Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.
Living Well With Epilepsy’s, Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. Thanks as always to our generous sponsors and partners!
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.
After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She’s now a year seizure free!
Caroline has found that managing her epilepsy has allowed her to be true to herself and focus on the creative work she is passionate about.
Amanda’s passion has always been to be a writer, and more specifically a journalist. She shares her adventures and stressors when dealing with her epilepsy as this soon to be graduate searches for hope.
5 things my cancer diagnosis taught me about how to live better with epilepsy.
If Epilepsy has taught me anything, it’s that changing my goals is not failing. I had an absence seizure while driving on the freeway. I am more hopeful because my best friend Emily loves me despite the accident.
Early on, Soo’s family would not use the word epilepsy in their home. Now, she is an advocate and makes the most of her local epilepsy support group.
Amber shares her story of brain surgery and brain tumor related epilepsy. She shares her struggle to find hope and create a life despite her challenges.