Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.
A global pandemic has forced hospitals to send providers and patients home for quarantines. Will telemedicine be a solution to help care for the chronically ill?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.
Regardless of who you’re working with to manage your epilepsy, open and honest communication with your healthcare team is a priority.
Medication “adherence is a crucial part of the journey toward seizure freedom, but for many people with epilepsy, taking their medications on schedule can be very difficult,” said Lucretia Long, APRN-CNP, Ohio State University Wexner Medical Center
This post is part of the Epilepsy Blog Relay™. Leonieke’s Story When I was 9 my dream of joining the navy was crushed. I was told that I’d probably never be able to drive. I was also told if I wanted to have kids I’d need to consult my neuro at least 1 year before. … Read More
Alice’s seizures often occur in clusters. She’s struggled to find information on other adult’s experiences with rescue medications. So she has shared her own experience here.
The “Seize the Truth About Epilepsy Perceptions” (STEP) Survey was conducted online on behalf of SK Life Science, Inc. The results revealed important disconnects that exist between patients, caregivers and healthcare providers (HCPs).