Epilepsy Blog Relay: Leila on PAME and SUDEP
Leila attended her first PAME conference and found it was a meaningful way to connect with others in the epilepsy community to discuss SUDEP.
Epilepsy Blog Relay: Emily on Smart Monitoring her epilepsy and seizure alert systems
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More
Epilepsy Blog Relay: The constant fear of SUDEP
This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I … Read More
Epilepsy Blog Relay™: Using Tech to Improve life with Epilepsy
Having both epilepsy and cerebral palsy, Colleen’s life began with so much uncertainty. As she’s gotten older, tech has played a key role in our life.
Tell the world: #IAMSUDEPAWARE
Tell the world about SUDEP Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23. In fact, each year an estimated 1 in … Read More
Loss from Epilepsy: Shelby finds signs of Clay everywhere
I am a firm believer in signs, not the type that are physically positioned throughout our daily lives, but those that are spiritually given to us when we need them most.
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind.
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.