Epilepsy and Pregnancy – what to expect
Abby gets honest about her own epilepsy and pregnancy. She wants women to know what to expect when they head into pregnancy with epilepsy.
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Clair and daughter Riley give tips on epilepsy first aid
Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don’t miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with kids.
My Continued Journey Toward Seizure Freedom
Mary Kate shares her personal experience with XCOPRI®: “I experienced fewer seizures. I went from having multiple seizures a day to having only a handful in a three-month period.”
Special Needs Parenting: When it’s okay to be a helicopter parent
Jennifer shares that sometimes being a helicopter parent is just being a good parent.
4 Common Epilepsy Side Effects and Tips on How to Deal with Them
Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how I have dealt with these side effects, and my solutions may not work for you. Also, some … Read More
3 tips for taking back your independence without a drivers license
Maureen shares practical tips on how to take back your independence when you don’t have a license.
4 Tips to help you track seizures
Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey.