Epilepsy Stigma: Why Leila is tackling this obstacle in her own way
Epilepsy stigma is a societal problem. Addressing people one-by-one is helpful, and I hope they teach others what they have just learned.… Read More
Meet Shelby: Connecting on loss from epilepsy
Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story.… Read More
Emily’s Perspective: The effects of epilepsy on the whole body
A diagnosis of epilepsy means that you have recurring seizures. It is important to remember that the effects of epilepsy can be felt throughout the body. … Read More
The Bhutan Epilepsy Project
Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project.… Read More
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind. … Read More
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.… Read More
Ever had to change medications to reduce side effects?
Ask an Epileptic: “It’s time for me to change medications to reduce the side effects. Have any advice?” DEAR EPILEPTIC: I have a question regarding the transition to a new medication. I have been taking Lamictal for over 10 years and I’m tired of the side effects. Memory loss, inability to focus … Read More
An interview with CURE Grantee, Dr. Hiroki Taniguchi
Dr. Hiroki Taniguchi, CURE grantee and a research group leader with the Max Planck Florida Institute for Neuroscience (MFPI), was recently awarded $100,000 by Citizens United for Research in Epilepsy (CURE) for his efforts to study cellular structures seeking to identify pathways for treatments or cures for epilepsy. Dr. Taniguchi has generously … Read More