. - [Epilepsy Blog Relay: Sharing happy moments with a special needs child](https://livingwellwithepilepsy.com/life-with-epilepsy/family/happy-moments-with-special-needs-child.html) - Jes Armstrong is back again to share an update from her blog Wishes for Mercy, a blog about her experiences as mother to a special needs child who looks normal at first glance. - [Epilepsy Blog Relay™: Faye on Epilepsy and Motherhood](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-faye-on-epilepsy-and-motherhood.html) - Faye writes the blog Epilepsy, Pregnancy, Motherhood and Me which follows the impact of epilepsy and AED's on her pregnancy and motherhood. - [Mother's Day: A note of thanks to Mum](https://livingwellwithepilepsy.com/epilepsy-stories/note-of-thanks-to-mum.html) - Dear Mum, You were there to hold my hand on my way to the first of many tests for Epilepsy diagnosis. The one who smiled at me with so much love to ease my fears through the old door window as I lay there all wired up to the EEG. You laughed with me as - [Epilepsy Blog Relay: Maureen's experience taking the SATs](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-maureens-experience-taking-sats.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Over one million students take the SAT each year. This is my story of the SATs with epilepsy. Every American teenager dreads the SATs. We learn the test format, memorize test makers tricks, and even - [Epilepsy Blog Relay: Rachel on epilepsy technology](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/rachel-on-epilepsy-tech.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! The theme for this week’s blog relay is all about different types of technology that involved in epilepsy. This technology has a personal connection to me actually; my sister Meredith had a VNS, Vagal - [Researchers discover common genetics in autism and epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/researchers-discover-common-genetics-in.html) - Below is a story that was originally produced for the Journal of Human Molecular Genetics (May 2011). The research is so groundbreaking that the story has already been picked up by Science Daily, The Toronto Sun, The Ottowa Sun, A Health Blog, BioQuick News, PhysOrg and is spreading across the globe swiftly. What's the story? Led by - [World Autism Day: Perspective Is Everything](https://livingwellwithepilepsy.com/epilepsy-stories/world-autism-day-perspective-is-everything.html) - In the early days I sometimes came across the statistic that up to one third of individuals with autism will also eventually be diagnosed with epilepsy. I never dismissed it, but I never dwelled on it, either - until it became a reality for us. - [Don’t miss another #LivingWellChat on April 2 at 7pm ET](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/livingwellchat-april18.html) - At the end of every Epilepsy Blog Relay, we close with a live #LivingWellChat. Join us on April 2, at 7pm ET/6pm CT/5pm MT/4pm PT to celebrate and connect with some of our fantastic bloggers. - [Epilepsy Blog Relay: On sharing a love of creativity](https://livingwellwithepilepsy.com/life-with-epilepsy/family/on-sharing-a-love-of-creativity.html) - A passion for creativity was something I hoped to pass on to Colleen. From a child to adult, I have always had a love for drawing, music, paint…anything in which I could create something of my own. - [Epilepsy Blog Relay: Susanna writes about how epilepsy has made her more creative](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-susanna-writes-about-how-epilepsy-has-made-her-more-creative.html) - Being diagnosed with epilepsy at the age of three means it has always been a significant part of who I am. A lot of people tell you ‘don’t let your condition define who you are’ but you can’t stop it from doing so. The simple fact is, as human beings, the experiences we have alter the way we develop. And I believe epilepsy has, in more ways than one, driven me to be the creative person I am today. - [Epilepsy Blog Relay: Drake raises his voice for epilepsy research](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-drake-raises-his-voice-for-epilepsy-research.html) - Drake Abramson was thirteen when he was diagnosed with epilepsy. Ever since, he has made it his mission and his passion to bring about substantive change in the world for people with epilepsy. For instance, he created his own nonprofit, ThinkBrave, to fund scholarships for students with health challenges within his community. - [Epilepsy Blog Relay: The race against time](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-the-race-against-time.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Before you become a parent, you are continuously told "it goes by so fast", "cherish every moment", "Before you know it, your children will be out of the house", and so many other phrases - [Epilepsy Blog Relay: Epilepsy through the generations](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-through-the-generations.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Desiree writes, Brain Blips: An Epilepsy Journey, where she writes about their family and having a child with epilepsy. Excerpt from post At some point, after I met and married my husband, I learned - [Epilepsy Blog Relay: Things to know about life as an Lennox-Gastaut Syndrome family](https://livingwellwithepilepsy.com/life-with-epilepsy/family/things-to-know-about-lennox-gastaut-syndrome.html) - This post was written by Darla Davison, mom to Aaron who has Lennox-Gastaut Syndrome (LGS), a rare and severe type of epilepsy. Living Well With Epilepsy is grateful to Lundbeck, Champion Sponsor of the March 2018 Epilepsy Blog Relay™. Thrilling, Inspiring, Better together “This photo was taken just a day or two after the 2016 - [Epilepsy Blog Relay: Joe on living with uncontrolled seizures](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-joe-on-living-with-uncontrolled-seizures.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Joe's Story Joe's blog, The Epileptic Man, aims to start showing those who lack epilepsy awareness who we are, what we manage, and why we need them to start offering a little more support. - [Epilepsy Blog Relay: Diminishing the Burden](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-diminishing-the-burden.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Jade's Story I was diagnosed with Epilepsy 30 years ago at the age of eight. The word burden was not part of my vocabulary all those years ago when this journey with Epilepsy began. - [Epilepsy Blog Relay: What it really feels like to have epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-blog-relay-what-it-really-feels-like-to-have-epilepsy.html) - I find myself trying to make the best of my hell-a-coaster days because it takes almost everything in me to function at full potential these days. It's like my mind and body are working on two different universes and working against each other. - [Epilepsy Blog Relay: Emma shares the family's VNS story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-emma-shares-the-familys-vns-story.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Emma's Story Emma's blog, Little Mama Murphy, shares stories from a family living with the ‘medical mystery’, of an undiagnosed child. Stories include stressing about coming to terms with the lack of a diagnosis - [Epilepsy Blog Relay: Heidi shares tips with the epilepsy community](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-heidi-shares-tips-epilepsy-community.html) - Day 7 of the Epilepsy Blog Relay™ Epilepsy Education and Support was created to provide information and support for people with Epilepsy, caregivers and those who are interested in Epilepsy all over the world. Heidi's Story I realize that more people need information about Epilepsy that is why I started the page Epilepsy Education and - [Epilepsy Blog Relay: Amanda Roper's Battle With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-amanda-ropers-battle-epilepsy.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! My name is Amanda Roper! I'm here to share with you about my battle with epilepsy! I was born 6 weeks premature, and the doctors thought the umbilical cord was wrapped around my neck. - [Epilepsy Blog Relay: Diagnosed with epilepsy later in life](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-diagnosed-epilepsy-later-life.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Living Out Loud In 2008, Jewell's life drastically changed. She was diagnosed with a seizure disorder and since then, she has endured many EEG’s, EKG’s and MRI’s in an attempt to classify the types - [Epilepsy Blog Relay: Sarah Louise shares her experience with uncontrolled seizures](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts/epilepsy-blog-relay-sarah-louise-shares-experience-uncontrolled-seizures.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Day 4 of the Epilepsy Blog Relay™ Sarah Louise joins the Epilepsy Blog Relay with an update from her site, Miss Sarah Louise's Masterpieces and Munchies. She shares her experiences with epilepsy, as well - [Relationships and Epilepsy: Rachel on life with a chronic illness](https://livingwellwithepilepsy.com/epilepsy-stories/relationships-and-epilepsy-rachel-on-life-with-a-chronic-illness.html) - There are many reasons why people are either fearful or nervous to try romantic relationships with a chronic illness. I thought the best way to explain this would be to share some tips that I have found along the way. - [2nd Annual Epilepsy Netathon on Sat May 6](https://livingwellwithepilepsy.com/epilepsy-news-and-research/2nd-annual-epilepsy-netathon-on-sat-may-6.html) - Mark your calendar for the online event this Saturday May 6, 10am-6pm pst ( 1-9pm est ) , the “TALK ABOUT IT for Epilepsy” Netathon - [Epilepsy Blog Relay™: Spreading the word with Thunderclap](https://livingwellwithepilepsy.com/epilepsy-blog-relay/spreading-word-with-thunderclap.html) - Living Well With Epilepsy has created our very own using Thunderclap to spread the word about the Epilepsy Blog Relay™. - [Epilepsy Blog Relay™: It's time for another #LivingWellChat](https://livingwellwithepilepsy.com/epilepsy-news-and-research/its-time-for-another-livingwellchat.html) - We are coming to the end of our November Epilepsy Blog Relay™. As always, we will close with a live #LivingWellChat on Nov 30, at 7pm ET. - [Epilepsy Blog Relay™: Natalie on Angels of Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/natalie-on-angels-of-epilepsy.html) - Day 30 of the Epilepsy Blog Relay: Today’s post comes from Natalie Y. Beavers, founder of Angels of Epilepsy. - [Epilepsy Blog Relay™: Jade on embracing her diagnosis](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jade-on-embracing-her-diagnosis.html) - Jade on living with Epilepsy: Embracing my diagnosis doesn’t mean giving up the fight. - [Epilepsy Blog Relay™: Guess Who's Back](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/guess-whos-back.html) - Guess who's back on the Living Well With Epilepsy site and sharing her recent go-round with seizures...Read on to find out if your guess is right! - [Epilepsy Blog Relay™: Randi on Sonya's Story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/randi-on-sonyas-story.html) - From Randi: I'm looking forward to everything that comes with having a newborn baby, but there is a cloud of guilt and sadness hanging over me. - [Epilepsy Blog Relay™: Jewell on Living Out Loud](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jewell-on-living-out-loud.html) - Jewell hopes her blog gives women who are pregnant the sense that they are not alone with a few lifestyle tips thrown in. - [Epilepsy Blog Relay™: Clair on Becoming a Mum with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/clair-on-becoming-a-mum-with-epilepsy.html) - Clair writes, Becoming a Mum with Epilepsy. She hopes women will be given the information & support to feel more confident and less alone in becoming a Mum - [Epilepsy Blog Relay™: Jessica on 'Wishes for Mercy'](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jessica-on-wishes-for-mercy.html) - When our daughter was first diagnosed we were told that epilepsy would be easy to manage. Two years later and that has not come true. - [Epilepsy Blog Relay™: A letter of thanks to caregivers](https://livingwellwithepilepsy.com/epilepsy-blog-relay/letter-of-thanks-to-caregivers.html) - Danielle's letter of thanks: When I was diagnosed with Epilepsy 6 yrs ago, a lot changed. I’m glad I had all of you there for me every step of the way. - [Epilepsy and AIDS: too much in common](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-and-aids.html) - This year marks the 20th anniversary of the movie Philadelphia, which was a turning point in the AIDS movement. In 1993, people were dying as a result of HIV and AIDS related causes in great numbers. Those infected were living with such severe stigma that people were afraid to tell loved ones, afraid to get - [An epilepsy e-book with tips you can use](https://livingwellwithepilepsy.com/shop/downloads/epilepsy-ebook.html) - This epilepsy e-book comes packed with facts, tips on handling uncomfortable situations and great stories from people who are living well. - [Epilepsy Blog Relay™: Soo's Epilepsy Corner](https://livingwellwithepilepsy.com/epilepsy-blog-relay/soos-epilepsy-corner.html) - Soo writes the blog Soo's Epilepsy Corner. Her site has been growing steadily for the past three years. - [Epilepsy Blog Relay™: Casey's mission to spread epilepsy awareness | SPONSORED](https://livingwellwithepilepsy.com/epilepsy-blog-relay/caseys-story.html) - Casey felt vulnerable as a teenager with a neurological disorder, but now she is open about her epilepsy and raises awareness. - [Epilepsy Blog Relay™: Heidi's story on Epilepsy Education and Support](https://livingwellwithepilepsy.com/epilepsy-blog-relay/heidis-story.html) - Epilepsy Education and Support is a dynamic Facebook page created to provide information and support for all those affected by epilepsy. - [Epilepsy Blog Relay™: Audra's story takes a turn](https://livingwellwithepilepsy.com/epilepsy-blog-relay/audras-story-takes-a-turn.html) - Today’s post comes Audra Sisak who has recently learned she has aspergers. She's changed her site from "his life with autism" to "our life with autism". - [Epilepsy Blog Relay™: Danielle on Lauren and epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/danielle-on-life-with-lauren.html) - As Lauren's mom, I am constantly looking for information on how to manage her seizures better, while finding a balance to keep her mind on happy things. - [Epilepsy Blog Relay™: Gina on Gelastic Seizures](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-gina-on-gelastic-seizures.html) - Today’s post comes from Gina Moses, who writes about her life with epilepsy and gelastic seizures on her blog, ohhelloepilepsy.com. - [Epilepsy Blog Relay™: Shedding the Stigma of Epilepsy | SPONSORED](https://livingwellwithepilepsy.com/epilepsy-blog-relay/shedding-the-stigma-of-epilepsy.html) - It’s time to shed the stigma of a disease that affects one in 26 people. Epilepsy is unbelievably common, yet few people know anything about it. - [Epilepsy Blog Relay™: Bailey on exercise and epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/bailey-on-exercise-and-epilepsy.html) - Day 3 of the Epilepsy Blog Relay focuses on exercise and epilepsy as a means to gaining independence while maintaining your safety. - [An inside look at Hurricane Harvey](https://livingwellwithepilepsy.com/life-with-epilepsy/an-inside-look-at-hurricane-harvey.html) - Two of our Living Well With Epilepsy writers are based in Houston, TX and they have sent images of Hurricane Harvey to share with you. - [Gemma's Story: It's time for a change when you're not seizure free anymore](https://livingwellwithepilepsy.com/epilepsy-stories/gemmas-story-time-for-a-change.html) - When I was first diagnosed I was in my early 20's and didn't really take my epilepsy too seriously. But two years ago I felt it was time for a change. I took better care of myself and became seizure free. That is until yesterday. - [Epilepsy campers, signup time is here](https://livingwellwithepilepsy.com/life-with-epilepsy/camp/epilepsy-campers-signup-time-is-here.html) - For most kids summer means playing outdoors, camps with silly names, hiking, swimming, canoeing, arts and crafts and more. The same is true for kids with epilepsy. In a recent issue of EpilepsyUSA, the Epilepsy Foundation's flagship publication, the organization featured a roundup of epilepsy camps throughout the United States. US Camps Camp in Ontario, - [Emily's Perspective: Back to the working world](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-back-to-the-working-world.html) - I’m going to be 21 in a few months and generally, Epilepsy aside, I am in a pretty healthy condition. Just recently I was given the all clear for working with Epilepsy. That means I am fit to work even though I still having a seizure every now and then. But that's nothing compared to - [Leila's Ideas: Stigma in the Workplace](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-stigma-in-the-workplace.html) - Epilepsy stigma can be a legitimate concern in the workplace but having a job is more about showing off your abilities. - [Meet the Purple Wedges](https://livingwellwithepilepsy.com/life-with-epilepsy/travel/meet-purple-wedges.html) - Meet the Purple Wedges, Living Well With Epilepsy’s newest guide, raising epilepsy awareness around the country. - [Epilepsy Blog Relay™: Carys provides comfort](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-carys-provides-comfort.html) - On day 5 of the Epilepsy Blog Relay™, Carys reminds us "We can battle this together and educate society!" - [Thinking about epilepsy camp?](https://livingwellwithepilepsy.com/life-with-epilepsy/camp/thinking-about-epilepsy-camp.html) - Have you been thinking about participating in a local epilepsy camp? Here you will find info on a few camps around the country. - [Leila's Ideas: Camping with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/camp/leilas-ideas-camping-epilepsy.html) - Camping can be so much fun! For those of us with epilepsy, it requires a little planning. Leila gives us tips how to make camping with epilepsy successful! - [Getting an Advanced Degree with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/school/getting-an-advanced-degree-with-epilepsy.html) - Anyone with Epilepsy knows that school can present a number of challenges, including people thinking you cannot complete an advance degree. I’m here to tell you that you can. Here are some helpful tips for your journey. - [Leila's Ideas: Back to School with Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/school/leilas-ideas-back-school-epilepsy.html) - It's that time of year again! The family vacations have ended, pencils and notebooks have been purchased, and clothes are picked out for the first day of school. Kids all over the country are going back to school and, for many, it is exciting! Back to school may mean homework, but it also means chatting - [Epilepsy Blog Relay™: Clair's Story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-clairs-story.html) - Clair hopes her blog gives women who are pregnant with epilepsy the sense that they are not alone. - [Abby's Reflections: Looking forward to a fresh start](https://livingwellwithepilepsy.com/life-with-epilepsy/looking-forward-to-a-fresh-start.html) - January is always a time to look back and reflect on the year before. It’s a fresh start and that means new exciting possibilities - [Code4Armour™: medical alert band speaks when you can't](https://livingwellwithepilepsy.com/life-with-epilepsy/code4armour-band.html) - Code4Armour™ recently unveiled a battery-free, shock and water resistant medical alert band. The band works with a mobile app to provide medical information. - [Have you heard about Studio E](https://livingwellwithepilepsy.com/life-with-epilepsy/heard-about-studio-e.html) - Living with epilepsy can be challenging. Studio E: The Epilepsy Art Therapy Program, a partnership between Epilepsy Foundation and Lundbeck, has shown art therapy can improve self esteem in people living with epilepsy. Through this multi-week art therapy program, participants are given the opportunity to creatively express themselves and their emotions. The Studio E program - [Guardian Monitor Review: eased concerns about nocturnal seizures](https://livingwellwithepilepsy.com/life-with-epilepsy/guardian-monitor-review-eased-concerns-about-nocturnal-seizures.html) - A few months ago Tony Bullars offered to send me one of his Guardian Monitor Night Alarms from the company ‘Alert-it’ to try for 2-3 months. - [My ID Square: A Review of Medical ID Squid Square](https://livingwellwithepilepsy.com/life-with-epilepsy/a-review-of-medical-id-squid-square.html) - A few weeks ago staff from My ID Square contacted me about the possibility of reviewing one of their medical ID bracelets-of course, I said yes! My ID Square makes "smart" medical IDs which connect to a powerful online medical profile and alert contacts in an emergency by using a QR code. After just a couple - [This Week in Epilepsy: May 10 2015](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/this-week-in-epilepsy-051015.html) - This was a busy week for Living Well With Epilepsy. I was invited to speak at the BIO International Convention, which is hosted by the Biotechnology Industry Organization (BIO). We've been preparing for our May #LivingWellChat on May 11. And, I was invited to judge the eHealthcare Leadership Awards again. These are all great opportunities to increase epilepsy awareness. - [Sandra's Story: I have epilepsy, epilepsy doesn't have me](https://livingwellwithepilepsy.com/epilepsy-stories/sandras-story-epilepsy-epilepsy-doesnt.html) - I realize that I am lucky because I have read stories of people and how they struggle with epilepsy. I ask myself, should I be struggling? Should I be worried all the time? But, then I stop and tell myself, NO! This is MY life and MY epilepsy story. - [What does one day of treatment look like?](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/one-day-treatment-look-like.html) - Pictures speak louder than words Epilepsy is often an invisible condition. However, the methods used to treat epilepsy are not. I recently heard about a site which showcases photos of the prayer spaces used by Muslim women. This gave me an idea. A gallery of treatment I'd like to create a gallery of images showing - [Write for Living Well With Epilepsy](https://livingwellwithepilepsy.com/aboutus-lwwe/write-for-living-well-with-epilepsy-3.html) - Has your life been affected by epilepsy in some way? When you write for Living Well With Epilepsy you share your story with readers around the world. - [How are you celebrating Epilepsy Awareness Month?](https://livingwellwithepilepsy.com/life-with-epilepsy/celebrating-epilepsy-awareness-month.html) - If you are doing something for epilepsy awareness month and want to get the word out, let us know. - [Raise epilepsy awareness like a superstar](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-awareness-superstar.html) - Check out these epilepsy awareness superstars. They are making a difference for women, children and teens living with epilepsy, each in their own way. - [Ask an Epileptic: A new column](https://livingwellwithepilepsy.com/life-with-epilepsy/ask-an-epileptic-intro.html) - Need some answers on what it's like living with epilepsy? Why not ask an epileptic? Listening to NPR the other day, I heard the journalist Gustavo Arellano mention his nationally syndicated column, “¡Ask a Mexican!.” This is Arellano's forum to answer any and all questions about America’s spiciest and largest minority (his words, not mine). - [Do generic meds differ from one manufacturer to another?](https://livingwellwithepilepsy.com/life-with-epilepsy/generic-meds.html) - Ask an Epileptic: "Do generic meds cause different side effects when they are from a different manufacturer?" DEAR EPILEPTIC: I have epilepsy and wonder if anyone who receives medication by mail ever receives their meds from a different generic manufacturer. This time my generic Lamictal came in a different shape and size. I was told - [Ever realize how annoying the word Epileptic is?](https://livingwellwithepilepsy.com/life-with-epilepsy/ask-an-epileptic-2.html) - Ask an Epileptic: "I've wondered if you realize how annoying it is to be called epileptic?" DEAR EPILEPTIC: The word "Epileptic" is annoying to some of us who do suffer from epilepsy! There are other ways to get the word out. I've done so myself by telling my own story. I was misdiagnosed originally and - [Medical ID Bracelets: Where do you stand on the issue?](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/medical-id-bracelets-where-do-you-stand-on-the-issue.html) - How many of you wear medical ID bracelets? Do you know someone who wears one? How long did it take to wear one? For me, it took quite a few years. - [Blog Relay to mark Epilepsy Stigma Awareness Month](https://livingwellwithepilepsy.com/epilepsy-blog-relay/blog-relay-to-mark-epilepsy-stigma-awareness-month.html) - Epilepsy Stigma Awareness Month For the past few years, Living Well With Epilepsy has dedicated June as Epilepsy Stigma Awareness Month. This year we are getting the epilepsy community involved through a blog relay. For this to succeed we will need 30 bloggers/advocates/family foundations/epilepsy affiliates who are willing to post ONE day in June on - [Leila's Ideas: Remembering 7th Grade Stigma](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-remembering-stigma.html) - Growing up with Epilepsy means growing up with stigma. In one of my earliest memories of stigma, I learned a valuable lesson. - [An interview with CURE Grantee, Dr. Hiroki Taniguchi](https://livingwellwithepilepsy.com/aboutepilepsy/cure-grantee-interview.html) - Dr. Hiroki Taniguchi, CURE grantee and a research group leader with the Max Planck Florida Institute for Neuroscience (MFPI), was recently awarded $100,000 by Citizens United for Research in Epilepsy (CURE) for his efforts to study cellular structures seeking to identify pathways for treatments or cures for epilepsy. Dr. Taniguchi has generously taken a moment - [Have your say: how would you raise epilepsy awareness?](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/epilepsy-awareness-poll.html) - Throughout November, Epilepsy Awareness Month, we'll be asking for your feedback on epilepsy awareness programs. We are looking for you to tell us which programs will have the greatest impact. You decide which programs are most important to you. You Decide It’s a simple idea. Just start by answering the poll below. Decide which program - [Epilepsy Blog Relay™: How Epilepsy Health Storylines is Making a Difference](https://livingwellwithepilepsy.com/epilepsy-blog-relay/how-epilepsy-health-storylines-is-making-a-difference.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you! This post was contributed by Leslie Jamison, EVP of Self Care Catalysts. Self Care Catalysts created the Epilepsy Health Storylines app in partnership with Living Well With - [Give your feedback on a new epilepsy app](https://livingwellwithepilepsy.com/epilepsy-news-and-research/give-feedback-new-epilepsy-app.html) - Your feedback will make this epilepsy app amazing Living Well with Epilepsy is gearing up to provide an epilepsy digital application that will allow our readers to access a suite of health apps that can support self-care, and improve health outcomes. We are able to provide this thanks to a new partnership with Self Care Catalysts. The epilepsy app is - [Pilot test the Living Well With Epilepsy App](https://livingwellwithepilepsy.com/life-with-epilepsy/pilot-test-living-well-epilepsy-app.html) - UPDATE: The response to the pilot testing has been outstanding. We are no longer accepting submissions. Living Well With Epilepsy is partnering with Self Care Catalysts to build an epilepsy digital application. We are looking for volunteers to participate in a brief pilot test of the application. We need feedback from people living with epilepsy and - [Epilepsy Storylines app is here](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-storylines-app-is-here.html) - Living Well With Epilepsy has launched a new mobile and web app just in time for Purple Day. The app, called Epilepsy Storylines, is designed to help people living with epilepsy as they manage their daily routines and communicate with their caregivers. This app is possible thanks to a partnership with Self Care Catalysts. Epilepsy - [Epilepsy Storylines App is now available for iPhone and iPad](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-storylines-app-is-now-available-for-iphone-and-ipad.html) - Epilepsy Storylines App puts control back your hands Living Well With Epilepsy has now launched Epilepsy Storylines on the App Store℠ for iPhone® and iPad®. Epilepsy Storylines is, an app that lets users track seizures, medication side-effects, moods, appointments and much more on their smartphone. They can then share any information within their circle of - [This Week in Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy/this-week-in-epilepsy.html) - This week the neurology community gathered in Washington, D.C. at the American Academy of Neurology Annual Meeting. I attended the meeting in my role as Director of Education and Membership for the American Neurological Association (my day job). While I was there, I had several opportunities to discuss the state of epilepsy around the world. - [Epilepsy Health Storylines: New feature just for Android users!](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-storylines-new-feature.html) - Have you ever felt like your doctor or health care team doesn't have the whole picture of how your epilepsy affects you on a day-to-day basis? Now Epilepsy Health Storylines has a new feature just for Android users that will get you a little closer to that complete picture when you are speaking with your - [May 2015 #LivingWellChat: On Using Epilepsy Storylines](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives/may-2015-livingwellchat-on-using-epilepsy-storylines.html) - What is #livingwellchat? #LivingWellChat is a conversation that takes place quarterly on Monday evenings starting at 8pm ET, on Twitter. Each chat covers a topic relevant to those of us living with epilepsy. What will this next chat be about? We will be chatting with the team from Self Care Catalysts who developed Living Well - [Letter to the Editor: Paying through the nose](https://livingwellwithepilepsy.com/life-with-epilepsy/letters-paying-nose.html) - To the Editor: I was diagnosed with Epilepsy in May 2012. In December 2012 I had 2 seizures at home and my family called 911. They took me to the hospital because I had another when they were here to be monitored for three days. The hospital advised DMV and suspended my drivers license again. - [Epilepsy Blog Relay™: Shelby on weathering a crisis](https://livingwellwithepilepsy.com/epilepsy-blog-relay/shelby-on-weathering-a-crisis.html) - The phrase “The weather is nice outside today” was my salvation when I needed to pretend that all was fine in the world. - [Epilepsy Blog Relay™: Eradicating the Stigma Surrounding Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts/eradicating-the-stigma-surrounding-epilepsy.html) - Epilepsy is one of the most common conditions affecting the brain yet there is still a stigma associated with epilepsy. Could sharing personal stories create a tipping point to change the dynamic? - [Rachel's Story: I am not alone anymore](https://livingwellwithepilepsy.com/epilepsy-stories/i-am-not-alone.html) - I feel as though I am not alone anymore. What I struggle with is, in a way, normal. My brain doesn't always function correctly and it causes seizures, but I am not alone, and I am not helpless. - [Emily's Perspective: What one word describes how you feel about epilepsy?](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-what-one-word-describes-how-you-feel-about-epilepsy.html) - This post is part of the Epilepsy Stigma Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts that inspire you! I have always worried about work. Do you need to take time off after a seizure? How long should you take to recover? Where do you - [This Week in Epilepsy: Blog Relay Week 1](https://livingwellwithepilepsy.com/epilepsy-blog-relay/this-week-in-epilepsy-blog-relay-week-1.html) - Epilepsy Stigma This week Living Well With Epilepsy launched the first #EpilepsyBlogRelay to shine a spotlight on stigma. Throughout the month of June, epilepsy bloggers and organizations from #Philly to #Cameroon are writing about #stigma on their own sites. These sites are linked through a common desire to reduce stigma for those living with epilepsy. - [This Week in Epilepsy: Blog Relay Week 2](https://livingwellwithepilepsy.com/epilepsy-blog-relay/this-week-in-epilepsy-blog-relay-week-2.html) - Epilepsy Stigma We are now in week two of the #EpilepsyBlogRelay, which is designed to shine a spotlight on epilepsy stigma. Throughout the month of June, epilepsy bloggers and organizations from #Philly to #Cameroon are writing about #stigma on their own sites. Here's a recap in case you missed any of this week's posts. Day - [This Week in Epilepsy: Blog Relay Week 3](https://livingwellwithepilepsy.com/epilepsy-blog-relay/this-week-in-epilepsy-blog-relay-week-3.html) - Epilepsy Stigma We are now in week three of the #EpilepsyBlogRelay. We have had a few requests from additional sites to join in the relay. If you are interested in participating with a post on epilepsy stigma here's how you can join: Add the following to the beginning of your post: This post is part - [This Week in Epilepsy: Blog Relay Week 4](https://livingwellwithepilepsy.com/epilepsy-blog-relay/this-week-in-epilepsy-blog-relay-week-4.html) - Week four of the Epilepsy Blog Relay has come to a close. There are two days left to check in on the participants. - [Epilepsy Blog Relay Recap: Thank you everyone](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-recap-thank-you-everyone.html) - Thanks to everyone who participated in the first ever Epilepsy Blog Relay. Together we have increased awareness of epilepsy stigma around the world. - [Epilepsy Blog Relay™: Gearing up for November 2015](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-gearing-up-for-november-2015.html) - November draws closer and that means we are gearing up for Living Well With Epilepsy's second Epilepsy Blog Relay™. For anyone who may have missed the relay in June, this is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. The Epilepsy Blog Relay™ engages people living with epilepsy, loved-ones, the medical - [Epilepsy Blog Relay™: Blog Schedule is Full](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-blog-schedule-is-full.html) - You may be aware that we are gearing up for our next Epilepsy Blog Relay™, which will run throughout November 2015 to mark Epilepsy Awareness Month. I am pleased to announce that our blogger participant schedule is full for the November '15 relay. November Relay Badge If you are a November Blogger, a November Reader - [Epilepsy Blog Relay™: How a diagnosis of LGS connected one family to an entire community](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-diagnosis-of-lgs.html) - This post was written by Elizabeth Terry, a historian and author in St. Louis, and mom to Spencer who has Lennox-Gastaut Syndrome (LGS). Living Well With Epilepsy is grateful to Lundbeck, a Sponsor of the November 2015 Epilepsy Blog Relay™. I remember my husband and I whispering to each other, “Is this normal?” We stood - [Epilepsy Blog Relay™: Week 1 Recap](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-week-1-recap.html) - This week Living Well With Epilepsy launched another Epilepsy Blog Relay™ to mark the first week of Epilepsy Awareness Month. Here’s a recap in case you missed any of this week’s posts. - [Epilepsy Blog Relay: Week 2 Recap](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-week-2-recap.html) - Week 2: Epilepsy Genetics We have just wrapped up another week in the November 2015 Epilepsy Blog Relay™. If you are just joining, throughout the entire month of November, 30 bloggers will be writing to raise epilepsy awareness. Thank you to Founding Sponsor, Sunovion, of the November 2015 Epilepsy Blog Relay™. Here’s a recap in - [Epilepsy Blog Relay™: Meet the bloggers at the next #LivingWellChat](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-meet-the-bloggers-at-the-next-livingwellchat.html) - Participate in the #LivingWellChat On November 30 at 7pm ET, join us for a Twitter Chat using the hashtag #livingwellchat to close out the month full of epilepsy awareness. Here are some answers to a few Frequently Asked Questions about #livingwellchat. What is #livingwellchat? #LivingWellChat is a live conversation that takes place on Twitter using a - [Epilepsy Blog Relay™: David's Reverie](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-davids-reverie.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you! Creativity and Epilepsy My name is Neil Creque Williams and I’m the Writer/Director of “David’s Reverie.” “David’s Reverie" is a short film about David, a jazz musician, - [Epilepsy Blog Relay: Week 3 Recap](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-week-3-recap.html) - Week 3: Technology and Innovation We have just wrapped up Week 3 in the November 2015 Epilepsy Blog Relay™. If you are just joining, throughout the entire month of November, 30 bloggers will be writing to raise epilepsy awareness. Thank you to Founding Sponsor, Sunovion, of the November 2015 Epilepsy Blog Relay™. Here’s a recap - [Epilepsy Blog Relay™: Epilepsy, depression and a little creativity](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-epilepsy-depression-and-a-little-creativity.html) - This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you! Having a medical condition is difficult, some individuals deal with their condition better than others, but the struggle is generally still there. Many people find it hard to - [Epilepsy Blog Relay™: TONIGHT #LivingWellChat at 7PM ET](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-tonight-livingwellchat-at-7pm-et.html) - Don't miss the chance to connect with your favorite epilepsy bloggers on tonight's #LivingWellChat. Join us for this fun LIVE event as a way to celebrate the end of Epilepsy Awareness Month. This live chat will place tonight, November 30 at 7PM ET on Twitter using the hashtag #LivingWellChat to filter out all the other - [Epilepsy Blog Relay™: Silver lining playbook](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-mothers-day.html) - Ever woken up to find three beautiful, strong men smiling down at you? Handsome paramedics (and EMTs) are truly the silver lining to seizures. - [Epilepsy Blog Relay™: Photo Book Gives a Lindsay a Voice](https://livingwellwithepilepsy.com/epilepsy-blog-relay/photo-book-gives-voice-child-with-lgs.html) - I created a hardcover photo book to enable Lindsay to “share her story” with others who didn’t know her or our family. - [Epilepsy Blog Relay: Emily's perspective on the SmartWatch](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-on-smartwatch.html) - The SmartWatch is a new device that will monitor movement and detect any abnormal patterns in motions such as any experienced in an epileptic seizure. - [Epilepsy Blog Relay™:Brandy and My Epilepsy Story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/brandy-and-my-epilepsy-story.html) - Brandy shares her personal Epilepsy Story and her thoughts on why women deserve to have epilepsy health issues addressed head on. - [Epilepsy Blog Relay™: One artist's view of the world](https://livingwellwithepilepsy.com/epilepsy-blog-relay/one-artists-view-of-the-world.html) - As an artist who also has epilepsy my paintings are more than art to me. They are a unique record of my memory and experience. - [Epilepsy Blog Relay™: It's not just other people](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/epilepsy-blog-relay-not-just-people.html) - Try not to give in to other people's beliefs of you. You are in control. You are in charge of how you see yourself. - [Epilepsy Blog Relay™: A Day in the Life of an Epilepsy Blogger](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts/epilepsy-blog-relay-day-life-epilepsy-blogger.html) - People often ask what it is like to blog about epilepsy. Here is a day in the life of a PAME Conference blogger and attendee. - [Epilepsy Blog Relay™: Changing Stigma to Education](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts/epilepsy-blog-relay-3.html) - This post is part of the Epilepsy Blog Relay™ which will run from June 1 through June 30. Follow along and add comments to posts that inspire you! Rachel’s Story First of all, I’d like to thank you all for reading this. It truly means way more than you know. Second, I’d like to introduce - [Epilepsy Blog Relay™: Seizure education is a family affair](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov16rachelehrhardt.html) - Many people over the years have asked me what it is like to have a seizure and what to do to help. Here are a few experiences from members of my family. - [Epilepsy Blog Relay™: Jonny is Not Disabled](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jonny-is-not-disabled.html) - Jonny is not disabled. He has more love in his heart and compassion than anyone I know. He understands the needs of others and works to meet them. - [Epilepsy Blog Relay™: The Everyday Life of Emily](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/epilepsy-blog-relay-the-everyday-life-of-emily.html) - Thank you for reading my March 2017 Epilepsy Blog Relay blog post. I’d like to talk a little bit about Epilepsy in everyday life, including why I am working to share my own story. - [Epilepsy Blog Relay™: Beth on [Per]Suit of Anthropology](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-beth-persuit-anthropology.html) - Day 2 of the Epilepsy Blog Relay™ Don't miss Beth Schill's post on http://anthrosuit.blogspot.com/. Beth's site, [Per]Suit of Anthropology, is a blog dedicated to the exploration of modern business trends and perspectives from the view of anthropologist, with a special emphasis on cultural understandings of work-life balance and disability rights in the workplace. From Beth "I'm - [Epilepsy Blog Relay™: Thankful for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/thankful-for-epilepsy.html) - As part of the Epilepsy Blog Relay™, I share why I am thankful to be living with Epilepsy. - [Epilepsy Blog Relay™: Soo on the Importance of Caregivers](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-soo-on-the-importance-of-caregivers.html) - From Soo: Caregivers are the unsung heroes in the fight to gain seizure freedom and help us living with epilepsy achieve a fulfilling life. - [Epilepsy Blog Relay™: Heidi helps those searching for information](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-heidi-helps-those-searching-for-information.html) - Heidi's Story: I realize that more people need information about Epilepsy that is why I started the page Epilepsy Education and Support. - [Epilepsy Blog Relay™: Kat on living with epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-kat-on-living-with-epilepsy.html) - Kat's Story: I am an artist, an author, a jeweler, a mother, a wife, and a writer. Epilepsy is simply a part of my life, as much as every other thing. - [Epilepsy Blog Relay™: 7 Things I Wish I Had Known About LGS](https://livingwellwithepilepsy.com/epilepsy-blog-relay/7-things-i-wish-i-had-known-about-lgs.html) - Kelly's Story: The seven things I wish I had known before my daughter was diagnosed with Lennox-Gastaut syndrome (LGS). - [Epilepsy Blog Relay™: David on raising a child with refractory epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-david-on-raising-a-child-with-refractory-epilepsy.html) - David's Story: My son’s epilepsy has changed our lives completely, but it has also made me a better father, husband, and hopefully a better human being. - [Epilepsy Blog Relay™: Finding Freedom with Freya](https://livingwellwithepilepsy.com/epilepsy-blog-relay/finding-freedom-with-freya.html) - I love writing, fundraising and advocating for epilepsy in order to change the negative attitudes that remain prevalent. I use my own daily experiences in my writing to show how I have found freedom despite suffering with the condition. - [Epilepsy Blog Relay™: Megan on Living with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-megan-on-living-with-epilepsy.html) - Megan's Story: Through my blog, In Megan's Shoes, I have discovered I need and I want to write to deal with my epilepsy. - [Epilepsy Blog Relay™: Living Well With Epilepsy Heads to DC with #EpilepsyButtons](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-living-well-with-epilepsy-heads-to-dc-with-epilepsybuttons.html) - To celebrate the National Epilepsy Walk I've created these fun buttons. Participants can find the #EpilepsyButtons for FREE in the Walkers Village. - [Epilepsy Blog Relay™: Purple Sneakers are Made for Walking](https://livingwellwithepilepsy.com/epilepsy-blog-relay/purple-sneakers-are-made-for-walking.html) - The purple wedges aren't exactly practical for a walk on the Washington Monument Grounds. So, I'll be wearing a great new pair of purple Converse sneakers. - [Epilepsy Blog Relay™: Sonya's Story of CDKL5](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-sonyas-story.html) - Day 27 of the Epilepsy Blog Relay™: Randi writes the blog, Sonya's Story. Her site is aimed at raising awareness of CDKL5. - [Epilepsy Blog Relay™: Busiest Blog Relay on Record](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-busiest-blog-relay-on-record.html) - This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2017. Follow along! Jessica's Story This has been one of the busiest Epilepsy Blog Relays on record. When Living Well With Epilepsy is this busy, it makes me believe that we are heading in the right direction - [Epilepsy Blog Relay™: #LivingWellChat on March 31 at 7PM ET](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-livingwellchat-on-march-31-at-7pm-et.html) - We've come to the end of another great Epilepsy Blog Relay™, and that means it's time for a live #LivingWellChat on March 31, 2017 at 7pm ET. - [Epilepsy Blog Relay™: My Post Surgery Thoughts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-my-post-op-thought.html) - I awoke from the surgery with a large headache and an amazing black eye. I had been prepared for 2 weeks of major headaches and 3 months’ total recovery. - [Epilepsy Blog Relay™: Kathryn's Story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-kathryns-story.html) - Kathryn writes the blog, Kat's Temporal Lobe Diaries. She writes, "I have seizures. It’s simply a part of my life, as much as every other thing. - [Epilepsy Blog Relay™: Soo's Story](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-soos-story.html) - Soo writes the blog Soo's Epilepsy Corner. Soo is living with epilepsy and has dedicated her efforts to raising epilepsy awareness. - [Coach Kill tackles epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/coach-kill-tackles-epilepsy.html) - On Thursday February 2, Living Well With Epilepsy will have the opportunity to interview Coach Jerry Kill, Rutgers University Football's new Offensive Coordinator. If you are not familiar with Coach Kill, he spent five seasons as head coach at Minnesota and earned Big Ten Coach of the Year in 2014. And, according to a release - [Leila's Ideas: Balancing Life and Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/12975.html) - Trying to live a "normal" life while managing Epilepsy can be difficult. How are you balancing life and epilepsy? - [Leila's Ideas: Speaking about stigma at the Mardi Gras Gala](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/speaking-about-stigma.html) - Sometimes, in my fight to eliminate stigma and live a "normal" life, I create the perception that my life is easy and free from struggle. However, in my speech at the Epilepsy Foundation of Western/Central Pennsylvania's (EFWCP) annual Mardi Gras Gala I showed what life with epilepsy is like--both the good and the bad parts. - [Leila's Ideas: Lemonade For Livy](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-lemonade-livy.html) - Lemonade for Livy invites you to Make a Stand Against Epilepsy this summer! Are you wondering what is "Lemonade for Livy"? It is the initiative of the Scheinman family to support their daughter in her fight with epilepsy. - [Leila's Ideas: New Additions to Sproutflix](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-new-additions-sproutflix.html) - We all know Netflix, but are you familiar with Sproutflix? This website provides "the largest and most diverse assortment of films featuring people with intellectual and developmental disabilities." - [Leila's Ideas: An excuse to sleep](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-excuse-sleep.html) - I hear and read many people talking about how much they love to sleep. It makes sense! Laying in bed is relaxing and comfortable, sleep reduces stress, and rejuvenates the body in many ways. Sometimes, though, in our busy world, finding time to sleep is difficult. We get so busy completing tasks that it cuts - [Leila's Ideas: Don't Give Up on Your Dreams](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/leilas-ideas-dont-give-up-on-your-dreams.html) - What is your dream? Do you long to be a teacher, a lawyer, an astronaut? Are you inspired by creating things, helping people, or science? We all have goals and dreams we want to achieve. Sometimes, having seizures makes it seem like those dreams won’t come true. If you need some inspiration, I’ve found 2 - [Emily's Perspective: Ideas for Purple Day 2017](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-purple-day-2017.html) - Purple Day 2017 is quickly approaching! Join Emily and get and share ideas to celebrate and support one another on March 26, 2017! - [Year in Review: Top Stories of 2016](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/year-in-review-top-stories-of-2016.html) - 2016 Year in Review: Living Well With Epilepsy looks back over the stories that have inspired us. - [Emily's Perspective: Looking Back on 2016](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-looking-back-on-2016.html) - Looking back on 2016, I realise it may have been the most exciting year ever, including a Champion Award and a Wing Walk among other amazing adventures. - [Epilepsy Blog Relay™: November 2016 LivingWellChat](https://livingwellwithepilepsy.com/epilepsy-news-and-research/november-2016-livingwellchat.html) - Join us for a live LivingWellChat on November 30, at 7pm ET as a way to celebrate the end of another great Epilepsy Blog Relay™. - [Emily's Perspective: Giving Back](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-giving-back.html) - In 2006 I was diagnosed with Epilepsy. At the time I was confused; we all were. I have written quite a bit about my general experience but basically, I grew to adapt to my seizures and new lifestyle and I just got on with my life. I was nearly 11 and I got used to - [Eliza's Story: Finding moments of strength](https://livingwellwithepilepsy.com/epilepsy-stories/elizas-story-finding-moments-of-strength.html) - Since being diagnosed with epilepsy, sometimes I feel like I have grown into my new self. In those moments of strength, I feel at peace with my reality. - [Stephen's Story: Reducing my medication](https://livingwellwithepilepsy.com/epilepsy-stories/stephens-story-reducing-medication.html) - This personal story was submitted by Stephen. He is living with epilepsy and was inspired to submit his story thanks to another recent personal story. - [November Epilepsy Blog Relay™ is filling up and other great news](https://livingwellwithepilepsy.com/epilepsy-news-and-research/november-epilepsy-blog-relay-is-filling-up-and-other-great-news.html) - Living Well With Epilepsy has great news that we just couldn't wait to share. Thanks to you, we've already surpassed our traffic numbers from 2013 and 2014! - [Stephanie's Story: Beating the Seizures](https://livingwellwithepilepsy.com/epilepsy-stories/stephanies-story-beating-the-seizures-before-the-doctors-can-even-get-to-your-appointment.html) - One smart doctor chose to put me on divalproex, otherwise known as valproate, because he saw me have large kinetic (jerking) movement, or seizures. - [Faye's take on Juice Plus+: Too Good to be True?](https://livingwellwithepilepsy.com/epilepsy-stories/guest-posts/juice-plus-good-true.html) - Juice Plus+ is the latest craze in the UK. Some representatives claim it helps epilepsy. Is this true? Faye investigated and spoke with the company. - [Emily's Perspective: My Family's Epilepsy Experience](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/my-familys-epilepsy-experience.html) - Epilepsy doesn't just impact the person diagnosed, it also effects the entire family. Emily shares her family's experience and offers advice to others. - [Emily's Perspective: Young Epilepsy Champions 2016](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/young-epilepsy-champions-2016.html) - Young Epilepsy Champions Awards will celebrate the achievements of children and young people with epilepsy. - [Megan's Story: Have you heard of vertiginous epilepsy?](https://livingwellwithepilepsy.com/epilepsy-stories/megans-story-vertiginous-epilepsy.html) - My name is Megan and I have a very rare type of epilepsy known as vertiginous epilepsy, or commonly known as epileptic vertigo. - [Emily’s Perspective: Remembering my first seizure](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/remembering-my-first-seizure.html) - I often talk about today, and what has been going on in my life. This month I’d like to do a bit of a ‘throwback’ and remember my first seizure. - [Carley's Story: Living with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/carleys-story-living-epilepsy.html) - I am Carley Jones and I have been living with epilepsy since I was 13 years old. - [Emily's Perspective: Facts and Myths about Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-facts-and-myths-about-epilepsy.html) - Do you know the differences between facts and myths surrounding Epilepsy? - [Emily's Perspective: Home Treatment](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/home-treatment.html) - This month I am going to be focusing on home treatment for Epilepsy. There are a few things you can do to make things a little less stressful or tiring. - [Meet Leila: Tackling stigma, one post at a time](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/meet-leila-tackling-stigma-one-post-time.html) - I'll be tackling stigma associated with epilepsy. Why? Well, Epilepsy remains largely untouched in society as a whole. Even among my peers, I have found old myths that are still believed to be true. - [Walking to Fight Epilepsy Stigma](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas/walking-to-fight-epilepsy-stigma.html) - Participating in fundraising events, like a run or a walk, is one way to stop epilepsy stigma in it's tracks. - [Beyond medication: A tiny device making a big difference](https://livingwellwithepilepsy.com/epilepsy-news-and-research/beyond-medication-a-tiny-device-making-a-big-difference.html) - A tiny device called AspireSR offers a little hope to Rachael, diagnosed with the rare Aicardi Syndrome, and her parents. - [Living Well With Epilepsy Founder chats LIVE with the Healtheo360 team](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-with-epilepsy-founder-chats-live-with-the-healtheo360-team.html) - I was recently invited to be the guest host on h360 LIVE, which is Healtheo360's live talk show. The show was fun and I thought you might want to take a look. - [Rich's Story: Seizures for more than 50 years](https://livingwellwithepilepsy.com/epilepsy-stories/richs-story-seizures-for-more-than-50-years.html) - This personal story submitted by Rich who has lived with psychomotor seizures for 60 years. I hope you enjoy getting to know Rich's story and benefit from his experience as much as I have. Rich's Story I have now had psychomotor seizures (along with a few grand mal) for 60 years. They started when I - [Emily and Project #EpiBear - Making a change for the better](https://livingwellwithepilepsy.com/epilepsy-news-and-research/project-epibear-making-change-better.html) - I am pleased to introduce you to Emily. She approached Living Well With Epilepsy and asked if we would do a post on Project EpiBear. I encourage you to take a moment to learn more about this young woman who is taking on epilepsy one bear at a time. - Jessica Keenan Smith Meet Emily - [My Vacation: Pushing the limits of my epilepsy on a wonderful get-away](https://livingwellwithepilepsy.com/epilepsy-news-and-research/my-vacation-pushing-the-limits-of-my-epilepsy-on-a-wonderful-get-away.html) - This summer my family took a vacation at Hunter Mountain thanks to the generosity of some very good friends. It was our first vacation in a few years. The trip was not only relaxing, but it gave me the chance to try pushing the limits of my epilepsy in ways that surprised me. I have - [Brittany's Story: How it all began](https://livingwellwithepilepsy.com/epilepsy-stories/brittanys-story.html) - The beginning It all began when I was in middle school. I remember sitting down watching TV when suddenly I stood up to give my mom a hug and I fell down unexpectedly. I went to the hospital, and after some tests, they said I had a seizure. Even though I had numerous tests with - [Scott's Story: Neurosurgery Part 1 - Long-Term Monitoring](https://livingwellwithepilepsy.com/epilepsy-stories/scotts-story-part1-long-term-monitoring.html) - This personal story is Part 1 of a series of posts where Scott will chronicle his experience beginning with long-term monitoring and culminating in a brain surgery to manage his epilepsy. I hope you enjoy getting to know Scott’s story and benefit from his experience as much as I have. Scott's Story I started having - [Emily's Perspective: At the Young Epilepsy Awards 2015](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-at-the-young-epilepsy-awards-2015.html) - On Thursday 26th March 2015, I had the incredible opportunity to attend the Young Epilepsy Champion Awards at the London City Hall to represent Living Well With Epilepsy. I write monthly columns for Living Well with Epilepsy and it was an honor to attend the awards on behalf of the founder, Jessica K Smith. Young - [Are anticonvulsants the only option?](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/are-anticonvulsants-the-only-option.html) - Anticonvulsant medication can control seizures in most people with epilepsy, but for about 30% of patients, they either aren't effective or are intolerable. There are other options to consider in these cases. They include: Epilepsy Surgery, Diet, Nerve stimulation, and Counseling. Option 1: Epilepsy Surgery What is epilepsy surgery? In some cases, brain surgery may - [Live on WHYY: Jessica Keenan Smith talks about epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/live-on-whyy-jessica-keenan-smith-talks-about-epilepsy.html) - If you missed the broadcast, check out the recording of Jessica Keenan Smith, founder of Living Well With Epilepsy, as she talks about epilepsy on WHYY. - [Debbie's Story: Noel and the Angel Wings Foundation](https://livingwellwithepilepsy.com/epilepsy-news-and-research/debbies-story-noel-angel-wings-foundation.html) - This personal story was contributed by Debbie Fincher, mom to Noel and Board Chair and Founder of the Angel Wings Foundation, an organization which is creating a new housing model for people living with epilepsy in need of long term support. - [Join our Twitter Chat with PillPack Founder](https://livingwellwithepilepsy.com/epilepsy-news-and-research/twitter-chat-pill-pack-founder.html) - On April 14, at 8 pm ET, Living Well With Epilepsy goes live with our first Twitter Chat with featured guest, TJ Parker, CEO and Co-Founder of PillPack. - [Are you an epilepsy mommy?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-mommy.html) - We are now looking for someone to cover the Epilepsy Mommy column. You could be a mom living with epilepsy or a mom to a child with epilepsy. - [First International Epilepsy Day](https://livingwellwithepilepsy.com/epilepsy-news-and-research/first-international-epilepsy-day.html) - The International Bureau of Epilepsy (IBE) and the International League Against Epilepsy (ILAE) have joined forces to establish the first International Epilepsy Day. Monday February 9th The first International Epilepsy Day will take place on Monday, 9th February 2015. Following on from this, the official day will be the second Monday of February each year. This - [More Emily's Perspective](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-mommy-new-feature-emilys-perspective.html) - I am pleased to introduce Megan Davis, our newest featured writer for Living Well With Epilepsy. Her column will focus on what it is like to be a mommy with epilepsy. Each month Megan's column, Epilepsy Mommy, will share what it is like to be a mom while managing epilepsy. - [Candlelight Concert celebrates the wonderful world of Sam Cooke](https://livingwellwithepilepsy.com/epilepsy-news-and-research/candlelight-concert-celebrates-wonderful-world-sam-cooke.html) - On Saturday, January 10, Candlelight Concert for Epilepsy Awareness will celebrate the new year with an All-Star Tribute to Sam Cooke. - [Lily's Luau supports epilepsy research](https://livingwellwithepilepsy.com/epilepsy-news-and-research/lilys-luau.html) - As I write this post the weather in Madison, Wisconsin is 1°F. Meanwhile volunteers are warming up (sorry, couldn't resist) for the 7th annual Lily's Fund Luau. Lily's Fund was established in 2007 at the University of Wisconsin Foundation through a gift from the Giroux family, in honor of their daughter, Lily. It began as an annual award given to - [Emily's Perspective: How to deal with a seizure](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-deal-seizure.html) - Epilepsy has a hold on millions of lives today. I live with epilepsy and I can tell you it isn't very fun, as you may have seen in my column last month. - [Living Well With Epilepsy wins Silver in Web Health Awards](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-epilepsy-wins-silver-web-health-awards.html) - Living Well With Epilepsy has been honored with a Silver Award in the16th Annual Web Health Awards. The Web Health Awards competition, held twice each year, recognizes the nation’s best digital health resources. The awards program is organized by the Health Information Resource Center[sm] (HIRC), a 20-year old clearinghouse for professionals who work in consumer - [Mark your calendar for the next #LivingWellChat](https://livingwellwithepilepsy.com/epilepsy-news-and-research/livingwellchat.html) - On December 15, at 8:00 pm ET, Living Well With Epilepsy will have our next #LivingWellChat on Twitter. Join us as we chat with featured guest Dr. David Burdette of Spectrum Health Medical Group. - [Living Well With Epilepsy joins #GivingTuesday](https://livingwellwithepilepsy.com/epilepsy-news-and-research/givingtuesday.html) - Living Well With Epilepsy is joining the national movement of #GivingTuesday to raise epilepsy awareness during the holiday season. Throughout November, Epilepsy Awareness Month, you voted on six (6) new epilepsy awareness programs to let us know which would have the greatest impact. Learn which program came out on top! - [10 reasons why I'm thankful](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/10-reasons-im-thankful.html) - On being thankful This time of year gives us a chance to stop, take a moment, and appreciate all the wonderful things in our lives. I'd like to take this opportunity to thank each of you for reading, commenting, submitting and questioning Living Well With Epilepsy. Your feedback continually improves the site, so keep it - [3 great ways to get social with epilepsy awareness](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-awareness-goes-viral-social-media.html) - Sprout Film Festival Through the end of November, Comcast is making 12 films from The Arc & Sprout Film Festival / Sproutflix available free On Demand for all Comcast/Xfinity subscribers. Since 2003, the Sprout Film Festival has been a leader in showcasing film and video projects featuring people with intellectual and developmental disabilities. By presenting - [Emily's Perspective: Finding the good when it gets really rough](https://livingwellwithepilepsy.com/epilepsy-news-and-research/emilys-perspective-finding-good-gets-really-rough.html) - Emily's Perspective get's real for epilepsy awareness month. Emily recounts her experience with an especially severe seizure. - [The Differences Among Us: Students raise epilepsy awareness](https://livingwellwithepilepsy.com/epilepsy-news-and-research/the-differences-among-us.html) - Students in a high school club, The Differences Among Us, in Cupertino, CA are making the world a better place for people living with epilepsy. - [Heidi's Story: Mom recalls experience with Benign Rolandic Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/experiencing-benign-rolandic-epilepsy.html) - Heidi Strawser, of heidi-strawser.com, submitted her family's experience with Benign Rolandic Epilepsy to Living Well With Epilepsy. - [Emily's Perspective: On finding the light in the darkness](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/on-finding-the-light-in-the-darkness.html) - You have to remember that through everything, no matter how dark and tough, through it all, there is light. - [Living Well with VNS: An indepth look](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-with-vns-indepth-look.html) - In the Living Well Reader Survey, you asked for information on the Vagus Nerve Stimulator (VNS). Well you are in luck! Meghan O'Neil, who has used the device to treat her epilepsy since 2008, has agreed to talk to Living Well about her experience with VNS. What is VNS? According to Epilepsy.com, "VNS is designed - [What does living well with epilepsy look like to you?](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/living-well-with-epilepsy-means-to-me.html) - I was recently asked "What does living well with epilepsy mean to you?" This slideshow may give you a sense of what it means to me. - [Epilepsy Bloggers Linkup](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-bloggers-linkup.html) - I'm going to try something new, a linkup. If it works I'll bring it back each week. I'm hoping that epilepsy bloggers and other sites promoting epilepsy awareness with take advantage of this opportunity to connect. Here's how it works: 1. Start by entering the name of your site in the field titled: your name. - [Emily's Perspective: Life with severe seizures](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-severe-seizures.html) - There are so many things I could be doing with my life. People like me, who have severe seizures, aren’t able to live life as normally as we would like. - [Brian's Story: Accepting and Living with Seizures](https://livingwellwithepilepsy.com/epilepsy-stories/brians-story-accepting-and-living-with-seizures.html) - About 4 years ago I had to accept and learn how to live with seizures. I'm 29 years old and I experience a headache/migraine and a sense of déjà vu that will at times progress into a seizure. - [Emily's Perspective: Driving](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective/emilys-perspective-driving.html) - It hit me that I was going to be getting the bus and the train everywhere when my friends would be driving places. - [Meet Emily, Living Well's new writer](https://livingwellwithepilepsy.com/epilepsy-news-and-research/meet-emily-living-wells-new-writer.html) - I am pleased to introduce you to Living Well With Epilepsy's new contributing writer, Emily-Sian Donoghue. You may remember her from a few of her personal stories. - [Roxanne's Story: Epilepsy will not have a hold on me](https://livingwellwithepilepsy.com/epilepsy-stories/roxannes-story-hold-on-me.html) - When I was in my 20's I had 19 tonic clonic seizures in 1 hour. I wound up in a coma for two weeks and had to relearn to talk. This was not the first time I stared death in the face. This is my story. - [Emily's Story: Managing intractable epilepsy with RNS](https://livingwellwithepilepsy.com/epilepsy-news-and-research/emilys-story-rns-system.html) - Emily is a normal, optimistic, 21 year-old college student. The only thing holding her back is uncontrolled seizures. Now with the help of the RNS System she has a fighting chance at her dreams. - [Stephen's Story: Chef, Runner and Survivor ](https://livingwellwithepilepsy.com/epilepsy-news-and-research/stephens-story-seizure-free.html) - I have been seizure free for 14 months and feel that my epilepsy is not behind me but I should enjoy being seizure-free. - [NJ Task Force on Epilepsy wants to hear from you](https://livingwellwithepilepsy.com/epilepsy-news-and-research/task-force-epilepsy.html) - Now in their second year, the members of the NJ Task Force on Epilepsy continue to hold public hearings and to gather information. If you live in the state of New Jersey and are affected by epilepsy here are a few ways you can get involved. - [Tim's Story: All we have is now](https://livingwellwithepilepsy.com/epilepsy-news-and-research/tims-story-now.html) - I have learned through my own research that it can be tough to find examples of other people living with conditions similar to your own. When there are so many different things that can cause epilepsy, it can be overwhelming to weed through the information that doesn't apply. - [Smiles to Fight Stigma](https://livingwellwithepilepsy.com/epilepsy-news-and-research/smiles-fight-stigma.html) - People with epilepsy have been dealing with stigma for centuries. This negativity has caused loss of jobs and relationships, hampered treatment, limited research funding, and has even brought about severe physical harm in some cases. In an effort to drive change, we will dedicate June to Epilepsy Stigma Awareness Month as we did last year. - [Children and Epilepsy: Building Self-Esteem](https://livingwellwithepilepsy.com/epilepsy-news-and-research/building-self-esteem.html) - A guest post by Virginia Cunningham Every parent needs to do their part to make sure their children have high self-esteem, and this is particularly important for children who have issues that can easily affect their self-esteem, like epilepsy. Children diagnosed with epilepsy later in life may need extra encouragement, since they could feel that - [Living Well Founder Selected to Judge Web Health Awards](https://livingwellwithepilepsy.com/epilepsy-news-and-research/web-health-awards-judge.html) - Jessica Keenan Smith, Founder and Managing Editor of Living Well With Epilepsy, a online resource for people living with epilepsy, has been selected to judge the 2014 Web Health Awards. This will be the fourth year running, Smith has been invited to judge this prestigious award. - [Sita's Story: Epilepsy at University](https://livingwellwithepilepsy.com/epilepsy-news-and-research/sita-story-university-life.html) - Adjusting to university life was a bit of a struggle, as I tried to balance the stress of work and becoming more independent. The seizures still occurred from time to time. - [Picture a Cure: Gearing up for Epilepsy Stigma Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/picture-a-cure-followup.html) - If you were busy increasing epilepsy awareness on Purple Day, you may have missed Picture a Cure: an online exhibit when it was featured on the home page. Living Well With Epilepsy is continuing to accept photos in preparation for Epilepsy Stigma Awareness Month. - [Lisa's Story: Childhood Epilepsy with Petit Mal Seizures](https://livingwellwithepilepsy.com/epilepsy-news-and-research/childhood-epilepsy-petit-mal.html) - As a child, my seizures were a very pleasant experience, but for the longest time my parents thought I was just daydreaming. I went undiagnosed until I was 8. I was having over 100 petit mal seizures a day, and my grades were so poor that I was put into English as a Second Language (ESL) courses because my teachers didn't think I knew English. - [Check out the new Epilepsy Expert on About.com](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-expert-about-com.html) - I'm excited to announce, About.com recently invited me to sign on as the About.com Epilepsy Expert. This is a wonderful opportunity to increase epilepsy awareness via both Living Well With Epilepsy and http://epilepsy.about.com. Open call for guest posts I want to continue to offer high quality content on both sites so, it's time to call - [Picture a Cure for Purple Day: Deadline Extended](https://livingwellwithepilepsy.com/epilepsy-news-and-research/picture_a_cure.html) - Picture a cure photo submission deadline has been extended to March 21. Take this opportunity to spread the word and submit your photo. - [Making a difference with music: Candlelight Concerts for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/candlelight-concerts-epilepsy.html) - There are four amazing shows slated for March and April in honor of Purple Day. Tickets are on sale now. Don't miss this chance to hear some great music. - [MyEpilepsy: New epilepsy app from the Cleveland Clinic](https://livingwellwithepilepsy.com/epilepsy-news-and-research/myepilepsy-app.html) - The Cleveland Clinic just released MyEpilepsy, a free iPad app to help people living with epilepsy work with their doctors to better manage the disorder. - [Featured Epilepsy Events](https://livingwellwithepilepsy.com/epilepsy-news-and-research/featured-epilepsy-events.html) - Are you looking to increase attendance at your annual epilepsy fundraising event? Or do you want to get the word out about a support group that is making a difference? Maybe you want to let people know about registration for an epilepsy camp. Don't forget to add your event to the free Living Well With Epilepsy event calendar. - [Anonymous Story: The good life despite epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/anonymous-story-good-life-despite-epilepsy.html) - My seizures have persisted through those 60 years at the rate of about 4 seizures per month. Still, I’ve had a pretty good life. - [Cassie's Story: Living with Juvenile Myoclonic Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/sams-story-juvenile-myoclonic-epilepsy.html) - The journey since my diagnosis of Juvenile Myoclonic Epilepsy has made life precious in a way not everybody gets to experience. - [2014 Epilepsy Funding update: We're not there yet](https://livingwellwithepilepsy.com/epilepsy-news-and-research/2014-epilepsy-funding-update-yet.html) - It's time for the annual epilepsy funding update. Each year I take a look at the funding going toward Epilepsy research and compare it to funding toward other disease states. - [Top Discoveries in Epilepsy in 2013](https://livingwellwithepilepsy.com/epilepsy-news-and-research/top-discoveries-epilepsy-2013.html) - The end of the year is a great time for "Top" and "Best of " lists. There's one for everything including the top apps, top movies, top songs, top photos, and top blogs. I thought it was time to have a Top Discoveries in Epilepsy list. This was a particularly busy year for the science - [Anonymous Story: It's the not knowing that scares me](https://livingwellwithepilepsy.com/epilepsy-stories/not-knowing.html) - One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened??? - [2014 is the year of Purple: Pantone's Radiant Orchid](https://livingwellwithepilepsy.com/epilepsy-news-and-research/radiant-orchid.html) - Each year, Pantone selects a color of the year. The company just announced the 2014 Color of the Year is PANTONE® 18-3224 Radiant Orchid. This beautiful purple hue presents a great opportunity for the epilepsy community. According to Leatrice Eiseman, executive director of the Pantone Color Institute®, “An invitation to innovation, Radiant Orchid encourages expanded - [Epilepsy Creative: Launched in time for Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-awareness-month.html) - I have found people with epilepsy to be extremely creative. I don't know if it is a function of our epilepsy or it is just coincidence. Personally, I love to write (as you may have guessed), but I also love to take photos - mostly of inanimate objects that will stand still to counteract my - [Early results from the 2013 Reader Survey](https://livingwellwithepilepsy.com/epilepsy-news-and-research/early-results-2013-reader-survey.html) - Check out the early results from the 2013 Reader Survey. If you haven't already, I encourage you to complete the survey. This is a great opportunity to suggest topics that Living Well With Epilepsy should cover! Don't miss this opportunity to be heard. This survey is a great way for us to make sure we - [Anonymous Story: Seizureless in Seattle](https://livingwellwithepilepsy.com/epilepsy-stories/seizureless-seattle.html) - Seizures have been a part of my life for 15 of my 34 years. Initially medication was able to control them. However at the age of 31 things changed. I had to give up driving & my teaching career. Thanks to brain surgery I have been seizure-free for a year. - [Tips on how to apply for Social Security Disability Benefits](https://livingwellwithepilepsy.com/epilepsy-news-and-research/social-security-disability.html) - Social Security Disability Benefits and Epilepsy Guest post by Molly Clark Some people who have epilepsy experience severely debilitating forms of the condition. If epilepsy prevents you from keeping a job or earning a living, you may qualify for Social Security Disability (SSD) benefits. Disability benefits can be used to offset lost income, medical costs, - [Welcome to the new site!](https://livingwellwithepilepsy.com/epilepsy-news-and-research/welcome-to-the-new-site.html) - Creating the LivingWellWithEpilepsy blog has been a wonderful adventure. Your comments and emails have shown me that it is time to upgrade to a platform that can handle all the exciting new ideas you have helped to develop. Thank You Many of you have been readers since the beginning, and I cannot express how much - [Back from BEA](https://livingwellwithepilepsy.com/epilepsy-news-and-research/back-from-bea.html) - I'm back from Book Expo America, and yes, I left NYC in a MegaBus weighed down with books and swag (mostly books). The experience was great and I will happily take on the Javits Center again next year. My favorite quote from the show was said during the Editor Buzz session when referring to a - [2013 Reader Survey: Tell us what you think](https://livingwellwithepilepsy.com/epilepsy-news-and-research/2013-reader-survey.html) - It's time for the annual Living Well With Epilepsy reader survey. We did this last year and found it very helpful. This survey is a great way for us to make sure we are on track with what you want from the site. Please take a minute to answer this brief 10 question survey. Thanks - [Sophie's Story: A teen experience with seizures](https://livingwellwithepilepsy.com/epilepsy-stories/sophies-story-teen-experience.html) - I'm seventeen, living in Geneva, Switzerland, and this is my experience. I was diagnosed with epilepsy in sixth grade after having a grand mal seizure in class. That was a pretty scary time for everyone, especially my family. We had no way of predicting that I would have epilepsy. We had no family history of - [Kathleen's Story: Pregnancy and Epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/kathleens-story-pregnancy-and-epilepsy.html) - Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by a congenital brain - [Irish and Lucky: an anonymous epilepsy story of hope](https://livingwellwithepilepsy.com/epilepsy-stories/irish-and-lucky_an-epilepsy-story.html) - The following epilepsy story was sent in anonymously. This person, after 48 years of living with epilepsy, has found a way to see a glimmer of hope. Check out this story. Hi, all! I am a lifelong epileptic, having been diagnosed as a child at the age of 7. I did not have a pre-seizure - [Talking about stigma on facebook](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/talking-about-stigma.html) - On Facebook, we've been talking about stigma from epilepsy. It is great to see how willing everyone is to talk about their experiences. I just wanted to take a minute to add a special post here so no one missed out on the conversation. Check out the questions I've posed several questions. The they are: - [Emily's Story: Petit Mal Seizures - Part 2](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-story-petit-mal-seizures-part-2.html) - Continued from Part 1 I will never be able to thank my Mum enough for the hours she comforted me when I was shaking so much I could no longer feel my body. Or the times when she wiped my tears away when I couldn't sleep at night. I began to lose my appetite and - [EpilepsyBlogger needs your help](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/epilepsyblogger-needs-your-help.html) - A while back I heard from my friend Mandy, you may know her as EpilepsyBlogger. I was sad and frightened to learn that her seizure activity had dramatically increased. See, for as long as I've known this amazing young woman, she has proven herself to be a strong and smart advocate for people living with - [Emily's story continues: Now adjusting to tonic clonic seizures](https://livingwellwithepilepsy.com/epilepsy-stories/tonic-clonic-seizures.html) - Emily has shared her epilepsy story before. She previously told us about her absence seizures but she recently began to have tonic clonic seizures as well. She wanted to share her experiences with you. If you need to catch up on Emily's story, visit the first post at at: http://livingwellwithepilepsy.com/2013/03/emilys-story-absence-seizures-part-1.html Emily's Update: My life changed - [Personal stories of living with epilepsy stigma](https://livingwellwithepilepsy.com/epilepsy-stories/epilepsy-stigma-stories.html) - Several of you have submitted stories your personal experience with epilepsy stigma. Thank you to those of you who have submitted your stories so far. Keep them coming! Campaign Update Just a quick update on our goal of $500. To date we have raised $11. I know we can do better and there is still - [Michael Z.'s epilepsy story sounds familiar](https://livingwellwithepilepsy.com/epilepsy-stories/michael-z-s-epilepsy-story-sounds-familiar.html) - Michael Z.'s story may sound familiar to many of you. I know it did to me. He has experienced many of the same things I have, from being diagnosed in his late teens, to "busting himself up" during a seizure, to having trouble with side effects. Read his story and think of him this coming - [JD's story: Juvenile Onset Myoclonic Epilepsy nearly killed me (again)](https://livingwellwithepilepsy.com/epilepsy-stories/jd-juvenile-onset-myoclonic-epilepsy.html) - JD submitted this story of how juvenile onset myoclonic epilepsy has nearly killed him several times over. JD's Story When I was 14 (1985) I began having bizarre, frightening experiences. In the mornings, while in the bathroom, I would suddenly find myself falling to the ground without any memory of how I stopped standing normally. - [Van's Story: Living with partial complex epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/vans-story-living-with-partial-complex-seizures.html) - Our most recent epilepsy story comes from Van T. Chau. Van tells us about his life with partial complex seizures. My name is Van Tuan Chau. I am 40 years of age. I have been having epilepsy for 36 years. I have epilepsy since I was a kid in Vietnam when I was 4 years - [June is Epilepsy Stigma Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/june-is-epilepsy-stigma-awareness-month.html) - Living Well With Epilepsy is dedicating the month of June to Epilepsy Stigma Awareness. Your overwhelming responses on Facebook and Twitter have prompted us to dedicate a full month to raising awareness on epilepsy related stigma. Epilepsy Stigma Awareness Many of you responded that you feel isolated and angry. Yet there are 65 MILLION people - [Words matter when you are feeling isolated and annoyed](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/words-matter.html) - We have been talking about words on Facebook this week. More specifically, what is that one word that you would use to describe how having epilepsy makes you feel. I was feeling a few words this week and none of them were of the positive variety. Mainly because I found out another friend, who has - [Living Well Ranked #3 on Best Blogs Site](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-ranked-3-on-best-blogs-site.html) - A site on Medical Billing and Coding recently decided to incorporate a page on the 35 Best Blogs for Epilepsy Support in honor of Epilepsy Awareness Month. I was pleasantly surprised to find that Living Well With Epilepsy is ranked #3 on their list! Check out the fantastic write up below: Living Well With Epilepsy: - [Promote your epilepsy awareness event](https://livingwellwithepilepsy.com/epilepsy-news-and-research/promote-your-epilepsy-awareness-event.html) - If your team is organizing an epilepsy awareness event, you are probably looking for an inexpensive way to increase attendance and further your mission. We are pleased to announce that you can now submit your event to Living Well With Epilepsy through our Submit Your Event page. How does it work? The Submit Your Event - [Benefit concert makes for a legendary Purple Day](https://livingwellwithepilepsy.com/epilepsy-news-and-research/purple-day.html) - On March 24 the Epilepsy Foundation of New Jersey marked Purple Day with a benefit concert at the legendary Stone Pony. The event raised $12,000 which is more than double what they raised at event in 2012. There were more than 300 people in attendance including Eric Miller of Candlelight Concerts, Gary Hoey, Jann Klose - [March 26 is Purple Day](https://livingwellwithepilepsy.com/epilepsy-news-and-research/purple-day2013.html) - What will you do to increase epilepsy awareness today? Need a few reasons to make a difference? Check out Epilepsy By The Numbers Let us know how you will increase epilepsy awareness today! - [EFEPA Mardi Gras was a success](https://livingwellwithepilepsy.com/epilepsy-news-and-research/efepa-mardi-gras-was-a-success.html) - The glitterati of Philadelphia were out on Friday February 8, to support the Epilepsy Foundation of Eastern PA. Despite the snow and wind, the guests looked fabulous as did the space. Allison McCartin, Executive Director noted, "I'm pleased to report that we surpassed our goal." This year, the EFEPA is launching Keys to Independence, a - [Studio E: how art is helping people with epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/studio-e-how-art-is-helping-people-with-epilepsy.html) - Artwork by participants in the Studio E: The Epilepsy Art Therapy Program was on display at the annual meeting of the American Epilepsy Society. Overwhelmingly positive feedback for the Studio E program has inspired upcoming research to further understand the potential benefits of art therapy for people with epilepsy. This is the second year that - [What do you think of the new site?](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/what-do-you-think-of-the-new-site.html) - Take a minute to tell us what you think of the new Living Well With Epilepsy site by visiting: http://www.surveymonkey.com/s/8WZPVNY Your feedback has always been essential. - [Top Stories of 2012](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/top-stories-of-2012.html) - 2012 has been a very exciting year in epilepsy awareness. Below are the posts that made it to this year's Top Stories list. Wharton partners with Living Well With Epilepsy Team(dot)com, students from the Wharton School at the University of Pennsylvania, made it possible for Living Well With Epilepsy to transition from blog to comprehensive - [Survey says: Thumbs up on new epilepsy site](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/survey-says-thumbs-up-on-new-epilepsy-site.html) - Earlier this month I asked for feedback on the new site. I've heard from a number of you and I wanted to share the preliminary results. Two Thumbs Up I had hoped you would like the new site, so I was pleased to find such high percentages in the "Strongly Agree" category when asked about - [Nominate Epilepsy Site for a Shorty Award](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts/nominate-epilepsy-site-for-a-shorty-award.html) - If you are on Twitter, don't miss this opportunity to vote for Living Well With Epilepsy in the Shorty Awards. Voting opened on January 7 and runs until February 10. This is the 5th Annual Shorty Awards and it is time for Epilepsy to get a seat at the table. I have created a category - [Coach Kill's seizure on the field: Would you know what to do?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/coach-kills-seizure-on-field-would-you.html) - Charles Baus/Cal Sport MediaDuring the Minnesota Golden Gophers' game against New Mexico State on September 10, the Gophers head coach Jerry Kill suffered a seizure on the sidelines.It has been made known that Kill has a history of seizures. The seizure he suffered on the field is categorized as a tonic clonic or grand mal - [King Tut and all the speculation](https://livingwellwithepilepsy.com/epilepsy-news-and-research/king-tut-and-all-speculation.html) - I read the pieces on King Tut in both the Washington Post and in Time and I have to say I was annoyed. When a friend forwarded the WaPo story to me with the note "Interesting theory," I realized I needed to respond.Let me just say up front, The Washington Post and Time pieces are - [An Epilepsy Story: Living with uncontrolled epilepsy](https://livingwellwithepilepsy.com/epilepsy-stories/an-epilepsy-story-living-with-uncontrolled-epilepsy.html) - Dan, a reader and a man living with uncontrolled epilepsy, has generously shared his story with us. Below you will find an excerpt: "For the first ten years I was relatively healthy. But the year I turned ten, I contracted viral meningitis. A few months later I was sledding in the park and had a - [Gabriela's Story: epilepsy deconstructed](https://livingwellwithepilepsy.com/epilepsy-stories/gabrielas-story-epilepsy-deconstructed.html) - Bobbie Shufani has created an intensely personal and beautifully written blog titled, "Gabriela". It is the true story of her daughter’s struggle with epilepsy. Bobbie created the site to publish a serialized story about dealing with her daughter's epilepsy and medical treatment (or lack thereof). I encourage you to take a moment to read this - [Living with epilepsy: Katrin's story](https://livingwellwithepilepsy.com/epilepsy-stories/living-with-epilepsy-katrins-story.html) - Read the latest in our series of personal stories contributed by readers who are living with epilepsy. From Katrin: Living with epilepsy has been eventful. From having seizures almost everyday to having brain surgery Katrin's Story - [More than 200% increase in traffic to epilepsy site](https://livingwellwithepilepsy.com/epilepsy-news-and-research/increase-in-web-traffic.html) - Sometimes it helps to stop and take a look at your progress. Your comments on the new site have been amazing, so I was curious to know if more people are visiting the site. I wanted to know if the changes to the site have brought more people to learn about epilepsy, and is the - [New Website Survey: Your feedback matters](https://livingwellwithepilepsy.com/epilepsy-news-and-research/new-website-survey-your-feedback-matters.html) - Create your free online surveys with SurveyMonkey, the world's leading questionnaire tool. - [Solo art exhibition by woman with epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/solo-art-exhibition-by-woman-with.html) - This fall, an emerging talent in the art world--and a woman with epilepsy--will have a solo exibition in Philadelphia.Cathy Hozack on being an artist“I’ve had epilepsy since I was five. The seizures and strong medications made me tired, confused, depressed and out of touch with reality. Over time, parts of my memory have gotten worse, - [Spread the word about Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsyawarenessmonth2012.html) - Epilepsy Awareness Month in November will be here sooner than we know. So, I'd like to propose a little project. This graphic is a button I created last year for Epilepsy Awareness Month. Throughout the year I noticed a few of you added it to your twitter pages, facebook pages and website pages. I would - [November is Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/november-is-epilepsy-awareness-month.html) - November is Epilepsy Awareness Month. But, sometimes it seems the month can come and go without mention of a single event to raise awareness. Now, that's not to say that events don't happen. Epilepsy Foundation offices around the country are organizing events, conferences and walks to celebrate Epilepsy Awareness. And, they are doing their best - [Epilepsy and H1N1](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-and-h1n1.html) - Image of the H1N1 influenza virus taken in the CDC Influenza Laboratory.To give you a sense of how widespread this thing is, The American College Health Association recently reported that there were 7,001 total suspected cases of H1N1 on college campuses as of September 4. That was when the kids had just arrived to school. - [Epilepsy's dirty little secret](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsys-dirty-little-secret.html) - Epilepsy is not that serious, right? I mean, its not like you can die from it or anything. Right?According to the American Epilepsy Society, "it is very uncommon but not unheard of for people to die with a seizure." 'Rare' and 'very uncommon' are what patients hear from medical professionals when they ask the question, - [Good Days, Bad Days magazine is up and running](https://livingwellwithepilepsy.com/epilepsy-news-and-research/good-days-bad-days-magazine-is-up-and.html) - Good Days, Bad Days, a magazine for children with chronic illness, has launched it's inaugural issue. The magazine was established to help children with chronic illness cope with their condition. The founder, Amy Friedenberg, hopes that Good Days, Bad Days will become a publication that children with chronic illness can be proud to consider their - [Wear Purple on March 26 for Epilepsy Awareness](https://livingwellwithepilepsy.com/epilepsy-news-and-research/wear-purple-on-march-26-for-epilepsy.html) - Purple Day was founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, with the help of the Epilepsy Association of Nova Scotia. March 26 is now an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. So next Friday, March 26, wear something purple and spread the word about epilepsy. - [Aid sent to people with epilepsy in Haiti](https://livingwellwithepilepsy.com/epilepsy-news-and-research/aid-sent-to-people-with-epilepsy-in.html) - The international community of epilepsy specialists is providing financial support and specialized medical equipment to help re-establish services to epilepsy patients in Haiti. In addition to providing long-term support needed to maintain normal clinical services, the project organizers’ initial goal is to assist in preventing neurological damage and potential risk of death from break-through seizures - [Huff Post helps bring Epilepsy out of the shadows](https://livingwellwithepilepsy.com/epilepsy-news-and-research/huff-post-helps-bring-epilepsy-out.html) - Recently on the Huffington Post, Lynda Resnick, author of Rubies in the Orchard, posted an article on epilepsy. Resnick notes: "The numbers surrounding epilepsy are staggering. At any given time, nearly 1% of the world's population has active epilepsy -- that's 60 million people. Ten times that number will have at least one seizure in - [Head down, into the madness: Book Expo America](https://livingwellwithepilepsy.com/epilepsy-news-and-research/head-down-into-the-madness-first-time-at.html) - This will be my first time taking on the mammoth trade show that is Book Expo America (BEA). The show will run May 25-27 at the Jacob Javits Center in NYC. My collegues at SheWrites.com assure me that I will need a plan of action and sturdy (yet stylish) shoes. Of course, I'll leave plenty - [Head to a She Writes birthday bash near you](https://livingwellwithepilepsy.com/epilepsy-news-and-research/head-to-she-writes-birthday-bash-near.html) - On June 29, She Writes, the largest community and resource for women writers online, will celebrate its one-year anniversary. Since the launch of She Writes, with 40 founding “alpha” members, including Amy Sohn, Hope Edelman, Katha Pollitt, Gretchen Rubin, and Alix Kates Shulman, growth has been explosive. The site now boasts nearly 10,000 members from - [Epilepsy? Yep, there's an app for that.](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-yep-theres-an-app-for-that.html) - There are apps to find the best restaurant or to find you when you're lost, but an app for epilepsy? Now that just blows my mind. In a two second Google search, I found links to information on at least three apps relating to epilepsy. Here's what I found:First, there's the one launched by The - [Check out Epilepsy by the Numbers](https://livingwellwithepilepsy.com/epilepsy-news-and-research/check-out-epilepsy-by-numbers.html) - A friend said to me, "I can't wait to learn more about who has epilepsy when I check out your blog." GULP. I realized I didn't have information on who has epilepsy on my blog. In response to that perfectly reasonable request, I have created a page called "Epilepsy by the Numbers." It provides statistics - [Squeaky wheel gets the research dollars](https://livingwellwithepilepsy.com/epilepsy-news-and-research/squeaky-wheel-gets-research-dollars.html) - Where does research money go when it isn't put toward epilepsy? Obviously in these trying economic times those dollars are spread thin. But I thought it would be interesting to look at which areas are benefitting most. NIH released a report in February providing a detailed account of which diseases and conditions would receive how - [Did Emily Dickinson have epilepsy?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/did-emily-dickinson-have-epilepsy.html) - In a much talked about biography of Emily Dickinson, Lives Like Loaded Guns, Lyndall Gordon poses the question, "Did Emily Dickinson have epilepsy?"According to Gordon, a senior research fellow at St. Hilda's College, Oxford, Dickinson is both ambivalent and truthful about what she calls her sickness. Gordon says, "Her handicap or whatever we want to - [Back to school with epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/back-to-school-with-epilepsy.html) - Heading back to school with epilepsy can be stressful. But I have come across a site that can be a resource to parents, teachers, family and friends. The site is called Epilepsyclassroom.com.It opens with a welcome from Greg Grunberg of Heroes, founder of the site TalkAboutIt.org. The site was designed by UCB and the Epilepsy - [NJ forms State Task Force on Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/nj-forms-state-task-force-on-epilepsy.html) - Governor Chris Christie has signed a bill to establish the New Jersey Epilepsy Task Force. This statewide task force will develop recommendations to educate the public and healthcare professionals about epilepsy and treatments as well as to address the psychosocial issues, such as depression, discrimination and stigmatization. The Act (S1928) was sponsored by Senator Fred - [Epilepsy and H1N1 2010](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-and-h1n1-2010.html) - Last year we were completely freaked out about H1N1. There were fights over who would get the vaccine. People were wearing masks, and hand sanitizer could be found everywhere. AES, CURE, Epilepsy Foundation, Epilepsy Therapy Project and FACES even joined together in support of public awareness on H1N1 virus risks in children with epilepsy. This - [Don't Miss the NYC Benefit for CURE Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/dont-miss-nyc-benefit-for-cure-epilepsy.html) - On Thursday, October 14, 2010, the stars will come out for the third annual New York City Benefit for CURE Epilepsy. This year the organization will welcome NYC's Mayor Michael R. Bloomberg while the event will be hosted by George Stephanopoulos (Good Morning America and ABC News) and Alexandra Wentworth (Actress & comedian).Tickets are still available - [Thanks to the 1000 of you who visited!](https://livingwellwithepilepsy.com/epilepsy-news-and-research/thanks-to-1000-of-you-who-visited.html) - This week the Living Well With Epilepsy blog welcomed its 1000th visitor. I can't tell you how excited I am to know that this site is reaching people. (real people!) My goal was always to help fill a gap in communication on epilepsy. And in just a year, the site has gone from obscurity to - [Epilepsy Awareness Month: November 2010](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-awareness-month-november-2010.html) - This coming November will be Epilepsy Awareness Month. But I wonder, will this be another year without any mention of epilepsy in the news? I hope not. It would be great to tackle the stigma and take on a campaign similar to Stand Up 2 Cancer. For now though, Epilepsy Foundation offices around the country - [Picture book on epilepsy, now in spanish!](https://livingwellwithepilepsy.com/epilepsy-news-and-research/picture-book-on-epilepsy-now-in-spanish.html) - Author, Danielle M. Rocheford was diagnosed with epilepsy at age two. Her epilepsy was classified as complex partial seizures, preceded by epileptic auras. Her auras manifested through a tingling feeling. Young Danielle used the phrase “I feel funny” as a way to inform her parents or others that she was about to have a seizure.Danielle has - [More November Happenings: in Minnesota](https://livingwellwithepilepsy.com/epilepsy-news-and-research/more-november-happenings-in-minnesota.html) - The latest addition to the November Happenings page is from The Epilepsy Foundation of Minnesota. They are excited about their second annual Epilepsy and Seizures Conference: “Living with Seizures Today and Tomorrow.” It’s a conference for parents, seniors, young adults and health care professionals. The conference will be held on Saturday, November 13, 2010 from 9:00 - [Add your events to the NEW! Epilepsy Awareness Month Page](https://livingwellwithepilepsy.com/epilepsy-news-and-research/add-your-events-to-the-new-epilepsy.html) - I recently added a page called November Happenings. This is a space for any organization (around the globe) to promote Epilepsy Awareness Month events. All you have to do is visit the page and add a comment on what your organization will be doing for epilepsy awareness month.Check it out. Leave a comment. The Epilepsy - [Heading to college? Would a scholarship help?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/heading-to-college-would-scholarship.html) - It's the time of year for college visits, SATs, GMATs, GREs, and all the other dreadful standarized testing. Oh and don't forget those lengthy applications, interviews, and the rest of the nightmare that comes along with selecting the college or university of your dreams. Meanwhile, the cost of a college education can be extreme so - [Yowza, now that's epilepsy awareness!](https://livingwellwithepilepsy.com/epilepsy-news-and-research/yowza-now-thats-epilepsy-awareness.html) - On October 2, we thanked the 1000 of you who visited Living Well With Epilepsy over the past year. Since then (a month ago!!) I have had an additional 1000 visits to this site! This is especially important since November is Epilepsy Awareness Month. As I mentioned before, my goal was always to help fill a gap in - [Chandra Hoffman features Living Well With Epilepsy on her blog](https://livingwellwithepilepsy.com/epilepsy-news-and-research/chandra-hoffman-features-living-well.html) - Chandra Hoffman, author of Chosen, is featuring a piece of mine and Living Well with Epilepsy on the new Wednesday Writers section of her blog.Since graduating from Cornell University, Chandra has been an orphanage relief worker in Romania, a horse trainer in the Caribbean, a short order cook in a third world hospital, the director of a US adoption program and - [Are you seizure smart?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/are-you-seizure-smart.html) - During National Epilepsy Awareness Month, the Epilepsy Foundation is asking everyone to Get Seizure Smart. It's time to make sure we know all we can about seizure first aid, recognition of seizures and the different types of seizures.Epilepsy affects people of all ages and races, and represents one percent of the population in this country—nearly - [Meet Kyle and Rose: The KARE Foundation](https://livingwellwithepilepsy.com/epilepsy-news-and-research/meet-kyle-and-rose-kare-foundation.html) - The Kyle and Rose Epilepsy Foundation (KARE) was formed in 2010, and is committed to raising awareness, support and a finding a cure. In a letter to her son, Rose writes: "It is my hope and desire that what I build today will be the foundation of your future. I want to help find a - [Is your school Thinking About Epilepsy?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/is-your-school-thinking-about-epilepsy.html) - The Epilepsy Foundation of New Jersey (EFNJ) has been tackling the topic of epilepsy in schools all over the New Jersey. In fact, since 2007 the organization, in conjunction with the Anita Kaufmann Foundation, has educated over 20,000 fifth grade students on the topic of epilepsy using a program called Thinking About Epilepsy.The 40 minute - [$20,000 wish comes true for teen with epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/20000-wish-comes-true-for-teen-with.html) - Recently in West Nyack, NY a wish came true for Matthew Von Dollen. This 18 year old, who has epilepsy, was given the gift of independence. Because his seizures are resistant to treatment, Matthew's family is afraid to leave him alone. Now thanks to Canine Assistants, he will be able to enjoy more freedom, and - [Best of 2010](https://livingwellwithepilepsy.com/epilepsy-news-and-research/best-of-2010.html) - This has been a big year for Living Well With Epilepsy. We've had more than 3,000 visits from people all over the world, including locations as far reaching as Indonesia, New Zealand, Chile, and Tunisia.Your continued support and your feedback (both in the comments section and via email) have helped to make an impact not - [Cathy Hozack is back with another gallery show](https://livingwellwithepilepsy.com/epilepsy-news-and-research/cathy-hozack-is-back-with-another.html) - Steaming City by Cathy Hozack 66 x 72"watercolor and acrylic on canvasIf you haven't checked out Philadelphia area artist, Cathy Hozack and her large scale watercolor masterpieces, now's your chance. Cathy combines the impact of massive canvasses with unique acrylics and watercolors. Her work is not only striking but inspiring. Vist my earlier piece to read more on - [Epilepsy in the Philippines](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-in-philippines.html) - Living Well recently had visitors from the Philippines. As a way to welcome these folks, we'd like to take a minute to shine a spotlight on the Philippine League Against Epilepsy (PLAE).PLAE is recognized as the Philippines national chapter of the International League Against Epilepsy, with regional representation throughout the country. The PLAE is a national - [This Month in Review: One tweet can change the world](https://livingwellwithepilepsy.com/epilepsy-news-and-research/this-month-in-review-one-tweet-can.html) - One tweet can make a differenceWould you believe that one tweet can change the world? I've recently discovered the Shorty Awards on twitter. With your help, I could win a Shorty in #health. I hope to use it as a vehicle to raise even more awareness for epilepsy awareness.All you need you do is to - [Stuart Ross McCallum shares his story in Beyond My Control](https://livingwellwithepilepsy.com/epilepsy-news-and-research/stuart-ross-mccallum-shares-his-story.html) - I recently reached out to Stuart Ross McCallum, author of Beyond My Control, the poignant story of the author's life with epilepsy and his fight to create a normal life for himself and his family. I had hoped to include his New Year's Resolution, in an earlier post. Dedicated to a solutionHowever my conversation with - [Ideas for a movie: Submit to the Neuro Film Festival](https://livingwellwithepilepsy.com/epilepsy-news-and-research/ideas-for-movie-submit-to-neuro-film.html) - Each year the American Academy of Neurology hosts the Neuro Film Festival as a way to shine a spotlight on the fact that one in six Americans are affected by a brain disorder such as epilepsy, Alzheimer's disease, migraine, autism, MS, Parkinson's disease, ALS, stroke, and more. This festival is your opportunity to submit a film that - [The inside scoop on the Joey's Song release party](https://livingwellwithepilepsy.com/epilepsy-news-and-research/get-inside-scoop-on-joeys-song-release.html) - After a months of hard work, the Joey's Song album is ready, and will be released later this month. Kevin Baird and Michael Gomoll of the Joseph Gomoll Foundation would like to express their thanks to all those who helped the Foundation reach their Kickstarter goal. You helped them raise $7,620 for Joey’s Song. That money will help - [Black History Month: Epilepsy in the African American Community](https://livingwellwithepilepsy.com/epilepsy-news-and-research/black-history-month-epilepsy-in-african.html) - According to the Epilepsy Foundation, 12 percent or more than 350,000 of the over 3 million Americans with epilepsy are African-American. African-Americans are also more likely to be diagnosed with epilepsy than Caucasians; they more often experience status epilepticus; and they are at an increased risk for Sudden Unexpected Death from Epilepsy (SUDEP).Web resource just - [Feedback on new look sent us back to the old look](https://livingwellwithepilepsy.com/epilepsy-news-and-research/feedback-on-new-look-sent-us-back-to.html) - You gave feedback ... and Living Well listened.The "new" header that went awayI recently uploaded a new header, logo and color scheme for the Living Well site. You as readers spoke up and said "NO".So we are back to the old look (at least for a while). Until we find a new one that gets - [Exciting new developments at Living Well](https://livingwellwithepilepsy.com/epilepsy-news-and-research/exciting-new-developments-at-living.html) - There have been a few exciting new developments at Living Well With Epilepsy that we wanted to share with you. Recently we were nominated for a shorty award, welcomed our 3000th visitor and got a new look. Shorty UpdateWhen voting closed for the Shorty Awards, epilepsy held a respectable 5th place out of more than - [Living Well has welcomed our 3000th visitor](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-has-welcomed-our-3000th.html) - A recent look at Living Well's google analytics showed that http://www.livingwellwithepilepsy.com/, an epilepsy blog, has welcomed over 3000 unique visitors! We have an average of 25 people swing by each day. That's a dramatic improvement from this time last year when we had an average of 2 people visiting the site each day. And at least one of those people was me.Exponential - [Preliminary results from the Living Well reader survey](https://livingwellwithepilepsy.com/epilepsy-news-and-research/preliminary-results-from-living-well.html) - We are still really early in the Living Well reader survey process, but really filling these things out is only fun if you can find out what everyone else is saying. So, here's some inside info as a way to say thanks for helping out Living Well With Epilepsy. How'd ya find us?Most vistitors are coming to Living - [Wordless Wednesday: Living Well joins the wave](https://livingwellwithepilepsy.com/epilepsy-news-and-research/wordless-wednesday-living-well-joins.html) - There is a movement of sites that use Wednesday as a day to feature their linkup. The post is called Wordless Wednesday to fall in line with the rest of the sites that implement this opportunity to connect.I'll only do this once a month (unless it really picks up steam) but I will always do - [Wordless Wednesday: Epilepsy friends link up](https://livingwellwithepilepsy.com/epilepsy-news-and-research/wordless-wednesday-epilepsy-friends.html) - I've connected with lots of new people and organizations on Twitter, LinkedIn, and Facebook recently. I thought it was time to share this wealth of information that the folks from around the world can bring to the conversation about living well with epilepsy. Wordless WednesdayAs I mentioned in an earlier post, there is a movement - [Photographer Bryan Farley shares pics from National Walk for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/photographer-bryan-farley-shares-pics.html) - Bryan T. FarleyI recently met photographer Bryan Farley via our wonderful information super highway, and he offered to share his photos from the 2011 National Walk for Epilepsy in Washington DC. Why this photographer? I find the photos to be heartfelt and maybe that's because the walk is close to Bryan's heart (or head shall - [Jessica Keenan Smith named judge of Web Health Awards and Twitter Elite](https://livingwellwithepilepsy.com/epilepsy-news-and-research/jessica-keenan-smith-named-judge-of-web.html) - Named 2011 Web Health Awards JudgeAs founder of Living Well With Epilepsy, Jessica Keenan Smith was invited to judge the Web Health Awards℠, which is now in its 13th year of recognizing high-quality electronic health information. The process was both exciting and informative.The Web Health Awards℠ is organized by the Health Information Resource Center℠ (HIRC), a national - [You asked for it: Making a new diagnosis more manageable](https://livingwellwithepilepsy.com/epilepsy-news-and-research/you-asked-for-it-making-new-diagnosis.html) - As part of the Living Well Reader Survey some of you responded that you would like more information on how do deal with a new diagnosis. This is a tough issue at any age, but can be especially critical when a child is young.A while back I did a presentation at the Epilepsy Foundation's annual - [Check out the Epilepsy Blogger Directory](https://livingwellwithepilepsy.com/epilepsy-news-and-research/check-out-epilepsy-blogger-directory.html) - Photo credit: Jack Delano, circa 1940I have created an online directory of bloggers and websites that are dedicated to communicating information on epilepsy. I searched for something similar and came up empty. (hence the picture of the card catalog). So, I created my own using inlinks which will stay live on Living Well With Epilepsy on the page labeled Directory. Add - [Apply Now: The UCB Epilepsy Scholarship Deadline is Friday May 20, 2011.](https://livingwellwithepilepsy.com/epilepsy-news-and-research/apply-now-ucb-epilepsy-scholarship.html) - 39YD64SJXU9X Are you heading to undergraduate or graduate school in the fall of 2011? If so, you may be eligible for a $5000 scholarship from UCB.The the UCB Family Epilepsy Scholarship Program™ offers financial support to people living with epilepsy, family members, and/or caregivers who demonstrate academic and personal achievement. Since 2004, UCB has awarded - [Living Well welcomes 5000th visitor and Klout goes beyond 50!](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-welcomes-5000th-visitor-and.html) - Living Well With Epilepsy welcomes the site's 5000th unique visitor. That's upwards of 13,500 pageviews. It was only a few months ago that we welcomed our 1000th visitor. I hope you are enjoying the site and come back on a regular basis to participate in the conversation. As many of you who have heard from me directly - [Did you know epilepsy is as common and as deadly as breast cancer?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/did-you-know-epilepsy-is-as-common-and.html) - A recent article on SheKnows shows the staggering impact epilepsy has and brings the numbers home with some frightening comparisons. Below is an excerpt from the article: The Epilepsy Foundation shows there are approximately 200,000 new cases of epilepsy and seizures diagnosed each year. According to Susan G. Komen for the Cure, the same number - [CURE unveils the 2011 Annual Video](https://livingwellwithepilepsy.com/epilepsy-news-and-research/cure-unveils-2011-annual-video.html) - CURE, Citizens United for Research in Epilepsy, is a volunteer-based nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and increasing awareness of the prevalence and devastation of this disease.This year their 2011 awareness video was unveiled at their annual gala held in Chicago. Below you can view this touching - [Read more about how Biden and Axelrod lead fight against epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/read-more-about-how-biden-and-axelrod.html) - Credit: Reuters/Jonathan Ernst Journalist Eric Johnson illustrated the impact Vice President Joseph Biden made at the CURE Epilepsy event in Chicago this week. As he stood at the podium on Tuesday evening, Vice President Biden tapped into his own medical history to lead a big fundraiser for researching a cure for epilepsy, which he called "a terrible - [Artist with epilepsy is making waves in the NYC art scene](https://livingwellwithepilepsy.com/epilepsy-news-and-research/artist-with-epilepsy-is-making-waves-in.html) - Cathy Hozack is one of my favorite artists, and it just so happens that she also has epilepsy. Cathy is showing her work for a limited time in New York City at the Denise Bibro Fine Art Gallery. Cathy has said, "I am an artist with too much electricity in my brain: I have epilepsy. - [Heated discussion about epilepsy advocacy on Bryan Farley's blog](https://livingwellwithepilepsy.com/epilepsy-news-and-research/heated-discussion-about-epilepsy.html) - Bryan Farley is a wonderful photographer, fantastic writer and dedicated epilepsy advocate. Oh yeah, and he has epilepsy too. Bryan recently started blogging on the Epilepsy Foundation's ecommunities blog network site.Bryan recently posted a fantastic piece on the blog network. Afterreading the post and the exciting commentary that follows, I asked if he would give - [Are lawyer ads impacting compliance?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/are-lawyer-ads-impacting-compliance.html) - A reader recently raised a topic as a comment that everyone should have a chance to weigh in on. The comment was made by Morgan on an earlier post titled Topomax recalled: Smells like teen spirit? Not so much.The comment read: I see a lot of those ads about lawyers basically telling people they should - [Epilepsy and breast cancer have the same prevalence and mortality rate.](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-and-breast-cancer-have-same.html) - In 2009 it was front page news that 45,000 people die each year, and according to the Huffington Post that's one death every 12 minutes. It also common knowledge that we need to cure breast cancer. In fact, The National Breast Cancer Foundation's mission is to save lives by increasing awareness of breast cancer through - [Ready to go back to school with epilepsy?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/ready-to-go-back-to-school-with.html) - Heading back to school with epilepsy can be stressful. But there are now several resources available to parents and teachers that can help with the transition.Web resources There is a site called Epilepsyclassroom.com. It opens with a welcome from Greg Grunberg of Heroes, founder of the site TalkAboutIt.org. The site was designed by UCB and - [Thanks for adding the Epilepsy Awareness button](https://livingwellwithepilepsy.com/epilepsy-news-and-research/thanks-for-adding-epilepsy-awareness.html) - During November the following sites added the Epilepsy Awareness button to their site. Thanks for speaking out.Sites that Speak Out http://livingwithepilepsy.bizhttp://www.luvnlambertlife.comhttp://www.shakenbutnotbeaten.com/https://www.facebook.com/InHeatTanninghttp://facebook.com/mamalue If you added the button and we didn't recognize your site. Comment below so we can thank you for speaking out.Want to grab the button? The button will always be available here. All you - [DisruptiveWomen.net promotes Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/disruptivewomennet-promotes-epilepsy.html) - Glenna Crooks, Ph.D.Glenna Crooks, Ph.D., is founder and President of Strategic Health Policy International, Inc., and she solves some of the toughest health care problems of our times. She is strong and confident and has a presence like I've never seen. Promotion of Epilepsy Awareness MonthGlenna offered to interview me about Epilepsy Awareness Month for her blog - [Gear up for Epilepsy Awareness Month.](https://livingwellwithepilepsy.com/epilepsy-news-and-research/gear-up-for-epilepsy-awareness-month.html) - Living Well With Epilepsy has opened an online store just in time for Epilepsy Awareness Month with the help of Cafe Press. You can now purchase all your epilepsy awareness gear including shirts, mugs, stickers, bags and more. Currently there are two designs available with more to follow.A small percentage of the price of each - [Video chat with Epilepsy bloggers](https://livingwellwithepilepsy.com/epilepsy-news-and-research/video-chat-with-epilepsy-bloggers.html) - This week Living Well With Epilepsy hosted a Google+ Hangout with some amazing people. The video chat gave me the chance to talk face-to-face with other folks actively involved in getting the word out about epilepsy.From across the countryThe group consisted of bloggers, artists, people with epilepsy, parents, writers, videographers, and photographers. The conversation was - [Living Well donates commission to CURE and Epilepsy Foundation](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-donates-commission-to-cure.html) - There was excitement as we opened our first commission check for just over $30 at the end of the year. Thanks to your purchases through the Living Well Gear Shop, we were able to make our first contributions to both CURE and the Epilepsy Foundation of America. To kick off 2012, contributions were made using - [It's time for the Shorty Awards again.](https://livingwellwithepilepsy.com/epilepsy-news-and-research/its-time-for-shorty-awards-again.html) - If you are on twitter and are looking for a way to speak out for a cure, here's a quick and easy way. Tweet a nomination for a Shorty Award.How does it work? Nominations are made by sending a tweet, whether it's through the Shorty Award site or on Twitter. To Nominate Living Well you can - [Candlelight Concert for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/candlelight-concert-for-epilepsy.html) - Eric Miller's wife, Carolina, was 25 years old when she passed away in August 2011 as a result of SUDEP. Since her passing last summer, Eric has been working on The Candlelight Concert for Epilepsy, which will honor those that have been lost to SUDEP and those that continue the daily struggle with epilepsy.The ConcertThe - [Take the Purple Pledge](https://livingwellwithepilepsy.com/epilepsy-news-and-research/take-purple-pledge.html) - Purple Day in KenyaHave anything purple in your closet? No? Then you may want to start to think creatively because Purple Day is just around the corner. Purple Day, March 26, 2012, is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide.History of Purple DayOn March 26th each year since 2008, people around - [Epilepsy Surgery: not always a last resort](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-surgery-not-always-last-resort.html) - The Journal of American Medical Association (JAMA) recently published a study on the viability of early surgical therapy for drug-resistant temporal lobe epilepsy.Why surgery? Jerome Engel, Jr., MD, PhD, along with 13 other leaders in the field of Neurology have taken on the issue of why, despite reported success, surgery for pharmacoresistant seizures is often - [Purple ribbons take over Washington DC](https://livingwellwithepilepsy.com/epilepsy-news-and-research/purple-ribbons-take-over-washington-dc.html) - You may have noticed the purple ribbons now gracing the background on Living Well With Epilepsy. The ribbons went up just in time for Purple Day which, judging by the buzz across social media outlets, was a great success.The ribbons will stay up all week through Saturday, March 31 when families from across the country - [IOM: Epilepsy across the spectrum](https://livingwellwithepilepsy.com/epilepsy-news-and-research/iom-epilepsy-across-spectrum.html) - If you've read Epilepsy by the Numbers, you know that epilepsy is our nation’s most common neurological disorders, yet the public's understanding of the disorder is limited. In many cases (70%) there is no known cause for a patient's epilepsy. Many people aren't even sure what they should do if they see someone having a - [My Four Words reminds us we are not alone](https://livingwellwithepilepsy.com/epilepsy-news-and-research/my-four-words-project-reminds-us-we-are.html) - On March 31, an estimated 5,000 people affected by epilepsy came together on the National Mall in Washington, DC, to participate in the Epilepsy Foundation's Sixth National Walk for Epilepsy.At the walk, UCB, debuted the "My Four Words" project, challenging attendees to express their personal journey with epilepsy in just four words. The "My Four - [Conservative radio host denegrates Justice John Roberts](https://livingwellwithepilepsy.com/epilepsy-news-and-research/conservative-radio-host-denegrates.html) - Following the Supreme Court's decision to uphold the constitutionality of the Affordable Care Act, Michael Savage, a conservative radio host set the media world on fire by claiming Justice Roberts' decision was due in large part to cognitive dissociation from his epilepsy.Initially, I was furious. But as I listened to the bit, I began to - [Check out photos from the National Walk for Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/check-out-photos-from-national-walk-for.html) - Bryan Farley a photographer with epilepsy, who is also a dear friend, attended the National Walk for Epilepsy in DC. He writes a column for the Epilepsy Foundation's blog which he has titled 2012 National Walk and Social Media.You can check out the gallery of 200 photos here:http://epilepsyfoundation.ning.com/profiles/blogs/2012-national-walk-for-epilepsy-and-social-mediaBryan also asks a question in his column. - [Share Your Story on Living Well With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/share-your-story-on-living-well-with.html) - Check out the latest feature on Living Well With Epilepsy. Now you can share your own story right here. Just visit the Share Your Story page, fill out the form that has a place for your story right there and send it off. We saw how important sharing just four words could be, at the - [You held your own in the Echoing Green challenge](https://livingwellwithepilepsy.com/epilepsy-news-and-research/you-held-your-own-in-echoing-green.html) - Just a quick follow up to say thank you to everyone who voted, supported, commented and spread the word during the Echoing Green challenge. We finished in 8th place in votes, and our idea was the most talked about. We are definitely doing something right.Thank you again for supporting the ONLY idea to address epilepsy. - [Wharton School partners with Living Well With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/wharton-school-partners-with-living.html) - Here's a sneak peak at our new logo! This fall a group of Wharton School students have been hard at work learning about epilepsy. In November we will launch a new Living Well With Epilepsy. The site is being transformed from a blog into a comprehensive website. The students aim to create a site that - [Get your gear for Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/get-your-gear-for-epilepsy-awareness.html) - Living Well With Epilepsy has an online store, which opened last year just in time for Epilepsy Awareness Month. Don't miss your chance to purchase all your epilepsy awareness gear including shirts, mugs, stickers, bags and more. Currently there are two designs available with more to follow. Make a difference this November 100% of the - [Jann Klose comes to UPenn to launch new site](https://livingwellwithepilepsy.com/epilepsy-news-and-research/launch-celebration.html) - Throughout the Fall 2012 semester, a group of Wharton students have been working hard transforming www.LivingWellwithEpilepsy.com. The new site will still have a blog component, but will provide a more comprehensive resource to the millions affected by epilepsy. The all new Living Well With Epilepsy will launch during Epilepsy Awareness Month. You can expect to - [Wharton students launch new site with a celebration](https://livingwellwithepilepsy.com/epilepsy-news-and-research/wharton-students-launch-new-site-with-a-celebration.html) - Throughout the Fall 2012 semester, a group of Wharton students have been working hard transforming www.LivingWellwithEpilepsy.com. Don't worry, the new site will still have a blog component, but will provide a more comprehensive resource to the millions affected by epilepsy. The new site will launch during Epilepsy Awareness Month. You can expect to see the change - [Be your own advocate](https://livingwellwithepilepsy.com/epilepsy-news-and-research/be-your-own-advocate.html) - The best way to get the care you need is to be your own advocate. Living with epilepsy and taking medications that affect mood and thinking patterns, can degrade self esteem. This can take a toll on the willingness to speak up and say, "Hey, that's not right!", whatever 'that' may be. There are times - [Maximizing your Child's Strengths When Dealing with Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/maximizing-your-childs-strengths-when.html) - Check out the slides from my recent presentation at the Epilepsy Foundation's November Conference.Maximizing your child's strengthsView more documents from jessicaksmith. - [Philly SheWrites birthday bash was a success](https://livingwellwithepilepsy.com/epilepsy-news-and-research/philly-shewrites-birthday-bash-was.html) - This week the Philadelphia contingent of SheWrites marked the first birthday of SheWrites.com. It was a small group with diverse writing interests. The event began with introductions and connections. As the conversation progressed we found that there were ways we could help each other in our business, writing process, strategy and creative approach.Fairly early on - [What's all the hubub about epilepsy and infertility?](https://livingwellwithepilepsy.com/epilepsy-news-and-research/whats-all-hubub-about-epilepsy-and.html) - A recent study published in the journal, Neurology, addresses the fact that women taking multiple medications to treat epilepsy are at high risk for infertility. This may well be true, but considering anticonvulsants or medicine to control epilepsy often reduces the efficacy of the Pill, there are plenty of mommies with epilepsy out there that - [Puppies that are making a difference](https://livingwellwithepilepsy.com/epilepsy-news-and-research/puppies-that-are-making-difference.html) - As part of their Epilepsy Awareness Month activities, the folks at UCB presented Canine Assistants with much needed supplies collected through a company wide donation drive. The supplies were presented to Canine Assistants at their graduation in support of their seizure response dogs. Canine Assistants is a non-profit organization that helps people with disabilities, including - [Living Well With Epilepsy honored as a 2010 Top Epilepsy Blog](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-with-epilepsy-honored-as.html) - RadiologyTechnicianSchools.comRadiology Technician Schools has recently named Living Well With Epilepsy as a 2010 Top Epilepsy Blog. Please join us in saying Thank You! We are thrilled to have this honor. This can only mean a little bit more of that good 'ole epilepsy awareness.Radiology Technician Schools is a website dedicated to help those who are - [Participate in an epilepsy study](https://livingwellwithepilepsy.com/epilepsy-news-and-research/participate-in-epilepsy-study.html) - Ever considered participating in a study to benefit research on epilepsy? If you are a woman with epilepsy between the ages of 24 and 44 then Amanda Dennis, a researcher at Ibis Reproductive Health, wants to talk to you. Amanda and the folks at Ibis are looking for women to take part in an in-depth - [Get ready for Purple Day on March 26, 2011](https://livingwellwithepilepsy.com/epilepsy-news-and-research/get-ready-for-purple-day-on-march-26.html) - In 2008 Cassidy Megan, a little girl with epilepsy, came up with a colorful idea to raise epilepsy awareness. Her goal was, and still is, to get people talking about epilepsy in hopes that this would dispel myths and inform those with seizures that they are not alone. This little girl's idea has become a global phenomenon and on March 26 you - [It's time to bang the drum: Research on epilepsy is needed](https://livingwellwithepilepsy.com/epilepsy-news-and-research/its-time-to-bang-drum-research-on.html) - Last year I ran a story titled, the squeaky wheel gets the research dollars. I was trying to determine where all that research money goes when it doesn't go toward epilepsy. After reviewing last year's data it became clear that research money allocation doesn't have much to do with the prevalence of a disorder, or - [Thanks to everyone who participated in the Linkup](https://livingwellwithepilepsy.com/epilepsy-news-and-research/thanks-to-everyone-who-participated-in.html) - The epilepsy linkup was a success the first time out of the gate. Thanks to all of you who participated, I hope you saw new visitors as a result. I will run another linkup next Thursday but I hope more epilepsy organizations will take advantage of the opportunity.If you participated, comment here to let us - [Epilepsy organizations it's time to linkup](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-organizations-its-time-to.html) - It's time for our second weekly linkup. Last Thursday was the first time we tried this out at Living Well. Thanks to the 10 sites that participated. I hope your sites saw an increase in traffic and some new visitors as a result. Participate again this week.This week I'd like to invite epilepsy organizations all over the world to join in. Here's how - [March Updates at Living Well With Epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/march-updates-at-living-well-with.html) - This is a big week for epilepsy awareness. Organizations and individuals that have a stake in epilepsy awareness and research will converge on the National Mall in Washington DC this weekend for the 5th annual National Walk for Epilepsy. In Canada, it is a month of epilepsy awareness leading up to Purple Day on March 26. But - [March 26 is Purple Day](https://livingwellwithepilepsy.com/epilepsy-news-and-research/march-26-is-purple-day.html) - Get out your purple sweaters, sneakers, jeans and hats, because March 26, 2011 is Purple Day for epilepsy awareness. In honor of the day, (okay, I went a bit early) I've posted this mass of purple ribbons as the Living Well background photo. If you aren't in the loop on this purple thing then check out my - [Disaboom features articles on epilepsy](https://livingwellwithepilepsy.com/epilepsy-news-and-research/disaboom-features-articles-on-epilepsy.html) - Recently, Disaboom, the leading resource for disability information and real-life articles about people with disabilities, approached Living Well With Epilepsy. The folks at Disaboom were looking for help in providing their readers with information on epilepsy.Well, they came to the right place.Check out the new articlesThe Disaboom homepage now features three articles on epilepsy. These - [Topomax recalled: Smells like teen spirit? Not so much](https://livingwellwithepilepsy.com/epilepsy-news-and-research/topomax-recalled-smells-like-teen.html) - When something smells bad in the 'fridge you might call a spouse over to take a whiff. You might even go so far as to say "c'mere taste this, it smells bad doesn't it?" But, would you just leave it in the fridge for months to see if someone mentioned it? I don't think so.Topomax - [Deadline extended for UCB Scholarship](https://livingwellwithepilepsy.com/epilepsy-news-and-research/deadline-extended-for-ucb-scholarship.html) - The deadline for the 2011 UCB Family Epilepsy Scholarship has been extended to June 1. If you didn't get a chance to read my earlier post, UCB will be awarding 40 $5,000 scholarships to people living with epilepsy, their family members, or caregivers who demonstrate academic and personal achievement. If you or someone you know - [Radio silence: a little explaination](https://livingwellwithepilepsy.com/epilepsy-news-and-research/radio-silence-little-explaination.html) - I wanted to take a minute to apologize for the radio silence you've had for the past two weeks, or so. Some of you know that this blog thing is not my full time gig. I have recently left a position as Interim Director of Stewardship at the Wharton School, and moved to a completely - [I shouldn't get mad when I see pink ribbons](https://livingwellwithepilepsy.com/epilepsy-news-and-research/i-shouldnt-get-mad-when-i-see-pink.html) - I know I should be pleased that breast cancer awareness is so widespread. I know I should smile and be proud that this disease gets the attention it deserves.But I sit here knowing that the prevalence and mortality rates for epilepsy are the same as those of breast cancer. Yes, that's right I said prevalence - [GlamaLIFE promotes Epilepsy Awareness Month](https://livingwellwithepilepsy.com/epilepsy-news-and-research/glamalife-promotes-epilepsy-awareness.html) - Heather Schuck is the CEO & Founder of GlamaLIFE Brands. When she's not designing hip baby clothes for Glamajama or hosting her mom adventure web series FitandFearLESS.tv, you can find her at glamalife.com dishing the dirt on the REAL life of mom entrepreneurs or tweeting @glamalife to her more than 27,000 followers.This month Heather has - [Best news on epilepsy from 2011](https://livingwellwithepilepsy.com/epilepsy-news-and-research/best-news-on-epilepsy-from-2011.html) - There were some great stories on epilepsy that we shouldn't forget before running headlong into 2012. These include a major genetic discovery, the surprise that Emily Dickinson had epilepsy, J&J's decision to leave smelly meds on the their production line, and evidence that UCB wants to hear from people with epilepsy. Research DiscoveryThis year a story - [Living Well With Epilepsy wins Web Health Award](https://livingwellwithepilepsy.com/epilepsy-news-and-research/living-well-with-epilepsy-wins-web.html) - Living Well With Epilepsy is proud to announce that our site has been honored by the Web Health Awards with a Bronze Award in the Blogs category. The Web Health Awards team has also confirmed that our site is the only epilepsy related web resource to receive a Web Health Award in the Winter/Spring cycle. - [Living Well With Epilepsy takes up Echoing Green's challenge](https://livingwellwithepilepsy.com/epilepsy-news-and-research/voteepilepsy.html) - Echoing Green, through a partnership with GoodMaker, asked the question, "How would you spend $1000 to build deeper relationships with the community you most want to serve?" Living Well With Epilepsy responded with a vision to transform the blog into a movement.Please VoteLiving Well With Epilepsy is only challenger hoping to build deeper relationships with - [Jann Klose kicked off the night with beautiful music](https://livingwellwithepilepsy.com/epilepsy-news-and-research/jann-klose-kicked-off-the-night-with-beautiful-music.html) - On November 16, the new Living Well With Epilepsy site launched with the help of Jann Klose and his beautiful music. The launch party was amazing and a great way to mark Epilepsy Awareness Month. Thank you to everyone who attended and to all those who helped make the event a reality (especially my family!!). - [Epilepsy Foundation affiliates join in the festivities](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-foundation-joins-festivities.html) - Thank you to Allison McCartin of the EFEPA and Liza Gundell of EFNJ who both made time in their busy schedules to join in the festivities at the Living Well With Epilepsy launch party. It was especially meaningful to have representatives from both PA and NJ at the event. Thanks again and we look forward ## Pages - [Home](https://livingwellwithepilepsy.com/) - Living Well With Epilepsy is a trusted source of epilepsy information, education, research and news for people living with epilepsy and their loved ones. - [Epilepsy by the Numbers: Facts and Figures](https://livingwellwithepilepsy.com/epilepsy/epilepsy-by-the-numbers) - Check out our carefully researched look at epilepsy by the numbers. We break epilepsy down in a way that we hope might make it a little more personal to you. - [Epilepsy Wellness Surveys](https://livingwellwithepilepsy.com/epilepsy-wellness-surveys) - Participate in our Epilepsy Wellness Surveys. These surveys are sponsored by Epilepsy Wellness Advocates and The Charles L. Shor Epilepsy Opportunity Fund. - [Submission Guidelines](https://livingwellwithepilepsy.com/submission-guidelines) - Submission Guidelines Living Well With Epilepsy is dedicated to amplifying the voices of those living with, affected by, caring for, treating and searching for solutions for people with epilepsy. Our writers share experiences, suggestions, struggles, tips, and successes. Our team is interested in a broad range of topics but there must be something relevant for - [Meet Our Founder, Jessica Keenan Smith](https://livingwellwithepilepsy.com/about-us/founder-jessica-keenan-smith) - Jessica Keenan Smith, Founder and CEO of Living Well With Epilepsy is bridging the gap between the scientific and patient communities in epilepsy. - [Epilepsy Surveys: Check out the results and participate](https://livingwellwithepilepsy.com/epilepsy-surveys) - Share your opinion and see what others are saying about their epilepsy when you check out the results from some of our recent surveys. - [Work with an Epilepsy Health Coach](https://livingwellwithepilepsy.com/epilepsy-health-coach-programs) - Feel more in control and less isolated by working with an epilepsy health coach who has 30 years experience. Work 1:1 with Jessica K. Smith. - [Welcome to Living Well With Epilepsy](https://livingwellwithepilepsy.com/start-here) - I'm so glad you stopped by Living Well With Epilepsy (LWWE). LWWE was founded by me, Jessica Keenan Smith, back in 2009. I was diagnosed with epilepsy at around age 12, but I wanted the site to be more than my own personal blog. I hoped the site would become a resource the millions of - [Shop](https://livingwellwithepilepsy.com/shop) - [Press](https://livingwellwithepilepsy.com/press) - Latest News What the EF (Podcast): When cancer crashed the epilepsy party with Jessica Smith Be the Good (Podcast): Living Well with Epilepsy with Jessica Smith Creative Space (Podcast): Transforming Pain into Power Wired (Jun 2021): How a Smartphone Can Help You Cope With Epilepsy Forbes (Sept 2018): Make Money As A Blogger: Insiders' Tips - [Details](https://livingwellwithepilepsy.com/details) - [Contact Us](https://livingwellwithepilepsy.com/contact-us) - Thanks for visiting Living Well With Epilepsy. Feel free to contact us to submit a guest post, participate in an Epilepsy Blog Relay, or submit an epilepsy event. You can always just send us an email to jessica (at) livingwellwithepilepsy (dot) com. Don't worry it's received by a real person. However, due to the high - [Newsletter](https://livingwellwithepilepsy.com/newsletter) - Living Well With Epilepsy Newsletter: subscribe and visit the archives - [Sponsors and Partners](https://livingwellwithepilepsy.com/sponsors-and-partners) - Meet our Sponsors and Media Partners Living Well With Epilepsy appreciates our sponsors and media partners for their dedication and commitment to the Epilepsy Blog Relay and the broader Epilepsy Community. Sponsors and Partners play an integral role in bridging the gap between industry, advocacy and patient community. These leaders in the epilepsy space create - [Resources](https://livingwellwithepilepsy.com/resources) - Here you will find a growing list of essential and reputable resources for living well with epilepsy. - [Nominate Someone for a You Are Not Alone letter bundle](https://livingwellwithepilepsy.com/nominate-someone-for-a-you-are-not-alone-letter-bundle) - Does someone in your life need a reminder that they are not alone? Nominate a family member, friend, neighbor or loved one who is living with epilepsy for a "You Are Not Alone" Letter Bundle below. We read through the nominations each month and pick several to post up on our website for a month-long - [About Epilepsy: The Basics](https://livingwellwithepilepsy.com/epilepsy) - What is Epilepsy? Epilepsy is a chronic chronic noncommunicable disease of the brain that affects people of all ages, with many possible causes. Causes include illness to brain damage to abnormal brain development, however 60-70% of people with epilepsy have no known cause. How common is Epilepsy? According to the CDC, 1.2% of the United - [Epilepsy Coaching and Retreats](https://livingwellwithepilepsy.com/epilepsy-coaching) - Building on what has worked in cancer and diabetes, Jessica Smith founder of Living Well With Epilepsy has developed an epilepsy coaching and retreats program. Clients benefit from her personal experience as well as her professional expertise. - [Epilepsy Blog Relay](https://livingwellwithepilepsy.com/epilepsy-blog-relay) - Living Well With Epilepsy's Epilepsy Blog Relay™ is an epilepsy awareness movement designed to maximize collaboration and eliminate stigma. The concept is simple: 30 bloggers, in 30 days. Each contributor takes one day of the month to post either on their own site or on Living Well With Epilepsy. Then we share it with everyone! - [Speaking](https://livingwellwithepilepsy.com/keynotespeaker) - Jessica Keenan Smith's reputation as a speaker is built on her willingness to take on hard topics with authenticity, warmth and empathy. She is a thought-leader, and social impact storyteller who has the ability to inspire audiences and provides strategies for change. - [Disclaimer](https://livingwellwithepilepsy.com/disclaimer) - The website livingwellwithepilepsy.com (hereinafter “Website”) is owned and operated by Living Well With Epilepsy, LLC, a New Jersey corporation (hereinafter “we” “us” “our”). Please read the following Disclaimer before using our Website. - [Personal Stories](https://livingwellwithepilepsy.com/personal-stories) - We've gathered personal stories from people around the world who are also living with epilepsy so we can gain strength from each other's experience. - [Living with Epilepsy](https://livingwellwithepilepsy.com/about-epilepsy) - Living with epilepsy is a different experience for each individual, but there are common experiences we share. It helps to remember that there are millions of people around the world who are also living with epilepsy. These personal epilepsy stories may help if you are feeling isolated or alone. - [Anticonvulsant Medications](https://livingwellwithepilepsy.com/medications) - Most medication that is used to treat epilepsy is aimed at reducing the frequency and intensity of seizures. However, your doctor may also prescribe you a variety of other medicines aimed at reducing the intensity of side effects caused by the anti-epileptic drugs you are taking. You may sometimes hear anti-epileptic drugs referred to as - [STEPS Discussion Tool](https://livingwellwithepilepsy.com/steps-discussion-tool) - STEP (Seize the Truth about Epilepsy Perceptions) Survey The “Seize the Truth About Epilepsy Perceptions” (STEP) Survey, was developed by SK Life Science, Inc. in conjunction with Kantar Health to understand the current state of epilepsy in the United States. The goal of this initiative was to foster better communication between patients and their care - [Epilepsy Treatment Options](https://livingwellwithepilepsy.com/treatment-options) - There are a wide variety of treatments available for everyone that suffers from epilepsy. This section of the website explores the different options that you have to help control your symptoms. Traditional options such as medication and surgery are explored, as are innovative solutions such as dietary therapy and a host of other, alternative options - [Coronavirus Updates](https://livingwellwithepilepsy.com/coronavirus-updates) - [Testimonial](https://livingwellwithepilepsy.com/testimonial) - How has Living Well With Epilepsy had a positive impact on you? Submission Guidelines Your testimonial should be between 50 and 200 words (about 2 sentences). Be sure to include a photo. Any photo you submit, you must own or have the rights to share. Submit your testimonial - [Epilepsy Blog Relay: June 2019 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/june-2019-sponsors-and-partners) - SPONSORS AND PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the June 2019 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Submission Confirmation](https://livingwellwithepilepsy.com/submission-confirmation) - Thank you for sharing your epilepsy story. Be sure to subscribe to our newsletter and check us out on your favorite social media platform. And check out some of the other stories on the site. You may find one that surprises you. Best, Jessica - [#LivingWellChat](https://livingwellwithepilepsy.com/livingwellchat) - The #LivingWellChat is a Twitter chat that takes place three times a year. It started in 2015 to connect readers with the bloggers who participated in the Epilepsy Blog Relay. It’s become a place to discuss newsworthy topics as well as those issues that may be new to the families who are new to the - [Instagram Links](https://livingwellwithepilepsy.com/insta) - Check out the latest Epilepsy Blog Relay stories 29 Jun 2026 Traveling with Epilepsy: Does air travel impact seizures? | | Recently, this author met others living with epilepsy who said air travel had caused an increase in seizures. Doctors said it was most likely stress related.… - [Fits 'n Starts Podcast](https://livingwellwithepilepsy.com/fitsnstartspod) - Join Alisa Kennedy Jones, better known as Gotham Girl, and Jessica Keenan Smith, founder of Living Well With Epilepsy, as they tackle all those pesky issues that come up when you're living with epilepsy. Together they uncover the dumb, awkward humor that comes with living with a chronic illness. On Fits 'n Starts, Alisa and - [Epilepsy Blog Relay: November 2018 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/november-2018-participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. Thanks to our generous sponsors and partners! Participants Our participants in the November 2018 Epilepsy Blog Relay represent three continents, four countries, and the four corners of the United States. Below you will find - [Our Writers](https://livingwellwithepilepsy.com/about-us/writers) - Living Well With Epilepsy Writers The Living Well With Epilepsy™ team is redefining what it means to live well with epilepsy. Together this team of strong women provide the latest epilepsy information, including: news, style, fitness, and healthcare updates and personal stories, to our dedicated and influential readers around the world. - [Epilepsy Blog Relay: June 2018 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/june-2018-sponsors-and-partners) - SPONSORS AND PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the June 2018 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Epilepsy Blog Relay: June 2018 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/june-2018-participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. Thanks to our generous sponsors and partners! - [Epilepsy Blog Relay™: June 2016 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-jun-2016-participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. - [Advertise](https://livingwellwithepilepsy.com/advertise) - Looking for a better Click Through Rate? Want to advertise your product or service to people affected by epilepsy with an amazing 12% (and higher) click through rate (CTR)? Below you will find several ways to reach your target market on Living Well With Epilepsy. A few highlights At Living Well With Epilepsy we cover - [Epilepsy Blog Relay™: March 2018 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/march-2018-sponsors-and-partners) - SPONSORS AND PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the March 2018 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Epilepsy Buttons](https://livingwellwithepilepsy.com/epilepsy-buttons) - Order your own epilepsy buttons. These 2.25x2.25" buttons are perfect for epilepsy awareness events or to decorate backpacks, bags, jackets, and scarves. - [#IAMSUDEPAWARE](https://livingwellwithepilepsy.com/iamsudepaware) - Spread the word about SUDEP Today, approximately 65 Million people around the world are living with epilepsy and each year, an estimated 1 in 1000 people with epilepsy die from Sudden Unexpected Death in Epilepsy (SUDEP). That's approximately 65,000 people around the world who will die each year as a result of SUDEP. Many people - [Epilepsy Blog Relay™: November 2017 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/ebr-nov-2017-participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. Follow along each day with our 30 November 2017 Bloggers. Nov 1: Abby Gustus-Alford Nov 2: Angus A. Wilfong, MD SPONSORED Nov 3: Bailey Flach Nov 4: Gemma Jordan Nov 5: Gina Moses Nov 6: - [Epilepsy Blog Relay™: November 2017 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-2017-sponsors-partners) - SPONSORS AND PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the November 2017 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Epilepsy Blog Relay™: June 2017 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/ebr-june-2017-participants) - June 2017 Participants Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. - [Life, Style + Epilepsy](https://livingwellwithepilepsy.com/life-style-epilepsy) - [Family + Epilepsy](https://livingwellwithepilepsy.com/family-epilepsy) - [Fitness + Epilepsy](https://livingwellwithepilepsy.com/fitness-epilepsy) - [Food + Epilepsy](https://livingwellwithepilepsy.com/food-epilepsy) - [Epilepsy Blog Relay™: June 2017 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/june-2017-sponsors-and-partners) - SPONSORS & PARTNERS Thank you to our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the June 2017 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s spirit of - [11th Annual National Epilepsy Walk Photo Gallery](https://livingwellwithepilepsy.com/11th-annual-national-epilepsy-walk-photo-gallery) - [Epilepsy Blog Relay™: March 2017 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-mar-2017-sponsors-partners) - SPONSORS AND PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the March 2017 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Epilepsy Blog Relay™: March 2017 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-march-2017-participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. - [epilepsy experience_](https://livingwellwithepilepsy.com/epilepsy-experience_) - [Epilepsy Blog Relay™: November 2016 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/ebr-nov2016participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. - [Epilepsy Blog Relay™: November 2016 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-nov-2016-sponsors-partners) - SPONSORS AND PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the November 2016 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [About Us](https://livingwellwithepilepsy.com/about-us) - Epilepsy News and Blog Living Well With Epilepsy™, founded in 2009, provides the latest epilepsy information, including: news, style, fitness, entertainment, healthcare updates and personal stories, to our dedicated and influential readers around the world. The site was re-launched with a more robust look and feel just in time for epilepsy awareness month in November - [Epilepsy Blog Relay™: June 2016 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-june-2016-sponsors-partners) - SPONSORS & PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the June 2016 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Epilepsy Blog Relay™: March 2016 Sponsors and Partners](https://livingwellwithepilepsy.com/epilepsy-blog-relay/march-2016-sponsors-and-partners) - SPONSORS & PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness throughout the March 2016 Epilepsy Blog Relay™. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s - [Epilepsy Blog Relay™: Mar 2016 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-mar-2016-participants) - Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. - [Epilepsy Blog Relay™: Nov 2015 Participants](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-15-participants) - [Epilepsy Blog Relay™: November 2015 Sponsors](https://livingwellwithepilepsy.com/epilepsy-blog-relay/epilepsy-blog-relay-november-2015-sponsors) - SPONSORS & PARTNERS Thank you to all of our sponsors and media partners for their generosity and support in raising epilepsy awareness. Founding Sponsor Sunovion Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s spirit of innovation is driven by the - [Epilepsy Health Storylines](https://livingwellwithepilepsy.com/epilepsy-storylines) - [advanced_iframe securitykey="2342d39d4c3c324a36205f44ad319a354308cca2" src="https://healthstorylines.com/blog/?page_id=491" style="width: 100%; height:100%"; id="advanced_iframe" name="epilepsystorylines"] - [Epilepsy Stigma Blog Relay 2015](https://livingwellwithepilepsy.com/epilepsy-blog-relay-2015) - For the past few years, Living Well With Epilepsy has dedicated June as Epilepsy Stigma Awareness Month. This year 30 bloggers/advocates/family foundations/epilepsy affiliates will each post throughout June on the topic of epilepsy stigma. Follow the Relay The 30 influencers will cover epilepsy stigma in a variety of ways throughout the month of June. They - [Privacy Policy](https://livingwellwithepilepsy.com/privacy-and-disclosures) - Please know that the information posted on this blog is for information purposes only and is not medical advice. It is important that you speak to your doctor before making any changes to your nutrition or medications. Advertising Living Well With Epilepsy uses Google AdSense, Amazon Associates, individual advertisers and affiliate links to bring in - [Smile Gallery](https://livingwellwithepilepsy.com/smile-gallery) - 2014 Smiles to Fight Stigma In 2014 we kicked off the “Smiles to Fight Stigma” campaign. These people who are living with epilepsy are taking on epilepsy stigma with their bright shiny smiles. They are showing the world that this devastating disease will not stop them from reaching for their dreams. - [Donate](https://livingwellwithepilepsy.com/donate) - [dgx-donate] - [Epilepsy Clinical Trials](https://livingwellwithepilepsy.com/epilepsy-clinical-trials) - Many readers have asked for up to date, easy to find, information on epilepsy clinical trials. I'm happy to provide you with a one click solution to the most current clinical trial resource available below. The National Institutes of Health have not yet created a widget to pull in current information from the site clinicaltrials.gov, - [Write for Living Well With Epilepsy](https://livingwellwithepilepsy.com/write-living-well-epilepsy) - [My Account](https://livingwellwithepilepsy.com/my-account) - [woocommerce_my_account] - [Picture a Cure for Epilepsy: Online Exhibit](https://livingwellwithepilepsy.com/epilepsy-online-exhibit) - A gallery of epilepsy Epilepsy is often an invisible condition. Yet, to those of us who live with it, treating the disorder is anything but invisible. In celebration of Purple Day 2014, Living Well With Epilepsy proudly launches the Picture a Cure for Epilepsy online exhibit. The photos Early in 2014, Living Well With Epilepsy - [Terms and Conditions](https://livingwellwithepilepsy.com/terms-conditions) - I, the Submitter, understand that by clicking on the "Submit" button, I represent that I have full authority to allow Living Well With Epilepsy ("The website") and Jessica Keenan Smith to use the image and caption on the website and in future publications to increase epilepsy awareness. As the Submitter I give permission to Living - [Sample Page](https://livingwellwithepilepsy.com/sample-page) - This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this: Hi there! I'm a bike messenger - [People of Color](https://livingwellwithepilepsy.com/people-of-color) - According to the Epilepsy Foundation, 12 percent or more than 350,000 of the over 3 million Americans with epilepsy are African-American. African-Americans are also more likely to be diagnosed with epilepsy than Caucasians; they more often experience status epilepticus; and they are at an increased risk for Sudden Unexpected Death from Epilepsy (SUDEP). Web resource - [Seniors](https://livingwellwithepilepsy.com/seniors) - It is now known that epilepsy currently affects about 300,000 seniors nationwide. Having epilepsy at any age, let alone in your sixties, seventies or eighties, takes some getting used to. It is vital that you keep a positive attitude after being diagnosed. General Guidelines How to Diagnose Epilepsy and Seniors Living With Epilepsy - [Veterans](https://livingwellwithepilepsy.com/veterans) - It is not uncommon for military veterans to develop a form of epilepsy known as Post-Traumatic Epilepsy (PTE). It is important to know that you are not alone and that there are many resources out there for you. Even the U.S. Department of Veteran Affairs (VA) has its own subdivision dedicated to veterans with epilepsy. - [Women](https://livingwellwithepilepsy.com/women) - It is estimated than about half of the patients with epilepsy are females. Epilepsy can be very different in women than in men. Women with epilepsy face special challenges, especially in the area of reproductive health. Generally, learning all you can about your condition can make dealing with it and getting on with living your - [Sita's Story](https://livingwellwithepilepsy.com/sitas-story) - I have been diagnosed as a person with Epilepsy for twelve years. When I was a kid, I was pretty much the poster child of someone who lived with well-controlled seizures. My seizures only occurred about twice a year, and even then they were in my sleep and the worst that would happen is that - [Speak Out](https://livingwellwithepilepsy.com/speak-out) - Your voice can be heard! By sharing your story, you are ensuring that the thousands of people who visit this website get to hear what you have to say. No experience, whether small or large, isn't worth sharing. So gather your ideas and tell us about your experiences: Share your story! Epilepsy Awareness Month! Put - [Stuart's Story](https://livingwellwithepilepsy.com/stuarts-story) - The following is taken from Beyond My Control, by Stuart Ross McCallum. At last! The morning of the 23rd of October 2003 finally arrived. It was a bleak, cold and chilly day and my first brain operation was scheduled to be performed at 8:00am. After a forty five minute drive, my wife Lisa and I - [SUDEP](https://livingwellwithepilepsy.com/sudep) - What is SUDEP? SUDEP stands for Sudden Unexpected Death in Epilepsy. While many people can enjoy a long life despite their epilepsy, sometimes it can be fatal. Some doctors do not even discuss this possibility with their patients because they think it will be too frightening, and because of this the importance of addressing SUDEP - [Surgical Options](https://livingwellwithepilepsy.com/surgical-options) - Why Surgery In the event that you do not respond to medication, don't feel defeated: brain surgery is a viable option. In fact, recent studies show that surgery shouldn't necessarily be a last resort option. Jerome Engel, Jr., MD, PhD, along with 13 other leaders in the field of Neurology have taken on the issue - [Surviving](https://livingwellwithepilepsy.com/surviving) - Managing the Threshold Be aware of what can trigger your seizures and take special care to avoid them! Making small changes to your lifestyle and forming some new habits can go a long way in helping you cope. Here are some tips: Staying Healthy Enjoy your meals; both the food and the company! Do you - [Epilepsy Stories Gallery](https://livingwellwithepilepsy.com/personal-stories/epilepsy-stories-gallery) - [Store](https://livingwellwithepilepsy.com/store) - Welcome to our online store! Feel free to browse around:[mp_store_navigation]Check out our most popular products:[mp_popular_products]Browse by category:[mp_list_categories]Browse by tag:[mp_tag_cloud] - [Secure Images](https://livingwellwithepilepsy.com/secure-images) - [image-store secure=1] - [Alternative Therapies](https://livingwellwithepilepsy.com/alternative-therapies) - People with epilepsy sometimes turn to alternative therapies if they find that the initial treatments they started on aren’t adequately managing their seizures. Or in some cases alternative therapies are used to mitigate side effects from anticonvulsant medications. Many people with epilepsy find that the use of alternative therapies helps to manage their epilepsy, although - [Caregivers and Loved Ones](https://livingwellwithepilepsy.com/caregivers-and-loved-ones) - Do you know someone with epilepsy and want to help him/her but don’t know how? The types of things that people with epilepsy find helpful can be as varied as the people themselves, but these are a few tips on how you can reach out and support your loved one: Ask questions. The more you - [Dealing with Stigma](https://livingwellwithepilepsy.com/dealing-with-stigma) - Overcoming the stigma associated with epilepsy can be especially difficult. Many people are simply not aware of epilepsy or what it means to have seizures. While negative attitudes can be incredibly hurtful and discouraging, there are actions you can take to help combat this stigma. Open the Subject Yourself By bringing up the topic yourself - [Epilepsy Diagnosis](https://livingwellwithepilepsy.com/diagnosis) - Does having a seizure mean you have epilepsy? Having a seizure does not necessarily mean that a person has epilepsy. It is only after a person has two or more seizures that he or she is considered for a diagnosis of epilepsy. This is determined through testing such as EEG, PET scan, or MRI. What - [Dietary Therapy](https://livingwellwithepilepsy.com/dietary-therapy) - Although anti-epileptic medications usually help to control seizures, some people find that these medicines aren’t as helpful as they initially hoped. Situations like this can be very frustrating for patients, families, and doctors. In order to further manage seizures, many people turn to the ketogenic diet, which can be used with or without other therapies - [Epilepsy First Aid](https://livingwellwithepilepsy.com/epilepsy-first-aid) - The Situation A few days ago my morning started off great. I hadn't spilled anything on myself, the car was running, and I was on time as I headed into work. But that changed when I got to the train station. I didn't notice people standing around at first. Mostly because I’m the least observant person I know. - [Finding a Treatment](https://livingwellwithepilepsy.com/finding-a-treatment) - Talk to your doctor After finding a doctor, you might think that you can now sit back and listen to his or her professional advice. While this may be tempting, please do not do this. Generally, you can have a great deal of trust in the treatment your doctor selects, but for those times when - [Athletes](https://livingwellwithepilepsy.com/athletes) - It may seem like mixing athletics with epilepsy is impossible, but it is possible and you can do it under the right circumstances. Just ask your doctor for advice. There have been numerous famous athletes who were diagnosed with epilepsy. Some of whom, such as Florence Joyner (AKA “Flo Jo”) even went on to win - [Kids](https://livingwellwithepilepsy.com/kids) - Children often have a difficult time understanding their epilepsy. They often have a lot of questions such as “What is epilepsy? Can my friends catch it? Why do I have seizures?” It is very important for them to realize that they are not alone and that there is help available for them. Epilepsy for Kids - [Men](https://livingwellwithepilepsy.com/men) - It is important to realize that epilepsy affects men just as much as it affects women. Although epilepsy-support associations usually see more females than males, there are plenty of resources out there specifically for men. Basic Tips Parenting Information for Men More Information - [Get Gear](https://livingwellwithepilepsy.com/55-2) - [Living with Epilepsy](https://livingwellwithepilepsy.com/living-with-epilepsy) - There are over 65 million people living with epilepsy at this moment. If you are one of these individuals or would simply like to learn more about living with this disorder, you have come to the right place. Here, I have aggregated information from experts, my own experience and a little bit of common sense - [Meghan's Story](https://livingwellwithepilepsy.com/meghans-story) - Tell us a bit about yourself and your epilepsy. I was diagnosed with epilepsy at the age of 21 after having a brain virus that infected a certain part of my brain. I guess it's pretty rare. I was studying in England and living with 7 other people, so lord knows there were probably all - [Morgan's Story](https://livingwellwithepilepsy.com/morgans-story) - When I was 15 months old, I had my first seizure. I had been sick and running a very high fever. According to my mom and my dad, I had a febrile seizure that lasted for 90 minutes. Three months later, I was hospitalized again due to another seizure. Originally, I was diagnosed with tuberous - [Dan's Story](https://livingwellwithepilepsy.com/dans-story) - On June 8, 1972, as I came into the world, I gave my parents the shock of a lifetime by seizing the moment. I went into fetal distress and the doctors took their good old time in taking me by C-section. For four days, I was in the hospital with all these crazy tubes and - [Locations](https://livingwellwithepilepsy.com/events/locations) - CONTENTS - [Categories](https://livingwellwithepilepsy.com/events/categories) - CONTENTS - [Tags](https://livingwellwithepilepsy.com/events/tags) - CONTENTS - [My Bookings](https://livingwellwithepilepsy.com/events/my-bookings) - CONTENTS - [Image Store](https://livingwellwithepilepsy.com/image-store) - [image-store] - [Epilepsy Creative](https://livingwellwithepilepsy.com/epilepsy-creative) - What is Epilepsy Creative? Epilepsy Creative is a new project through Living Well With Epilepsy. This project, now in its pilot phase, will showcase the creative endeavors of people with epilepsy. Our pilot phase showcases images created by Jessica Smith, a woman with epilepsy. How do I purchase a print? Double click on an image ## Sponsors - [Epilepsy Wellness](https://livingwellwithepilepsy.com/partners/epilepsy-wellness) - Epilepsy Wellness Advocates (EWA), founded by Charles L. Shor, is a research-informed organization focused on improving the quality of life for people living with epilepsy - [Biohaven](https://livingwellwithepilepsy.com/partners/biohaven) - Biohaven® is a biopharmaceutical company focused on the discovery, development and commercialization of life-changing treatments in key therapeutic areas - [SK Life Science, Inc.](https://livingwellwithepilepsy.com/partners/sklifescience) - About SK: SK Life Science, Inc., the U.S. subsidiary of SK Biopharmaceuticals, is an innovative global pharmaceutical company focused on the research, development and treatment of central nervous system (CNS) disorders. The company has a pipeline of eight compounds in development for CNS disorders. For more information about SK life science, please visit us at, - [Neurelis](https://livingwellwithepilepsy.com/partners/neurelis) - OUR PASSION IS PROGRESS™ Neurelis is an innovation-driven neuroscience company that provides a differentiated approach to target unmet medical needs. Our application of novel technologies is designed to enhance therapeutic benefit and patient care. https://www.neurelis.com/ - [CURE](https://livingwellwithepilepsy.com/partners/cure) - Citizens United for Research in Epilepsy (CURE) is the leading non-governmental agency fully committed to finding a cure for epilepsy by promoting and funding patient-focused research. Since 1998, CURE has raised over $60 million and awarded over 230 cutting-edge research grants in 15 countries. To learn more, visit www.CUREepilepsy.org. - [Danny Did Foundation](https://livingwellwithepilepsy.com/partners/danny-did-foundation) - Founded by Chicagoans Mike and Mariann Stanton in January 2010 after the death of their four-year-old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical - [Eisai](https://livingwellwithepilepsy.com/partners/eisai) - At Eisai Inc., human health care (hhc) is our goal. We give our first thoughts to patients and their families, and helping to increase the benefits health care provides. As the U.S. pharmaceutical subsidiary of Tokyo-based Eisai Co., Ltd., we have a passionate commitment to patient care that is the driving force behind our efforts to discover - [Sunovion](https://livingwellwithepilepsy.com/partners/sunovion) - Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s spirit of innovation is driven by the conviction that scientific excellence paired with meaningful advocacy and relevant education can improve lives. The Company has charted new paths to life-transforming treatments that reflect ## Landing Pages by MailMunch - [Course Waitlist](https://livingwellwithepilepsy.com/course-waitlist) - Join the waitlist for our course designed to walk you through the basics of Dialectic Behavioral Therapy (DBT) and how the skills can be applied to epilepsy. ## Staff - [Writers around the World](https://livingwellwithepilepsy.com/staff/locations-2) - Writers from around the world contribute to Living Well With Epilepsy. - [Landis Wiedner, Editor and Writer](https://livingwellwithepilepsy.com/staff/landis-wiedner-editor-and-writer) - Landis brings a humorous perspective to life with epilepsy. Diagnosed at 32 years old, she sheds light and laughs on managing a new life with seizures. A Chicago-based writer, Landis strives to create a touchstone for the chronically ill and those who support them. She is currently working on her funny memoir, My Brain Tumor's Boyfriend. - [Emily Donoghue, Writer](https://livingwellwithepilepsy.com/staff/emily-donoghue) - Emily's Perspective is a snapshot of what life is like for a young woman living with Epilepsy and seizures. I was diagnosed with Epilepsy during my last year of primary school in 2006. It has been a challenge but it's made me who I am. Based in UK. - [Jessica Keenan Smith, Founder](https://livingwellwithepilepsy.com/staff/jessica-keenan-smith) - As Founder and Editor-in-Chief of Living Well With Epilepsy, Jessica brings a unique perspective to this leading epilepsy blog. She was diagnosed with epilepsy as a teen, after having several grand mal seizures. She has 20+ years experience in marketing. You can find her on Twitter, Facebook, and Instagram. Jessica also regularly speaks on the - [Leila Zorzie, Writer](https://livingwellwithepilepsy.com/staff/leila-zorzie) - Leila’s Ideas focuses on stigma and epilepsy by blending social perspectives with her own experience. Leila is a 20-something whose hobbies include dancing, trying new restaurants, and singing. She was diagnosed with Epilepsy at age 8 and continues to be controlled on medication. Based in PA. - [Abby Gustus-Alford, Writer](https://livingwellwithepilepsy.com/staff/abby-gustus-alford-writer) - Abby Gustus Alford was diagnosed with epilepsy at the age of 12 after having multiple grand mal seizures over a six-month period. With a B.A. in Mass Communications from Purdue, and a Master’s in Journalism from Northwestern University, Abby works in commercial real estate industry, but spends all of her extra time getting healthy and - [Rachel Ehrhardt, Writer](https://livingwellwithepilepsy.com/staff/rachel-ehrhardt-writer) - I come from a family of four and three of us each have a different form of Epilepsy. I started my advocacy life at sixteen being the first group of high school students asked by the Epilepsy Foundation to participate in Kids Speak Up in Washington D.C. to educate congress and legislators on Epilepsy about - [Maureen Knorr, Writer](https://livingwellwithepilepsy.com/staff/maureen-knorr) - Traveling with Epilepsy is a sometimes fun, sometimes scary, authentic look at what worldwide travel is really like when you live with epilepsy. Maureen Knorr has opened her suitcase to share her experiences with you. From having seizures in foreign countries to begging pharmacists that don’t speak English for medication, you will join her on ## Categories - [News and Research](https://livingwellwithepilepsy.com/epilepsy-news-and-research) - [Jessica's Posts](https://livingwellwithepilepsy.com/epilepsy-stories/jessicas-posts) - [Epilepsy Stories](https://livingwellwithepilepsy.com/epilepsy-stories) - Epilepsy stories from around the world. - [Guest Posts](https://livingwellwithepilepsy.com/epilepsy-stories/guest-posts) - [Downloads](https://livingwellwithepilepsy.com/shop/downloads) - [Emily's Perspective](https://livingwellwithepilepsy.com/epilepsy-stories/emilys-perspective) - [Leila's Ideas](https://livingwellwithepilepsy.com/epilepsy-stories/leilas-ideas) - [Epilepsy Blog Relay](https://livingwellwithepilepsy.com/epilepsy-blog-relay) - Living Well With Epilepsy's, Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. - [Nov 15 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-15-ebr-posts) - [Mar 16 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-16-ebr-posts) - [Fitness](https://livingwellwithepilepsy.com/life-with-epilepsy/fitness) - [Jun 16 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-16-ebr-posts) - [Nov 16 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-16-ebr-posts) - [Mar 17 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-17-ebr-posts) - [Jun 17 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-17-ebr-posts) - [About Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy) - In-depth information on epilepsy diagnosis, seizure types, medications, rescue treatments, and living with epilepsy curated by Jessica K. Smith since 2009. - [Family](https://livingwellwithepilepsy.com/life-with-epilepsy/family) - [Food](https://livingwellwithepilepsy.com/life-with-epilepsy/food) - [Life With Epilepsy](https://livingwellwithepilepsy.com/life-with-epilepsy) - [Events and Initiatives](https://livingwellwithepilepsy.com/advocacy-awareness/events-initaitives) - [About Us](https://livingwellwithepilepsy.com/aboutus-lwwe) - [Healthcare](https://livingwellwithepilepsy.com/advocacy-awareness/healthcare) - [Pregnancy](https://livingwellwithepilepsy.com/women-epilepsy/pregnancy) - [School](https://livingwellwithepilepsy.com/life-with-epilepsy/school) - [Newly Diagnosed](https://livingwellwithepilepsy.com/aboutepilepsy/newlydiagnosed) - [Camp](https://livingwellwithepilepsy.com/life-with-epilepsy/camp) - [Caregiving](https://livingwellwithepilepsy.com/life-with-epilepsy/caregiving) - [Work](https://livingwellwithepilepsy.com/life-with-epilepsy/work) - [Travel](https://livingwellwithepilepsy.com/life-with-epilepsy/travel) - [Ketogenic Diet](https://livingwellwithepilepsy.com/aboutepilepsy/treatments/ketogenicdiet) - [Nov 17 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-17-ebr-posts) - [Seizure Triggers](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-triggers) - [Treatments](https://livingwellwithepilepsy.com/aboutepilepsy/treatments) - [Relationships](https://livingwellwithepilepsy.com/life-with-epilepsy/relationships) - [Sunovion](https://livingwellwithepilepsy.com/partner/sunovion) - Sunovion is a global biopharmaceutical company focused on the innovative application of science and medicine to help people with serious medical conditions. Sunovion’s spirit of innovation is driven by the conviction that scientific excellence paired with meaningful advocacy and relevant education can improve lives. READ MORE - [Mar 18 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-18-ebr-posts) - [Autism and Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/autism-and-epilepsy) - [Partner](https://livingwellwithepilepsy.com/partner) - [Lundbeck](https://livingwellwithepilepsy.com/partner/lundbeck) - [SUDEP](https://livingwellwithepilepsy.com/aboutepilepsy/sudep) - Sudden Unexplained Death in Epilepsy (SUDEP), refers to the unexpected death of an otherwise healthy person with epilepsy, where no cause of death can been found. - [Mothers Day](https://livingwellwithepilepsy.com/women-epilepsy/mothers-day) - [Jun 18 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-18-ebr-posts) - [Side Effects](https://livingwellwithepilepsy.com/aboutepilepsy/side-effects) - [Cerebral Palsy and Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/cerebral-palsy-and-epilepsy) - [Stigma](https://livingwellwithepilepsy.com/aboutepilepsy/stigma) - [Fathers Day](https://livingwellwithepilepsy.com/life-with-epilepsy/fathers-day) - [Rare Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/rare-epilepsy) - [Photosensitive Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/photosensitive-epilepsy) - [Epilepsy First Aid](https://livingwellwithepilepsy.com/aboutepilepsy/epilepsy-first-aid) - [Temporal Lobe Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/temporal-lobe-epilepsy) - [Nov 18 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-18-ebr-posts) - [Mar 19 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-19-ebr-posts) - [New Years Resolutions](https://livingwellwithepilepsy.com/life-with-epilepsy/new-years-resolutions) - [Neurobiology](https://livingwellwithepilepsy.com/epilepsy-news-and-research/neurobiology) - [International Epilepsy](https://livingwellwithepilepsy.com/advocacy-awareness/international-epilepsy) - [Absence Seizures](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/absence-seizures) - [Grand Mal / Tonic Clonic](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/grand-mal-tonic-clonic) - [Dravet Syndrome](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/dravet-syndrome) - [Jun 19 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-19-ebr-posts) - [Brain Tumor and Epilepsy](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/brain-tumor-and-epilepsy) - [Nov 19 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-19-ebr-posts) - [Advocacy and Awareness](https://livingwellwithepilepsy.com/advocacy-awareness) - [Service Dogs](https://livingwellwithepilepsy.com/life-with-epilepsy/service-dogs) - [Mar 20 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-20-ebr-posts) - [Epilepsy Research](https://livingwellwithepilepsy.com/epilepsy-news-and-research/epilepsy-research) - [Nov 20 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-20-ebr-posts) - [Sleep](https://livingwellwithepilepsy.com/aboutepilepsy/sleep) - [SKLifeScience](https://livingwellwithepilepsy.com/partner/sklifescience) - [Mar 21 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-21-ebr-posts) - [Jun 21 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-21-ebr-posts) - [Shop](https://livingwellwithepilepsy.com/shop) - [Nov 21 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-21-ebr-posts) - [Resources](https://livingwellwithepilepsy.com/aboutepilepsy/resources) - [Apr 22 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/apr-22-ebr-posts) - [Jun 22 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/jun-22-ebr-posts) - [Auras](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/auras) - [Nov 22 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/nov-22-ebr-posts) - [podcast](https://livingwellwithepilepsy.com/epilepsy-news-and-research/podcast) - [Mar 23 EBR Posts](https://livingwellwithepilepsy.com/epilepsy-blog-relay/mar-23-ebr-posts) - [Epilepsy Coach](https://livingwellwithepilepsy.com/epilepsy-coach) - [Rescue Medication](https://livingwellwithepilepsy.com/aboutepilepsy/rescue-medication) - [Women and Epilepsy](https://livingwellwithepilepsy.com/women-epilepsy) - [Mental Health](https://livingwellwithepilepsy.com/life-with-epilepsy/mentalhealth) - [Epilepsy Wellness](https://livingwellwithepilepsy.com/life-with-epilepsy/epilepsy-wellness) - [Newsletter](https://livingwellwithepilepsy.com/epilepsy-news-and-research/newsletter) - Living Well With Epilepsy’s newsletter - [Seizure Types and Syndromes](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes) - [Focal Seizures](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-types-syndromes/focal-seizures) - Focal or partial seizures - [Seizure Action Plans](https://livingwellwithepilepsy.com/aboutepilepsy/seizure-action-plans) ## Portfolio Type - [Smiles to Fight Stigma](https://livingwellwithepilepsy.com/portfolio-type/smiles-to-fight-stigma) - [Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/epilepsy-blog-relay) - [Nov 2015 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/nov-2015-epilepsy-blog-relay) - [Nov 2015 EBR Week 1](https://livingwellwithepilepsy.com/portfolio-type/nov-2015-ebr-week-1) - [Nov 2015 EBR Week 2](https://livingwellwithepilepsy.com/portfolio-type/nov-2015-ebr-week-2) - [Nov 2015 EBR Week 3](https://livingwellwithepilepsy.com/portfolio-type/nov-2015-ebr-week-3) - [Nov 2015 EBR Week 4](https://livingwellwithepilepsy.com/portfolio-type/nov-2015-ebr-week-4) - [Mar 2016 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/mar-2016-epilepsy-blog-relay) - [Mar 2016 EBR Week 1](https://livingwellwithepilepsy.com/portfolio-type/mar-2016-ebr-week-1) - [Mar 2016 EBR Week 2](https://livingwellwithepilepsy.com/portfolio-type/mar-2016-ebr-week-2) - [Mar 2016 EBR Week 3](https://livingwellwithepilepsy.com/portfolio-type/mar-2016-ebr-week-3) - [Mar 2016 EBR Week 4](https://livingwellwithepilepsy.com/portfolio-type/mar-2016-ebr-week-4) - [June 2016 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/june-2016-epilepsy-blog-relay) - [June 2016 Week 1](https://livingwellwithepilepsy.com/portfolio-type/june-2016-week-1) - [June 2016 Week 2](https://livingwellwithepilepsy.com/portfolio-type/june-2016-week-2) - [June 2016 Week 3](https://livingwellwithepilepsy.com/portfolio-type/june-2016-week-3) - [June 2016 Week 4](https://livingwellwithepilepsy.com/portfolio-type/june-2016-week-4) - [Nov 2016 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/nov-2016-epilepsy-blog-relay) - [Nov 2016 Week 1](https://livingwellwithepilepsy.com/portfolio-type/nov-2016-week-1) - [Nov 2016 Week 2](https://livingwellwithepilepsy.com/portfolio-type/nov-2016-week-2) - [Nov 2016 Week 3](https://livingwellwithepilepsy.com/portfolio-type/nov-2016-week-3) - [Nov 2016 Week 4](https://livingwellwithepilepsy.com/portfolio-type/nov-2016-week-4) - [March 2017 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/march-2017-epilepsy-blog-relay) - [Mar 2017 EBR Week 1](https://livingwellwithepilepsy.com/portfolio-type/mar-2017-ebr-week-1) - [Mar 2017 EBR Week 2](https://livingwellwithepilepsy.com/portfolio-type/mar-2017-ebr-week-2) - [Mar 2017 EBR Week 3](https://livingwellwithepilepsy.com/portfolio-type/mar-2017-ebr-week-3) - [Mar 2017 EBR Week 4](https://livingwellwithepilepsy.com/portfolio-type/mar-2017-ebr-week-4) - [June 2017 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/june-2017-epilepsy-blog-relay) - [Jun 2017 EBR Week 1](https://livingwellwithepilepsy.com/portfolio-type/jun-2017-ebr-week-1) - [Jun 2017 EBR Week 2](https://livingwellwithepilepsy.com/portfolio-type/jun-2017-ebr-week-2) - [Jun 2017 EBR Week 3](https://livingwellwithepilepsy.com/portfolio-type/jun-2017-ebr-week-3) - [Jun 2017 EBR Week 4](https://livingwellwithepilepsy.com/portfolio-type/jun-2017-ebr-week-4) - [June 2018 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/june-2018-ebr) - [wk1](https://livingwellwithepilepsy.com/portfolio-type/wk1) - [wk2](https://livingwellwithepilepsy.com/portfolio-type/wk2) - [wk3](https://livingwellwithepilepsy.com/portfolio-type/wk3) - [wk4](https://livingwellwithepilepsy.com/portfolio-type/wk4) - [Nov 2018 Epilepsy Blog Relay](https://livingwellwithepilepsy.com/portfolio-type/nov-2018-ebr) - [wk1](https://livingwellwithepilepsy.com/portfolio-type/wk1-nov-2018-ebr) - [wk2](https://livingwellwithepilepsy.com/portfolio-type/wk2-nov-2018-ebr) - [wk3](https://livingwellwithepilepsy.com/portfolio-type/wk3-nov-2018-ebr) - [wk4](https://livingwellwithepilepsy.com/portfolio-type/wk4-nov-2018-ebr) ## Staff Group - [Staff](https://livingwellwithepilepsy.com/staff-group/staff) - [Writers](https://livingwellwithepilepsy.com/staff-group/writers)