Epilepsy Blog Relay™: Using Tech to Improve life with Epilepsy
Having both epilepsy and cerebral palsy, Colleen’s life began with so much uncertainty. As she’s gotten older, tech has played a key role in our life.
Tell the world: #IAMSUDEPAWARE
Tell the world about SUDEP Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23. In fact, each year an estimated 1 in … Read More
Loss from Epilepsy: Shelby finds signs of Clay everywhere
I am a firm believer in signs, not the type that are physically positioned throughout our daily lives, but those that are spiritually given to us when we need them most.
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind.
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.
Sudden unexplained deaths in epilepsy
This article was originally published in 2010. As of December 2013 estimates of SUDEP, are closer to a range of 5.5% – 18%. What is SUDEP? According to the Danny Did Foundation, Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where … Read More