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Jun 22 EBR Posts

Home » Epilepsy Blog » Epilepsy Blog Relay » Jun 22 EBR Posts
Kenzie O'Connell
17 Jun 2022

Pro Golfer Kenzie Oโ€™Connell On Taking Control of Her Epilepsy and Fighting for Zero Seizures

by Jessica K. Smith |

STEPS Toward Zero champion, Kenzie Oโ€™Connell, and epilepsy advocate, Landis Wiedner, share about their experiences living with and managing epilepsy

Alyrical
16 Jun 2022

Epilepsy Blog Relay: Pregnancy, epilepsy and finding gratitude

by Alyrical |

Stephanie shares her experience with epilepsy, pregnancy and finding gratitude through it all.

brain surgery, focal epilepsy, Pregnancy, tonic clonic
15 Jun 2022

Epilepsy Blog Relay: I’m tired of fighting within the epilepsy community

by Jessica K. Smith |

Frankly I’m tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work.

epilepsy community
Are you ever embarrassed by your epilepsy?
14 Jun 2022

Epilepsy Blog Relay: Epilepsy Stigma in Teens and Adults

by Jessica K. Smith |

We’ve taken a close look at epilepsy stigma and wanted to share the similarities and differences in how teens and adults respond to epilepsy stigma in real life

epilepsy stigma
11 Jun 2022

Epilepsy Blog Relay: Taking on Imposter Syndrome and Epilepsy

by Jamie Wissinger |

Currently, Jamie is feeling a sense of imposter syndrome when it comes to her epilepsy. She’s come up with a few ways to tackle it.

imposter syndrome, seizure freedom
Alison Kukla
10 Jun 2022

Epilepsy Blog Relay: Epilepsy and planning a family

by Alison Kukla |

Alison and husband Preston have talked about planning a family but they knew her epilepsy would mean taking some extra steps. Here she shares their journey.

epilepsy and pregnancy, family planning, Pregnancy, pregnancy and epilepsy, seizures and pregnancy
9 Jun 2022

Epilepsy Blog Relay: My beef with SUDEP Research

by Jessica K. Smith |

Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.

SUDEP, SUDEP Research
laura
8 Jun 2022

Epilepsy Blog Relay: New epilepsy diagnosis after seven years

by Guest Contributor |

After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She’s now a year seizure free!

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Epilepsy News

Role of single gene linked to epilepsy, autism identified: Study
June 29, 2022 - Hindustan Times
Role of single gene linked to epilepsy, autism identified: Study
Backing calls for a neuro taskforce
June 29, 2022 - Simon Woodings
Backing calls for 
a neuro taskforce
Is it safe for a person with epilepsy to get a tattoo?
June 29, 2022 - medicalnewstoday.com
Is it safe for a person with epilepsy to get a tattoo?
Neurona Therapeutics Announces Initial Subject Dosed in First Clinical Trial of Regenerative Human Cell Therapy, NRTX-1001, in Adults with Drug-Resistant Focal Epilepsy
June 29, 2022 - Neurona Therapeutics
Neurona Therapeutics Announces Initial Subject Dosed in First Clinical Trial of Regenerative Human Cell Therapy, NRTX-1001, in Adults with Drug-Resistant Focal Epilepsy
Graybug seeks alternative options for eye drugs; RA-backed epilepsy outfit secures $40M Series C
June 28, 2022 - Kyle LaHucik,Tyler Patchen,Paul Schloesser
Graybug seeks alternative options for eye drugs; RA-backed epilepsy outfit secures $40M Series C

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