The Trabasack: Making life with epilepsy easier

Duncan Edwards, Director of Equip-able, Ltd, his wife Clare, have a child with Dravet’s Syndrome. When their son was young, they worried he would injure himself in his stroller on the heavy plastic tray. So Clare, in looking for a functional lap tray that would also stay put on her wheelchair, ended up creating the first Trabasack on her sewing machine.

Seizure jokes aren’t funny

I just watched Beyoncé strut her stuff during the SuperBowl Halftime Show. The show was full of so many strobes that the Twitterverse was a-buzz with snarky comments about seizures. I now have a headache after watching the show. But I have to say the headache is more from the comments on Twitter … Read More

An Epilepsy Story: Living with TLE

Morgan Morgan’s StoryWhen I was 15 months old, I had my first seizure. I had been sick and running a very high fever. According to my mom and my dad, I had a febrile seizure that lasted for 90 minutes. Three months later, I was hospitalized again due to another seizure. Originally, … Read More

An inside look at Steve Wynn and Joey’s Song

 Steve Wynn  In March of 2010, Michael Gomoll lost his son suddenly to Dravet’s Syndrome, a rare form of epilepsy. Gomoll then established The Joseph Gomoll Foundation to honor his son, and began preparing for the release of the Joey’s Song project. One of the leading supporters in the Joey’s Song … Read More

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