Where does research money go when it isn’t put toward epilepsy? Obviously in these trying economic times those dollars are spread thin. But I thought it would be interesting to look at which areas are benefitting most. NIH released a report in February providing a detailed account of which diseases and conditions … Read More
In a much talked about biography of Emily Dickinson, Lives Like Loaded Guns, Lyndall Gordon poses the question, “Did Emily Dickinson have epilepsy?” According to Gordon, a senior research fellow at St. Hilda’s College, Oxford, Dickinson is both ambivalent and truthful about what she calls her sickness. Gordon says, “Her handicap or … Read More
This article was originally published in 2010. As of December 2013 estimates of SUDEP, are closer to a range of 5.5% – 18%. What is SUDEP? According to the Danny Did Foundation, Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where … Read More
This week the Philadelphia contingent of SheWrites marked the first birthday of SheWrites.com. It was a small group with diverse writing interests. The event began with introductions and connections. As the conversation progressed we found that there were ways we could help each other in our business, writing process, strategy and creative … Read More
On June 29, She Writes, the largest community and resource for women writers online, will celebrate its one-year anniversary. Since the launch of She Writes, with 40 founding “alpha” members, including Amy Sohn, Hope Edelman, Katha Pollitt, Gretchen Rubin, and Alix Kates Shulman, growth has been explosive. The site now boasts nearly … Read More
There are apps to find the best restaurant or to find you when you’re lost, but an app for epilepsy? Now that just blows my mind. In a two second Google search, I found links to information on at least three apps relating to epilepsy. Here’s what I found: First, there’s the … Read More
A friend said to me, “I can’t wait to learn more about who has epilepsy when I check out your blog.” GULP. I realized I didn’t have information on who has epilepsy on my blog. In response to that perfectly reasonable request, I have created a page called “Epilepsy by the Numbers.” … Read More
I’m back from Book Expo America, and yes, I left NYC in a MegaBus weighed down with books and swag (mostly books). The experience was great and I will happily take on the Javits Center again next year. My favorite quote from the show was said during the Editor Buzz session when … Read More