Epilepsy Blog Relay™: How a diagnosis of LGS connected one family to an entire community

This post was written by Elizabeth Terry, a historian and author in St. Louis, and mom to Spencer who has Lennox-Gastaut Syndrome (LGS). Living Well With Epilepsy is grateful to Lundbeck, a Sponsor of the November 2015 Epilepsy Blog Relay™. I remember my husband and I whispering to each other, “Is this … Read More

Loss from Epilepsy: Traditions can be altered

Our world revolved around seizures; therefore, many of our family “traditions” were altered.  Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives.  This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized.  As time progressed, though, we learned … Read More

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