Epilepsy Blog Relay: The constant fear of SUDEP

This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I … Read More

Loss from Epilepsy: Traditions can be altered

Our world revolved around seizures; therefore, many of our family “traditions” were altered.  Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives.  This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized.  As time progressed, though, we learned … Read More

Sudden unexplained deaths in epilepsy

This article was originally published in 2010. As of December 2013 estimates of SUDEP, are closer to a range of 5.5% – 18%.   What is SUDEP? According to the Danny Did Foundation, Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where … Read More