Epilepsy Blog Relay: Henry’s Fight with Dravet Syndrome
Henry at about 1 year old, started having seizures again but this time there was no fever. Our lives just changed forever. … Read More
Epilepsy Blog Relay: The temporal lobe epilepsy (TLE) experience
Nancy remembers how her temporal lobe epilepsy (TLE) seizures always began with a feeling of deja vu and a sensation of falling.… Read More
Epilepsy Blog Relay: Elaine uses poetry to cope with adversity and a life with TLE
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Elaine’s Story I was diagnosed with epilepsy at age four. At that time, early 1960s, one of the few medications available for epilepsy was phenobarbital. Concerned about negative side effects for … Read More
Epilepsy Blog Relay: Déjà Vu and temporal lobe epilepsy in real life
At 29, I began to experience mysterious episodes of déjà vu followed by nausea and exhaustion. It took doctors 5 yrs and a tonic clonic seizure to diagnose these episodes as epilepsy.… Read More
Epilepsy Blog Relay: My Grandmother and PCDH19 Epilepsy
Francesca’s Story: I have a type of epilepsy that was inherited from my mother’s mother. My grandmother was born with PCDH19 epilepsy.… Read More
Epilepsy Blog Relay: Andrea prepares for a tour with her band Motion Device
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Andrea’s story When people see Andrea Menoudakis, whether it’s in a Youtube video or on stage with her rock band Motion Device, for the most part they will see one thing … Read More
Epilepsy Blog Relay: How running and a keto lifestyle keeps seizures at bay
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Brodi’s Story Epilepsy should be a four-letter word, or so I thought. I have lived with epilepsy since I was three years old, and while my episodes have certainly frustrated and … Read More
Epilepsy Blog Relay: Alison is shedding a little light on epilepsy
Here’s to the caregivers for people with epilepsy! Here’s to those who live with us, take us to the hospital, and love us any which way they can. And here’s to that selfless love. It gets us through all that life has thrown at us.… Read More