Cassie’s Story: Living with Juvenile Myoclonic Epilepsy
The journey since my diagnosis of Juvenile Myoclonic Epilepsy has made life precious in a way not everybody gets to experience.
Anonymous Story: It’s the not knowing that scares me
One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened???
Becky’s Story: Seizure Control with Diet
This personal story was submitted to Living Well With Epilepsy by Becky L. on her experience with the Ketogenic Diet. I had “dizzy spells” for as long as I can remember but didn’t know what they were. In my early twenties I had one, but this time it involved a large lapse … Read More
Anonymous Story: Seizureless in Seattle
Seizures have been a part of my life for 15 of my 34 years. Initially medication was able to control them. However at the age of 31 things changed. I had to give up driving & my teaching career. Thanks to brain surgery I have been seizure-free for a year.
Sophie’s Story: A teen experience with seizures
I’m seventeen, living in Geneva, Switzerland, and this is my experience. I was diagnosed with epilepsy in sixth grade after having a grand mal seizure in class. That was a pretty scary time for everyone, especially my family. We had no way of predicting that I would have epilepsy. We had no … Read More
Charles’ Story: Complex Partial and Simple Partial Seizures
Charles’ Story: 50 years of living with complex partial and simple partial seizures At the age of 50 years old, I currently live with complex partial and simple partial seizures. My family relocated from Florida to Ohio when I was 3 years old. That same year, I had an appendectomy whereby medical … Read More
Irish and Lucky: an anonymous epilepsy story of hope
The following epilepsy story was sent in anonymously. This person, after 48 years of living with epilepsy, has found a way to see a glimmer of hope. Check out this story. Hi, all! I am a lifelong epileptic, having been diagnosed as a child at the age of 7. I did not … Read More
Kathleen’s Story: Pregnancy and Epilepsy
Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More